access

OIPO Disability Abstracts: Gaming

Updated 4/28/2025

Anderson, S. L. (2017). The corporeal turn: At the intersection of rhetoric, bodies, and video games. Review of Communication, 17(1), 18-36. DOI: https://doi.org/10.1080/15358593.2016.1260762.

Through a critical literature review, this article examines the trend in game studies toward studying bodies, both of players and of characters, in communication scholarship. Specifically, first I discuss how the field of rhetoric has gradually become more familiar with studying games. Second, I map rhetorical studies’ involvement in materialism, specifically through the investigation of bodies. Third, I offer an extensive, though not exhaustive, review of how game studies has hitherto approached research regarding bodies. The article concludes by forecasting the future of game bodies and game studies with an eye toward Artificial Intelligence (A.I.) gaming, augmented reality, and virtual reality. This article argues that instead of creating a single, unifying theory of gaming bodies, games scholars should identify themes of bodies in games.

Anderson, S. L. (2023). Video game accessibility defined through advocacy: How the websites AbleGamers.org and CanIPlayThat.com use the word accessibility. Games and Culture Online First. DOI: https://doi.org/10.1177/15554120231170156.

This study investigates how the word “accessibility” is used in online news articles published by two video game-based disability advocacy organizations. AbleGamers is an accessibility and disability advocacy charity focused on improving the lives of people with disabilities through gaming. Can I Play That? publishes accessibility reviews of video games. Both organizations have news pages that publish disability and accessibility news. The study examines 50 news articles published by these organizations for how they use the word “accessibility.” The articles produced 105 instances of the word “accessibility.” The study finds nine themes for how “accessibility” is used. The study compares those uses and concludes by producing six pseudo-definitions for video game accessibility.

Anderson, S. L. (2024). Ability machines: What video games mean for disability [Digital Game Studies]. Bloomington: Indiana University Press.

Video games are both physically and cognitively demanding—so what does that mean for those with a disability or mental illness? Though they may seem at odds, Ability Machines illuminates just how vital video games are to understanding our bodies and abilities.

In Ability Machines, Sky LaRell Anderson shows us how video games can help us imagine what our abilities mean and how they engage us physically, behaviorally, and cognitively to envision our agency beyond limitations. On the surface, this can mean games provide power fantasies; more profoundly, games can fundamentally reshape cultural and personal understandings of mental health, illness, disability, and accessibility. Video games are indeed ability machines that produce a reimagined state of agency.

Featuring a comparative analysis of key video game titles, including Metal Gear Solid VWolfenstein II, Celeste, Devil May Cry 5Hellblade: Senua’s SacrificeHades, Nier: Automata, and more, Ability Machines tackles larger questions of ability and how our bodies relate to interactive media.

Anderson, S. L., & Johnson, M. R. (2021). Gamer identities of video game live streamers with disabilities. Information, Communication & Society Ahead-of-Print, 1-16.  https://doi.org/10.1080/1369118X.2021.1907433.

This study investigates the strategies video game streamers with disabilities employ to navigate their identity as gamers as it relates to their subject positions as persons with disabilities. Through an analysis of online videos featuring eight streamers with disabilities, this study reveals four themes around how streamers establish their identities regarding both disability and gaming: establishing gaming capital, acknowledging disability, gaming to overcome challenges, and feeling empowered to ‘inspire’. Our analysis discusses how the four themes coalesce around a co-constitutive identity of ‘disabled streamer’ that is unique from both gamer and disability identities yet informed by and negotiated through each of these in various ways. The study sheds light on the ongoing mutual creation and transformation of gaming and disability identities on the internet.

Anderson, S. L., & Schrier, K. (2021). Disability and video games journalism: A discourse analysis of accessibility and gaming culture. Games and Culture Online First. DOI: https://doi.org/10.1177/15554120211021005.

In this article, we conduct a discourse analysis of 60 articles to reveal themes that describe how games journalism reflects and constitutes understandings of disability and accessibility in gaming. First, we map prior research on media’s relationship to disability, as well as approaches to disability in game studies, including the introduction of two primary paradigms for addressing issues of accessibility in gaming. Second, the project reveals six thematic categories that describe how game journalism reflects and constitutes understandings of disability and accessibility in gaming: gamers with disabilities, portraying disability, game design, game controllers, discussing accessibility, and advocacy. Further comparison of the categories reveals four additional themes of discourses, namely, self-congratulations, fetishization, awareness as advocacy, and problem-solving. The article concludes with implications for the games industry, for theory, and for how the field of game studies can investigate disability.

Austin, J. (2021, December). “The hardest battles are fought in the mind”: Representations of Mental Illness in Ninja Theory’s Hellblade: Senua’s Sacrifice. Game Studies, 21(4). The International Journal of Computer Game Research, Game Studies Foundation. Supported by the Swedish Research Council (Vetenskapsrådet), The Joint Committee for Nordic Research Councils for the Humanities and the Social Sciences, Blekinge Institute of Technology, IT University of Copenhagen, and Lund University. Retrieved from: http://gamestudies.org/2104/articles/austin.

This paper explores the videogame Hellblade: Senua’s Sacrifice (Ninja Theory, 2017) through a disability studies lens in order highlight the unique challenges associated with representations of psychosis in fictional, immersive gameplay environments. Throughout this paper I employ close reading strategies to critically examine specific scenes from Hellblade that alternately subvert or uphold stereotypical representations of psychosis; furthermore, I acknowledge the largely positive effects of the designers’ collaboration with stakeholders in the mental health community. However, I note the difficulties associated with framing psychosis as a conventional disability in theoretical discourse and call for the continued collaboration between the humanities and the medical sciences to promote scholarship that does not inadvertently perpetuate stigmatizing tropes. Lastly, I also argue for an active divestment of the term “madness” in the humanities and note the potential for videogame studies to establish a scholarly standard for doing so.

Baker, M. M. (2022, October). The visual and narrative rhetoric of mental health in Gris. Journal of Gaming & Virtual Worlds, 14(3), 249-266. DOI: https://doi.org/10.1386/jgvw_00061_1.

Interdisciplinary game studies have long been fascinated by video games and their potential to improve mental health. Despite this interest, there is not yet a cohesive rhetorical framework to connect conversations about mental health with specific types of games. Following Waszkiewicz and Bakun’s (2020) call to adopt the term ‘cosy’ for games which inspire feelings of safety in players, encourage self-actualization and utilize soft aesthetics helps clarify discussions of the games suited to help improve mental health and allow players to process complex emotions. This article uses a close reading of the Nomada Studios game  to argue that considering cosiness when studying the connection between games, emotion and mental health will help researchers find a connection between game aesthetics and the types of psychological issues that a game can address effectively.

Baltzar, P., Hassan, L., & Turunen, M. (2024). Forced to choose silence: Social gaming with disabilities. Simulation & Gaming, 55(6), 1011-1031. DOI: https://doi.org/10.1177/10468781241259831.

Background

Socialization during gaming is an important aspect of gaming for people with and without disabilities. However, we know little about how gamers with disabilities play with others.

Aim

This study investigated the social gaming experiences of individuals with disabilities focusing on research questions 1) Who do people with disabilities play with?, and 2) How do people with disabilities communicate while gaming?

Method
We conducted a survey study which focused on experiences of gaming with disabilities. In total 92 responses were analyzed.

Results
The results suggest that gamers with disabilities play digital multiplayer games locally and online with friends, family, strangers, and people they know. The most used communication methods were speech, text, and built-in features. However, some were not communicating at all due to a lack of suitable communication methods. Furthermore, communication varied depending on if the gaming was happening online or locally, and depending on the gaming companions.

Discussion
The results align with previous research indicating that people with disabilities engage in gaming with friends, family, and strangers similar to any other gamer. However, there is a lack of studies on how people generally communicate in games, nonetheless, as speech and text communication methods are most commonly seen in games, we can assume that they are the most used communication methods for all gamers.

Limitations and Future Research
This study has limitations both related to the survey questions and the survey participants. We cannot be sure if all understood the questions in the same way, furthermore, most of the participants were experienced Finnish gamers with physical disabilities which could have skewed the results. Further research is necessary to address these limitations and broaden the scope of the study’s findings.

Conclusions
Based on the results, we argue that games should provide multiple means of communication to make social gaming more accessible.

Beeston, J., Power, C., Cairns, P., & Barlet, M. (in preparation). Characteristics and motivations of players with disabilities in digital games. York, UK & Charles Town, WV: Department of Computer Science Deramore Lane, University of York and The AbleGamers Charity.  Retrieved from: https://arxiv.org/ftp/arxiv/papers/1805/1805.11352.pdf.

In research and practice into the accessibility of digital games, much of the work has focused on how to make games accessible to people with disabilities. With an increasing number of people with disabilities playing mainstream commercial games, it is important that we understand who they are and how they play in order to take a more user-centered approach as this field grows. We conducted a demographic survey of 230 players with disabilities and found that they play mainstream digital games using a variety of assistive technologies, use accessibility options such as key remapping and subtitles, and they identify themselves as gamers who play digital games as their primary hobby. This gives us a richer picture of players with disabilities and indicates that there are opportunities to begin to look at accessible player experiences (APX) in games.”

Bierre, K., Chetwynd, J., Ellis, B., Hinn, D. M., Ludi, S., & Westin, T. (2019). Game not over: Accessibility issues in video games. San Francisco: Games Accessibility Special Interest Group, International Game Developers Association. Retrieved from: https://www.researchgate.net/publication/267403944_Game_Not_Over_Accessibility_Issues_in_Video_Games.

An issue that has been facing the game industry recently is the need to provide accessible games. There are various legal, financial, and ethical reasons for wanting more accessible games. This paper will examine the scope of the problem by reviewing the need for accessibility, the current state of the industry, and some proposed initiatives that we feel should start to occur in the near future. We also will look at case studies of several commercial games that have provided accessibility features.” (author’s abstract)

Boluk, S., & LeMieux, P. (2017). Blind spots: The Phantom Pain, The Helen Keller Simulator, and disability in games. In Metagaming: Playing, Competing, Spectating, Cheating, Trading, Making, and Breaking Videogames. Minneapolis & London: University of Minnesota Press. DOI: https://doi.org/10.5749/9781452958354.

“…[this] chapter…examines the practices of blind players and the concept of disability in videogames. From Hideo Kojima’s Metal Gear Solid V: The Phantom Pain (2015), a graphic spectacle that begins with extensive cutscenes of a limping, hook-handed veteran, to the The Helen Keller Simulator (circa 2005), an unpopular Internet meme typically consisting of a black screen with no feedback, [this] chapter…considers metagaming in the context of critical disability studies. On one extreme, the hospitalized hero in The Phantom Pain allegorizes the hypertrophy of the graphics industry—his single eye standing in for single-point perspective and his hook hand recalling the limited articulation of a game controller. On the other extreme, The Helen Keller Simulator represents the atrophy of experimental games without gameplay—a failed simulation that cannot articulate the phenomenal experience of deaf and blind persons, but ultimately serves as a commentary on the impoverished representational capacity of videogames as a medium—the withoutness of all games. In contrast to the cinematic spectacle in The Phantom Pain and the minimal mechanics in The Helen Keller Simulator, [this] chapter…concludes with a discussion of alternative approaches to playing The Legend of Zelda: Ocarina of Time. Around the same time speedrunners like Narcissa Wright first experimented with temporal constraints in Ocarina of Time, Jordan Verner and Drew Wissler began developing metagaming practices through which both blind and blindfolded players navigate videogame spaces and invent new games according to alternate sensory economies. Rather than attempt to represent disability or make games more accessible, these practices reveal that there are always more ways to play” (n.p.).

Bozdog, M., & Galloway, D. (2020). Worlds at our fingertips: Reading (in) What Remains of Edith Finch. Games and Culture , 15(7), 789-808. DOI: https://doi.org/10.1177%2F1555412019844631.

Video games are works of written code that portray worlds and characters in action and facilitate an aesthetic and interpretive experience. Beyond this similarity to literary works, some video games deploy various design strategies that blend gameplay and literary elements to explicitly foreground a hybrid literary/ludic experience. We identify three such strategies: engaging with literary structures, forms, and techniques; deploying text in an aesthetic rather than a functional way; and intertextuality. This article aims to analyze how these design strategies are deployed in What Remains of Edith Finch to support a hybrid readerly/playerly experience. We argue that this type of design is particularly suited for walking simulators (or walking sims) because they support interpretive play through slowness, ambiguity, narrative, and aesthetic aspirations. Understanding walking sims as literary games can shift the emphasis from their lack of “traditional” gameplay complexity and focus instead on the opportunities that they afford for hybrid storytelling and for weaving literature and gameplay in innovative and playful ways.

Brown, M., & Anderson, S. L. (2020). Designing for disability: Evaluating the state of accessibility design in video games. Games and Culture. DOI:  https://doi.org/10.1177/1555412020971500.

This project evaluates the current state accessibility of video games, specifically in terms of designing for disability. We evaluate 50 games chosen for their sales data, critical reception, awards won, and other criteria to examine the widest possible sample of the most prominent games released in 2019. This approach to selecting games allows for identifying design trends as they emerge from the most widely played or influential games. The results highlight design pitfalls and innovations regarding accessibility in four key areas: auditory, visual, motor, and difficulty. As a feed-forward project, the aim is not simply to catalog what games include which accessibility features, a nearly impossible feat considering how varied the design features are, depending on the game. This report also attempts to point to future directions for how games can continue to innovate in accessibility.

Burrell-Kim, D. (2023, July). “Stuttering Matt”: Linguistic ableism and the mockery of speech impediments in video games. Game Studies, 23(2). The International Journal of Computer Game Research, Game Studies Foundation. Supported by the Swedish Research Council (Vetenskapsrådet), The Joint Committee for Nordic Research Councils for the Humanities and the Social Sciences, Blekinge Institute of Technology, IT University of Copenhagen, and Lund University. Retrieved from: https://gamestudies.org/2302/articles/burrellkim.

Language ideology and the representation of language in videogames has been largely neglected in the field of game studies; only recently have researchers begun to examine this crucial topic more. Recent studies (see Burrell-Kim, 2020a; Ensslin, 2010; Ensslin 2011; Goorimoorthee, Csipo, Carleton & Ensslin, 2019; Tarnarutckaia & Ensslin, 2019) have found that language and language users are often represented through stereotypes built on oppressive language ideologies that often result in real-world discrimination (Gee, 2015; Lippi-Green, 2012; MacSwan, 2018). Ableism has been a significant and growing research topic in game studies (e.g., Carr, 2014; Jerreat-Poole, 2020). Yet, no studies currently exist examining inequitable representations of language-related disabilities and speech impediments, which I will refer to as linguistic ableism. In real-life interactions and mainstream media, people with speech impediments are routinely misrepresented and discriminated against (Dolmage, 2018; Gayoso, 2018; Johnson, 2008; St Pierre, 2016). Thus, this study aims to explore how linguistic ableism occurs in mainstream roleplaying video games through the representation of speech impediments in Red Dead Redemption 2 (Rockstar Games, 2018), The Witcher 3: Wild Hunt (CD Project Red, 2015), Dragon Age: Origins (BioWare, 2009), Dragon Age II (Bioware, 2011), Dragon Age: Inquisition (BioWare, 2014), and Cyberpunk 2077 (CD Project Red, 2020). This study utilizes multimodal, medium-specific discourse analysis (Ensslin & Balterio, 2019; Hawreliak, 2018; Pérez-Latorre, Oliva & Besalú, 2017) to analyze video clips of characters with speech impediments collected from the selected games. A majority of the encounters with linguistic ableism indicate that speech impediments are most often used to signal a lack of intelligence in characters or are framed as a source of humor for players through mockery. As the first empirical examination of linguistic ableism in videogames, this study aims to both raise awareness of the ways in which language is often utilized for discrimination in videogame representation and highlight possibilities for the normalization of diverse voices in videogames.

Carr, D. (2014, December). Ability, disability and Dead Space. Game Studies, 14(2). The International Journal of Computer Game Research, Game Studies Foundation. Supported by the Swedish Research Council (Vetenskapsrådet), The Joint Committee for Nordic Research Councils for the Humanities and the Social Sciences, Blekinge Institute of Technology, IT University of Copenhagen, and Lund University. Retrieved from: http://gamestudies.org/1402/articles/carr.

This paper focuses on representations of able bodies and disability within Dead Space. The method used is textual analysis. The inquiry is shaped by two essays in particular: Williams’s screen studies account of ‘body genres’ (1999) and Snyder and Mitchell’s disability studies extension of Williams’s work (2006). In her essay, Williams describes the pleasurably excessive and spectacular aspects of body genres. Three instances of ‘excess’ in Dead Space are used to structure the analysis. These are (1) the abject bodies of the game’s undead monsters, (2) the colourful nature of the protagonist’s deaths and the uncertainty of his existence, and (3) the extravagant amount of gore and blood on offer. Through textual analysis, it is found that Dead Space represents the idea of disability as threatening, and able-bodied identity as conditional and precarious. Locales that are culturally associated with positivism and corporeal assessment (clinical and medical facilities) are tainted; contaminated by the intrusions of uncontrolled, excessive and abject bodies. It is argued that these aspects of the game contribute to the generation of sensations associated with generic horror, including fear, anxiety and dread. At the same time, the game offers players the opportunity to display attributes that are culturally associated with able bodied status, including accuracy, precision and control.

Carr, D. (2019). Methodology, representation, and games. Games and Culture, 14(7-8), 707-723. DOI: https://doi.org/10.1177/1555412017728641.

This article is about textual analysis, methodology, and representations (of bodies, identities and social groups) in digital games. The issues under consideration include textual analysis as procedure, the role of fragmentation in textual analysis, game ontology and the remit of textual analysis, and the role of the player-as-analyst in relation to subjectivity and embodied interpretation. These issues are discussed using a combination of game studies literature, film theory, and literary theory–and with reference to Deus Ex: Human Revolution (2011).

Carr, D. (2020). Bodies that count: Augmentation, community and disability in a science fiction game. In K. Allan & R. Cheyne (Eds.), Science Fiction, Disability, Disability Studies [Special Issue]. Journal of Literary & Cultural Disability Studies, 14(4), 421-436. DOI: https://doi.org/10.3828/jlcds.2020.28.

The article examines the overlaps between disability studies and digital game studies through an analysis of the science fiction digital game Deus Ex: Mankind Divided. Using an adaptation of Mitchell and Snyder’s work on disability and narrative prosthesis in literature, the power implied by erasure-by-metaphor is considered, as are issues of migration, appropriation, and the grotesque. By examining ability, disability, and tangibility in relation to the game’s rules, game-play, and narrative elements, this analysis demonstrates the relevance of disability theory to science fiction games.

Chakraborty, J. (2017). How does inaccessible gaming lead to social exclusion? In J. Lazar & M. A. Stein (Eds.), Disability, human rights, and information technology  [Pennsylvania Studies in Human Rights] (pp. 212-223). Philadelphia: University of Pennsylvania Press.

“Modern day video games provide great entertainment for the masses. From the latest first-person-shooter (FPS) games with ultra-high definition graphic engines to the most cutting-edge 3-D real-time-strategy (RTS) games, there is a video game for everyone. Or is there?” (p. 212).

Cockrum, C. (2024). Player’s preference and horror gaming: Accessibility and narrative equity in Naughty Dog’s The Last of Us Part II. In J. L. McDaniel & A. Wood (Eds.), Broadening the horror genre: From gaming to paratexts. London: Routledge. DOI: https://doi.org/10.4324/9781003406112-9.

The release of The Last of Us Part II revolutionized accessibility in gaming with its inclusion of over sixty accessibility options never used in video games prior to its release. These options modify the game for deaf, blind, or motor-impaired gamers and for those who experience motion sickness and color blindness through utilizing or eliminating various sensory interactions (sounds, visuals, haptic feedback through controllers, etc.) to create a space of inclusivity that allows players of all skill levels to experience the game in full. Alongside its many accessibility options, The Last of Us Part II deviates from typical zombie horror through its narrative use of the cordyceps fungus. The cordyceps integrates with the host through a multistage process, eventually turning the human completely into a fungal system. This chapter examines how The Last of Us Part II’s accessibility options and its creation of fungal zombies subvert typical horror tropes in video games. These features challenge typical characterizations of disability in horror, which often digress into flat presentations of disability as the grotesque or as moral metaphors. The Last of Us Part II, through its in-depth accessibility options, creates equity among gamers, and its refusal to co-opt disability in its creation of the monstrous inhibits the formation of narrative prosthesis, presenting a narration of horror that draws upon innate humanity of each player without creating “the Other.”

Crooks, H. R., & Magnet, S. (2018). Contests for meaning: Ableist rhetoric in video games backlash culture. In A. Day & K. Nielsen (Eds.), Re-Reading, Re-Imagining, and Re-Framing [Theme Issue]. Disability Studies Quarterly, 38(4).  DOI: http://dx.doi.org/10.18061/dsq.v38i4.5991.

An increasing number of video games focus on empathetic identification across difference. Since the mid-2000s, games that encourage catharsis and immersive engagement with trauma range from the personal as in That Dragon, Cancer (2014), in which players experience what it is like to parent a terminally ill child to geopolitical struggles as in Peacemaker (2007) which encourages player empathy for both sides of the Israeli-Palestinian Conflict. These games are rapidly gaining in popularity and commercial backing. As more games focus on issues of social justice, the backlash against these concerns among a vocal segment of the gaming community is increasing in frequency and intensity. A branch of the men’s rights movement has focused on video games aimed at understanding difference, and has attracted attention suggesting that all those advocating for social justice in games (dubbed Social Justice Warriors) should be understood to have narcissistic personality disorder (NPD). We argue that these claims to NPD need to be understood as a form of structural ableism mobilized by the men’s rights movement. In doing so, we argue that by situating the mental health labels evoked by current men’s rights’ activist rhetoric about feminist anti-racist interventions in game culture is a new form of the old practice of attaching mental health labels to people challenging social norms underpinning the dominant culture.

Csontos, B., & Heckl, I. (2025). The evolution of video game accessibility on Xbox consoles in the Far Cry game series. Universal Access in the Information Society. DOI: https://doi.org/10.1007/s10209-025-01208-4.

Video games are part of the culture and industry of the modern age. This form of entertainment is recreation for billions of people. It is important that people with disabilities are not partially or completely excluded from this form of entertainment. The accessibility of the content on websites and web applications is ensured by the Web Accessibility Guidelines (WCAG) and numerous directives. Unfortunately, the same cannot be said for video games. Currently, there are no uniform game accessibility guidelines accepted by both publishers and developers, and no directives to ensure compliance with the guidelines’ recommendations. In the course of our work, we developed a game accessibility evaluation method for the accessibility classification of games published on the Xbox console. We used this method to analyze the games in the Far Cry game series to see how they fulfil the Xbox Accessibility Guidelines (XAG) and other accessibility preferences. The analysis showed that the first parts of the game series had little or no support for accessibility, however, as time progressed, the number of features supporting accessibility increased significantly. Having identified the main problems, we have made a number of suggestions for game publishers and developers to increase the accessibility of video games.

Cullen, A. L. L., Ringland, K. E., & Wolf, C. T. (2018, April). A better world: Examples of disability in Overwatch. First Person Scholar [Feature Issue on Mad Crip Games]. Waterloo, ON: The Games Institute (GI) at the University of Waterloo in collaboration with IMMERSe, The Research Network for Video Game Immersion. Retrieved from: http://www.firstpersonscholar.com/a-better-world/.

“We interpret Overwatch characters as having a disability if they show signs of physical (e.g. amputation, low vision/sight) or psychosocial (e.g. autism, mood disorder) impairment. The impairments of Overwatch characters are interpreted as disabilities- that is, impairments that diminish their ability in the context of Western society. As evidenced by Overwatch gameplay and lore, however, these impairments are not necessarily disabling or remarked upon as disabilities in the social context of Overwatch” (n.p.).

DeAnda, M. A. & Straznickas, G. L. (2023). Undetectable Starting Points: Rethinking “Passing” in Level Design through Queerness, Disability, and Roxy’s Got Balls. In J. Malazita, C. O’Donnell, & E. LaPensée (Eds.), Critical Game Design [Special Issue]. Design Issues, 39(1), 27–41. DOI: https://doi.org/10.1162/desi_a_00704.

In this article, the authors tease out meritocracy from level design by comparing “passing” game levels with “passing” as performances for survival by marginalized peoples. We use HIV to demonstrate passing as a response from the intersections of queerness, race, and disability to inform heuristics for level design that tease out meritocratic design practices. We finish by illustrating our heuristics in action through Roxy’s Got Balls, an online drag queen bingo event.

Deckert, M., & Hejduk, K. W. (Eds.). (2024). User-centric studies in game translation and accessibility. New York: Routledge. DOI: https://doi.org/10.4324/9781032628677.

This innovative collection makes the case for a push within the discipline to adopt user-centric perspectives on translated video games and their corresponding accessibility features.

The volume demonstrates how audiovisual translation (AVT) and media accessibility (MA) involve decisions that can re-shape the gaming experience of players and other audiences. Contributions in the book outline this in two ways. First, they collectively provide an account of the prospects and challenges that come with user-centric scholarly inquiry in game translation and accessibility. Second, complementarily, they report on original studies and new, exciting findings while adopting the perspective of global users. Taken together, the collection serves as a call to action to systematically advance research eliciting variable types of input from users who take advantage of translation and accessibility services. Such research will facilitate a clearer understanding of how the particular decisions of translators and other relevant agents shape game reception.

This book will be of interest to scholars in both translation studies and video game research, as well as those interested in media accessibility and media studies more broadly.

The book is divided into two sections, “Prospects and challenges” and “User-centric studies.” Contents include the following contributions:

Doell, I. (2018, April 4). “Share melancholy thoughts”: Playing with mental illness in The Sims 4. First Person Scholar [Feature Issue on Mad Crip Games]. Waterloo, ON: The Games Institute (GI) at the University of Waterloo in collaboration with IMMERSe, The Research Network for Video Game Immersion. Retrieved from: http://www.firstpersonscholar.com/share-melancholy-thoughts/.

Provides an analysis of the video game The Sims 4 and how it misrepresents mental illness.

Dumont, A., & Bonenfant, M. (2023). Thinking inclusiveness, diversity, and cultural equity based on game mechanics and accessibility features in popular video games. In M. S. Jeffress, J. M. Cypher, J. Ferris, & J. A. Scott-Pollock (Eds.), The Palgrave Handbook of Disability and Communication. Cham: Palgrave Macmillan. DOI: https://doi.org/10.1007/978-3-031-14447-9_14.

Video games remain inaccessible for many players with disabilities. Limited knowledge, misconceptions and poor design choices hinder a large segment of the population from engaging in the cultural and social life video games provide. This chapter analyzes how developers of popular video games conceive inclusiveness, diversity of practices, and cultural equity through the design of game mechanics and accessibility features, as well as what video games reveal about the discursive and social context from which they emerge. Using a sociosemiotic methodological framework based on the Foucauldian concept of “discourse,” the authors analyze and discuss the implications of the mechanics and accessibility settings of the video games Celeste, Marvel’s Spider-Man: Miles Morales, and The Last of Us Part 2, as well as the paratexts surrounding their release.

E-collection ‘Special Issue on Video Games for Mental Health.’ (2019). JMIR Mental Health, 6(5). Retrieved from: https://mental.jmir.org/themes/722.

JMIR Mental Health is a peer-reviewed eHealth journal focusing on digital health and Internet interventions, technologies and electronic innovations (software and hardware) for mental health, addictions, online counselling and behaviour change.

This feature issue includes the following articles:

  • Using Computer Games to Support Mental Health Interventions: Naturalistic Deployment Study
  • Gaming With Stigma: Analysis of Messages About Mental Illnesses in Video Games
  • The Potential of Game-Based Digital Biomarkers for Modeling Mental Health
  • Framing Mental Health Within Digital Games: An Exploratory Case Study of Hellblade

Ellis, K., Leaver, T., & Kent, M. (Eds.). (2022). Gaming disability: Disability perspectives on contemporary video games (1st ed.). New York: Routledge. DOI: https://doi.org/10.4324/9780367357153.

This book explores the opportunities and challenges people with disabilities experience in the context of digital games from the perspective of three related areas: representation, access and inclusion, and community.

Drawing on key concerns in disability media studies, the book brings together scholars from disability studies and game studies, alongside game developers, educators, and disability rights activists, to reflect upon the increasing visibility of disabled characters in digital games. Chapters explore the contemporary gaming environment as it relates to disability on platforms such as Twitch, Minecraft, and Tingyou, while also addressing future possibilities and pitfalls for people with disabilities within gaming given the rise of virtual reality applications, and augmented games such as Pokémon Go. The book asks how game developers can attempt to represent diverse abilities, taking games such as BlindSide and Overwatch as examples.

A significant collection for scholars and students interested in the critical analysis of digital games, this volume will be of interest across several disciplines including game studies, game design and development, internet, visual, cultural, communication and media studies, as well as disability studies.

Escobar-Lamanna J. C. (2024). “You’ve got to put in the time”: Neoliberal-ableism and disabled streamers on Twitch. In B. Haller & J. Preston (Eds.), Exploring Disability in the Digital Realm [Special Issue]. Societies, 14(6), 75. DOI: https://doi.org/10.3390/soc14060075.

This concept paper builds upon nascent research analyzing disability and the practice of videogame livestreaming on Twitch.tv. While a growing amount of scholarship analyzes the structure and organization of Twitch as a platform more broadly, with some attending to the platform’s marginalization of women and BIPOC streamers, few studies investigate the challenges that Twitch’s features and structures present to disabled streamers. This paper addresses this gap in the literature, considering the ways in which Twitch offers disabled streamers unique economic and community-building opportunities through its monetization and identity tag features while simultaneously presenting barriers to disabled streamers through these very same features. Utilizing a critical disability studies perspective and drawing upon forum posts made by disabled streamers and interviews with disabled streamers from online gaming news websites, I argue that Twitch reifies forms of neoliberal-ableism through its prioritizing of individual labour, precarious forms of monetization that necessitate cultures of overwork and ‘grinding’, and targeted harassment, known as hate raids, against disabled and other marginalized streamers to ultimately create a kind of integrative access where disability is tolerated but not valued.

Farris, A. (2020). The player and the avatar: Performing as other. Storytelling, Self, Society, 16(2), 177–199. DOI: https://doi.org/10.13110/storselfsoci.16.2.0177.

This article considers the ethics of identity play in game worlds. Although previous scholarship has examined the ways in which race, gender, and sexuality operate in game worlds, there has been a lack of attention to the way that disability identity also functions in these spaces. Seeking to highlight this omission as well as encourage disability-rights activists to rethink their long-standing opposition to simulation, the author of this article conducted a survey with sixty gamers of diverse backgrounds. This article shares the results of this survey as well as recommendations for future research on the ethics of avatar performances.

Fawcett, C., & Kohm, S. (2020). Carceral violence at the intersection of madness and crime in Batman: Arkham Asylum and Batman: Arkham City. Crime Media Culture, 16(2), 265-285. DOI: https://doi.org/10.1177/1741659019865298.

The action-adventure video games Batman: Arkham Asylum (2009) and Batman: Arkham City (2011) draw on familiar comic book narratives, themes and characters to situate players in a world of participatory violence, crime and madness. In the first game, the player-as-Batman is situated in Arkham Asylum, a high-security facility for the criminally insane and supervillains that also temporarily houses a general population of prisoners from Blackgate Penitentiary. The elision of criminality and mental illness becomes amplified in the second game with the establishment of Arkham City, a combined facility that conflates asylum and prison, completely dissolving any distinction between crime and madness. We draw on Rafter’s conceptual framework of popular criminology to seriously interrogate the representation of violence, crime and madness in these games. More than simply texts offering popular explanations for crime, the games directly implicate the player in violence enacted upon the bodies of criminals and patients alike. Violence is necessary to move the action of the game forward and evokes a range of emotional responses from players who draw from personal experience and other cultural and media representations as they navigate the game. We argue that while the game celebrates violence and the brutal conditions of incarceration, it also offers possibilities for subversive and critical readings. While working to affirm assumptions about crime and mental illness, the game also provides a visceral and visual critique of excessive punishment by the state as a source of injustice for those deemed mad or bad.

Ferrari, M., McIlwaine, S. V., Jordan, G., Shah, J, L., Lal, S., & Iyer, S. N. (2019). Gaming with stigma: Analysis of messages about mental illnesses in video games. JMIR Mental Health, 6(5). DOI: https://doi.org/10.2196/12418.

Background: Video game playing is a daily activity for many youths that replaces other media forms (eg, television); it serves as an important source of knowledge and can potentially impact their attitudes and behaviors. Researchers are, thus, concerned with the impact of video gaming on youth (eg, for promoting prosocial or antisocial behavior). Studies have also begun to explore players’ experience of gameplay and video game messages about violence, sexism, and racism; however, little is known about the impact of commercial video games in the sharing and shaping of knowledge, and messages about mental illness.

Objective: The aim of this review was to identify how mental illness, especially psychosis, is portrayed in commercial video games.

Methods: We performed keyword searches on games made available between January 2016 and June 2017 on Steam (a popular personal computer gaming platform). A total of 789 games were identified and reviewed to assess whether their game content was related to mental illness. At the end of the screening phase, a total of 100 games were retained.

Results: We used a game elements framework (characters, game environment/atmosphere, goals, etc) to describe and unpack messages about mental health and illness in video games. The majority of the games we reviewed (97%, 97/100) portrayed mental illness in negative, misleading, and problematic ways (associating it with violence, fear, insanity, hopelessness, etc). Furthermore, some games portrayed mental illness as manifestations or consequences of supernatural phenomena or paranormal experiences. Mental illness was associated with mystery, the unpredictable, and as an obscure illness; its treatment was also associated with uncertainties, as game characters with mental illness had to undergo experimental treatment to get better. Unfortunately, little or no hope for recovery was present in the identified video games, where mental illness was often presented as an ongoing struggle and an endless battle with the mind and oneself.

Conclusions: The game elements of the identified commercial video games included mental illness, about which many perpetuated well-known stereotypes and prejudices. We discuss the key findings in relation to current evidence on the impact of media portrayals of mental illness and stigma. Furthermore, we reflect on the ability of serious video games to promote alternative messages about mental illness and clinical practices. Future research is needed to investigate the impact that such messages have on players and to explore the role that video games can play in fostering alternative messages to reduce the stigma associated with mental illness.

Flynn, S. M., & Lange, B. S. (2010). Games for rehabilitation: The voice of the players. In Proc. 8th Intl Conf. Disability, Virtual Reality & Associated Technologies, Viña del Mar/Valparaíso, Chile, 31 Aug. – 2 Sept. 2010  (pp. 185-194). Highland Park, NJ: International Society for Virtual Rehabilitation. Retrieved from: http://www.icdvrat.org/2010/index2010.htm.

The purpose of this study is to explore the use of video games from the perspective of the disabled player. Over 150 participants responded to an online survey exploring the use of video games for rehabilitation. The respondents represented 9 countries throughout the world. The survey consisted of questions regarding subject demographics, living situation, activities of daily living assistance requirements, use of assistive devices, and computer use. Other questions addressed the responders’ disability. Video game play experience, activity, game play, controller use and accessibility are addressed. Questions regarding the use of currently available off the shelf video games in rehabilitation are explored. Lastly, we surveyed the future of video games and how they can be improved for rehabilitation and leisure enjoyment. The results of this survey are presented. In general, individuals with disabilities enjoy playing video games and play video games often. However, players with disabilities would appreciate educating the game industry about disabilities and how to makes games with a more ‘universal game design.’”

Fordham, J., & Ball, C. (2019, April). Framing mental health within digital games: An exploratory case study of Hellblade. JMIR Ment Health, 6(4). DOI: https://doi.org/10.2196/12432.

Background: Researchers and therapists have increasingly turned to digital games for new forms of treatments and interventions for people suffering from a variety of mental health issues. Yet, the depiction of mental illness within digital games typically promotes stigmatized versions of those with mental health concerns. Recently, more games have attempted to implement more realistic and respectful depictions of mental health conditions. Objective: This paper presents an exploratory analysis of a contemporary game that has the potential to change the way researchers, practitioners, and game designers approach topics of mental health within the context of gaming. Methods: A case study of Hellblade: Senua’s Sacrifice was conducted using frame analysis to show how key design choices for this game present the potential for new ways of approaching games and mental health. Results: A case study of Hellblade’s development shows how research-informed collaborative design with mental health practitioners, scientists, and individuals with mental health problems can lead to a realistic depiction of mental illness in games. Furthermore, the use of frame analysis demonstrates how to harness narrative, mechanics, and technology to create embodied experiences of mental health, which has the potential to promote empathetic understanding. Conclusions: This paper highlights an exemplary case of collaborative commercial game design for entertainment purposes in relation to mental health. Understanding the success of Hellblade‘s depiction of psychosis can improve serious games research and design. Further research must continue to provide deeper analysis of not only games that depict mental illness, but also the design process behind them.

Forlano, L. (2016, March). Hacking the feminist disabled body. In S. Bardzell, L. Nguyen, & S. Toupin (Eds.), Issue #8: Feminism and (un)hacking [Special Issue].  Journal of Peer Production.  Retrieved from: http://peerproduction.net/issues/issue-8-feminism-and-unhacking-2/peer-reviewed-papers/issue-8-feminism-and-unhackingpeer-reviewed-papers-2hacking-the-feminist-disabled-body/.

This article develops feminist understandings of hacking the body through a personal engagement with the socio-technical systems that are used to manage chronic disease and disability. Drawing on science and technology studies along with feminist studies about the mediated body, this essay develops a feminist understanding of hacking through an ethnographic account of the first several years of living as a Type 1 diabetic with an insulin pump and continuous glucose monitor. In particular, I will describe the ways in which these devices discipline everyday activities including: the tensions of being embedded with competing proprietary systems: the ways in which I disobey the devices and they disobey me; the ways in which we collaborate; the invisible labor required to navigate everyday life; and, the ways in which this experience challenges and extends notions of what it means to be human during a time of networked things and bodies. This critical analysis of the embodied experience of using and becoming part of a network of medical technologies serves to complicate the revolutionary claims about hacking and technology. Instead, they bring to life the ways in which these technologies reconfigure definitions around what it means to be human, enable unique socio-cultural hacking practices even among mundane activities in everyday life, reshape the boundaries between public and private, allow for failure, and create new kinds of bodily labor. Through this analysis, I argue that a feminist hacker ethic(s) features the disabled body (along with all of its features and bugs) as an important site of socio-technical engagement.

Furini, M., Mirri, S, & Montangero, M. (2019). Gamification and accessibility. In Proceedings for the 16th IEEE Annual Consumer Communications & Networking Conference (CCNC), 11-14 January 2019, Las Vegas, NV. Los Alamitos, CA: IEEE Computer Society Conference Publishing Services (CPS).  https://ieeexplore.ieee.org/document/8651750

Many different environments are looking at gamification to improve education, business, tourism, smart-cities management, etc. Despite its popularity, and despite the availability of many studies that propose approaches to transform a non-game activity into a game, a gamification strategy guideline is missing. Usually, the proposed methods are too general to be effective (e.g., simple rules, incentive mechanisms such as scores or vague prizes). In a society where algorithms personalize everything, and where people with different impairments (either technological or physical) are present, it is important to also understand peoples preferences in terms of games. In this paper, through a questionnaire filled by 22 people, we show that the game preferences (rules, mechanics, focus, motivations, and gaming environment) are assistive-technology dependent. These preferences can be used to customize the gamification process and therefore the study might be helpful to develop effective gamification strategies.

Gallagher, R. (2018, September). Minecrafting Masculinities: Gamer Dads, Queer Childhoods and Father-Son Gameplay in A Boy Made of Blocks. Game Studies, 18(2). The International Journal of Computer Game Research, Game Studies Foundation. Supported by the Swedish Research Council (Vetenskapsrådet), The Joint Committee for Nordic Research Councils for the Humanities and the Social Sciences, Blekinge Institute of Technology, IT University of Copenhagen, and Lund University. Retrieved from: http://gamestudies.org/1802/articles/gallagher.

Keith Stuart’s 2016 novel A Boy Made of Blocks tells the story of dad Alex and son Sam. Both characters are grappling with what it means to be(come) a man: where Sam’s autism casts doubt on his capacity to lead a ‘normal’ adult life, Alex’s personal and professional issues have shaken his sense of his own masculinity. The pair find relief in Minecraft (Persson and Mojang, 2011), discovering that the game offers a space where they can learn more about one another while rehearsing strategies for dealing with the problems they face. In its portrayal of a father-son relationship mediated via a videogame, Stuart’s novel testifies to the increasingly important role games play in contemporary discourses of gender, ability, education and parenting. Drawing on Kathryn Bond Stockton’s work on gaming and queer childhood, and on discussions of development and temporality from queer theory, crip theory and disability studies, this article interprets A Boy Made of Blocks as an attempt to imagine modes of masculine identity that depart from normative understandings of ‘manliness’ while eschewing the juvenility, solipsism and ‘toxic’ prejudice long seen as hallmarks of geek and gamer masculinities. Ultimately, however, the developments Stuart’s protagonists undergo are more about accommodating themselves to the cultural changes wrought by post-Fordism than they are any radical reimagining of masculinity. While this failure is disappointing, it also underlines the important role that game studies has to play, not merely in charting the course of gaming culture’s development, but in illuminating what has been happening, in recent decades, to the very concept of ‘growing up’.

Gaming and disability: Fun and function. (2018). reSearch, 14(1). Landover, MD: National Rehabilitation Information Center (NARIC). Retrieved from: https://naric.com/?q=en/publications/volume-14-issue-1-gaming-and-disability-fun-and-function.

“In this edition of reSearch, we explore the topic of video games, including online and virtual games, as leisure and/or rehabilitation tools for individuals with disabilities” (n.p.).

Gandolfi, E., Ferdig, R. E., & Calabria, K. (Eds.). (2018, July). Digital games for special needs: Special needs for digital games [Special Issue].  G|A|M|E: The Italian Journal of Game Studies Issue 7. Collaboration of Ludica, Film Forum at the Università Degli Studi di Udine, and Dipartimento di Storia, Beni Culturali e Territorio at Università degli Studi di Cagliari. Retrieved from: https://www.gamejournal.it/issues/game-n-7-2018/

“The goal of this special issue is to provide insights and guidelines for realizing and responding to this potential. The five articles collected address several aspects of the interplay between digital games and individuals with special needs. Aside from their topical differences, these contributions seem to share an underlying value given to the inclusion of individuals with disabilities in the world of gamers. The authors also collectively recognize the fact that games should be created with affordances that allow for universal access” (n.p.).

Gardner, D. L., Boyd, L., & Gardner, R. T. (2024). Piecing Together Performance: Collaborative, Participatory Research-Through-Design for Better Diversity in Games. In IEEE Transactions on Games. DOI: https://doi.org/10.1109/TG.2023.3349369.

Digital games are a multi-billion-dollar industry whose production and consumption extend globally. Representation in games is an increasingly important topic. As those who create and consume the medium grow ever more diverse, it is essential that player or user-experience research, usability, and any consideration of how people interface with their technology is exercised through inclusive and intersectional lenses. Previous research has identified how character configuration interfaces preface white-male defaults [39, 40, 67]. This study relies on 1-on-1 play-interviews where diverse participants attempt to create “themselves” in a series of games and on group design activities to explore how participants may envision more inclusive character configuration interface design. Our interview findings describe specific points of tension in the process of creating characters in existing interfaces and the sketches participant-collaborators produced challenge the homogeneity of current interface designs. This project amplifies the perspective of diverse participant-collaborators to provide constructive implications and a series of principles for designing more inclusive character configuration interfaces, which support more diverse stories and gameworlds by reconfiguring the constraints that shape those stories and gameworlds.

Gibbons, S. (2013, October 9). Playing for transcendence: Deus Ex: Human Revolution and disability. First Person Scholar. Waterloo, ON: The Games Institute (GI) at the University of Waterloo in collaboration with IMMERSe, The Research Network for Video Game Immersion. Retrieved from: http://www.firstpersonscholar.com/playing-for-transcendence/.

My commentary takes up the relationship between transhumanism and gaming in Human Revolution. I discuss narrative support for and against transhumanism, and argue that theories of posthumanism offer another area of inquiry with respect to embodiment. I suggest that as the game explores how technology changes our understanding of human ability, it also points toward how disability does not consist of a set of deficiencies, but is instead shaped by environments. Finally, I contend that the game’s inaccessibility is instructive for considering its imbrication in a culture of difficulty that valorizes overcoming the body.

Gibbons, S. (2015). Disability, neurological diversity, and inclusive play: An examination of the social and political aspects of the relationship between disability and games. In Game Studies in Media Res [Special Issue]. Loading… The Journal of the Canadian Game Studies Association, 9(14), 25-39. Retrieved from: http://journals.sfu.ca/loading/index.php/loading/issue/view/14.

This article explores existing connections between disability studies and game studies and suggests how the two fields might greater inform each other. While existing research explores the use of games to reduce pain and achieve rehabilitative goals, new research on games from a disability studies perspective can also consider the persuasive messages that games advance about disability, and how these messages affect questions of identity, inclusion, and acceptance. By arranging the relationship between disability and games into four topics – therapeutic and educational tools, game simulations, accessible features and controls, and narrative inclusion and identification – this article explores, attempts to address, represent, and simulate autism in digital games. It focuses on Auti-Sim (2013), a simulation exercise, and To the Moon (2011), an adventure role-playing game. Drawing on the writings of autistic activists and existing scholarship on disability simulations, the author considers how these games may influence the player’s understanding of autism at social and political levels, and how these artifacts engage with the overarching goals of disability inclusion and autism acceptance.

Hart, D. M. (2021). Beyond normative gaming: Cripping games and their fandoms. Unpublished doctoral dissertation, Miami University. http://rave.ohiolink.edu/etdc/view?acc_num=miami161822794824977.

In this project, which is situated at the intersections of disability studies, video game studies, and fan studies, I argue that disability is an integral part of video games and their communities of fans. Contrary to the misconception that digital spaces are technoutopias that foster equality through anonymity and virtual disembodiment, digital spaces tend to magnify bodymind differences and perpetuate systems of oppression. This is especially true in terms of disability, race, and gender. Disability has always been present in video games, but not necessarily in a positive way. The inaccessibility of games and related cultures exists both in terms of physical inaccessibility and cultural inaccessibility, the latter referring to the discouragement of marginalized individuals from playing video games and participating in gaming cultures. The inaccessibility of games has had a direct and reciprocal effect on representation in games, as characters who are not white, male, straight, and able-bodied/minded are often absent or negatively depicted. Gameplay is often normative and does not encourage the player to experience alternate ways of being. I refer to non-normative forms of gameplay as cripping a game in homage to Bonnie Ruberg’s notion of queering a game. I focus specifically on crip temporality in video games as it is related to mental illness, or mad time. Negative stereotypes of mental illness abound in video games; as a counterpoint, I analyze games that alter the player’s experience with time in a way that does not stigmatize madness. In the two final chapters, I blend a qualitative reception study of fan reactions to the Dishonored series with an analysis of video game fanworks, i.e., creative works made by fans about existing media. I analyze disability-related mods that fall into three broad categories: 1) mods that add accessibility options to video games, 2) mods that improve the representation of disabled characters, and 3) mods that alter the way a game functions to crip the gameplay experience. I conclude with a reflection on how events in 2020, including the COVID-19 pandemic and Black Lives Matter protests, have intersected with the topics of this dissertation.

Hassan, L. (2023). Accessibility of games and game-based applications: A systematic literature review and mapping of future directions. New Media & Society. DOI: https://doi.org/10.1177/14614448231204020.

Digital game technologies, that is, games and emerging game-based applications, are pervasively spread in society as a means of entertainment, education and exercise, amongst other uses. With this popularity, attention has been directed towards the accessibility of these technologies to people with disabilities to ensure equity, equal access to opportunities and realize earnings from a significant customer group. This study investigates: How is the attention of academic game accessibility research divided across game technologies, disability categories and use domains? And where is attention needed? To answer these questions, I conducted a review of research (162 manuscripts) on game technologies’ accessibility published between 2016 and 2020, inclusive. The reviewed literature appears to have a utility focus (e.g. on education and health management) that relatively de-emphasizes the importance of game accessibility for entertainment or fun purposes. Auditory, motor and mobility disabilities, and emerging gamification, exergames, virtual reality (VR) and augmented reality (AR) are especially under researched in the academic domain.

Haukaas, D. (2024). Disability identity in simulation narratives [Literary Disability Studies]. Cham: Palgrave Macmillan Cham. DOI:  https://doi.org/10.1007/978-3-031-44482-1.

Disability Identity in Simulation Narratives considers the relationship between disability identity and simulation activities (ranging from traditional gameplay to more revolutionary technology) in contemporary science fiction. Anelise Haukaas applies posthumanist theory to an examination of disability identity in a variety of science fiction texts: adult novels, young adult literature and comics, as well as ethnographic research with gamers. Haukaas argues that instead of being a means of escapism, simulated experiences are a valuable tool for cultivating self-acceptance and promoting empathy. Through increasingly accessible technology and innovative gameplay, traditional hierarchies are dismantled, and different ways of being are both explored and validated. Ultimately, the book aims to expand our understandings of disability, performance, and self-creation in significant ways by exploring the boundless selves that the simulated environments in these texts allow.

Henry, E. S. (2017). Reimaging disability in role-playing games. In E. Torner, E. L. Waldron, & A. Trammell (Eds.), Analog Game Studies [Vol. II] (pp. 93-96). Philadelphia: ETC Press.  https://analoggamestudies.org/2015/02/reimagining-disability-in-role-playing-games/.

“Role-playing games have a fraught relationship with disability. Take Numenera (2013) as an example: the game is set in a world where scientists have continued the project of eugenics, endeavoring to “perfect” the human form. This setting effectively erases disability from Numenera’s cyberpunk future. Here, disabled bodies are rendered invisible and therefore undesirable and unplayable. But while eugenics may lie far from the concerns of able-bodied designers, for disabled players, seeing eugenics succeed is not interesting. It is terrifying. Numenera, however, marks only one case where the problematic of disability in role-playing games is particularly clear. This essay analyzes the ways that disability is handled within the World of Darkness setting in order to articulate some common problems with the implementation of disability in role-playing games” (p. 93).

Hoffman, K. M. (2019). Social and cognitive affordances of two depression-themed games. Games and Culture, 14(7-8), 875-895. DOI: https://doi.org/10.1177/1555412017742307.

Video games can have a variety of intended and unintended effects on players, making the impacts of games and the role that individual design elements play in causing those impacts a valuable area of research. This study explored the social and cognitive effects on players of two “art games” (Depression Quest and Actual Sunlight) by analyzing player-generated discussion board posts, focusing on (1) what real-life social and cognitive effects the games had on players and (2) what elements of the games made the players consider them “good” or “bad” games. Players reported or demonstrated that the games led to understanding and empathy, self-evaluation, lessons learned, clinical discussion of depression, encouragement to others, a sense of community, and opening dialogue with friends and family. Discussions of game quality centered on realism, game endings and message, and player agency.

Holloway, C., Gerling, K., Power, C., Spiel, K., Barbareschi, G., Cox, A., & Cairns, P. (2019, October). Disability interactions in digital games: From accessibility to inclusion. In CHI PLAY ’19 Extended Abstracts: Extended Abstracts of the Annual Symposium on Computer-Human Interaction in Play Companion Extended Abstracts (pp. 835–839). DOI: https://doi.org/10.1145/3341215.3349587.

Digital games are a hugely popular activity enjoyed for the diverse experiences and relationships that they offer players. In 2019, games are more accessible to an increasingly diverse audience of disabled players through both new gaming technology and in-game options that allow people to tune their experiences. As a significant cultural medium, it is also challenging perceptions of disability in how characters are depicted. In this workshop, we aim to understand better the research challenges in making games for and with disabled players. We explore opportunities in games and disability through the lens of the new Disability Interaction (DIX) manifesto.

Jerreat-Poole, A. (Ed.). (2018, March 14). Mad/Crip Games and play: An introduction [Feature Issue]. First Person Scholar. Waterloo, ON: The Games Institute (GI) at the University of Waterloo in collaboration with IMMERSe, The Research Network for Video Game Immersion. Retrieved from: http://www.firstpersonscholar.com/map-crip-intro/.

“I want this special issue to be the community I’ve never found, a gathering place for players and developers and writers who aren’t neurotypical, who aren’t able-bodied, who didn’t make it to the conference or game jam because the building was inaccessible or the forced socialization gave them panic attacks. I want this to be a queer Mad crip utopia. I want us to agree on how best to dismantle the ableist, racist, cis-hetero-patriarchy, those exploitative and painful hierarchies that make up the fabric of North American culture, of settler colonialism. I want us to like each other, support each other. I’m hungry for family” (n.p.).

Jerreat-Poole. A. (2020, February). Sick, slow, cyborg: Crip futurity in Mass Effect. Game Studies, 20(1).  Retrieved from: http://gamestudies.org/2001/articles/jerreatpoole.

This paper uses “cripping strategies” (Sandhal p. 149) to read game texts for disability representation, uncovering productive moments of tension and discomfort that disrupt the smooth story of hyper-able bodies performing extraordinary feats in the military science fiction (SF) trilogy Mass Effect (ME). In Disability Media Studies, Elizabeth Ellcessor and Bill Kirkpatrick call this practice “negotiation”: “how readers selectively attend to and interpret texts to form their own meanings from them” (p. 12). Following their example, I adopt “a disability perspective” which “is about decentering the physically and cognitively ‘normal’ character, the ‘normal’ viewer” (p. 140). Performing crip negotiation in my analysis of ME1-3, I explore the sick, slow, and cyborg moments that offer alternative futures for crip bodies, and interrogate the complex relationships between disability, culture, and technology. ME1-3 can be read as embodying what Alison Kafer terms “crip futurity” (2013, p. 21). Kafer explains that disabled bodies are cut out of all imagined futures or left behind as the neoliberal able-bodied pace of society rushes forward. Kafer insists that “I, we, need to imagine crip futures because disabled people are continually being written out of the future, rendered as the sign of the future no one wants” (p. 46). Turning to SF as a site to do this critical imagining, I look for futures in which technology has not eradicated disability but exists in a constellation of complex relationships with crip embodiments. In these futures disabled bodies exist alongside spaceships, Artificial Intelligence (AI), and particle beam weapons. Finally, I consider the intersections of gender, race, and disability, and how these identity positions impact access to futuristic technology and treatment as imagined in ME1-3.

Jerreat-Poole, A. (2022). Virtual Reality, disability, and futurity: Cripping technologies in Half-Life: Alyx. In D. Bolt (Ed.), Disability Futurity [Feature issue]. Journal of Literary & Cultural Disability Studies, 16(1), 59–75. DOI: https://doi.org/10.3828/jlcds.2022.4.

The article takes up Valve’s 2020 science fiction virtual reality (VR) game Half-Life: Alyx as a site through which to explore the complex relationship between bodies, technology, and disability. It discusses the way that VR inadvertently challenges both the fantasy of hyperable-bodiedness found in action-adventure, first-person shooter, and science fiction video games, and the myth of digital disembodiment—the idea that we can (and perhaps should desire to) transcend the physical body through digital avatars. Technology has an intimate relationship with pain, discomfort, and physicality, and this analysis of VR and Alyx foregrounds the messiness of embodied bionic encounters. Within the science fiction alternate reality of the game, technology plays a key role, often explicitly enhancing or augmenting the body. In an imaginative turn, the article takes up drones, gravity gloves, and the telephone headset as objects through which to fashion a more feminist and ethical future. Engaging in imaginative “criptastic hacking” (Yergeau in Hamraie and Fritsch 4), the article discusses potential ways of using technology as access aids, enacting a “cripped cyborg politics” (Kafer 106) and exploring the intimate relationships between organic and inorganic bodies.

Kamm, B., & Freudenthal, M. (Eds.). (2024). Exploring Access and Accessibility in Analog Role-Playing Games [Feature Issue]. Japanese Journal of Analog Role-Playing Game Studies, 5.

The fifth issue of the Japanese Journal of Analog Role-Playing Game Studies (JARPS) focuses on the fundamental themes of access and accessibility in table-top/table-talk (TRPG) and live-action (larp) role-playing games. This special issue explores the multifaceted barriers and opportunities for inclusivity, emphasizing the intersectionality of access to examine structural and experiential barriers in role-playing games. Access here refers to the right or ability to participate in gaming, regardless of identity or background, such as gender, race, or socioeconomic class. The concept of accessibility concerns the heterogeneous disability dimension of access, which intersects with the other dimensions, of course.

The contributions to this issue cover TRPGs as platforms for autistic social advocacy or how TRPGs support communication skills in afterschool programs for children with developmental disabilities. Others critique colonialist tropes in role-playing games or seek to reimagine calibration frameworks through Crip Theory, emphasizing the role of flexible pacing in TRPGs. Further contributions delve into adult education and empathy-building through inclusive game narratives or critically analyze emotional accessibility in role-playing games.

Collectively, this issue underscores the importance of moving beyond universalist notions of access and accessibility to embrace adaptive, inclusive design principles. By interrogating societal structures and biases in gaming, it invites readers to contribute to a dynamic dialogue about reshaping role-playing spaces for diverse global audiences. This issue serves as both a call to action and a springboard for future scholarship in the evolving field of analog role-playing game studies.

NOTE: Some contributions are only available in Japanese.

King, M., Marsh, T., & Akcay,  Z. (2022, January). A Review of Indie Games for Serious Mental Health Game Design. In B. Fletcher, M. Ma, S. GöbelJannicke, B. Hauge & T. Marsh (Eds.), Joint International Conference on Serious Games, JCSG 2021: Serious Games. Virtual Event, January 12–13, 2022, Proceedings [Lecture Notes in Computer Science Series Vol. 12945] (pp 138-152).

Mental health disorders present a global challenge being the largest contributor to non-fatal burden of disease. In fact, those who are experiencing symptoms of mental illness often wait ten years before seeking help. This is frequently due to help-seeking barriers such as stigma and cost. One way to combat help-seeking barriers is through increasing the mental health literacy of the public. This has been achieved successfully through digital delivery of mental health information and services, including serious games. Early research suggests that serious games are an effective tool for improving mental health literacy. However, factors such as poor-quality game design and research studies mean that developers face challenges when designing, developing, and analyzing serious games. To address these challenges this paper will provide an analysis of indie games that feature topics of mental health, trauma, and grief. Indie games share similarities to research environments, often being created by small teams on a limited budget. Even with these limitations they can tell impactful and emotional stories, making them a valuable source of inspiration for developers of serious mental health games.

King, M., Marsh, T., & Akcay,  Z. (2022, January). Using Indie Games to Inform Serious Mental Health Games Design. In B. Fletcher, M. Ma, S. GöbelJannicke, B. Hauge & T. Marsh (Eds.), Joint International Conference on Serious Games, JCSG 2021: Serious Games. Virtual Event, January 12–13, 2022, Proceedings [Lecture Notes in Computer Science Series Vol. 12945] (pp 153-166).

Mental health literacy (MHL) is an important 21st Century skill. Good MHL can help to reduce barriers to help-seeking by equipping the public with the knowledge needed to help themselves or someone experiencing a mental illness. One Australian-based organization that does this through a training course is Mental Health First Aid (MHFA) Australia. There are many digital interventions that aim to achieve this goal and serious games are no exception. Serious games have been identified as ideal for developing 21st Century skills, meaning MHL literacy is a promising candidate for serious games development. In fact, evidence suggest that serious games are effective as a tool for improving MHL. However, they often suffer from poor-quality game design, poor study design, high dropout rates, variability in studies and loss of motivation and engagement of players. This means that there are many challenges to consider when developing serious games. Here we describe our experiences in the development of a serious game prototype that utilizes the principles of MHFA. The aim of this development is to improve the confidence of players in delivering MHFA. Additionally, it aims to address the challenge of serious games quality by taking an artistic approach that combines narrative, aesthetics and mechanics using indie games for inspiration. There are many well-designed indie games that tell emotional and character driven stories of mental illness. They provide inspiration on the development of honest and relatable characters, which offer a positive representation of those experiencing a mental illness.

LeBlanc, A. (2024, September). Gothic gaming: The ill body and the haunted house in Kitty Horrorshow’s Anatomy. Game Studies, 24(3).

Kitty Horrorshow’s indie game Anatomy has received attention in public facing venues and is considered a haunted house cult hit, but the game is understudied in the scholarly realm. There is, however, a growing body of scholarship about how videogames and disability studies intersect. The haunted house functions as a synecdochical stand-in for the body and generates readings within disability and illness studies by drawing attention to a “reimagined state of agency” which is integral to videogames (Anderson, 2024, p. 4). This article argues that the game mechanics at work in Anatomy constitute a “destructive-creative iteration of Gothic access,” through the game’s use of found footage, first-person perspective and programmed failure, which can represent the flexible subjectivity of the chronically ill body (Herrero-Puertas, 2020, p. 347). I position Anatomy within definitions of the Gothic and Gothic games while providing an overview of gameplay. The following are areas of particular focus: shifting written and audio text within the game, distortions, crashes, glitches and the affective experience of discomfort for players through darkness, lo-fi graphics and the changing home scape. The game prompts affective and embodied experiences for the player which can be read through Adam Daniel and Peter Turner’s analyses of diegesis, found footage, first-person perspective, and programmed failure in horror. Finally, this article discusses Manuel Herrero-Puertas’ framework of Gothic access which posits that “haunted houses have and tell a story” — just as bodies have and tell stories — and I propose avenues for future study of the haunted house in videogames and the Gothic which might borrow from queer scholarship (2020, p. 340). Through the frameworks of Gothic access and bodily doubt, Anatomy helps us recognize that the body truly is our first experience of haunting while creating new avenues through which to think the unthinkable and play the unplayable.

Ledder, S. (2019). On dis/ability within game studies: The discursive construction of ludic bodies. In K. Ellis, R. Garland-Thomson, M. Kent, & R. Robertson (Eds.), Interdisciplinary approaches to disability: Looking towards the future [Vol. 2] (pp. 30-44). New York: Routledge.

“This chapter introduces the cultural model of dis/ability within critical disability studies. It argues how dis/ability is represented within different games by analysing audio-visual, narrative, ludic and simulation levels. The disregard towards dis/ability within the digital game industry can be traced back to the ableist hegemony. While in the game industry dis/ability mostly is no outspoken issue, there is one realm of game development where dis/ability is made relevant explicitly – human health and wellbeing. Within digital games different forms of dis/ability are produced, although most of these representations rely on the medical model. Digital games take part in the flexible normalism when they represent certain people with disability as normal – people who would be available as labour force. On the ludic level, we can analyse what the goal of a game is and what is expected from the player. Damage in most games is calculated as a subtraction from the value determined by health.”

Loewen, G., Cochrane, K. A., & Girouard, A. (2024). From Imagination to Innovation: Using Participatory Design Fiction to Envision the Future of Accessible Gaming Wearables for Players with Upper Limb Motor Disabilities. In Proceedings of the ACM on Human-Computer Interaction, 8(CHI PLAY), Art. 308, 1-30. New York: ACM. DOI: https://doi.org/10.1145/3677073.

The interest in enhancing video game interactions through wearable technology has grown, yet accessible gaming with wearables remains underexplored. This study employs participatory design fiction, enabling disabled gamers to envision a future with tailored gaming wearables while critiquing technology. We conducted a two-phase study. Phase one involved in-depth interviews with upper limb motor disability participants; we developed a fictitious gaming wearable by analyzing the data using reflexive thematic analysis. A smaller group iterated on the wearable in phase two to ideate on ideal futures with accessible gaming wearables. Using data and dialogic/performance analysis, we crafted a design fiction diegetic prototype as a tech review video. This research highlights disabled gamers’ unique needs and experiences around gaming wearables. It offers an innovative diegetic prototype for accessible gaming tech. Our methodological contribution merges narrative inquiry and dialogic/performance analysis in participatory design fiction research, providing a valuable approach for future studies.

Mancera, L., Baldiris, S., Fabregat, R, Gomez, S., & Mejia, C. (2017, July). aTenDerAH: A videogame to support e-Learning students with ADHD. In M. Chang, N. S. Chen, R. Huang, Kinshuk, D. Sampson, & R. Vasiou (Eds.), Proceedings of the 17th IEEE International Conference on Advanced Learning Technologies (ICALT 2017), IEEE Computer Society, Timisoaa, Romania (pp. 438-440). Los Alamitos, CA: IEEE Computer Society Conference Publishing Services (CPS).

“This paper presents aTenDerAH, a videogame designed to support e-Learning processes of young-adults students, especially those suffering from Attention Deficit Hyperactivity Disorder (ADHD). aTenDerAH was developed using Unity as the cross-platform game engine and development tool, Cinema 4D for creating models and animations in 3D, and Photoshop for creating textures to the 3D models. The videogame was integrated into the architecture of Atutor e-learning platform to carry out a case study of the perception of aTenDerAH from the point of view of a student suffering from ADHD, a student without this syndrome and a teacher. Participants agreed on being satisfied with the tool goals and the positive influence of the videogame in the learning process” (p. 438)

Mandryk, R. L., & Birk, M. V. (2019). The potential of game-based digital biomarkers for modeling mental health. JMIR Mental Health, 6(4). DOI: https://doi.org/10.2196/13485.

Background: Assessment for mental health is performed by experts using interview techniques, questionnaires, and test batteries and following standardized manuals; however, there would be myriad benefits if behavioral correlates could predict mental health and be used for population screening or prevalence estimations. A variety of digital sources of data (eg, online search data and social media posts) have been previously proposed as candidates for digital biomarkers in the context of mental health. Playing games on computers, gaming consoles, or mobile devices (ie, digital gaming) has become a leading leisure activity of choice and yields rich data from a variety of sources. Objective: In this paper, we argue that game-based data from commercial off-the-shelf games have the potential to be used as a digital biomarker to assess and model mental health and health decline. Although there is great potential in games developed specifically for mental health assessment (eg, Sea Hero Quest), we focus on data gathered “in-the-wild” from playing commercial off-the-shelf games designed primarily for entertainment. Methods: We argue that the activity traces left behind by natural interactions with digital games can be modeled using computational approaches for big data. To support our argument, we present an investigation of existing data sources, a categorization of observable traits from game data, and examples of potentially useful game-based digital biomarkers derived from activity traces. Results: Our investigation reveals different types of data that are generated from play and the sources from which these data can be accessed. Based on these insights, we describe five categories of digital biomarkers that can be derived from game-based data, including behavior, cognitive performance, motor performance, social behavior, and affect. For each type of biomarker, we describe the data type, the game-based sources from which it can be derived, its importance for mental health modeling, and any existing statistical associations with mental health that have been demonstrated in prior work. We end with a discussion on the limitations and potential of data from commercial off-the-shelf games for use as a digital biomarker of mental health. Conclusions: When people play commercial digital games, they produce significant volumes of high-resolution data that are not only related to play frequency, but also include performance data reflecting low-level cognitive and motor processing; text-based data that are indicative of the affective state; social data that reveal networks of relationships; content choice data that imply preferred genres; and contextual data that divulge where, when, and with whom the players are playing. These data provide a source for digital biomarkers that may indicate mental health. Produced by engaged human behavior, game data have the potential to be leveraged for population screening or prevalence estimations, leading to at-scale, nonintrusive assessment of mental health.

Marchisotto, J. (2019, May). Playing nothing: Games and cognitive difference in Murphy. Journal of Literary & Cultural Disability Studies, 13(2), 159-175. DOI: https://doi.org/10.3828/jlcds.2018.44.

In Murphy, Samuel Beckett uses games to undermine expectations of cognitive normativity. He aligns mental disability with play, re-contextualizing cognitive difference as an interactive process rather than a frightening Otherness. Informed by visits to mental hospitals and personal experience with psychoanalytic treatment, characters in Murphy often enter interdependent relationships that question their own subjectivities, exploring what it means to be recognized as mentally disabled. The article suggests Beckett uses games to unsettle logical narrative sequence and permit unanticipated results. The ludic framework emphasizes the features games share with non-normative epistemologies, or “cripistemologies.” Near the end of the novel Murphy plays chess with the schizophrenic Mr Endon, seeking equal recognition as mentally disabled. The game results in “Nothing,” a Nothing that is not a void but the feeling of an inarticulate something, the presence of which develops through playful exchange. This Nothing allows space for understandings of cognitive difference existing outside normative conventions, expanding considerations of mental disability through processes of exchange.

Martinez, J. J., Froehlich, J. E., & Fogarty, J. (2024). Playing on hard mode: Accessibility, difficulty, and joy in video game adoption for gamers with disabilities. Forthcoming in Proceedings of the 2024 CHI Conference on Human Factors in Computing Systems (CHI ’24).

Video games often pose accessibility barriers to gamers with disabilities, yet there is no standard method for identifying which games have barriers, what those barriers are, and whether and how they can be overcome. We propose and explore three phases of the “game adoption process”: Discovery, Evaluation, and Adaptation. To advance understanding of how gamers with disabilities experience this process, the resources and strategies they use, and the challenges experienced, we conducted an interview study with thirteen gamers with disabilities with differing backgrounds. We then engage with existing theories of consequence-based accessibility, of difficulty, and of identity-based gaming to better understand how these processes manifest “access difficulty” and to characterize the experience of “disabled gaming.” Finally, we present design recommendations for game developers and distributors to better support gamers with disabilities in the game adoption process by engaging with community-made resources, supporting socially-created access, and creating customizable experiences with opportunities for unconventional play

McDaniel, J. L. (2024). Horror film tropes in tabletop games: Metadaptation, procedural rhetoric, and the “horror” of disability. In J. L. McDaniel & A. Wood (Eds.), Broadening the horror genre: From gaming to paratexts. London: Routledge. DOI: https://doi.org/10.4324/9781003406112-10.

This chapter offers a framework that combines Ian Bogost’s procedural rhetoric with Eckart Voigts-Virchow’s metadaptation. Using this framework, the chapter examines how the anti-ableist procedural rhetoric and tactics of metadaptation in tabletop horror games, such as Ravensberger’s Horrified and Accessible Games’ roleplaying game (RPG) Survival of the Able, lead players to question the moralistic history of the ways that films have depicted characters with disabilities: as monstrous, marginalized, and immoral due to their unfaithfulness to the norm. Finally, the chapter briefly discusses some tabletop gaming examples that repeat problematic tropes of disability from horror cinema due to their emphasis on fidelity.

Meinen, L. E. (2023). Share the Experience, Don’t Take it: Toward Attunement With Neurodiversity in Videogames. Games and Culture. DOI: https://doi.org/10.1177/15554120221149538.

Videogames increasingly focus on marginalized experiences such as neurodivergence. Specifically, the immersive and embodied aspects of videogames allow neurodivergent people to better explain their experiences. However, current research is limited to instrumentalization, by specifically looking for the therapeutic or educational benefits of videogames. I reflect on ethical questions that arise if we try to communicate the embodied experiences related to neurodiversity through videogames. I argue that videogames with the explicit goal to create empathy or care for neurodivergence can also be restrictive. Instead, I put forward attunement as an intersubjective and nonhierarchic mode of affective engagement with neurodiversity through gaming. An analysis of the videogames Unravel and Celeste helps me to illustrate what attunement in a videogame could look like. I conclude that better understanding neurodiversity through play, means “letting it be” instead of (re)shaping it to be easily consumable in videogames.

Meinen, L. (2024). Imagining neuroqueer futures: Crip time and care-ful connections in Night in the Woods. In J. F. Belmonte Ávila & E. Encarnación-Pinedo (Eds.), Unbound queer time in literature, cinema, and video games. London: Routledge. DOI: https://doi.org/10.4324/9781003399957-21. 

This chapter explores how the action-adventure game Night in the Woods helps players engage ethically with neurodivergence without ‘making them care’ in an oppressive manner. The video game offers an excellent case study on the potential role of videogames as a speculative medium to imagine neurodiversity-affirmative and disability justice-informed worlds. By turning to new materialist care ethics, the chapter argues that a care-ful approach is crucial if we want to use games to relate to another person’s lived experience and make sense of it. In this light, Maria Puig de la Bellacasa’s threefold definition of care is adopted to argue that NITW effectively includes each of these elements. Specifically, crip time functions as a way for players to make care-ful connections on the level of gameplay, storyline, and the ethico-political positioning of the game. The chapter explores the prominence of slowness and repetition in the video game and interprets them as neuroqueer affects. In the game, temporality functions as an affective structure that implicates the player in the task of building relationships both with Mae and through her with other characters. This offers an imperfect but imaginative exploration of what just disability futures might look like.

Meints, J., & Green, A. (2019, August). Representations of Disability and Player Agency in Borderlands 2. G|A|M|E: The Italian Journal of Game Studies Issue 8, 43-50. Collaboration of Ludica, Film Forum at the Università Degli Studi di Udine, and Dipartimento di Storia, Beni Culturali e Territorio at Università degli Studi di Cagliari. Retrieved from: https://www.gamejournal.it/representations-of-disability-and-player-agency-in-borderlands-2/.

This paper examines the first-person shooter Borderlands 2 through the lens of the social model of disability and rhetoric. Borderlands 2 encourages player agency while positioning the player within a visual rhetoric of disability. This combination of rhetoric and agency depicts disability as a social construct as opposed to the more common vision of disability as an innate flaw. This social model of disability within the game exists in tension with some ableist slurs and harmful stereotypes about disabled bodies also found in Borderlands 2. Nevertheless, Borderlands 2 models one approach how games can depict disability without positioning the disabled body as undesirable or grotesque.

Mejeur, C. (2023). Games as critical literature: Playing with transhumanism, embodied cognition, and narrative difference in SOMA. In T. Ghosal (Ed.), Global Perspectives on Digital Literature: A Critical Introduction for the Twenty-First Century. New York: Routledge. DOI: https://doi.org/10.4324/9781003214915-7.

Video games provide players with unique opportunities to play with identities and stories, and at times this narrative play can lead to new, potentially queer encounters with difference, embodiment, and humanity. This chapter explores SOMA (Frictional Games 2015) as a case study for narrative play and embodiment in games. A first-person, narrative game set in a post-apocalyptic world, SOMA tasks players with surviving and confronting themes of transhumanism, embodied cognition and identity, and the political costs of posthuman futures. SOMA exemplifies narrative difference in games and beyond––how we construct, play with, and experience our worlds differently.

Milligan, C. A. (2019, September). Immanent interbodies: Composing disability through embodied choragraphy. In P. Bratta & S. Sundvall (Eds.), Digital Technologies, Bodies, and Embodiments [Special Issue]. Computers and Composition, 53, 75-85. DOI: https://doi.org/10.1016/j.compcom.2019.05.006.

In this article, I argue that many praxes of composition stumble into pitfalls of ableism built into the default computer technologies that classrooms employ. Writing software and hardware writ large typically conflate the particularities of embodiment with the generality of “the body” equipped to succeed by standards of normalcy. Therefore, I propose a trajectory away from idealized interfaces, and toward immanent “interbodies,” which more fully account for embodiment’s contradictive mutabilities. Such work requires strategies for composing disability to draw attention to the embodied ways that many composition practices are performed in writing processes. Composing disability, I argue, makes our writing more like our bodies by subverting the standard use of writing technologies that construct classroom discourses. These praxes contribute to embodied choragraphy, which calls into question ableist pedagogies. Through wide citation of diverse scholarship and description of classroom exercises utilizing videogames and related media, this article challenges the fields’ commitment to computers and composition, and questions what versions of embodiment it finds value in.

Park, E., Chae, J., Eum, K., Choi, E., Oh, H., & Doh, Y. Y. (2025). Press start to continue: A thematic analysis of the iterative process of hardcore players with disabilities adapting to gameplay difficulties. In N. Yamashita, V. Evers, K. Yatani, & X. Ding (Eds.), Proceedings of the Extended Abstracts of the CHI Conference on Human Factors in Computing Systems (CHI EA ’25), Art. 446, 1–7. New York: Association for Computing Machinery. DOI: https://doi.org/10.1145/3706599.3719723.

Playing video games can empower players with disabilities by providing them opportunities for connection, achievement, and cultural participation. However, as they continue playing, they need to devise alternative ways to access inaccessible game goals and manage social demands from multiplayer games. This study investigated how players with disabilities navigate these difficulties by analyzing interviews with five hardcore players with disabilities. The findings emphasize the critical role of available resources, including accessibility features, inclusive design supporting experimentation, and robust community support in enabling players to continue playing. To do so, players adapt to game difficulties through an iterative process of employing coping strategies using available resources. The findings highlight the importance of game environment, social, and cultural resources in supporting participants’ continued gameplay and provide related insights

Perry, P. (2023, December 20). Ctrl Shift: How Crip Alt Ctrl Designers Change the Game and Reimagine Access. DOI: https://doi.org/10.31219/osf.io/mahn5.

To being, this PhD covers a comprehensive literature review. The research embarked upon in this thesis delves into the intricate domain of game controllers, crip technology, and game design. Initially, the thesis scrutinizes the historical relationship between game controllers and Human- Computer Interaction (HCI), exploring the consequent impact on disability. This investigation also addresses the prevalent trope of the “technological cure” within the scope of HCI. Shifting the lens to User-Centered Design (UCD), the research delineates its evolution in the context of console game controller design. Given UCD’s evident shortcomings in producing universally accessible controllers, the research pivots to community-derived solutions. A deeper dive is taken into the inherent limitations posed by mental models in console controllers. This exploration further demystifies the often- misunderstood concept of affordance in UCD. The narrative then pivots to the transformative feats of crip hackers, prompting the reader to envision a future where such innovation is applied to game controllers. Delving into HCI, the thesis explores the notions of Embodiment and Entanglement with Crip HCI, questioning the feasibility of introducing activist affordances in controllers. This inquiry culminates in an analysis of Alt Ctrl games, assessing their potential to harmonize with procedural rhetoric, metaphor, and activism in the gaming realm. It maps both the history of Alt Ctrl Games and serves to create a working definition for the genre. This PhD’s practice based research delves into the design methodologies employed by crip designers in the creation of Alt Ctrl games, offering a distinctive perspective on game development. It begins with an introspective analysis of the researcher’s own practices as a disabled game practitioner, documenting the methods employed in their creative process. Building upon this personal exploration, the study extends to a collaborative framework where a group of disabled designers is paired with Alt Ctrl game developers. Utilizing an asynchronous participatory workshop model, the research probes into the shared practices and dynamics within these partnerships. Central to this study is the examination of how these collaborations, deeply rooted in the designers’ personal experiences and the boundaries posed by assistive technology, confront and challenge conventional co-design frameworks. It brings to light the necessity and potential of a Crip game design methodology, one that inherently incorporates disability considerations from the outset. This approach not only advocates for ethical game design but also aims to shift the gaming landscape, fostering more inclusive and accessible design processes for creating games.

Poetics of play. (2019, April). InVisible Culture: An Electronic Journal for Visual Culture (IVC) Issue 30. Rochester, NY:  University of Rochester, Graduate Program in Visual & Cultural Studies. Retrieved from: https://ivc.lib.rochester.edu/category/issues/current-issue/.

Scholarly articles and creative works that address the poetics and politics of video games.

Powers, G. M., Nguyen, V., & Frieden, L. M. (2015). Video game accessibility: A legal approach. Disability Studies Quarterly, 35(1).  DOI:  DOI: http://dx.doi.org/10.18061/dsq.v35i1.4513.

Video game accessibility may not seem of significance to some, and it may sound trivial to anyone who does not play video games. This assumption is false. With the digitalization of our culture, video games are an ever increasing part of our life. They contribute to peer to peer interactions, education, music and the arts. A video game can be created by hundreds of musicians and artists, and they can have production budgets that exceed modern blockbuster films. Inaccessible video games are analogous to movie theaters without closed captioning or accessible facilities. The movement to have accessible video games is small, unorganized and misdirected. Just like the other battles to make society accessible were accomplished through legislation and law, the battle for video game accessibility must be focused toward the law and not the market.

Raffety, E., & Insa-Iglesias, M. (2023). Re-imagining Christian education through neurodivergent fellowship, play, and leadership in online videogaming. In T. Hutchings (Ed.), Teaching with Games: Formative Gaming in Religion, Philosophy and Ethics [Special Issue]. gamevironments no. 19.  DOI: https://doi.org/10.48783/gameviron.v19i19.220.

From Fall 2020 to Spring 2022, the Center of Theological Inquiry, funded by a grant from the Templeton World Charity Foundation’s Diverse Intelligences Initiative and in collaboration with Glasgow Caledonian University in Scotland, created a Minecraft (2011) videogame prototype titled The Spiritual Loop. This videogame prototype was designed and developed for fostering spiritual growth and connection based on ethnographic research with neurodivergent persons and their Christian faith communities in the United States. Considering the lack of access disabled persons experience with respect to Christian communities in the US (Carter 2007), alongside the disproportionate emphasis on educational and therapeutic outcomes with respect to neurodivergent gamers (Spiel and Gerling 2021), our participatory fieldwork with neurodivergent players led us to emphasize the game’s opportunities for spiritual connection versus mastery of biblical content or Christian virtues.

This paper highlights two findings with respect to gaming and Christian education. First, despite the consistent emphasis on fostering Christian community and connection, neurotypical players frequently mistook the game’s goal as Christian education, whereas neurodivergent players readily appreciated the game’s fellowship potential. Second, neurodivergent players seamlessly assumed leadership roles in online game play, confirming the ability of online communities to transform theological hierarchies (Campbell 2012). Based on these findings, we suggest that a bifurcation in fellowship and education in traditional Christian formation reflects ableist biases. The flexible, playful environment presented in online gaming spaces offers critical opportunities for fostering fellowship between neurodivergent and neurotypical Christians, as well as untapped opportunities for neurodivergent leadership to flourish in reimagining more accessible environments for Christian education.

Ringland, K. E. (2017, May 30). Who has access? Making accessible play spaces in Minecraft for children with autism. Analog Game Studies [Online Journal].  Pittsburgh: Carnegie Mellon University.  Retrieved from: http://analoggamestudies.org/2017/05/who-has-access-making-accessible-play-spaces-in-minecraft-for-children-with-autism/.

“In this essay, I will explore how parents and children have worked together to create an accessible play space. Here, the physical and virtual have become inevitably intertwined as they have not only configured their physical access to the game, but also their software, virtual world, and social interactions” (n.p.).

Ringland, K. E. (2019, May). A Place to Play: The (Dis)Abled Embodied Experience for Autistic Children in Online Spaces. CHI ’19 Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems, Glasgow, Scotland [Paper No. 288]. New York: ACM. Retrieved from: https://doi.org/10.1145/3290605.3300518.

Play is the work of children-but access to play is not equal from child to child. Having access to a place to play is a challenge for marginalized children, such as children with disabilities. For autistic children, playing with other children in the physical world may be uncomfortable or even painful. Yet, having practice in the social skills play provides is essential for childhood development. In this ethnographic work, I explore how one community uses the sense of place and the digital embodied experience in a virtual world specifically to give autistic children access to play with their peers. The contribution of this work is twofold. First, I demonstrate how various physical and virtual spaces work together to make play possible. Second, I demonstrate these spaces, though some of them are digital, are no more or less “real” than the physical spaces making up a schoolyard or playground.

Rodéhn, C. (2022, March). Introducing Mad Studies and Mad Reading to Game Studies. Game Studies, 22(1). The International Journal of Computer Game Research, Game Studies Foundation. Supported by the Swedish Research Council (Vetenskapsrådet), The Joint Committee for Nordic Research Councils for the Humanities and the Social Sciences, Blekinge Institute of Technology, IT University of Copenhagen, and Lund University. Retrieved from: http://gamestudies.org/2201/articles/rodehn.

The aim of this paper is to introduce and develop mad studies as a theory and mad reading as a method for examining representations of madness in games. Mad studies is a theoretical field that examines madness and critically addresses systematic and symbolic sanism. In this text, mad studies is positioned as a shift of perspective from previous psy sciences-influenced research to a more inclusive way of studying madness in games. Mad reading is explained as (1) a situated reading, (2) challenging sanist representations, (3) reading the explicitly mad, (4) revealing where madness is not clearly visible, and (5) maddening games. The paper offers suggestions on how to put mad studies and mad reading into practice when studying games. The paper is primarily theory-driven but gives examples from several games, particularly the game Outlast.

Rodríguez Jiménez, M., Pulina, F., & Lanfranchi, S. (2015). Video games and Intellectual Disabilities: A literature review. Life Span and Disability XVIII, 2, 147-165.

Video games are ubiquitous in the society and this technology has transcended its initial playful side to become also an educational and cognitive training tool. In this sense, different studies have shown that expert game players gain advantages in various cognitive processes respect to non-players and that playing with video games can result in particular profits that in some cases could be generalized to other tasks. Accordingly, video games could be used as a training tool in order to improve cognitive abilities in atypical populations, such as relating to individuals with intellectual disabilities (ID). However, literature concerning video games in people with ID is sparse. In this paper we executed a narrative review of the studies about the use of video games in relation to people with ID.

Romano, K. D. (2014). (Dis)Abled Gaming: An Autoethnographic Analysis of Decreasing Accessibility for Disabled Gamers. Unpublished Master’s Thesis, Communication Department, University of South Florida, Tampa, FL. Retrieved from: http://scholarcommons.usf.edu/etd/5575.

Within the context of culture, disability has long existed as a stigmatizing quality (Goffman, 1963). As a result, people with disabilities are often overlooked or completely omitted from various, cultural artifacts. This exclusion of people with disabilities is largely recognized as unproblematic because their disabilities imply an inevitable failing. Through my own experiences as a disabled gamer, I have recognized that video games have also framed gamers with disabilities as problematic. Video games are largely constructed in a one-size-fits-all mentality (Grammenos, 2014), where very specific people, with very specific kinds of bodies, are granted access to play them. Since disabled gamers are not necessarily capable of playing video games in similar ways that able-bodied gamers can, it is assumed that we can’t play video games and that we shouldn’t want to. By using autoethnography as theory, I venture through a few stories from my life in which my own disability has rendered gaming either difficult or impossible. I seek to use these autoethnographic pieces as living examples of the problems involved with a traditional discussion of accessibility for people with disabilities. This thesis is a call for a renegotiation of “accessibility,” and how generalized formulations of this concept are still capable of excluding people who are disabled in very particular ways. In accordance with Shakespeare’s (2006) interactive model, I use my stories to show how my disability is a culmination of both the material and social qualities of my body. It is from this model that I seek transcendence from thinking of disabled bodies in either a medical or social model (Oliver, 1990) approach. Accessibility should be regarded as an interactive and cyclical process, which takes place between the individual, her body, the environment, and back again. An assessment of video game accessibility should be referred to in a similar way, where developers may attempt to be inclusive to people of varying kinds and levels of disability, rather than focusing solely on able-bodied modes of gaming.

Ruberg, B. (2020, March). Empathy and its alternatives: Deconstructing the rhetoric of “empathy” in video games. Communication, Culture and Critique, 13(1), 54–71. DOI: https://doi.org/10.1093/ccc/tcz044.

This article analyzes the contemporary discourse that surrounds video games. Specifically, it confronts the rhetoric of “empathy,” which has become a buzzword in North American industry, academic, education, and media conversations about video games and their supposed power to place players into others’ shoes—especially those games created by queer or otherwise marginalized people. Scholars like Wendy Chun and Teddy Pozo and game designers like Robert Yang have spoken out against this rhetoric. Building from their writing, as well as critiques from the creators of queer independent games commonly mislabeled as “empathy games,” this article delineates the discriminatory implications of the term. Rather than simply dismissing “empathy,” however, this article unpacks it, turning to textual artifacts like news stories and industry presentations, as well as the 2016 video game Unravel (ColdWood Interactive), to deconstruct the term’s many meanings and to identity alternative (queerer) models of affective engagement with video games.

Santoro, G., Costanzo, A., & Schimmenti, A. (2019). Playing with identities: The representation of dissociative identity disorder in the videogame “Who am I?’Mediterranean Journal of Clinical Psychology, 7(1), 1-10. Retrieved from: https://cab.unime.it/journals/index.php/MJCP/article/view/2053.

Who am I: The Tale of Dorothy (WAI) is the first videogame ever that addresses the treatment of an individual suffering from dissociative identity disorder (DID). WAI describes the life and internal experience of a 14-year-old girl named Dorothy who suffers from DID. The goal of this videogame is to integrate all Dorothy’s dissociated identities. Notably, several symptoms of DID are correctly portrayed in the game, such as identity confusion, identity alteration, amnesia, and psychotic-like experiences. Furthermore, WAI identifies the developmental origins of DID in the individual’s exposure to severe traumatic experiences in the attachment relationships during childhood, which is consistent with current empirical evidence on the developmental precursors of the disorder. Therefore, WAI may represent an innovative possibility for illustrating the main features of DID to gamers, students, and lay people. Accordingly, playing WAI can have important educational implications, as it might serve to reduce mental stigma toward people suffering from DID.

Shell, J. (2021, April 1). What Do We See: An Investigation Into the Representation of Disability in Video Games. DOI: arXiv:2103.17100v1.

There has been a large body of research focused on the representation of gender in video games. Disproportionately, there has been very little research in respect to the representation of disability. This research was aimed at examining the representation of disabled characters through a method of content analysis of trailers combined with a survey of video gamers. The overall results showed that disabled characters were under-represented in video games trailers, and respondents to the survey viewed disabled characters as the least represented group. Overall, both methods of research concluded that the representation of disabled characters was low. Additionally, the characters represented were predominantly secondary, non-playable characters not primary. However, the research found that the defined character type was a mixture of protagonists and antagonists, bucking the standard view of disabled characters in video games.

Silva, M. C. A. P., Maneira, A., & Villachan-Lyra, P. (2018, April). Digital educational games: Inclusive design principles for children with ADHD. In K. Tyner & C. Costa (Eds.), Proceedings of Play2Learn 2018 (pp. 30-45). Lusófona University and the University of Texas-Austin: The Gamilearning Project. Retrieved from: http://gamilearning.ulusofona.pt/play2learn-2018-proceedings/.

This work presents the characteristics inherently present in games which can positively influence children’s learning and are considered of special relevance in the learning process of those diagnosed with Attention Deficit Hyperactivity Disorder (ADHD). The development of digital educational game requires the game designer’s awareness of the influence of learning outcomes of all game elements. Starting with the first creative ideas until the last testing sessions. Despite being the most common neurobehavioral disorder related to human infancy and a cause of severe hindrance to the personal and academic life of children, studies discussing how digital games can be developed or better adjusted to effectively support these children’s learning process seems to be lacking. The main objective of this article is to provide guidelines with which game designers can create better educational games by improving their accessibility and inclusiveness, while having this target audience in mind. To do so, 11 guidelines are presented based on essential components of Interaction Design, User Interface and User Experience, as well as foundations of Cognitive Psychology and clinical characteristics common to children with ADHD. These guidelines are Simple interactivity; Recurring rewards through positive feedbacks; Removal of distracting elements; Emphasis on relevant elements; Level flexibility; Reduced level duration; Multiplayer option; Unlimited game session duration; Validation of important game actions; High visual standards; Motivation and fun as main components. The isolated use of each guideline is already a contribution to the process of creating educational digital games for children with ADHD. However, this work intends to promote a complete and directed guidance to the game designer, who will be able to develop games that effectively improve the learning conditions of children with ADHD by combining the different proposed guidelines.

Sousa, C. (2020). Empowerment and ownership in intellectual disability gaming: Review and reflections towards an able gaming perspective (2010-2020). In F. Costa Luz & C. Costa (Eds.), Videogames and Culture: Design, Art and Education [Feature Issue]. International Journal of Film and Media Arts, 5(1), 14-23. DOI: https://doi.org/10.24140/ijfma.v5.n1.02.

As with other populations, the usage of games by people with Intellectual Disability (ID) has been increasingly approached by research. Notwithstanding, the role of games in the lives of people with disabilities tends to be studied through a categorical picture that emphasizes its therapeutic characteristics and neglects games as recreation and as a form of cultural expression. The present work aims to review the main research outcomes of the last 10 years in the field of gaming and ID. It presents an analysis of the main research objectives and approaches to gaming adopted in the analysed studies, as a path to reflect on two specific concepts: empowerment and ownership. Therefore, a Systematic Literature Review (SLR) methodology, accompanied by statistical and content analysis procedures, was adopted to analyse a sample of 61 peer-reviewed research papers (2010-2020) in this field. The obtained results emphasize the passive role of individuals with ID in games research, with gaming mainly seen through therapeutic our game-based learning approaches. The presented reflection on inclusive research, through the parallelism between game studies and critical disability studies, also highlights that the access to games, as a cultural expression, for people with ID could foster the inclusion of these individuals in the public sphere, both in media and in the democratic civic structures. The produced insights intend to frame future approaches that situate the potential of games and their accessibility as strategies to decrease environmental barriers and hindrances that people with ID face in their specific contexts and foster inclusion.

Sousa, C., Neves, J.C., & Damásio, M.J. (2022). The pedagogical value of creating accessible games: A case study with higher education students. In E. Melser & D. Kao (Eds.), Innovations in Game-Based Learning [Special Issue]. Multimodal Technologies and Interaction, 6(2), 10. DOI: https://doi.org/10.3390/mti6020010.

The potential of games in empowering underrepresented groups is a central theme in the field of media studies. However, to ensure that everyone can benefit from them, it is necessary to ensure that they are inclusive and accessible. In the present work, we have implemented a Participatory Action Research (PAR) approach to target this problem, right at the stage of training new game designers and game developers. Thus, through a game-design-based or experimental game design pedagogical approach, we intended to promote inclusive and accessibility-driven game design and development skills in students, while decreasing their negative attitudes towards people with Intellectual Disability (pwID). A protocol with a Non-Governmental Organization in the field was established and, during two semesters, students were challenged to develop 10 accessible games and physical interfaces for pwID and motor disabilities, through participatory processes. Pre and post assessment was conducted, through a mixed-method approach. After participating in this process, students reported satisfaction and increased knowledge of cognitive and motor accessibility, and inclusive game design in general. Moreover, the attitudinal assessment showed significantly lower levels of prejudiced beliefs towards pwID (p < 0.05).

Spöhrer, M., & Ochsner, B. (Eds.). (2024). Disability and video games: Practices of en-/disabling modes of digital gaming [Palgrave Games in Context]. Cham: Palgrave Macmillan Cham. DOI: https://doi.org/10.1007/978-3-031-34374-2.

This collection intends to fill a long overdue research gap on the praxeological aspects of the relationships between disabilities, accessibility, and digital gaming. It will focus on the question of how Game Studies can profit from a Disability Studies perspective of en-/disabling gaming and issues of disability, (in)accessibility and ableism, and vice versa. Instead of departing from the medical model of disability that informs a wide range of publications on “disabled” gaming and that preconceives users as either “able-bodied,” “normal” or as “disabled,” “deficit,” or “unable to play,” our central premise is that dis/ability is not an essential characteristic of the playing subject. We rather intend to analyze the complex infrastructures of playing, i.e., the complex interplay of heterogeneous human and non-human actors, that are en- or disabling.

Contents include:

Spors, V., & Kaufman, I. (2021, September). Respawn, Reload, Relate: Exploring the Self-Care Possibilities for Mental Health in Games through a Humanistic Lens. Proceedings of the ACM on Human-Computer Interaction, 5(CHI PLAY), Article No. 263, 1–31. DOI: https://doi.org/10.1145/3474690.

Games have the potential to not only entertain and immerse people, but can be used as vehicles for meaning-making. Given these qualities, games are approached as inspiration for caring technologies, especially for mental health. This transformative process often prioritises learning from games as systems, but not necessarily from the experiences of people with mental distress who play games for self-care. In this paper, we report on a participatory workshop series that sets out to further illuminate the connection between games, self-care and mental health from a humanistic, person-centred perspective. Over four workshops, we engaged 16 people with experiences of mental distress in speculative making activities and discussions of how self-care technology inspired by games could be re-envisioned. By thematically analysing our discussions and collective sense-making, we showcase how participants actively “re-frame” games for self-care. Finally, we sketch out how game developers and makers of gameful self-care technologies could build on our findings.

Stang, S. (2018, March 21). Madness as true sight in The Cat Lady and Fran Bow. First Person Scholar [Feature Issue on Mad Crip Games]. Waterloo, ON: The Games Institute (GI) at the University of Waterloo in collaboration with IMMERSe, The Research Network for Video Game Immersion. Retrieved from: www.firstpersonscholar.com/madness-as-true-sight-in-the-cat-lady-and-fran-bow/.

“In this article, I discuss the way Hellblade has been praised and critiqued for its use of mental illness as a mechanic in order to compare it to The Cat Lady and Fran Bow” (n.p.).

Stiegler A., & Zimmermann G. (2015). Gamification and accessibility. In J. Zhou & G. Salvendy (Eds.), Human Aspects of IT for the Aged Population, Design for Aging, ITAP 2015. Lecture Notes in Computer Science [Vol. 9193] (pp. 154-154). Switzerland: Springer International. https://link.springer.com/chapter/10.1007/978-3-319-20892-3_15

There are many software requirements for the development of accessible applications, in particular for elderly people or people with disabilities. In particular, user interfaces have to be sufficiently abstract to cover required adaptations. In this paper, we introduce a gamification approach for teaching, connecting and engaging developers on accessible design of applications. A particular challenge hereby is combining gamification patters with the requirements of accessibility. As many gamification patters build on visual representation or usage metaphors, they are not suited for adaptation. Instead, we derive a representation-agnostic set of gamification patters from actual game design of commercial games. We identify and illustrate five categories of representation-agnostic gamification patterns, based on a games survey: action space, reward, challenge, progress, and discovery.

Stone, K. (2018, September). Time and reparative game design: Queerness, disability, and affect. Game Studies, 18(3). The International Journal of Computer Game Research, Game Studies Foundation. Supported by the Swedish Research Council (Vetenskapsrådet), The Joint Committee for Nordic Research Councils for the Humanities and the Social Sciences, Blekinge Institute of Technology, IT University of Copenhagen, and Lund University. Retrieved from: http://gamestudies.org/1803/articles/stone.

This essay uses a personal account of the process of creating a videogame to explore themes of queerness, disability, and labour. I track the production of the videogame Ritual of the Moon, a game following a queer woman sent to the moon. It is played for 5 minutes per day over 28 days with choices that determine the player’s unique path. The story takes up imagining the future, especially what the future looks like for queer women. Time becomes cyclical, and the fear of women with power bleeds from the past into the future, creating a future that exists between utopia and dystopia. The themes embedded in the game were experienced during production, as well: the effects of psycho-social disability (commonly labelled mental illness) on labour and art practice, queer discovery and narratives, and working through and with “negative” feelings. This paper intermixes theories of queer time with crip time to detail possible approaches to a queer, accessible art practice that takes seriously social inequalities yet moves towards healing. I augment Eve Sedgwick’s idea of reparative reading to form a reparative art practice, one that is inclusive of the paranoid, critical, difficult, and bad feelings that are a part of queer and debilitated life.

Stone, K. (2023). Reparative Game Creation: Designing For and With Psychosocial Disability. In J. Malazita, C. O’Donnell, & E. LaPensée (Eds.), Critical Game Design [Special Issue]. Design Issues, 39(1), 14-26. DOI: https://doi.org/10.1162/desi_a_00703.

This article proposes a design framework called Reparative Game Creation, a process of creating interactive media focused on healing, emotional acceptance, and accessibility for the psychosocially disabled. It is informed by disability studies, affect theory, anti-capitalist thought, and artist-scholarship on research creation and/or critical practice. Though much of game design and game studies focus on the end product or the player experience, this article instead focuses on the process of game design, and as such does not analyze particular games but instead proposes new ways of creating games informed by psychosocial disability.

Stone, K. (2024). The earth’s prognosis: Doom and transformation in game design. In L. op de Beke, J. Raessens, S. Werning, & G. Farca (Eds.), Ecogames: Playful Perspectives on the Climate Crisis (pp. 447-462). Amsterdam: Amsterdam University Press. DOI:  https://doi.org/10.5117/9789463721196_ch21.

This chapter describes the design of four games created by the author: Ritual of the Moon (2019), Humaning (2017), the earth is a better person than me (2018), and UnearthU (2022). Each of these games portray aspects of physical and emotional transformation, and the way that transformation may come about through varied connections to the environment fostered primarily through gameplay accessing the player’s imagination. The paper puts together disability studies scholarship with ecocriticism to analyze the common affects of the climate crisis, such as despair, anxiety, and doom through the lens of game creation.

Supangan, R. A., Acosta, L. A. S., Amarado, J. L. S., Blancaflor, E. B., & Samonte, M. J. C. (2019). A gamified learning app for children with ADHD. In ICIGP ’19 Proceedings of the 2nd International Conference on Image and Graphics Processing, Singapore, Singapore — February 23 – 25, 2019 (pp. 47-51). New York: ACM New York. Retrieved from: https://doi.org/10.1145/3313950.3313966.

Special Education is an Educational Service provided by private or public schools that cater students with disabilities. Attention Deficit Hyperactivity Disorder (ADHD) is a common behavioral disorder that begins at infancy stage. But it can also develop during teenage state and even in adulthood. This study focused on providing an interactive supplementary tool in assisting ADHD children in learning Mathematics, Language and Basic Hygiene. This gamified system was designed for an Android mobile application of Level 1 lectures in animated presentation. This tool was made available in order for the parents and teachers track students or ADHD children’s progress through different activities taken in the e-tutor system. In conclusion, the user acceptance testing showed that the Android application was approved in content and suitable to use for special education services.

Suriá-Martínez, R., García-Castillo, F., López-Sánchez, C., Villegas, E., & Carretón, C. (2024). Online games and cognitive distortions: A comparative analysis in students with and without disabilities. European Journal of Investigation in Health, Psychology and Education, 14(7), 1868-1880. DOI: https://doi.org/10.3390/ejihpe14070123.

Online games have experienced significant growth in recent years, with gaming becoming a popular form of entertainment for people of all ages. However, their impact on cognition, especially among vulnerable groups such as students with disabilities, is a topic that requires deeper exploration. The objectives of this study are twofold: firstly, to understand the typology of risk players (non-risk players, players with problems, and pathological players); and secondly, to compare cognitive distortions among students with problematic profiles. Both objectives will be analyzed based on the presence or absence of disability. A total of 704 students from various Spanish universities (135 with disabilities and 569 without disabilities), aged between 18 and 38, participated in the study by completing the Gamblers Belief Questionnaire (GBQ), aimed at measuring cognitive distortions related to gambling problems, as well as the Massachusetts Gambling Screen questionnaire, aimed at measuring gambling addiction. The results indicate a higher percentage of students with disabilities showing a greater risk profile for addiction. Additionally, this group of students exhibits more cognitive distortions. These findings underscore the need for a comprehensive approach to addressing online gaming addiction and cognitive distortions among university students, with and without disabilities. Preventive measures are necessary, such as education on responsible technology use and the promotion of alternative activities. Moreover, specific intervention strategies need to be developed, including access to psychological health services for this student population.

Szykman, A. G., Gois, J. P., & Brandão, A. L. (2015, December). A perspective of games for people with physical disabilities. In OzCHI ’15 Proceedings of the Annual Meeting of the Australian Special Interest Group for Computer Human Interaction, Parkville, VIC, Australia (pp. 274-283).  New York: ACM New York. Retrieved from: http://dx.doi.org/10.1145/2838739.2838765.

People with physical disabilities have to handle obstacles to conduct their lives. In Digital Games Development and Natural User Interface (NUI), researchers have shown interest in overcoming these obstacles. In this study, we collected data to evaluate how they are conducting their studies. We gathered 1485 articles from scientific databases and selected 93, from which we extracted information regarding the contribution of each study, the users responses to each approach, intervention tools and other topics. Our conclusion presents a perspective of studies of games focusing on the rehabilitation and accessibility of people with physical disabilities, a guideline with considerations of the researchers in the field and our suggested directions for new studies.

Tang, J. S. Y., Falkmer, M., Chen, N. T. M., Bӧlte, S., & Girdler, S. (2019, March). Designing a serious game for youth with ASD: Perspectives from end-users and professionals. Journal of Autism and Developmental Disorders, 49(3), 978–995. DOI: https://doi.org/10.1007/s10803-018-3801-9.

Recent years have seen an emergence of social emotional computer games for individuals with Autism Spectrum Disorder (ASD). These games are heterogeneous in design with few underpinned by theoretically informed approaches to computer-based interventions. Guided by the serious game framework outlined by Whyte et al. (Journal of Autism and Developmental Disorders 45(12):1–12, 2014), this study aimed to identify the key motivating and learning features for serious games targeting emotion recognition skills from the perspectives of 11 youth with ASD and 11 experienced professionals. Results demonstrated that youth emphasised the motivating aspects of game design, while the professionals stressed embedding elements facilitating the generalisation of acquired skills. Both complementary and differing views provide suggestions for the application of serious game principles in a potential serious game.

Torabi, S., & Preston, J. (2024). Echoes of madness: Exploring disability and mental illness in Hellblade: Senua’s Sacrifice. In B. Haller & J. Preston (Eds.), Exploring Disability in the Digital Realm [Special Issue]. Societies, 14(9), 170. DOI: https://doi.org/10.3390/soc14090170.

Video games are known for many things, but nuanced portrayals of characters with mental illness might not be one of them. This trend, however, has gradually started to shift with games like Hellblade: Senua’s Sacrifice, which aim to convey a genuine experience of mental illness to the player. Through a close reading of different instances in the game, this paper shows how Hellblade complicates the usual sanist ideas seen in most other games by taking an ambiguous stance, using mental illness as a representational tool. Furthermore, it avoids some of the more sensationalist and problematic tropes often employed in such representations, like the supercrip and the Cartesian divide of the body and mind. In order to show this, we have employed Mitchel and Snyder’s concept of narrative prosthesis to demonstrate how the game does not in fact rely on Senua’s disability as an exotic feature of the narrative to hook players in. By combining insights from disability and mad studies, we show how this game is a step in the right direction when it comes to challenging the perceptions of mental illness prevalent in pop culture.

Tricarichi, C., & Jalajas, D. (2024, March). Escape to fun: A usability study of virtual escape rooms for neurodivergent gamers. Board Game Academics, 1(1). DOI: https://doi.org/10.70380/4zxj16jh2.

Escape rooms have become a pop culture phenomenon. An escape room is a game in which a group of people must work collaboratively to solve puzzles and complete objectives to escape from the current site of the adventure (Hall, 2021). Upon entering the puzzle, the game facilitator, or Game Master (GM), reveals the main objective to players; all the group’s subsequent actions contribute to achieving the initial objective, which must conclude within a certain amount of time.

As with most industries, COVID-19 negatively impacted the in-person gaming industry, including in-person escape rooms. In-person gaming events were confronted with the new understanding that the only way to save person-to-person gaming was to adapt to an online environment. It was exceedingly difficult to find a path for successful execution of the transition from in-person to online gaming. Forced to urgently develop a new experience for gamers, game designers discovered the world of virtual escape rooms (The Escape Game, 2021). This solution was an opportunity to sustain business. However, an unknown benefit was the diversification of the backgrounds of the players of the game. Introducing the interactive escape room dynamic to an online environment allowed for diverse populations of people to participate including those of the neurodivergent, mobility-limited, and socially limited populations.

Computer simulations serve as both entertainment in the gaming industry and training in the professional realm. They can serve as team-building exercises in corporate settings. These activities force socialization, under the guise of fun, thematic settings. Their use has spanned multiple industries: including the medical field, which has been using computerized training simulations for years (Guckian, Eveson, & May, 2020). This type of technology also gives differently-abled people the opportunity to experience an escape room. Individuals with limited mobility, social anxiety, neuorodivergency, or anything that would limit their access to a public environment can find entertainment in an online space, creating inclusivity for the cultural phenomenon of escape rooms. Inclusivity is a topic that has begun to receive its due attention lately (McKinsey & Company, 2022). Social values are taking center stage for business owners in addition to their goals for attracting new consumers. Increased inclusivity in escape rooms allow players impeded by the physicality of rooms to enjoy the computerized, interactive technology making its way into not only games but academia and business as well.

This paper aims at understanding if the virtual landscape can foster the same satisfactory gaming experience as one would have in a physical escape room. This paper will study the usability of an online, virtual escape room. The game is designed using criteria needed for neurodivergent individuals to successfully participate. The goal is to keep the same cooperative elements as a physical escape room and see if those elements could translate into an online forum. We will be using the principle of Computer-Supported Cooperative Work, where the computer supports collaboration, and introducing an additional element of working over the computer in “real-time.” That is the link to making sure an online escape room remains as much like a physical escape room as possible.

van Gillern, S., & Nash, B. (2023). Accessibility in video gaming: An overview and implications for English language arts education. Journal of Adolescent & Adult Literacy Early View. DOI: https://doi.org/10.1002/jaal.1284.

Scholars in recent years have explored the connections between video games, literacy, and learning. Research illustrates that video games can serve as texts for engagement and analysis in English language arts classrooms. Scholars have also demonstrated how games themselves effectively integrate a complex array of learning principles that help players understand and progress in the game. In this article, we explore how recent efforts in game design to promote accessibility for differently abled gamers have implications for literacy education that can promote inclusivity and equity in English language arts classrooms. While recognizing the social construction of the concept of (dis)abilities, we explore existing literature on the video games, literacy, accessibility, and universal design for learning. We then demonstrate specific ways that video game designers promote visual, auditory, motor, and cognitive accessibility for gamers and share how literacy educators can draw upon these strategies to promote accessibility in their curriculum and instruction to help all students engage, learn, and thrive.

Van Ommen, C. A., & Chaparro, B. S. (2022). Exploring Video Game Satisfaction of Gamers with Disabilities. In M. Antona & C. Stephanidis (Eds.), Universal Access in Human-Computer Interaction. Novel Design Approaches and Technologies, HCII 2022 [Lecture Notes in Computer Science Vol. 13308]. Springer, Cham. DOI: https://doi.org/10.1007/978-3-031-05028-2_26.

It is estimated that 61 million Americans are living with a disability, and that 33 million of those play video games. Gamers with disabilities face many barriers in gaming, such as being unable to hear necessary audio or move various components on a controller, which may impact their game satisfaction. Since there has been little research to validate gaming satisfaction measures in gamers with disabilities, an exploratory study was conducted to assess factors that contribute to satisfaction among this population. Results indicate that the items of the validated Game User Experience Satisfaction Scale (GUESS-18) are helpful in understanding video game satisfaction in this population. Participants were able to use the GUESS-18 without modifications, but suggested the addition of areas related to game customization, challenges faced, and learnability.

Wästerfors, D. (2011). Stretching capabilities: Children with disabilities playing TV and computer games. Disability & Society, 26(3), 337-349.  DOI: https://doi.org/10.1080/09687599.2011.560417.

Intervention studies show that if children with disabilities play motion-controlled TV and computer games for training purposes their motivation increases and their training becomes more intensive, but why this happens has not been explained. This article addresses this question with the help of ethnographic material from a public project in Sweden. By applying interactional constructionism to detailed instances of play situations, the article specifies the social dynamics as well as identificatory attractions of these games for children with disabilities.

Wästerfors, D., & Hansson, K. (2017). Taking ownership of gaming and disability. Journal of Youth Studies, 20(9), 1143-1160. DOI: https://doi.org/10.1080/13676261.2017.1313969.

Gaming among young people with disabilities is often understood within a habilitation frame, as if video and computer games primarily should help to exercise and ‘improve’. Little is known about how these games are used within a private frame, and how young people with disabilities operate their gaming as concrete persons rather than as treatment-receiving clients. Through the use of stories, descriptions, and demonstrations from Swedish youth and young adults with disabilities (muscle diseases, cerebral palsy, and Asperger’s syndrome), we explore these gamers’ practical maneuvers, verbal accounts, and biographical-narrative concerns in relation to digital games. As they strive to bypass or overcome digital inaccessibility, various challenges find their way into their gaming practices, not only to complicate, distract, or disturb them but also to give them extra meaning. Gamer–game identifications turn multifaceted, with disabilities serving as paths both around and into the games’ ‘magical circles’. We suggest partly new concepts – beyond a habilitation frame – to capture how young people struggle to take ownership of gaming and disability: engrossment maintenance, vicarious gamers and biographical as well as situational refuge.

Westin, T., Bieree, K., Gramenos, D., & Hinn, M.  (2011, July). Advances in game accessibility from 2005 to 2010. In C. Stephanidis (Ed.), Universal Access in Human-Computer Interaction. Users Diversity: 6th International Conference, UAHCI 2011, Held as Part of HCI International 2011, Orlando, FL, USA, July 9-14, 2011, Proceedings, Part II (pp.400-409). Berlin: Springer.

The research in the area of game accessibility has grown significantly since the last time it was examined in 2005. This paper examines the body of work between 2005 and 2010. We selected a set of papers on topics we felt represented the scope of the field, but were not able to include all papers on the subject. A summary of the research we examined is provided, along with suggestions for future work in game accessibility. It is hoped that this summary will prompt others to perform further research in this area.

Whyte, E. M., Smyth, J. M., & Scherf, K.S. (2015, December). Designing serious game interventions for individuals with autism. Journal of Autism and Developmental Disorders, 45(12), 3820-3831. DOI: https://doi.org/10.1007/s10803-014-2333-1.

The design of ‘Serious games’ that use game components (e.g., storyline, long-term goals, rewards) to create engaging learning experiences has increased in recent years. We examine of the core principles of serious game design and examine the current use of these principles in computer-based interventions for individuals with autism. Participants who undergo these computer-based interventions often show little evidence of the ability to generalize such learning to novel, everyday social communicative interactions. This lack of generalized learning may result, in part, from the limited use of fundamental elements of serious game design that are known to maximize learning. We suggest that future computer-based interventions should consider the full range of serious game design principles that promote generalization of learning.

Wilhelmsson, U., Engstrom, H., Brusk, J., & Ostblad, P. A. (2017). Inclusive game design facilitating shared gaming experience.  In F. Liarokapis & K. Debattista (Eds.), Serious Games and Education [Special Issue]. Journal of Computing in Higher Education, 29(3), 574–598. DOI: https://doi.org/10.1007/s12528-017-9146-0.

This article presents the result from a study comparing the perception and understanding of a game story between sighted and visually impaired players playing the same game. In particular, whether sighted and visually impaired players could experience and recount the same story construed from the plot elements that are either manifested by audio and graphics in the case of sighted players or primarily by audio in the case of visually impaired players. To this end, we have developed a graphical point-and-click adventure game for iOS and Android devices that aims to show how inclusive game design may be used to facilitate a shared gaming experience between sighted and visually impaired players. The game provides players with audio feedback that enables visually impaired players to interact with and experience the game, but in a manner that does not interfere with the overall appearance and functionality of the game. Thus, it has been designed to be fully inclusive to both groups of players and to give the same gaming experience when it comes to story content. The game has been evaluated through formal user tests where subjects have been asked to play the first chapter of the game followed by an interview. The study shows that the perception of the story was almost identical between the two groups. Generally it took visually impaired players a little longer to play the game but they also seem to listen more carefully to the dialogue and hence also build a slightly deeper understanding of the characters. The study also shows that the sighted players did not respond negatively towards the inclusive game design employed in the game.

Woolbright, L. (2024). “She’s inside me. She’s inside everyone”: Female agency and the monstrous mother in Resident Evil Biohazard and Village. In J. L. McDaniel & A. Wood (Eds.), Broadening the horror genre: From gaming to paratexts. London: Routledge. DOI: https://doi.org/10.4324/9781003406112-8.

This chapter examines monstrous femininity in Resident Evil VII: Biohazard and Resident Evil VIII: Village, which depict an array of female archetypes—particularly monstrous mothers and unnatural births. Game representations of monstrous femininity, as in other media, revolve around how fears about femininity manifest in media, how feminine identities reflect, subvert, and resist domesticity. These representations are experienced, explored, and internalized by players who must comb the gamespace for resources, weapons, clues, and collectibles at the same time they navigate enemies and environmental challenges to unravel the story. Gameplay and environmental storytelling interwoven with cutscenes offer potentially transformative engagements with the monstrous mother, although, in the end, the games may be interpreted to undermine their own progress.

Yeager, S. A., & Ciccoricco, D. (2024, Spring). Embodied simulations and neurodivergent temporalities in To the Moon. In  E. Y. Chang & A. Bird (Eds.), Games Studies [Feature Issue]. Configurations, 32(2), 111-128. DOI: https://doi.org/10.1353/con.2024.a924125.

We position games as ludic time machines; beyond simply representing neurodiversity, they can prompt players to consider neurodivergent temporalities. In the 2D psychological adventure game To the Moon (Gao 2011), players control two scientists who travel through the memories of a man on his deathbed. Digging ever deeper into their seemingly neurotypical client’s past, the scientists learn how his marriage was strained by the complexities of cross-neurotype communication. We show how To the Moon’s storyworld and gameplay destabilize fixed understandings of neurotypicality, encourage deeper mutual understanding of temporal embodiment, and prompt players to reconsider their relationship to neurodiversity.

OIPO Disability Abstracts: Artificial Intelligence, Machine Learning, and Virtual Reality

Updated 3/10/2025

Artificial Intelligence and Machine Learning

Binns, R., & Kirkham, R. (2021). How could equality and data protection law shape AI fairness for people with disabilities? arXiv – CS – Computers and Society. DOI: arxiv-2107.05704.

This article examines the concept of ‘AI fairness’ for people with disabilities from the perspective of data protection and equality law. This examination demonstrates that there is a need for a distinctive approach to AI fairness that is fundamentally different to that used for other protected characteristics, due to the different ways in which discrimination and data protection law applies in respect of Disability. We articulate this new agenda for AI fairness for people with disabilities, explaining how combining data protection and equality law creates new opportunities for disabled people’s organisations and assistive technology researchers alike to shape the use of AI, as well as to challenge potential harmful uses.

Goggin, G., Prahl, A., & Zhuang, K. V. (2023). Communicating AI and Disability. In  M. S. Jeffress, J. M. Cypher, J. Ferris, & J. Scott-Pollock (Eds.), The Palgrave Handbook of Disability and Communication (pp. 205-220). Cham: Palgrave Macmillan. DOI:  https://doi.org/10.1007/978-3-031-14447-9_13.

This chapter looks at a relatively new area of disability and communication: AI. It contends that discourses, language, and representation of disability in relation to AI need to be understood against the backdrop of evolving ideas of disability and technology. It critiques the dominant social imaginaries of AI and disability, which obscure the flaws in the mainstream ways that autonomous intelligent systems such as AI developed. The chapter concludes that AI and its dominant social imaginaries are in the throes of a severe crisis of legitimacy. Accordingly, alternative imaginaries are discussed as ways to reimagine and remake AI, machine learning, intelligent systems, and other technologies as sustainable, just, and conducive to the goals of extending accessibility, inclusion, participation, and rights for people with disabilities.

Jafry, A., & Vorstermans, J. (2024). Evolving intersections: AI, disability, and academic integrity in higher education. New Directions for Teaching and Learning Early View. DOI: https://doi.org/10.1002/tl.20629.

In this article, we investigate the critical intersections of AI, academic integrity, and disability in the context of a large undergraduate course. Our aim was to adapt the course to respond to generative AI (GenAI) to avoid entrenching barriers for students, and instead teach them how to use GenAI tools in ways that deepen their learning and uphold academic honesty. Grounded in disability justice and access pedagogies, we outline five design goals centered on guidelines for AI usage, education on responsible AI use, revised assessments, support for teaching assistants (TAs), and accessible materials. These activities are detailed in our methodology. In our findings, we provide a critical reflection of the course adaptation, taking up issues such as varying levels of familiarity with GenAI, students’ capacity to engage with course changes, resistance to GenAI, instructors’ relational shifts to AI, and feelings of demoralization among the teaching team. We conclude by offering practical recommendations for educators, calling for learning communities to view this disruption as an invitation to listen to disabled students.

Kohnke, S., & Zaugg, T. (2025). Artificial Intelligence: An Untapped Opportunity for Equity and Access in STEM Education. In L. Dieker, E. Vasquez., & M. T. Marino (Eds.), Application of AI Technologies in STEM Education [Special Issue]. Education Sciences15(1), 68. DOI: https://doi.org/10.3390/educsci15010068.

Artificial intelligence (AI) holds tremendous potential for promoting equity and access to science, technology, engineering, and mathematics (STEM) education, particularly for students with disabilities. This conceptual review explores how AI can address the barriers faced by this underrepresented group by enhancing accessibility and supporting STEM practices like critical thinking, inquiry, and problem solving, as evidenced by tools like adaptive learning platforms and intelligent tutors. Results show that AI can positively influence student engagement, achievement, and motivation in STEM subjects. By aligning AI tools with Universal Design for Learning (UDL) principles, this paper highlights how AI can personalize learning, improve accessibility, and close achievement gaps in STEM content areas. Furthermore, the natural intersection of STEM principles and standards with the AI4K12 guidelines justifies the logical need for AI–STEM integration. Ethical concerns, such as algorithmic bias (e.g., unequal representation in training datasets leading to unfair assessments) and data privacy risks (e.g., potential breaches of sensitive student data), require critical attention to ensure AI systems promote equity rather than exacerbate disparities. The findings suggest that while AI presents a promising avenue for creating inclusive STEM environments, further research conducted with intentionality is needed to refine AI tools and ensure they meet the diverse needs of students with disabilities to access STEM.

Lillywhite, A., & Wolbring, G. (2019). Coverage of ethics within the artificial intelligence and machine learning academic literature: The case of disabled people. Assistive Technology Online Before Print. DOI: https://doi.org/10.1080/10400435.2019.1593259.

Disabled people are often the anticipated users of scientific and technological products and processes advanced and enabled by artificial intelligence (AI) and machine learning (ML). Disabled people are also impacted by societal impacts of AI/ML. Many ethical issues are identified within AI/ML as fields and within individual applications of AI/ML. At the same time, problems have been identified in how ethics discourses engage with disabled people. The aim of our scoping review was to better understand to what extent and how the AI/ML focused academic literature engaged with the ethics of AI/ML in relation to disabled people.  Of the n = 1659 abstracts engaging with AI/ML and ethics downloaded from Scopus (which includes all Medline articles) and the 70 databases of EBSCO ALL, we found 54 relevant abstracts using the term “patient” and 11 relevant abstracts mentioning terms linked to “impair*”, “disab*” and “deaf”. Our study suggests a gap in the literature that should be filled given the many AI/ML related ethical issues identified in the literature and their impact on disabled people.”

Lillywhite, A., & Wolbring, G. (2020). Coverage of artificial intelligence and machine learning within academic literature, Canadian newspapers, and Twitter tweets: The case of disabled people. Societies, 10(3). DOI: https://doi.org/10.3390/soc10010023.

Artificial intelligence (AI) and machine learning (ML) advancements increasingly impact society and AI/ML ethics and governance discourses have emerged. Various countries have established AI/ML strategies. “AI for good” and “AI for social good” are just two discourses that focus on using AI/ML in a positive way. Disabled people are impacted by AI/ML in many ways such as potential therapeutic and non-therapeutic users of AI/ML advanced products and processes and by the changing societal parameters enabled by AI/ML advancements. They are impacted by AI/ML ethics and governance discussions and discussions around the use of AI/ML for good and social good. Using identity, role, and stakeholder theories as our lenses, the aim of our scoping review is to identify and analyze to what extent, and how, AI/ML focused academic literature, Canadian newspapers, and Twitter tweets engage with disabled people. Performing manifest coding of the presence of the terms “AI”, or “artificial intelligence” or “machine learning” in conjunction with the term “patient”, or “disabled people” or “people with disabilities” we found that the term “patient” was used 20 times more than the terms “disabled people” and “people with disabilities” together to identify disabled people within the AI/ML literature covered. As to the downloaded 1540 academic abstracts, 234 full-text Canadian English language newspaper articles and 2879 tweets containing at least one of 58 terms used to depict disabled people (excluding the term patient) and the three AI terms, we found that health was one major focus, that the social good/for good discourse was not mentioned in relation to disabled people, that the tone of AI/ML coverage was mostly techno-optimistic and that disabled people were mostly engaged with in their role of being therapeutic or non-therapeutic users of AI/ML influenced products. Problems with AI/ML were mentioned in relation to the user having a bodily problem, the usability of AI/ML influenced technologies, and problems disabled people face accessing such technologies. Problems caused for disabled people by AI/ML advancements, such as changing occupational landscapes, were not mentioned. Disabled people were not covered as knowledge producers or influencers of AI/ML discourses including AI/ML governance and ethics discourses. Our findings suggest that AI/ML coverage must change, if disabled people are to become meaningful contributors to, and beneficiaries of, discussions around AI/ML.

Morrison, R. J. (2019, Summer). Ethical depictions of neurodivergence in SF about AI. Configurations, 27(3), 387-410. DOI: https://doi.org/10.1353/con.2019.0021.

In science fiction (SF), representations of artificial intelligence (AI) run the gamut from being cognizant of the full spectrum of potential human emotion, to lacking any comparable emotional states. When a feeling/unfeeling AI—the novum of the text—interacts with human characters, the presence of strong emotional capability is shown to be positive, and any absence of emotional capability is shown to be negative, even abject. This aligns perceived emotional capability with normality, establishing that the empirical “zero world” of the text is one in which those who lack normative emotional affect lack value.

Mosha, N. F. (2025). The role of artificial intelligence tools in enhancing accessibility and usability of electronic resources in academic libraries. Library Management Ahead-of-Print. DOI: https://doi.org/10.1108/LM-08-2024-0088.

Purpose This study examined the role of artificial intelligence (AI) tools in facilitating the accessibility and usability of electronic resources (e-resources) in academic libraries.

Design/methodology/approach This study employed a quantitative descriptive survey to collect data from library users. The population targeted was sampled using a purposive sampling technique. A total of 427 (58%) participated in this study.

Findings Most respondents preferred electronic journals (e-journals) among the e-resources stored in academic libraries. Chatbots were identified as preferred AI tools for accessing and enhancing the usability of these resources. Strategies mentioned included the potential for integrating AI tools across various e-resources. However, among the challenges reported was the inability to integrate AI tools with the existing library management systems. Improving e-resource discovery and access can significantly enhance the effectiveness of AI tools in academic libraries.

Originality/value Originality in the context of AI applications in academic libraries refers to the unique approaches, innovative tools and creative solutions that enhance the accessibility and usability of electronic resources. By focusing on unique solutions that enhance the accessibility and usability of e-resources, these libraries can better serve their diverse user populations and adapt to the evolving landscape of information needs.

Newman-Griffis, D., Sage Rauchberg, J., Alharbi, R., Hickman, L., & Hochheiser, H. (2022). Alternative models: Critical examination of disability definitions in the development of artificial intelligence technologies. arXiv:2206.08287 [cs.AI]. DOI: https://doi.org/10.48550/arXiv.2206.08287.

Disabled people are subject to a wide variety of complex decision-making processes in diverse areas such as healthcare, employment, and government policy. These contexts, which are already often opaque to the people they affect and lack adequate representation of disabled perspectives, are rapidly adopting artificial intelligence (AI) technologies for data analytics to inform decision making, creating an increased risk of harm due to inappropriate or inequitable algorithms. This article presents a framework for critically examining AI data analytics technologies through a disability lens and investigates how the definition of disability chosen by the designers of an AI technology affects its impact on disabled subjects of analysis. We consider three conceptual models of disability: the medical model, the social model, and the relational model; and show how AI technologies designed under each of these models differ so significantly as to be incompatible with and contradictory to one another. Through a discussion of common use cases for AI analytics in healthcare and government disability benefits, we illustrate specific considerations and decision points in the technology design process that affect power dynamics and inclusion in these settings and help determine their orientation towards marginalisation or support. The framework we present can serve as a foundation for in-depth critical examination of AI technologies and the development of a design praxis for disability-related AI analytics.

Nugent, S. E., & Scott-Parker, S. (2022). Recruitment AI has a disability problem: Anticipating and mitigating unfair automated hiring decisions. In M. I. Aldinhas Ferreira & M. Osman Tokhi (Eds.), Towards Trustworthy Artificial Intelligent Systems [Intelligent Systems, Control and Automation: Science and Engineering Vol. 102]. (pp 85–96).

Artificial Intelligence (AI) technologies have the potential to dramatically impact the lives and life chances of people with disabilities seeking employment and throughout their career progression. While these systems are marketed as highly capable and objective tools for decision making, a growing body of research demonstrates a record of inaccurate results as well as inherent disadvantages for historically marginalised groups. Assessments of fairness in Recruitment AI for people with disabilities have thus far received little attention or have been overlooked. This paper examines the impacts to and concerns of disabled employment seekers using AI systems for recruitment, and discusses recommendations for the steps employers can take to ensure innovation in recruitment is also fair to all users. In doing so, we further the point that making systems fairer for disabled employment seekers ensures systems are fairer for all.

Packin, N. G., (2020, November 3). Disability Discrimination Using AI Systems, Social Media and Digital Platforms: Can We Disable Digital Bias?  SSRN. DOI: http://dx.doi.org/10.2139/ssrn.3724556.

Social media platforms and digital technological tools have transformed how people manage their day-to-day lives, socially as well as professionally. Big data algorithms help us improve our decision-making processes, and sophisticated social networks, enable us to get connected to other individuals and organizations, get exposed to information, and even learn about different opportunities. But as individuals come to be more and more comfortable with social networks and big data algorithms, fewer give much thought to how personal data gleaned from social networks and fed into algorithms affects the administration of government and the provision of private services. Algorithmic assessment of personal characteristics enables widescale discrimination by government and private entities, and such discrimination is particularly pernicious for persons with disabilities.

According to the social model of disability, disability is not only inherent to the individual and determined by the impairment but is also a product of the social environment. Social expectations, conventions, and technology determine which traits are outside the norm and which traits are disabling. Whether a technology perpetuates or mitigates disability depends on social norms, including norms that are embedded in law. A wheelchair might mitigate the impairment, but only if legal rules dictate a built environment where wheelchair users and non-wheelchair users can move in a similar fashion, can the disability be mitigated. Similarly, digital technologies can limit the ways in which some traits are disabling only if bias and discriminatory features against individuals with disabilities are not embedded within their use. We must ensure that technology developments continue to improve the life quality and opportunities for individuals with disabilities, and that we design systems that better accommodate the disabled, enhance their access, and help level the playing field between them and the able-bodied. We should regulate to ensure that individuals with disabilities are legally protected from discrimination. Additionally, and not less importantly, we must make sure that individuals with disabilities are not left out of innovations because of the difficulty in detecting the different types of disabilities as well as disability bias, proving it, and designing around it.

Parvin, N. (2019). Look up and smile! Seeing through Alexa’s algorithmic gaze. In K. Fritsch, A. Hamraie, M. Mills & D. Serlin (Eds.), Crip Technoscience [Special Section]. Catalyst, 5(1). DOI: https://doi.org/10.28968/cftt.v5i1.29592.

Echo Look is one latest product by Amazon built on the artificial intelligence agent Alexa designed to be a virtual fashion assistant. This paper draws on feminist theory to critically engage with the premises and promises of this new technology. More specifically, I demonstrate how the introduction of Echo Look is an occasion to think through ethical and political issues at stake in the particular space it enters, in this case no less than what is perceived of (women’s) bodies and what fashion is and does. In addition, the specific domain helps us see this category of technology anew, illuminating its taken-for-granted assumptions. More specifically, it serves as yet another reminder of what algorithms cannot do and of their oppressive potency.

Ringel Morris, M. (2020, June). AI and accessibility:  A discussion of ethical considerations [Viewpoint]. Communications of the ACM, 63(6), 35-37. DOI: https://doi.org/10.1145/3356727.

“According to the World Health Organization, more than one billion people worldwide have disabilities, the field of disability studies defines disability through a social lens; people are disabled to the extent that society creates accessibility barriers. AI technologies offer the possibility of removing many accessibility barriers; for example, computer vision might help people who are blind better sense the visual world, speech recognition and translation technologies might offer real time captioning for people who are hard of hearing, and new robotic systems might augment the capabilities of people with limited mobility. Considering the needs of users with disabilities can help technologists identify high-impact challenges whose solutions can advance the state of AI for all users; however, ethical challenges such as inclusivity, bias, privacy, error, expectation setting, simulated data, and social acceptability must be considered” (p. 35).

Robertson, S., Magee, L., & Soldatić, K. (2022). Intersectional inquiry, on the ground and in the algorithm. Qualitative Inquiry, 28(7), 814–826. DOI: https://doi.org/10.1177/10778004221099560.

This article makes two key contributions to methodological debates in automation research. First, we argue for and demonstrate how methods in this field must account for intersections of social difference, such as race, class, ethnicity, culture, and disability, in more nuanced ways. Second, we consider the complexities of bringing together computational and qualitative methods in an intersectional methodological approach while also arguing that in their respective subjects (machines and human subjects) and conceptual scope they enable a specific dialogue on intersectionality and automation to be articulated. We draw on field reflections from a project that combines an analysis of intersectional bias in language models with findings from a community workshop on the frustrations and aspirations produced through engagement with everyday artificial intelligence (AI)–driven technologies in the context of care.

Shew, A. (2020, March). Ableism, Technoableism, and Future AI. IEEE Technology and Society Magazine, 39(3), 40-85. DOI: https://doi.org/10.1109/MTS.2020.2967492.

Ableism (discrimination in favor of nondisabled people and against disabled people1) impacts technological imagination. Like sexism, racism, and other types of bigotry, ableism works in insidious ways: by shaping our expectations, it shapes how and what we design (given these expectations), and therefore the infrastructure all around us. And ableism shapes more than just the physical environment. It also shapes our digital and technological imaginations – notions of who will “benefit” from the development of Artificial Intelligence (AI) and the ways that those systems are designed and implemented are a product of how we envision the “proper” functioning of bodies and minds.

Smith, P., & Smith, L. (2021). Artificial intelligence and disability: Too much promise, yet too little substance? AI Ethics 1, 81–86. DOI: https://doi.org/10.1007/s43681-020-00004-5.

Much has been written about the potential of artificial intelligence (AI) to support, and even transform, the lives of disabled people. It is true that many advances have been made, ranging from robotic arms and other prosthetic limbs supported by AI, decision support tools to aid clinicians and the disabled themselves, and route planning software for those with visual impairment. Many individuals are benefiting from the use of such tools, improving our accessibility and changing lives. But what are the true limits of such tools? What are the ethics of allowing AI tools to suggest different courses of action, or aid in decision-making? And does AI offer too much promise for individuals? I have recently undergone a life changing accident which has left me severely disabled, and together with my daughter who is blind, we shall explore the day-to-day realities of how AI can support, and frustrate, disabled people. From this, we will draw some conclusions as to how AI software and technology might best be developed in the future.

Tilmes, N. (2022). Disability, fairness, and algorithmic bias in AI recruitment. Ethics and Information Technology, 24, Article 21.  DOI: https://doi.org/10.1007/s10676-022-09633-2.

While rapid advances in artificial intelligence (AI) hiring tools promise to transform the workplace, these algorithms risk exacerbating existing biases against marginalized groups. In light of these ethical issues, AI vendors have sought to translate normative concepts such as fairness into measurable, mathematical criteria that can be optimized for. However, questions of disability and access often are omitted from these ongoing discussions about algorithmic bias. In this paper, I argue that the multiplicity of different kinds and intensities of people’s disabilities and the fluid, contextual ways in which they manifest point to the limits of algorithmic fairness initiatives. In particular, existing de-biasing measures tend to flatten variance within and among disabled people and abstract away information in ways that reinforce pathologization. While fair machine learning methods can help mitigate certain disparities, I argue that fairness alone is insufficient to secure accessible, inclusive AI. I then outline a disability justice approach, which provides a framework for centering disabled people’s experiences and attending to the structures and norms that underpin algorithmic bias.

Trewin, S., Basson, S., Muller, M., Branham, S., Treviranus, J., Gruen, D., Hebert, D., Lyckowski, N., & Manser, E. (2019, September). Considerations for AI Fairness for People with Disabilities. AI Matters, 5(3), 40-63. DOI: https://doi.org/10.1145/3362077.3362086.

In society today, people experiencing disability can face discrimination. As artificial intelligence solutions take on increasingly important roles in decision-making and interaction, they have the potential to impact fair treatment of people with disabilities in society both positively and negatively. We describe some of the opportunities and risks across four emerging AI application areas: employment, education, public safety, and healthcare, identified in a workshop with participants experiencing a range of disabilities. In many existing situations, non-AI solutions are already discriminatory, and introducing AI runs the risk of simply perpetuating and replicating these flaws. We next discuss strategies for supporting fairness in the context of disability throughout the AI development lifecycle. AI systems should be reviewed for potential impact on the user in their broader context of use. They should offer opportunities to redress errors, and for users and those impacted to raise fairness concerns. People with disabilities should be included when sourcing data to build models, and in testing, to create a more inclusive and robust system. Finally, we offer pointers into an established body of literature on human centered design processes and philosophies that may assist AI and ML engineers in innovating algorithms that reduce harm and ultimately enhance the lives of people with disabilities.

Velazquez-Solis, P. E., González Correa, M. E., Martinez, M. A., Arroyo, J. G., & Marquez, M. Y. (2025). Designing teaching strategies using artificial intelligence for neurodivergent students in higher education. In M. Raygoza-L., J. Orduño-Osuna, A. Mercado-Herrera, R. Jimenez-Sanchez, & F. Murrieta-Rico (Eds.), Exploring psychology, social innovation and advanced applications of machine learning (pp. 191-208). New York: IGI Global Scientific Publishing. DOI: https://doi.org/10.4018/979-8-3693-6910-4.ch010.

Artificial intelligence (AI) can enhance teaching strategies for neurodivergent students in higher education. Neurodiversity, such as autism, ADHD, and dyslexia, needs tailored educational approaches often missing in traditional systems. As neurodivergent student enrollment rises, inclusive learning environments are essential. AI technologies offer personalized learning through adaptive platforms that adjust content based on real-time feedback, helping students tackle challenges and utilize their strengths. AI tools, such as emotion recognition, support mental health by detecting stress, frustration, or anxiety for timely interventions. A case study highlights integration of an AI-powered chatbot in a Color Theory course for Engineering students. The chatbot provided guidance and used visual aids, improving communication, independence, and confidence. Despite AI benefits, issues like over-reliance and digital divide must be considered. Developing empathetic AI solutions is crucial for supporting neurodivergent students, and collaboration among educators and researchers is essential.

White, J. J. G. (2022). Artificial intelligence and people with disabilities: A reflection on human–AI partnerships. In F. Chen & J. Zhou (Eds.), Humanity driven AI: Productivity, well-being, sustainability and partnership (pp 279–310). Springer, Cham. DOI: https://doi.org/10.1007/978-3-030-72188-6_14.

Artificial intelligence (AI) has much potential to enhance opportunities and independence for people with disabilities by addressing practical problems that they encounter in a variety of domains. Indeed, the partnership between AI and people with disabilities already has a history that spans several decades, through the use of assistive technologies based, for example, on speech recognition, optical character recognition, word prediction, and text-to-speech conversion. Contemporary developments in machine learning can extend and enhance the capabilities of such assistive technology applications, while opening the way to further improvements in accessibility. AI applications intended to benefit people with disabilities can also give rise to questions of values and priorities. These issues are here discussed in relation to the role of design practices and policy in shaping the solutions adopted. AI can also contribute to discrimination on grounds of disability, especially if machine learning algorithms are substituted partly or completely for human decision making. The potential for bias and strategies for overcoming it raise as yet unresolved research questions. In exploring some of these considerations, a case is developed for favoring approaches which shape the normative and social context in which AI technologies are developed and used, as well as the technical details of their design.

Virtual Reality

Brandt, M., & Messeri, L.  (2019). Imagining feminist futures on the small screen: Inclusion and care in VR fictions. In C. Bruun Jensen & A. Kemiksiz (Eds.), Anthropology and Science Fiction: Experiments in Thinking Across Worlds [Feature Issue]. Nature Culture Issue 5. https://www.natcult.net/journal/issue-5/imagining-feminist-futures-on-the-small-screen/.

Virtual reality signifies not only an immersive media technology, but also a cultural desire to allow bodies to inhabit other worlds as easily as pushing a button or putting on goggles. As the VR industry has grown, so too have popular imaginings of its potential. We draw on feminist technoscience studies to analyze and evaluate recent VR science fiction media narratives. How do they articulate VR’s role in the future, and for whom? Who are the heroes of these worlds and what makes them heroic? Steven Spielberg’s would-be blockbuster Ready Player One (2018) (RPO) offers a techno-masculine narrative in which a hero saves the world. In contrast to RPO, television and streaming small screen science fiction narratives have focused on the extent to which VR can save not worlds, but individuals. A surprisingly consistent trope has emerged in these shows: one of VR as a therapeutic tool for a woman coping with trauma. While certainly a departure from RPO’s Hollywood vision of VR, this analysis examines how episodes of Reverie, Philip K. Dick’s Electric Dreams, Kiss Me First, and Black Mirror offer visions of VR that reflect the feminist ambitions of the contemporary VR industry.

Jiang, Z., Meltzer, A., & Zhang, X. (2023). Using virtual reality to implement disability studies’ advocacy principles: Uncovering the perspectives of people with disability. Disability & Society. DOI: https://doi.org/10.1080/09687599.2022.2150601.

One central aim of disability studies is to shift understandings of disability, such that disability comes to be understood as about the social disadvantage/oppression that people face when society does not cater to impairment of body/mind. Nevertheless, there remains a need for more practical tools for disability advocacy, through which to transmit disability studies’ ideas of disability to the general community. Drawing on a qualitative study of the perspectives of 23 people with physical and sensory impairments, this paper proposes virtual reality as an advocacy tool to communicate the principles and beliefs of disability studies. The findings highlight that, due to the nature of the technology, participants feel virtual reality has clear potential as a disability advocacy tool that can facilitate empathy, perspective-taking and positive social change, with a particular focus on how it is the environmental barriers and social attitudes around people that disables them.

Redden, R. (2018, April 11). VR: An Altered Reality for Disabled Players. First Personal Scholar. Waterloo, ON: The Games Institute (GI) at the University of Waterloo in collaboration with IMMERSe, The Research Network for Video Game Immersion. Retrieved from: http://www.firstpersonscholar.com/vr-altered-reality/.

“…gather(s) the experiences and ideas of accessibility advocates who are working to inform VR’s trajectory. [The author is also]… providing..[a]… perspective of the VR station and its access. By putting existing ideas and experiences together, …[the author] hope[s] to promote the work that folks with disabilities are already doing in advising (and designing) games themselves, and the role of the public VR station in advocating and creating better VR” (n.p.)

Zhang, K., Deldari, E., Lu, Z., Yao, Y., & Zhao, Y. (2022). “It’s Just Part of Me:” Understanding Avatar Diversity and Self-presentation of People with Disabilities in Social Virtual Reality. In The 24th International ACM SIGACCESS Conference on Computers and Accessibility (ASSETS ’22), October 23–26, 2022, Athens, Greece. New York: ACM. DOI: https://doi.org/10.1145/3517428.3544829.

In social Virtual Reality (VR), users are embodied in avatars and interact with other users in a face-to-face manner using avatars as the medium. With the advent of social VR, people with disabilities (PWD) have shown an increasing presence on this new social media. With their unique disability identity, it is not clear how PWD perceive their avatars and whether and how they prefer to disclose their disability when presenting themselves in social VR. We fill this gap by exploring PWD’s avatar perception and disability disclosure preferences in social VR. Our study involved two steps. We first conducted a systematic review of fifteen popular social VR applications to evaluate their avatar diversity and accessibility support. We then conducted an in-depth interview study with 19 participants who had different disabilities to understand their avatar experiences. Our research revealed a number of disability disclosure preferences and strategies adopted by PWD (e.g., reflect selective disabilities, present a capable self). We also identified several challenges faced by PWD during their avatar customization process. We discuss the design implications to promote avatar accessibility and diversity for future social VR platforms.

OIPO Disability Abstracts: Eco-criticism

This literature review contains relevant material across several disciplines taking into account the interrelationship of the environment and disability, often referred to as “eco-crip theory” (Ray and Sibara, 2017). Included are books, articles, and other resources on topics such as:

  • Bioethics and biopolitics
  • The built environment and mapping for access
  • Climate justice and human rights
  • Crip eco-poetics
  • Crip ecology
  • Disability and animality
  • Disability and the environmental humanities
  • Eco-ableism
  • Environmental justice
  • Natural disasters, climate change, and migration
  • Nature, environment, and ecology
  • Recreation and leisure
  • Science and technology
  • Sustainable ecological systems
  • Urban environments and inaccessible spaces and places

Updated 9/23/2024

Abrahams, Y. (2018, Winter). How must I explain to the dolphins? An intersectional approach to theorizing the epistemology of climate uncertainty. In T. Glazebrook & A. Kola-Olusanya (Eds.), African Environmental Philosophy [Special Issue]. Environmental Ethics, 40(4), 389-404. DOI: https://doi.org/10.5840/enviroethics201840436.

The story of change and growth, i.e., evolution, in the traditional manner, involves an epistemology of indigenous knowledge systems that admits both evolution and the divine—and therefore the human capacity for free choice—that tells us that fossil fuels are a bad choice. Steven Biko’s message of “Black Consciousness” responds to the dilemma of how we belong to the species that is damaging the planetary ecosystem, amd yet how we can deny complicity by saying that reclaiming our culture enables us to see what we have done, so we can refuse complicity with the system that has divided us and take responsibility for giving birth to new life. The uncertainties of climate change can be thought through using race, class, gender, sexual orientation, indigeneity, and disability as categories of analysis. The result is an understanding that through both climate science and lived experience, we can know enough to know we ought to act on climate change. We do not need more research; we need instead an acceptance of our ignorance amid a sense of ethical responsibility

Alaimo, S. (2010). Bodily natures: Science, environment, and the material self. Bloomington, IN: Indiana University Press.

How do we understand the agency and significance of material forces and their interface with human bodies? What does it mean to be human in these times, with bodies that are inextricably interconnected with our physical world? Bodily Natures considers these questions by grappling with powerful and pervasive material forces and their increasingly harmful effects on the human body. Drawing on feminist theory, environmental studies, and the sciences, Stacy Alaimo focuses on trans-corporeality, or movement across bodies and nature, which has profoundly altered our sense of self. By looking at a broad range of creative and philosophical writings, Alaimo illuminates how science, politics, and culture collide, while considering the closeness of the human body to the environment.

Aldred, R., & Woodcock, J. (2008). Transport: Challenging disabling environments. In R. Imrie & H. Thomas (Eds.), The Environment and Disability: Making the Connections [Special Issue]. Local Environment, 13(6), 485-496. DOI: https://doi.org/10.1080/13549830802259847.

This article brings together the concerns of environmental and disability movements through examining the role of transport. Both movements critique current transport policy and practice. The disability movement has analysed how it marginalises the needs of disabled people, while environmentalists argue current transport trends are unsustainable and marginalise alternatives. Although these critiques operate independently and even seem opposed to each other, a common agenda can be developed through extending the social model of disability. The social model can be used to understand how car-dominated transport systems can be understood as disabling populations larger than those conventionally recognised as “disabled”. The car offers the technological fix of enabling abilities, in particular speed and strength, but in practice disables in a number of ways. Urban sprawl and traffic increase barriers to participation and access for many both ‘able-bodied’ and ‘disabled,’ while car dominance damages social interaction and limits sensory perception. Furthermore, the car economy is a major cause of impairment through crashes and physical inactivity. Understanding these together requires integrating the social model of disability with an eco-social model of impairment. This can show how unequal forms of social organisation are embodied in people and environments to produce patterns of impairment, disability and disadvantage. Finally we suggest policies to move towards sustainable societies with increased opportunities for broader social participation. The article argues that the two movements can create and benefit from a shared vision of socially inclusive, low-energy, sustainable transport.

Anderson, D. R. (2018). “This is the way I was”: Urban ethics, temporal logics, and the politics of cure. In K. Blanchard & C. Sandilands (Eds.), Sex and the (Motor) City: Ecologies of Middlesex [Special Forum]. The Goose: A Journal of Arts, Environment, and Culture in Canada, 17(1), Article 51.

This article employs Eli Clare’s concept of the ‘politics of cure’ in order to discuss issues of disability, temporality, and ethical relations to rehabilitation, restoration, and cure in the Sex and the (Motor) City: Ecologies of Middlesex special cluster. The special cluster compiles twelve short essays, originally presented in two linked roundtables at the Association for the Study of Literature and Environment (ASLE) conference in Detroit in June 2017, examining Jeffrey Eugenides’ 2002 Pulitzer Prize-winning novel, Middlesex.

Arathoon, J. (2022). Towards a research agenda for animal and disability geographies: Ableism, speciesism, care, space, and place. Social & Cultural Geography. DOI: https://doi.org/10.1080/14649365.2022.2152087.

Animal and disability geographies have become recognized fields of inquiry gaining traction with geographers of differing interests, approaches, and methods. To date, however, there has been limited engagement between the two fields themselves, despite healthy suggestions for such debate in the wider social sciences and humanities. This paper provides a series of provocations about the interconnections between animal and disability geographies to examine what they might add to each other, and why there is a need for (critical) work at this intersection. First, I suggest that animal and disability geographies share interconnections that encompass: their shared ontological challenges towards deconstructing speciesism and ableism respectively, and a growing focus on intersectional work. Second, I explore spaces of speciesist and disabling violence, arguing that thinking through these spaces will enable geographers to problematize and challenge ableism and speciesism. Third, I outline current engagement between the subfields, through the themes of space, place, and care. I argue that bringing the two together can build a stronger critical geography of justice by highlighting: i) ableism within animal studies, ii) speciesism within disability studies; and iii) the potential for constitutive relationships where both are brought to bear on issues and conceptual resources.

Armstrong, M., Sharaievska, I., B. M. Crowe, B. M., & Gagnon, R. J. (2022). Experiences in outdoor recreation among individuals with developmental disabilities: Benefits, constraints, and facilitators. Journal of Intellectual & Developmental Disability Online Before Print. DOI: https://doi.org/10.3109/13668250.2022.2104449.

Background: Individuals with developmental disabilities have specific physical and psychosocial needs that can require extra support to participate fully in and enjoy many benefits of recreation activities. Unfortunately, little is known about individuals with developmental disabilities’ experiences in outdoor recreation. The purpose of this study was to explore adults with developmental disabilities’ perceived benefits of outdoor recreation, and the conCramstraints or facilitators that affected their participation.

Method: Qualitative, semi-structured interviews were conducted with seven adults with developmental disabilities. Interviews were analysed using open, axial, and selective coding techniques.

Results: Results revealed three themes: (a) benefits of; (b) constraints to; and (c) facilitators of outdoor recreation. Benefits of outdoor recreation reported by study participants included their experiencing satisfaction, mental reprieve, empowerment, enlightenment, social connectedness, and thrill. Participants also shared intrapersonal, interpersonal, and structural constraints and facilitators related to their outdoor recreation participation.

Conclusions: Practical implications and future research recommendations are discussed.

Asamoah, P. G., Sanka, C. G., & Asafu-Adjaye, P. A. (2019, December). Mutualism and co-existence in Johanne Spyri’s Heidi.  Journal of Mother-Tongue Biblical Hermeneutics and Theology (MOTBIT), 1(2), 43-56. Article 4. DOI: https://doi.org/10.32051/12301904.

Reflections on the state of the environment and how some wish it to be are mirrored in the literary productions of some writers. The focus of this work is to analyze such a text as Heidi by Johanne Spyri which offers alternatives of survival which are mutualism and co-existence. Studies on Heidi have focused on other theories like psychoanalysis, however, none has looked at the text from an ecocritical perspective with mutualism and co-existence in mind. This work looks at the concept of mutualism and co-existence as metaphors from ecology. These metaphors are further sub-divided into other tropes which offer a better alternative way of life which are neither parasitic nor predatory, but positive symbioses. Using Heidi as the primary text, this purely qualitative study uses ecocritical tropes as an approach in tackling the relationship between humans and non-human aspects of the environment. The tropes used in this case are dwelling-, a geographical place and sense of belonging: animals, mutualism and co-existence with other humans; wilderness: the role of nature as a healer; and positive growth towards the good and the morally sound. The work recognizes that mutualism and co-existence in reality are underplayed in our world today and recommends a complete change-over of attitude towards the best possible way of living for both humans and non-humans within our environment.

Atkins, P. (2021). ‘All the living I have left to do’: A disability poetics of dwelling. In Z. Brigley, K. Evans & R. A. Mackenzie (Eds.), Dwelling [Feature Issue]. Magna 79.

We dwell in our bodies; our bodies in the world. Everything we experience of the world we experience in and through and with our bodies. Our relationship with our body informs our relationship with the world. For some people, this is easier to forget than for others. There are times I have wished I could relinquish tenancy of my body, and live easefully out with its structural issues, but it is my home on the earth.

Bares, A. (2019, Fall). “Each unbearable day”: Narrative ruthlessness and environmental and reproductive injustice in Jesmyn Ward’s Salvage the Bones. MELUS, 44(3), 21-40. DOI: https://doi.org/10.1093/melus/mlz022.

Jesmyn Ward’s 2011 novel Salvage the Bones tells the story of Esch Batiste and her family in the days leading up to Hurricane Katrina. Ward represents Esch’s unexpected pregnancy and the environmental degradation of her rural Mississippi Gulf Coast home as linked by the slow, quotidian forms of violence and risk exposure that characterize Jasbir K. Puar’s formulation of debility. Through scenes of reproductive and environmental injustice, Salvage the Bones elucidates the processes through which racially inflected political-economic systems unevenly produce debility in certain populations and environments while capacitating others. When put in conversation with critical race theory, critical disability theory, and environmental criticism, Salvage the Bones emphasizes the logics that underpin debility rather than sensationalizing or pathologizing its consequences. In its refusal to revert to ableist, racist literary codes and conventions, the novel theorizes and practices “narrative ruthlessness,” Ward’s description of her literary strategy to respond to debility’s representational conundrums of inevitability and invisibility. In so doing, narrative ruthlessness exceeds liberal humanist impulses to propose restoration, cure, or uplift as desirable solutions, insisting instead on kinship, care, redress, and salvage as possibilities for radical survival and futurity.

Bauman, W. A. (2015). Disability Studies, queer theory, and the new materialism: Environmental metaphors for a planet on the move. In J. W. Belser (Ed.), Religion, Disability, and the Environment [Special Issue]. Worldviews, 19(1), 69-73. DOI: https://doi.org/10.1163/15685357-01901005.

“In an exhibit by eco-artist Elizabeth Demaray at the 2014 meeting of the Association for Environmental Studies and Sciences in New York, the artist showcased a new project she is working on with engineer, Dr. Qingze Zou, entitled: `IndaPlant Project: An Act of Trans-Species Giving.’ In this project, the artist and engineer are working together to create ‘technologies’ for plants. The robotic ‘floraborgs’ allow houseplants to move freely in domestic settings in search of sunlight and water. These floraborgs are metaphors for some trans possibilities for future becomings of the planetary community. These hybrid formations, reminiscent of the moving trees known as ‘Ents’ in the Lord of the Rings trilogy, suggest the possibilities of interspecies communication and highlight the nature of life itself as assemblage. The authors in this issue of Worldviews bring disability studies and ecological thought together with queer theory, environmental justice and disaster studies. Since each article deals in some way with issues of hybridity and the possibilities for future becoming, the IndaPlant exhibit is a good place to begin reflecting on these intersecting (and at times conflicting) discourses. In this brief response, I suggest three important loci for the ongoing discussions of a nomadic ecology of planetary becoming, which derive from the three main articles in this issue: the intersections of queering nature, hybrid identities, and assemblages one can glean from disability studies; implications for thinking about the future of climate change; and the importance of what Rob Nixon (2011) calls the ‘geography of violence.’ Perhaps such a nomadic approach—what Sharon Betcher, following Jane Bennett, calls ‘vitalist materialism’—might help us deal better with the evolving multitude of the planetary community in ways that prevent us from narrowing multiple possibilities for becoming into singular movements toward progress” (p. 69).

Bell, S. L. (2019, June). Experiencing nature with sight impairment: Seeking freedom from ableism. Environment and Planning E: Nature and Space, 2(2), 304-322. DOI: https://doi.org/10.1177/2514848619835720.

The idea of nature as freedom has long captured the human imagination, particularly since the Romantic era when notions of escapism were underpinned by the idealisation and externalisation of nature. The drive for freedom persists in the findings of much contemporary research examining the contribution of nature to human health and wellbeing. Yet, this work tells us little about how cultural narratives of freedom play out in the lives of people living with impairment and disability, or the constraining ableist assumptions that often underpin popular discourses of nature. This paper aims to address this, drawing on the findings of an in-depth qualitative study exploring how 31 people with varying forms and severities of sight impairment, living in rural and urban areas of England, describe their experiences with(in) diverse types of nature through the life course. Moving beyond the ‘wilderness ideal’ and sensationalised ‘supercrip’ stories that reproduce ableist ideas of bodies without limitation, this paper foregrounds the richly textured ways in which participants experienced feelings of freedom with nonhuman nature. These freedoms are characterised as social, mobile and exploratory. In doing so, it seeks to make room for a range of nature experiences, folding social justice into the growing momentum to connect people with nature in the name of health and wellbeing.

Bell, S. L., Jodoin, S., Bush, T. N., Crow, L., Eriksen, S. H., Geen, E., Keogh, M., & Yeo, $. (2024). Beyond the single story of climate vulnerability. International Journal of Disability and Social Justice, 4(2), 48-70. DOI: https://doi.org/10.13169/intljofdissocjus.4.2.0048.

Health. Disability. Vulnerability. These words are often used when discussing the risks of climate disruption. These discussions warn of the potential for climate impacts to “undermine 50 years of gains in public health” (as stated by the Lancet Countdown on Climate Change). Increasingly, such discussions also acknowledge climate injustice, examining who will benefit or lose out from climate change, how and why. The embodied vulnerability of disabled people is often assumed within such discussions, with less consideration of the social, economic or political conditions that create this vulnerability.

By bringing disability justice and disability studies into correspondence with care, environmental and climate justice scholarship, this reflective paper challenges the master narratives that blur differentiated experiences of disability and climate impacts into a single story of inevitable vulnerability. Recognising disabled people as knowers, makers and agents of change, it calls for transformative climate action, underpinned by values of solidarity, mutuality and care.

Bell, S. L., Tabe, T., & Bell, S. (2019). Seeking a disability lens within climate change migration discourses, policies and practices. Disability & Society, 35(4), 682-687. DOI: https://doi.org/10.1080/09687599.2019.1655856.

Around 15% of the global population is estimated to live with disability. With the Millennium Development Goals failing to recognise disability issues, the Sustainable Development Goals seek to promote a stronger focus on the alleviation of poverty and inequality amongst disabled people. Since then, the vulnerability of disabled people has been highlighted within international climate change agreements. Yet a critical disability lens is largely lacking from broader aspects of climate change adaptation planning. Focusing primarily on examples from the Asia-Pacific region (a region including low-lying coastal areas and islands that are frequently highlighted as exemplars of communities on the front line of climate change), this article discusses the need to integrate critical insights from disability studies into current understandings of climate change adaptation and mobility if we are to facilitate more inclusive, democratic and equitable adaptation in the face of climate change.

Belser, J. W. (2015). Disability and the social politics of “natural” disaster: Toward a Jewish feminist ethics of disaster tales. In J. W. Belser (Ed.), Religion, Disability, and the Environment [Special Issue]. Worldviews, 19(1), 51-68. DOI: https://doi.org/10.1163/15685357-01901004.

The stories we tell about crisis and catastrophe often intensify structural violence, augmenting existing dynamics of racism, sexism, classism, and ableism. Disaster stories often reinforce cultural narratives of suffering womanhood and tragic stories of disability to portray people with disabilities—especially women—as “natural” and “inevitable” victims of a harsh new world. Examining both contemporary rhetoric in the wake of Hurricane Katrina and classical rabbinic Jewish narrative, I argue that tales of communities in crisis commonly depoliticize disaster. By inscribing the disabled body with a narrative of “natural” vulnerabilities and inevitable suffering, conventional disaster discourse obscures the political significance of structural inequalities that render people with disabilities more at risk in disaster. Bringing together disability studies scholarship and Jewish feminist ethics, I challenge the discursive tendency to portray disabled individuals as symbols of suffering—and to focus on the pathos of an individual in distress instead of critiquing social inequality. I advocate a constructive, redemptive storytelling that illuminates and critiques social and political exclusion, that underscores the agency and dignity of people in crisis, that valorizes the disability justice movement’s call for interdependence in community, and that captures the artistry and resiliency of disabled lives.

Belser, J. W. (2020, Fall). Disability, Climate Change, and Environmental Violence: The Politics of Invisibility and the Horizon of Hope. Disability Studies Quarterly, 40(4). DOI: https://doi.org/10.18061/dsq.v40i4.6959.

This article brings disability theory and activism into conversation with environmental justice, a conversation that has often been stymied by a fundamental difference in approaching disability. Environmental justice movements position disability as a visceral marker of environmental harm, while disability movements claim disability as a site of value and vitality, a position I call “disability embrace.” Rather than adjudicate these differences, I use them to pinpoint a barrier to political alliance: environmental disability is a consequence of structural violence. I argue that disability politics offer vital resources for grappling with climate change. Applying insights from disability studies and disability activism to the analysis of environmental damage reveals the political stakes of diagnosis—the way power contours how, when, and to what ends we recognize human and ecological impairment. Disability insights illuminate pervasive cultural patterns of invisibility and climate denial. Disability critiques of futurity and cure can also reconfigure the way we approach hope and help fashion a new narrative of what it might mean to live well in the Anthropocene.

Betcher, S. V. (2015). The picture of health: “Nature” at the intersection of disability, religion and ecology. In J. W. Belser (Ed.), Religion, Disability, and the Environment [Special Issue]. Worldviews, 19(1), 9-33. DOI: https://doi.org/10.1163/15685357-01901002.

“We carry our most intimate view of nature within our pictures of health. These images of health, often more amenable to ablenationalism than to a world of intra-active becoming, inform not only neoliberal policy, but ecological vision, including ecospiritualities. Increasingly “the politics of health” constitutes something like a structure of exclusion, a “racism that is biological” (Foucault). Since these intimate images of nature—these “pictures of health”—may be aggravating the next great planetary divide, disability studies might differently shape what we make of the picture of health, the “nature” that informs it, and a religious response to it. This article uses critical dis- ability studies to examine the ways in which the ideology of health, often motivating ecological concern and religious seeking, can coincidentally collude with neoliberal responsibilization and biotechnologically supported transhumanism, generating pol- icy enclosures of the gen-rich against the “refuse/d” or “waste/d.”

Bodies of Nature: Survival Lessons from Disabled Communities [Feature Issue]. (2021, Winter). Orion: People and Nature Magazine, 40(4).

IN THIS ISSUE, we gather a selection of writers and artists whose experiences broaden our understanding of sickness and disability, to foster a conversation among them about how the body informs our perception of and engagement with our surroundings. In “Age of Disability,” Sunaura Taylor follows a community threatened by toxic groundwater that fights ecological ableism. In “The Long View,” Sarah Capdeville faces autoimmunity and an ecosystem caught in chaos. Taylor Brorby lives with diabetes in the era of climate crisis in “In Range.” Marina Tsaplina tells the story of Dream Puppet, the poetic knowledges of ancient forests and disabled communities. Glenis Redmond writes about labor, lineage, and cancer. In “Retriever of Souls,” Amy Irvine’s daughter Ruby McHarg and her service dog navigate a forest of epilepsy. Enjoy columns by Lisa Wells, Meera Subramanian, Aimee Nezhukumatathil, and more. This issue is art directed by Georgina Kleege, a blind scholar who has consulted the Met and the Tate on access and equity.

Bowen, L. (2021, Summer). Learning to read ecologically: Disability, animality, and metaphor in Toni Morrison’s A Mercy. ELH, 88(2), 525-550. DOI: https://doi.org/10.1353/elh.2021.0020.

Metaphor has become somewhat unfashionable, as new materialist and non-symptomatic reading approaches have rightly championed the value of the literal in literary criticism. But does metaphorical interpretation necessarily empty its objects of their material stakes? This essay examines Toni Morrison’s engagement with metaphors of disability and animality, two categories whose associated scholarly fields have been especially critical of metaphor. The characters in A Mercy, who often read nonhuman animals and disabled humans metaphorically, model two methods of reading figurative bodies, which I term extractive and ecological. If we learn how to read bodies ecologically, metaphors need not flatten difference or material complexity, but can in fact make it more meaningful.

Calgaro, E. (2021). Climate disaster risk, disability, and resilience. Current History, 120(829): 320–325.
DOI: https://doi.org/10.1525/curh.2021.120.829.320.

This essay examines the everyday inequalities, stigmas, and injustices that leave people with disabilities highly vulnerable to escalating climate change risks. It argues that including people with disabilities in disaster risk reduction processes is essential to shaping inclusive, effective policies and practices. Examples of several programs that have done so are discussed. Focusing on the strengths of people with disabilities as resilient change-makers and as the experts in their own lives—instead of viewing them as dependent on others—can lead to the changes necessary to recognize their personal sovereignty and deliver disaster justice. Third in a series on disability rights around the world.

Campos, P. A. (2021, Fall). Disability panic and environmental advocacy. In Environmental Justice [Feature Issue]. Natural Resources & Environment, 36(2), 41-44.

Disability plays an important but often unrecognized role in environmental law. Attorneys can play a role in reducing bias against people with disabilities.

Castres, P. (2022, October 13). Climate policy and activism need to make space for disabled people. BMJ, o2387, 379. DOI: https://doi.org/10.1136/bmj.o2387.

In this commentary, the author makes salient points on how “Disabled people are disproportionately affected yet highly underrepresented by climate change, yet the disability community hasn’t been at the forefront of climate policy and activism,” a situation which needs to change.

Cella, M. J. C. (2013, Summer). The ecosomatic paradigm in literature: Merging disability studies and ecocriticism. Interdisciplinary Studies in Literature and Environment, 20(3), 574-596. DOI: https://doi.org/10.1093/isle/ist053.

“Th(e) deep entanglement—the dialectic of embodiment and emplacement—is the central subject of this essay as this dialectic forms the basis for what I call the ecosomatic paradigm. The ecosomatic paradigm assumes contiguity between the mind-body and its social and natural environments; thus, under this scheme, the work of negotiating a ‘habitable body’ and ‘habitable world’ go hand in hand” (pp. 574-575).

Cella, M. J. C. (Ed.). (2016). Disability and the environment in American literature: Toward an ecosomatic paradigm. Lanham, MD: Lexington Books.

This book includes a collection of essays that explore the relationship between Disability Studies and literary ecocriticism, particularly as this relationship plays out in American literature and culture. The contributors to this collection operate from the premise that there is much to be gained for both fields by putting them in conversation, and they do so in a variety of ways. In this manner, the collection contributes to what Joni Adamson and Scott Slovic have referred to as a ‘third wave of ecocriticism.’ Adamson and Slovic attribute the rise of this “third wave” to the richly diverse contributions to ecocriticism over the past decade by scholars intent on including postmodernism, ecofeminism, transnationalism, globalization, and postcolonialism into ecocritical discussions. The essays in Toward an Ecosomatic Paradigm extend this approach of this ‘third wave’ by analyzing disability from an ‘environmental point of view’ while simultaneously examining the environmental imagination from a disability studies perspective. More specifically, the goal of the collection is to investigate the role that literary narratives play in fostering the ‘ecosomatic paradigm.’ As a theoretical framework, the ecosomatic paradigm underscores the dynamic and inter-relational process wherein human mind-bodies interact with the places, both built and wild, they inhabit. That is, the ecosomatic paradigm proceeds from the assumption that nature and culture are meshed in an ongoing and deep relationship that has implications for both the human subject and the natural world. An ecosomatic approach highlights the profound overlap between embodiment and emplacement, and is therefore enriched by both disability studies and ecocritical insight. By drawing on points of confluence between disability studies and ecological criticism, the various ecosomatic readings in this collection challenge normative (even ableist) constructions of the body-environment dyad by complicating and expanding our understanding of this relationship as it is represented in American literature and culture. Collectively, the essays in this book augment the American environmental imagination by highlighting the relationship between disability and the environment as reflected in American literary texts across multiple periods and genres.

Chen, M. Y. (2012). Animacies: Biopolitics, Racial Mattering, and Queer Affect [Perverse Modernities: A Series].  Durham, NC:  Duke University Press.

In Animacies, Mel Y. Chen draws on recent debates about sexuality, race, and affect to examine how matter that is considered insensate, immobile, or deathly animates cultural lives. Toward that end, Chen investigates the blurry division between the living and the dead, or that which is beyond the human or animal. Within the field of linguistics, animacy has been described variously as a quality of agency, awareness, mobility, sentience, or liveness. Chen turns to cognitive linguistics to stress how language habitually differentiates the animate and the inanimate. Expanding this construct, Chen argues that animacy undergirds much that is pressing and indeed volatile in contemporary culture, from animal rights debates to biosecurity concerns. Chen’s book is the first to bring the concept of animacy together with queer of color scholarship, critical animal studies, and disability theory. Through analyses of dehumanizing insults, the meanings of queerness, animal protagonists in recent Asian/American art and film, the lead in toys panic in 2007, and the social lives of environmental illness, Animacies illuminates a hierarchical politics infused by race, sexuality, and ability. In this groundbreaking book, Chen rethinks the criteria governing agency and receptivity, health and toxicity, productivity and stillness—and demonstrates how attention to the affective charge of matter challenges commonsense orderings of the world.

Chen, M. Y. (2015). The reproduction in/of disability and environment. In J. W. Belser (Ed.), Religion, Disability, and the Environment [Special Issue]. Worldviews, 19(1), 78-92. DOI: https://doi.org/10.1163/15685357-01901007.

“What are the methods of disability studies when it works in the realm of environmental studies? Disability studies has long staked a practiced ambivalence toward medicalization and the deployment of science for ends of ‘health.’ Given this stance, what can be made of science’s overwhelming deployment within environmentalist discourses?” (p. 79)

Claasen, A., van den Eijenden, J., & Geurts, M. (2013, November). Transversal ecocritical praxis:  An interview with Patrick Murphy. Ecocriticsm [Feature Issue]. Frame: Journal of Literary Studies, 26(2), 101-112.

Dr. Patrick D. Murphy is a Professor and Chair of the Department of English at the University of Central Florida. He has authored Ecocritical Explorations in Literary and Cultural Studies (2009), Farther Afield in the Study of Nature Oriented Literature (2000), A Place for Wayfaring: The Poetry and Prose of Gary Snyder (2000), and Literature, Nature, and Other: Ecofeminist Critiques (1995). He has also edited or co-edited such books as The Literature of Nature: An International Sourcebook (1998) and Ecofeminist Literary Criticism and Pedagogy (1998). He is the founding editor of ISLE: Interdisciplinary Studies Literature and Environment. His ecocritical work has been translated into Chinese, Danish, Japanese, Korean, and Spanish. Frame conducted an interview with Murphy to learn more about his new book, Transversal Ecocritical Praxis (2013), and to discuss with him the field of ecocriticism in general.

Clare, E. (2015). Exile and pride: Disability, queerness, and liberation (3rd ed.). Durham, NC: Duke University Press.  DOI: https://doi.org/10.1215/9780822374879.

First published in 1999, Exile and Pride is essential to the history and future of disability politics. Eli Clare’s revelatory writing about his experiences as a white disabled genderqueer activist/writer established him as one of the leading writers on the intersections of queerness and disability and changed the landscape of disability politics and queer liberation. With a poet’s devotion to truth and an activist’s demand for justice, Clare unspools the multiple histories from which our sense of self unfolds. His essays weave together memoir, history, and political thinking to explore meanings and experiences of home. Here readers will find an intersectional framework for understanding how we actually live with the daily hydraulics of oppression, power, and resistance. At the root of Clare’s exploration of environmental destruction and capitalism, sexuality and institutional violence, gender and the body politic, is a call for social justice movements that are truly accessible to everyone.

Clare, E. (2017). Brilliant imperfection: Grappling with cure. Durham, NC: Duke University Press.

In Brilliant Imperfection, Eli Clare uses memoir, history, and critical analysis to explore cure—the deeply held belief that body-minds considered broken need to be fixed. Cure serves many purposes. It saves lives, manipulates lives, and prioritizes some lives over others. It provides comfort, makes profits, justifies violence, and promises resolution to body-mind loss. Clare grapples with this knot of contradictions, maintaining that neither an anti-cure politics nor a pro-cure worldview can account for the messy, complex relationships we have with our body-minds. The stories he tells range widely, stretching from disability stereotypes to weight loss surgery, gender transition to skin lightening creams. At each turn, Clare weaves race, disability, sexuality, class, and gender together, insisting on the nonnegotiable value of body-mind difference. Into this mix, he adds environmental politics, thinking about ecosystem loss and restoration as a way of delving more deeply into cure. Ultimately Brilliant Imperfection reveals cure to be an ideology grounded in the twin notions of normal and natural, slippery and powerful, necessary and damaging all at the same time.

Comer, T. A., & Junker, C. (2020). Disability Studies and Ecocriticism: Creative Critical Intersections [Special Thematic Volume]. Studies in the Humanities, 46(1-2).

This double journal issue of Studies in the Humanities is merely the most recent attempt to further the academic conversation occurring at the intersection of disability and ecology. In our call for papers we asked for essays focused on the following questions: What can be gained by investigating ecological issues through the lens of disability studies? What can be gained by investigating disability through the lens of ecocriticism? How can these two viewpoints be joined?

Articles published in this feature issue include an Introduction and the following:

  • On (Dis-)Ability and Nature in A Song of Ice and Fire
  • Ableism in Avatar: The Transhuman, Postcolonial Rapprochement to Bioregionalism
  • Ecstatic Others: Transcendent Mutant Bodies in Milligan and Allred’s X-Statix
  • Green Our Vaccines: Jenny McCarthy’s Environmentalist, Ableist Rhetoric
  • Eco-ability and the Corporeal Grotesque: Environmental Toxicity in Cherrie Moraga’s Heroes and Saints and Ambikasutan Mangad’s Swarga
  • The Ableist Human: Rethinking Agency with Ability through Max Frisch’s Man in the Holocene
  • Undoing Bodies: Tentacular Spaces and Sympoiesis in Octavia Butler’s Lilith’s Brood
  • Green Lovin’ Mamas Don’t Vax! The Pseudo-Environmentalism of Anti-Vaccination Discourse
  • Writing the Unruly Body: Disability, Femininity, and the Environment in Wallace Stegner’s Angle of Repose
  • Shimerda’s Ghost: Disability and the Myth of the Frontier in Great Plains Fiction

Cram, E., Law, M. P., & Pezzullo, P. C. (2022). Cripping Environmental Communication: A Review of Eco-Ableism, Eco-Normativity, and Climate Justice Futurities. Environmental Communication, 16(7), 851-863. DOI: https://doi.org/10.1080/17524032.2022.2126869.

The field of environmental communication has yet to integrate disability or ableism as a primary area of research or intersectional investment. The ableist silences and disability slights are notable, however. This review essay provides a working definition of eco-ableism, including a summary of disability imagined through medical and social models. Then, the authors reflect on the role of voice as a method. Next, the essay synthesizes existing interdisciplinary literature to establish three broad trajectories of environmental communication research: (1) ecoableism in wilderness and outdoor recreation; (2) eco-normativities in public health discourses; and (3) climate justice futurism as public advocacy. While not exhaustive, the authors hope this review essay will help prompt the overdue cripping of environmental communication.

Crock, M.E., McCallum AO, R.C. (2022). Disability, conflict, and environmental conditions – An Introduction. In M. H. Rioux, J. Viera, A. Buettgen, & E. Zubrow (Eds.), Handbook of disability. Springer, Singapore. DOI: https://doi.org/10.1007/978-981-16-1278-7_73-1.

It is now accepted that persons with disabilities suffer disproportionate harms in disaster and displacement contexts, most particularly when persons with disabilities cross international borders in search of protection. Advances in domestic and international laws and policies are changing attitudes and approaches for these people. However, achieving equal treatment and mainstreaming disability-inclusive and rights-based approaches to disaster risk management is a work in progress. The COVID-19 pandemic and ongoing conflicts around the world underscore the importance of the insights provided by the authors in this collection. The shared aim is to lay out a road map to ensuring the full and effective participation of all persons with disabilities in society, acknowledging the intersecting and cross-cutting issues that create barriers in contexts of disaster and displacement.

Dahlberg, A., Borgström, S., Rautenberg, M., & Sluimer, N. (2022, September). A Nearby Park or Forest Can Become Mount Everest. Access to Urban Green Areas by People in Wheelchair from an Environmental Justice Perspective: A Stockholm Case. In B. Plüschke-Altof & H. Sooväli-Sepping (Eds.), Whose Green City? Contested Urban Green Spaces and Environmental Justice in Northern Europe [Sustainable Development Goals Series Series (SDGS)] (pp. 19–40). Springer Nature Switzerland AG.

That green areas in rapidly urbanising landscapes are important for human well-being is well established. Parks, woodlands, nature reserves, street trees and backyards provide multiple benefits, e.g. through providing physical, mental, social, educational and cultural benefits. These effects should reach all ‘the people’. However, a precondition is accessibility, which has received growing research attention. The aim of this chapter is to contribute to this body of knowledge by presenting and discussing accessibility to urban nature from the viewpoint of people whose mobility is dependent on a wheelchair. Very few studies have focused on this group, and then primarily on physical access. We include a broader perspective on underlying factors affecting accessibility—juxtaposed with an environmental justice approach. Our exploration rests primarily on interviews with people dependent on a wheelchair and representatives of supporting organisations. To this is added data from an online survey. Our results highlight that access to urban green areas must be understood in a broad sense, e.g. where physical access includes the whole route from home and back again, and where mental and social access is equally crucial. Further, green areas include the whole spectrum from a window-view to an urban national park. The study sends valuable signals to planners, e.g. concerning and including people in wheelchairs in all stages of planning and maintenance.

Davey, C., & Tataryn, M. (Eds.). (2021). Disability Studies and Sustainable Ecology [Special Issue]. Sustainability, 13(17).

The accelerating climate crisis forces us to face current socio-economic inequalities and how crises disproportionately impact certain sectors of society. In many respects, the ongoing COVID-19 pandemic is a foreshadowing of how the burden of responding to a global crisis falls unequally. Other publications (e.g., Twig et al., 2011, Gartrel et al., 2020, Peek and Stough, 2010) explore how disabled people are disproportionately negatively affected by such crises. This is an injustice that must be remedied. Yet, in this Special Issue we want to consider the relationship between disability and sustainability from a different angle. Instead of just focusing on people with disabilities as a vulnerable group, and ecological changes as a risk, we want to explore how the conceptual thinking around disability in society interacts with the challenging rethinking of society that will be necessary for sustainability. We are asking: how can a critical perspective on disability, and a view of sustainability that incorporates the diversity inherent in disability, help guide us towards a future that incorporates a more holistic notion of interdependence and, hence, sustainability in our relationship with each other as humans but also with the natural world that surrounds and sustains us? This exploration of interdependence will indeed touch upon questions about our physical and social environments. How do we build our cities and communities? What can perspectives on disabilities teach us about what this says and/or determines about our relationships with each other and with our natural environments? What do different communities (i.e., indigenous people) have to offer in this regard? Finally, how can we conceptualize welfare for all in a way that does not depend on the exploitation of other people and the rest of the ecology?

Day, A. (2020). Crip Time and the toxic body: Water, waste and the autobiographical self. In F. Allon, R. Barcan, & K. Eddison-Cogan (Eds.), The Temporalities of Waste: Out of Sight, Out of Time (pp. 167-178). New York: Routledge. DOI: https://doi.org/10.4324/9780429317170.

Our relationship to climate change will vary depending on our proximity to fresh water and ocean water, poverty, illness and disability—a constellation of intersecting tensions that differentially deploy disaster and debility. This chapter explores three contemporary nonfiction writers, all of whom write of an intimate relationship with water and disability: Leah Laksmi Piepzna-Samarasinha’s Dirty River, Sandra Steingraber’s Living Downstream and Kristen Iversen’s Full Body Burden. Taken together, these three writers move us geographically across the United States, following the linear timeline of U.S. colonial occupation from Massachusetts to the American West, exploring eighteenth- and nineteenth-century industrial factory waste, nineteenth- and twentieth-century farm waste, and late twentieth-century nuclear waste. Focusing on the relationships Piepzna-Samarasinha, Steingraber and Iversen have to water and waste leads us to carefully consider the relationship of individual bodies to time and disability. Utilising a key conceptualisation in critical disability studies, Crip Time, this chapter explores how exposure to environmental toxins is a kind of slow violence enacted on the human body, causing us to think differently about cause and effect, contagion and illness, human debility and planet precarity.

Disability Inclusive Climate Action Research Program & International Disability Alliance. (2022, June). Disability Rights in National Climate Policies: Status Report. Disability Inclusive Climate Action. Montreal, PQ & New York: Research Program at the McGill Centre for Human Rights & Legal Pluralism and the International Disability Alliance.

Produced and released jointly by the Disability Inclusive Climate Action Research Program at
McGill University and the International Disability Alliance, this report provides a systematic
analysis of the inclusion of persons with disabilities and their rights in the climate commitments and policies adopted by State Parties to the United Nations Framework Convention on Climate Change (UNFCCC). Section 1 reiterates the key obligations owed by states to persons with disabilities under international law. Section 2 reviews whether and how States have recognized persons with disabilities and their rights in their communications to the UNFCCC and in their domestic climate adaptation and mitigation policies. Section 3 summarizes the key conclusions of our analysis and provide recommendations for enhancing disability inclusion in national climate policy-making. In the appendix to this report, we provide a compendium of references to disability from our dataset of domestic climate policies. (p. 2).

Duke Disability Alliance.  (2022). Jen Deerinwater: Accompliceship Now! Disability and Indigeneity on the Frontlines of Climate Crisis [YouTube Video]. Durham, NC: Duke University.

“How does climate crisis impact disabled and indigenous communities? What can we learn about resistance from crip wisdom and indigenous knowledges? Hear about the intersections of these topics from disabled Cherokee organizer and journalist, Jen Deerinwater.”

Eisen, N., Duyck, S., & Jodoin, S. (2019, December). The Rights of Persons with Disabilities in the Context of the UN Framework Convention on Climate Change: Relevant International Frameworks and Compilation of Decisions adopted by the Parties to the UNFCCC. Winnipeg, MB, Washington, DC, Council of Canadians with Disabilities (CCD), ONG Inclusiva, and Center for International Environmental Law (CIEL).

The Parties to the UN Climate Agreements have recognized that persons with disabilities are key stakeholders in the international response to climate change. As such, they must be engaged throughout the UNFCCC processes and their rights respected and promoted through any climate activity, including mitigation, adaptation, or capacity building. This document recalls the relevant provisions of the UN Convention on the Rights of Persons with Disabilities and of the Sendai Framework and provides a compilation of all references to persons with disabilities adopted by governments under the UN Framework Convention on Climate Change.

Engelman, A., Craig, L., & Iles, A. (2022, October). Global Disability Justice In Climate Disasters: Mobilizing People With Disabilities As Change Agents. In A. R. Weil (Ed.), Disability and Health [Feature Issue]. Health Affairs, 41(10), 1496-1504. DOI: https://doi.org/10.1377/hlthaff.2022.00474.

Disabled people are highly susceptible to climate change impacts and disasters, yet they often remain sidelined or largely invisible. Policy makers, humanitarian agencies, and governments need to address the climate-related vulnerabilities that disabled people encounter during acute events and in the course of more creeping forms of climate change. As deaf researchers, we call for integrating disability justice into climate and disaster preparedness policies and practices worldwide. A disability justice approach can embrace the strengths that disabled people bring to disaster planning and climate mitigation and advocacy efforts. In this article we present case studies from different global regions to illustrate how disability is overlooked in responding to climate-related health impacts and disaster planning. We also draw particular attention to mutual aid networks led by disabled people in adapting to climate-related health impacts. We then suggest questions to help policy makers and practitioners integrate disability justice into their work. Above all, disabled people, organizations, and service providers should take ownership over the process of developing policies and actions to better prevent, prepare for, and respond to climate disasters.

Eriksen, S. H., Grøndahl, R., & Sæbønes, A. (2021, December).On CRDPs and CRPD: why the rights of people with disabilities are crucial for understanding climate-resilient development pathways [Personal View]. Lancet Planetary Health, 5(12), e929-e939. DOI: https://doi.org/10.1016/S2542-5196(21)00233-3.

In this Personal View, we examine how the Convention on the Rights of Persons with Disabilities and lived experiences of disability can deepen understanding of four key features of climate-resilient development: social justice and equity as normative goals; the ethical underpinnings of social choices; the inequitable relations that drive marginalisation; and the ways in which society navigates uncertainty through inclusive and contestatory politics. A disability lens not only helps to understand how marginalisation generates vulnerability; it also helps to elaborate the ethic of solidarity as underpinning social choices and steering development towards climate-resilient pathways. Social justice concerns non-discrimination and equitable participation in everyday informal arenas, as well as formal decision making processes. The resilience knowledges of disabled people help to rethink sustainable development by expounding human interdependence and everyday problem solving in the face of uncertainties. They also contribute to opening up climate change decision making and knowledge processes in ways crucial to engendering transformative change. Embracing human diversity by recognising dignity and capacity is required to counter othering and marginalisation, ensure human wellbeing and planetary health, and achieve socially just development. As such, solidarity is not just a normative goal, but also a means of building climate-resilient development.

Fenney, D. (2017, August). Ableism and disablism in the UK environmental movement. Environmental Values, 26(4), 503-522. DOI: https://doi.org/10.3197/096327117X14976900137377.

This article considers disabled people’s involvement with the UK environmental movement. It draws on findings from qualitative research with disabled people in the UK exploring experiences of access to sustainable lifestyles. A number of experiences of disablism (the manifestation of oppression against disabled people) and ableism (assumptions and valorisations of non-disabled normality) were described. Similar issues were also identified in relevant documentary sources and from research into disabled people’s experiences in the context of other movements such as the wider anti-capitalist movement. These findings suggest that ableism may be a significant feature of the UK environmental movement. If this is the case, there are important implications for the wider success of this movement’s aims in terms of achieving environmental protection, as well as for the ongoing exclusion experienced by disabled people with regard to pro-environmental activities.

Fritsch, K., & McGuire, A. (2018, Spring). The Biosocial Politics of Queer/Crip Contagions [Special Issue]. Feminist Formations, 30(1).

“In this special issue, we chart the limits and possibilities of queer/crip biosocial politics by examining the ways these ideas intersect and commingle with the narratives, practices, and temporalities of contagion. Crip and queer mark out, and indeed, flaunt the failures of normativity. And, in their fierce assertion of the possibility of an outside or more-than-one, crip and queer share a striking range of political and imaginative affinities. Feminist scholars have variously theorized queer and crip as unsettling, strange, twisted, unintelligible, or disruptive (Ahmed 2006; Butler 1993; Kafer 2013; McRuer 2006; Muñoz 2009; Kuppers 2011; Sandahl 2003; Chen 2012; Puar 2012; Johnson 2015; Clare 2001; McRuer and Mollow 2012). Building upon and extending these insights, this issue traces the multiple and unexpected ways queer and crip influence and infect one another” (p. vii).

Fritsch, K., Hamraie, A., Mills, M., & Serlin, D. (2019). Special Section: Crip Technoscience. Catalyst: Feminism, Theory, Technoscience, 5(1). DOI: https://doi.org/10.28968/cftt.v5i1.

“This special section of Catalyst maps the central nodes of the emerging field of crip technoscience, which we situate at the intersection of feminist technoscience studies and critical disability studies. Crip technoscience marks areas of overlap between these fields as well as productive disciplinary and political tensions. Our section brings together critical perspectives on disability and science and technology in order to grapple with historical and contemporary debates related to digital and emerging technologies, treatments, risk, and practices of access, design, health, and enhancement” (pp. 1-2).

Global Action on Disability (GLAD) Network. (n.d.). Promoting Disability-Inclusive Climate Change Action. Geneva, Switzerland and New York, NY: Author.

The preamble to the 2015 Paris Agreement includes persons with disabilities as one of the populations most acutely affected by climate change. However, subsequent provisions omit disability inclusion as an essential principle in action against climate change.

Persons with disabilities remain largely excluded from decision-making processes and plans to address and prevent climate change and the responses to climate-related disasters and emergencies at sub-national, national, regional, and international levels. The inclusion of persons with disabilities is pivotal to ensuring that efforts to implement the UN Framework Convention on Climate Change (UNFCCC) and out comes of the Paris Agreement are inclusive. Conversely, persons and organizations of persons with disabilities must advocate for a holistic approach to disability inclusion.

To address this, the Secretariat of the GLAD Network, in close consultation with and guidance by the GLAD Network’s working group on disability-inclusive climate action, is pleased to present to you with an issue paper and guide to promoting disability-inclusive climate change as well as 3 Steps Toward Disability-Inclusive Climate Action.

Good, G. A. (2022). Guest Editorial: Disasters and Disability: A Call to Action. Journal of Visual Impairment & Blindness, 116(6), 761-763. DOI: https://doi.org/10.1177/0145482X221144405.

“In recent years, most people living on the planet have been affected by or have witnessed devastating disasters such as earthquakes, floods, hurricanes, and wildfires, not to mention the fact that we have all been living through the COVID-19 pandemic. As researchers and professionals who work with disabled people (in this editorial, I will use the language of the Social Model of Disability, which acknowledges that disability is socially imposed by society onto those living with impairments); as parents, family members, and friends of those living with disability; and as disabled persons ourselves, I am sure we have all been concerned about the safety and welfare of those we care about who are coping with these crises, emergencies, and disasters.

There are many potential disasters to prepare for, including natural disasters, human-made and industrial disasters, economic or state collapse, school shootings, and other emergencies. These crises affect people who are blind or have low vision and those with other impairments across the age spectrum, as well as their families, educators, practitioners, and the first responders, healthcare workers, policymakers, and stakeholders charged with leading a coordinated response to any disaster. It is clear that innovative research, effective policies, and practices are needed, along with a massive awareness campaign, so that visually impaired people, and those with other impairments, are not forgotten in the various stages of disasters and emergencies such as preparation, planning, response, and recovery” (p. 761).

Goodley, D. (2020). Challenging transhumanism: Clutching at straws and assistive technologies. Balkan Journal of Philosophy, XII(1), 5-16.

This paper cautiously ponders the offerings of transhumanism. We begin the paper by introducing the transhumanist movement and related transdisciplinary thinking before giving space to the emergence of critical disability studies. We argue that the latter field has the potential to ground a critical and reflexive analysis of transhumanism– not least through a consideration of the contributions of posthuman and green disability studies. Drawing on these two perspectives, two specific areas of transhuman contemplation are offered. First, we consider (in the section titled, ‘The Ban on Straws: Disability prosthetics and the complication of eco-politics’) the relationship between disability advocacy politics and the potential ableism present in popular eco-political discourse. Second, we explore mainstreaming assistive technologies and e-waste collateral. These analytical thematics highlight the complexities of a critical transhuman disability studies, not least, in relation to the clash of disability and green politics. We conclude the paper with some considerations for future theory and research that trouble an uncritical acceptance of transhumanism in the area of critical disability studies.

Goodrow, G. (2019). Biopower, disability and capitalism: Neoliberal eugenics and the future of ART regulation. Duke Journal of Gender Law & Policy, 26(139), 137-155.

Discourse around reproductive and contraceptive technology in the United States is typically organized around ideas of autonomy, privacy, and free choice. The dichotomy of ‘pro-choice’ and ‘pro-life’ structures all debates on the topic, and the political framework of neoliberalism channels discussion into prepackaged frameworks of cost-benefit analysis and the primacy of free market choice. However, an examination of history and present policy developments paints a different picture. This Note argues that access to and regulation around contraception, abortion, and overall reproductive health and technology has been informed by and continues to interact with ideas of biopower and both positive and negative eugenics, and that neoliberal conceptions of free reproductive choice ignore the implications of this connection. Part II traces the history of the eugenics movement in America, exemplified by forced and coerced sterilization of people considered mentally or physically ‘degenerate,’ particularly those confined to institutions, and explores the rhetoric in early contraceptive-focused treatises and court decisions that reflect eugenicist views. Part III analyzes the modern trends on legal access to and regulation of reproductive and contraceptive technology and its interaction with race, socioeconomic status, and, in particular, disability (one of the more anxiety-producing categories of humanity in the neoliberal era). In Part IV, the Note goes on to argue that construction of a rational and compassionate legal framework where a woman’s right to choose is preserved (or revived) and the humanity of disabled persons is also respected is not only possible, but essential. A truly feminist reproductive framework must be built on justice, not market choice, and must respect both the agency and autonomy of pregnant women and the humanity and individual subjectivity of disabled persons. Policy strategies towards this end will not be easy, but attention to all the intersectional and overlapping factors that affect women’s reproductive decision-making, especially with regard to disability and reproductive technology, can change the way we view and value disabled personhood in our society.

Gottlieb, R. S. (2015, January). Disability and environment: Cautions and questions. In J. W. Belser (Ed.), Religion, Disability, and the Environment [Special Issue]. Worldviews, 19(1), 74–78. DOI: https://doi.org/10.1163/15685357-01901006.

“The essays in this issue utilize and advance current thinking about intersections of environmental crisis, disability, politics, morality, and religion. They are passionate and creative, challenging both common sense and the theoretical status quo. They utilize resources from culture, philosophical critique, political movements, and current events. My critical comments are made in the same spirit as the essays themselves, and in appreciation for the authors’ intellectual accomplishments. I write as the father of a 28 year old daughter, Esther, who has multiple physical, neurological, and development disabilities” (p. 74).

Grassi, S. (2017). “Queer natures”: Feminist ecocriticism, performativities, and Ellen van Neerven’s “Water.”  LEA – Lingue e letterature d’Oriente e d’Occidente, 6, 177-192. DOI: https://doi.org/10.13128/LEA-1824-484x-22336.

This paper brings together queer ecological thought, ecofeminism, and feminist ecocriticism to explore forms of embodied resistance against intersectional, complex oppressions of women, races, and lands. It looks at the award-winning Indigenous Australian writer Ellen van Neerven’s short story, ‘Water’ (from the 2014 collection, Heat and Light) to canvas an anti-essentialised queer feminist politics and ethics of care through which to shape utopian futures after sovereignty, after the West, after patriarchy, after whiteness.

Grossman, S. J. (2019, May). Living lexicon for the environmental humanities: Disabilities. Environmental Humanities, 11(1), 242-246.  DOI: https://doi.org/10.1215/22011919-7349532.

In this brief entry, I give shape to the affective ties [between disability (visible and invisible) and ravaged environments] by exploring the relation between physical disability and ravaged environments as one of resonance and echo and not as a canonized history or a tested theory. I draw on my personal history, as well as emerging work in disability studies and environmental humanities, in order to literalize these resonances and echoes across nature-cultures” (p. 242).

Groulx, M., Freeman, S, & Lemieux, C. (2022, March). Accessible nature beyond city limits – A scoping review. Journal of Outdoor Recreation and Tourism, 37. DOI: https://doi.org/10.1016/j.jort.2022.10049.

The health and well-being benefits of nature contact are well known, but inequitably distributed across society. Focusing on the access needs of persons with a disability, the purpose of this study was to systematically examine research on the accessibility of nature-based tourism and recreation spaces outside of urban/community settings. Following a scoping review methodology, this study sought to examine policies, services, physical infrastructures, and regulatory standards intended to enable equitable use of nature-based settings by individuals of all ages and abilities, particularly persons with a disability. In total, 41 relevant studies were identified and analyzed. Findings indicate that there are considerable gaps in the provision of services and information that enable self-determination in the use and enjoyment of nature, and that accessibility in nature-based settings is conceptualized through three interrelated policy/design pathways: the adaptation pathway, the accommodation pathway, and the universal design pathway. As a whole, accessibility policy and standards research specific to natural settings outside of urban/community settings is highly limited.

Management implications: There are growing calls to promote inclusive nature experiences in tourism and recreation spaces outside of community settings. Management of such spaces must reconcile equity concerns with a host of other priorities like environmental conservation. In the case of promoting universal accessibility, few studies offer insight into the detailed standards that must be met to create barrier-free access, let alone how to integrate such standards with other management priorities. Transdisciplinary research partnerships that involve management personnel, environmental and public health researchers, and persons with a disability are needed to identify effective management synergies.

Grue, J., & Lundbad, M. (2019). The biopolitics of disability and animality in Harriet McBryde Johnson. In N. Watson & S. Vehmas (Eds.), Routledge Handbook of Disability Studies (2nd ed.) (pp. 117-126). New York and London: Routledge.

“This chapter represents a multidisciplinary and collaborative approach to an enduring problem in disability studies, namely the valuation of different lives and kinds of lives. The authors believe that this problem can be explored in interesting ways if disability studies and human animal studies interact more closely. Historically, the academic fields that study disability and animality have not been in close communication. In fact, their relationship can perhaps more accurately be described as being wary of the implications of findings in the other field. We feel, however, that communication – and collaboration – may turn out to be essential. This is partly because key problem areas that concern both fields, including the criteria according to which different lives are valued and what exactly constitutes a life that is worth protecting, are also approached through other lines of inquiry, including the neo-utilitarianism that is most closely associated with the philosopher and ethicist Peter Singer. In Singer’s approach (admittedly simplified), capacities for higher cognitive functions and for suffering often become the major criteria that are deployed across species boundaries in order to determine the relative value of different beings, and thereby the lives of many animals and disabled people are potentially devalued. The 2002 debate between Singer and Harriet McBryde Johnson, one of the major disability activists of her generation, is one of the points of departure for this chapter. In a much vaunted encounter at Princeton University, USA, Johnson defended the intrinsic value of the lives of human beings with disabilities, while effectively refusing to countenance Singer’s position that species boundaries cannot by themselves constitute grounds for distinguishing between different forms of life. In this chapter, we delve deeper into what lies beneath the Singer-Johnson encounter, along with Johnson’s other writing, to consider the broader issues at stake. The chapter is structured as a dialogue. This reflects our desire not to conflate or artificially collapse animality studies and disability studies into a single disciplinary endeavour, but rather to find those areas and problems to which both fields have something important to contribute. We hope that the text will read not as a debate, but as an exploratory conversation with the shared purpose of finding out what disability studies and animality studies can teach each other, as well as other disciplines” (p. 117).

Hall, K. Q. (2014). No failure: Climate change, radical hope, and queer crip feminist eco-future. Radical Philosophy Review, 17(1), 203-225. DOI: https://doi.org/10.5840/radphilrev201432614.

This paper offers a critique of the emphasis on anti-futurity and failure prevalent in contemporary queer theory. I argue that responsibility for climate change requires commitments to futures that are queer, crip, and feminist. A queer crip feminist commitment to the future is, I contend, informed by radical hope.

Hamraie, A. (2018). Enlivened city: Inclusive design, biopolitics, and the philosophy of liveability. Built Environments, 44(1), 77-104. DOI: https://doi.org/10.2148/benv.44.1.77

Shortly after the United States announced its withdrawal from the Paris climate accords, mayors of global cities committed to addressing climate change via urban-scale projects aimed at promoting liveable, sustainable, and healthy communities. While such projects are taken for granted as serving the common good, this paper addresses the ideological dimensions of planning liveable cities with health promotion in mind. Liveability, I argue, is a normative ideology wherein liveliness and activation perform affective roles, associating urban design methods with feel-good imagined futures while rendering built structures as polemics against disabled and racialized populations. Using Nashville, Tennessee, a mid-sized US city, as a case study, the paper parses the progressive vision of the liveable city from the ideologies, political economies, and development practices that simultaneously activate some lives while excluding others.

Hamraie, A., & Fritsch, K. (2019). Crip technoscience manifesto. In K. Fritsch, A. Hamraie, M. Mills, & D. Serlin (Eds.), Special Section on Crip Technoscience. Catalyst: Feminism, Theory, Technoscience, 5(1), 1-34. DOI: https://doi.org/10.28968/cftt.v5i1.29607.

As disabled people engaged in disability community, activism, and scholarship, our collective experiences and histories have taught us that we are effective agents of world-building and -dismantling toward more socially just relations. The grounds for social justice and world-remaking, however, are frictioned; technologies, architectures, and infrastructures are often designed and implemented without committing to disability as a difference that matters. This manifesto calls attention to the powerful, messy, non-innocent, contradictory, and nevertheless crucial work of what we name as ‘crip technoscience,’ practices of critique, alteration, and reinvention of our material-discursive world. Disabled people are experts and designers of everyday life. But we also harness technoscience for political action, refusing to comply with demands to cure, fix, or eliminate disability. Attentive to the intersectional workings of power and privilege, we agitate against independence and productivity as requirements for existence. Instead, we center technoscientific activism and critical design practices that foster disability justice.

Hart, D. (2022). Finding the Weight of Things: Larry Eigner’s Ecrippoetics. University of Alabama Press.

Larry Eigner (1927–1996) wrote thousands of poems in his lifetime, despite profound physical limitations caused by cerebral palsy. Using only the thumb and index finger of his right hand, Eigner generated a torrent of urgent and rich language, participating in vital correspondences as well as publishing widely in literary magazines and poetry journals.

While Eigner wrote before the emergence of ecopoetics, his poetry reflected a serious engagement with scientific writing and media, including Rachel Carson’s seminal Silent Spring. Eigner was writing about environmental disasters and climate change long before such concerns took on a moral incumbency. Similarly, Eigner was ahead of his time in his exploration of disability. The field of disability studies has expanded rapidly in the new millennium. Eigner was not an overtly biographical poet, at least as far as his physical limitations were concerned, but his poetry spoke volumes on the idea of embodiment in all its forms.

Finding the Weight of ThingsLarry Eigner’s Ecrippoetics is the first full-length study of Eigner’s poetry, covering his entire career from the beginning of his mature work in the 1950s to his last poems of the 1990s. George Hart charts where Eigner’s two central interests intersect, and how their interaction fueled his work as a poet-critic—one whose work has much to tell us about the ecology and embodiment of our futures. Hart sees Eigner’s overlapping concerns for disability, ecology, and poetic form as inextricable, and coins the phrase ecrippoetics here to describe Eigner’s prescient vision.

Hemingway, L., & Priestly, M. (2014). Natural hazards, human vulnerability and disabling societies: A disaster for disabled people?  Review of Disabiilty Studies, 2(3).

The policy and research literature on disaster management constructs disabled people as a particularly “vulnerable group.” In this paper, we combine concepts from disaster theory and disability theory to examine this assumption critically. Drawing on primary, secondary and tertiary sources, we assess the vulnerability of disabled people in two globally significant disasters: Hurricane Katrina in August 2005 and the Asian tsunami of December 2004. In both cases, disabled people were adversely affected in terms of their physical safety and access to immediate aid, shelter, evacuation and relief. Using a social model analysis we contest the view that this vulnerability arises from the physical, sensory or cognitive limitations of the individual and show how it may be attributed to forms of disadvantage and exclusion that are socially created. The paper concludes that “natural hazards” are realised disproportionately as “human disasters” for disabled people, and most notably for disabled people in poor communities. Social model approaches and strong disabled people’s organisations are key to building greater resilience to disaster amongst “vulnerable” communities in both high-income and low-income countries.

Heylighen, A. (2008). Sustainable and inclusive design: A matter of knowledge? In R. Imrie & H. Thomas (Eds.), The Environment and Disability: Making the Connections [Special Issue]. Local Environment, 13(6), 531-540. DOI: https://doi.org/10.1080/13549830802259938.

In analysing parallels between sustainable and inclusive design, the paper investigates reasons for architects’ disappointing uptake of these approaches so far. A common reason seems to be the lack of knowledge that has the applicability required by architectural practice. Researchers produce knowledge on why and how we should accomplish more sustainable practices in building, which rarely filters down to practicing architects. Vice versa, the knowledge developed through architects’ design experiences rarely feeds back into academic research. Moreover, in the case of inclusive design, the user side represents a valuable body of knowledge as well: through their specific interaction with buildings/spaces, users with disabilities appreciate qualities and detect misfits most architects are unaware of. If the uptake of sustainability and inclusiveness in architecture is to be improved, the major challenge thus seems less a need to generate more knowledge than a need to make more effective use of what is already available.

Hickman, L. N. (2015). Lead me beside still waters: Toxic water, Trisomy 21 and a theology of eco-social disability. In J. W. Belser (Ed.), Religion, Disability, and the Environment [Special Issue]. Worldviews, 19(1), 34-50. DOI: https://doi.org/10.1163/15685357-01901003.

Artist Ena Swansea paints a provocative paradox in ‘One’ from her ‘4 Seasons’ quadtych: Is the child in the bathtub playfully holding a bubble, the orb of our global commons, or a crystal ball that portends an ominous future? As the viewer is confronted with the image of a child who, in the middle of an ordinary daily routine, is up to his armpits in a pool of blood red water, the question of water toxicity becomes central in the painting. Working from that image, this paper explores the interaction between water toxicity and Trisomy 21, proposing the need for a ‘precautionary principle’ to guide decisionmaking. The rationale for that principle is developed here through a study of communities with heightened links between water toxicity and Trisomy 21, a deepened theology of water across worldviews drawing on the work of John Hart’s Sacramental Commons, and a proposed model for ‘eco-social disability.’ Because scientific studies linking toxic water and Trisomy 21 are inconclusive, the precautionary principle serves as a guide to prevent the potential disabling effects of toxic water causing unjust generation of disablement.

Hilton, E. (2022, May). Building a more inclusive climate movement: Climate change and disabilities. Journal of Environmental Health, 84(9), 34-36.

In November 2021, world leaders gathered at the 26th United Nations Climate Change Conference of the Parties (COP26) to discuss global climate policy and the urgent need to address harmful emissions that arc accelerating global warming and extreme weather events devastating communities worldwide. Given the importance of this event and the need to hear from diverse voices, it was disappointing that the Israeli Energy Minister Karine Elharrar could not attend the first day of discussions because she uses a wheelchair and the meeting venue was not accessible. Climate change is accelerating with visible impacts around the world. Climate change can also cause increased disease and worsened physical, mental, and community health conditions. Exacerbating the outsized impact of climate change factors on people with disabilities is the fact that actions being pursued by those in the environmental and environmental justice movements can be at odds with the needs of people with disabilities.

Hughes, B. (2019). The abject and the vulnerable: The twain shall meet: Reflections on disability in the moral economy. The Sociological Review Monographs, 67(4), 829-846. DOI: https://doi.org/10.1177%2F0038026119854259.

The meaning of impairment is often Janus-faced. On the one hand, it is associated with defect, deformity, monstrosity and other tropes that carry the weight of ontological ruin, haunting narratives of physical, mental or sensory catastrophe that disturb the normate sense of being human. Impairment is invested with the debilitating social and moral consequences that symbolise disability. Disavowed and repudiated by the non-disabled community, disability represents the murky, shadow side of existence that separates normal embodiment from its benighted, abject ‘other’. Disgust – on the part of non-disabled, ‘clean and proper’ subjects – is the likely emotional response to the pollution and impropriety that disability represents. The emotional relation between the two parties may be mired in normate repulsion.

Humalisto, N. (2022) Generative spaces of climate change adaptation: Focus on disability inclusion. In H. Katsui & V. Mesiäislehto (Eds.), Embodied inequalities in disability and development (pp. 13-34). Stellenbosch, South Africa: African Sun Media. DOI: https://doi.org/10.52779/9781991201812

Climate change increases livelihood vulnerability and exposure to risks around the globe, but these impacts are not equally distributed among different people and places. Among the disadvantaged are persons with disabilities but their inclusion in projects and planning for climate change adaptation is low. Nepal is a challenging but typical context in the global South, where persons with disabilities have limited capacities to demand their basic rights, from secure livelihoods to sanitation, to be respected. Concurrently, (localised) institutions might not have the capacity to protect their constitutional rights. Consequently, while Nepalese policy encourages disability inclusion in adaptation planning, doing so in practice faces manifold political, cultural and social barriers. This chapter examines the conditions for inclusive adaptation based on ethnographic data from development projects run by seven Nepalese NGOs. The results show that demographic governance needs to be enhanced, and that the accountability of state institutions must co-evolve with the resilient livelihood opportunities for persons with disabilities. Inclusive adaptation hinges on creating trade-offs and positive feedback looks by generating opportunities for communal participation, refining evidence for circulation, and enabling scalar linkages between stakeholders and duty-bearers. 

Hyatt, B. (2021, August 18). Disability-Inclusive Local Climate Action Planning in the United States. Vibrant Environment Blog [Website]. Washington, DC: Environmental Law Institute.

“In order to protect people with disabilities from the worst impacts of climate change, local planners must build disability-inclusive climate action plans that draw upon lessons learned domestically from previous natural disasters and from abroad. They must take decisive steps to ensure the active participation of people with disabilities in the climate action planning process. If carried out effectively, these actions will save lives.”

Iengo, I. (2022). Endometriosis and environmental violence: An embodied, situated ecopolitics from the Land of Fires in Campania, Italy. Environmental Humanities, 14(2), 341–360. DOI: https://doi.org/10.1215/22011919-9712412.

This toxic autobiography seeks to open the conversation around the intersecting injustices marking the epistemological, material, political, and porous entanglements between endometriosis, the bodily inflammatory chronic condition the author is affected by, and the toxic waste fires raging in the territory known as the Land of Fires, between the provinces of Naples and Caserta, in southern Italy. Thinking with the sprouting intersection of environmental humanities and disability justice, while rooted in a critical environmental justice and transfeminist standpoint, the article uncovers the toxic embodiment where bodies and places are enmeshed. Although a growing body of literature acknowledges the role of chemical buildup and endocrine-disrupting toxins in the occurrence of endometriosis, the author delineates the epistemic injustices that keep this relationship silent in mainstream medical discourses. Through the blend of environmental memoir, embodied knowledge, activist campaigns, and medical literature, the article exposes the accumulation of environmental, medical, ableist, misogynist, and capitalist slow violence that living with endometriosis brings about. While emerging from the materiality of experiencing trauma and pain, the article reclaims the emancipatory possibilities that can be articulated. From the politicization of an “invisible” illness standpoint, the article proposes a toxic autobiography in which transfeminist, environmental, and disability justice politics are collectively affirmed through situated ecopolitics of response-ability that accounts for interdependence and self-determination of marginal bodies and territories.

Iengo, I., Kotsila, P., & Nelson, I. L. (2023). Ouch! eew! blech! A trialogue on porous technologies, places and embodiments. In W. Harcourt, A. Agostino, R. Elmhirst, M. Gómez, & P. Kotsila (Eds.), Contours of feminist political ecology: Gender, development and social change. Palgrave Macmillan, Cham. DOI: https://doi.org/10.1007/978-3-031-20928-4_4.

In this chapter, we bring political ecologies of health and the body into conversation with environmental justice and crip theory, science, technology and society studies (STS) and biopolitics. We present a trialogue that highlights three cases of health and embodiment examining the crosscutting themes of porosity and technologies as they offer us ways to insist on the right to be and signal a politics of health in FPE: (a) the lived experience of chronic pain as a catalyst for learning about environmental injustice in Naples, southern Italy, and the epistemic activism of crip communities producing counter-knowledge and mutual aid; (b) the spread of malaria among immigrant farmworkers in southern Greece as invisibilised intersectional and embodied injustice; and (c) embracing pharmaceuticals and vlogs with ambivalence while living with the temporary condition, hyperemesis gravidarum (HG) in the northeastern United States. We bring to the fore questions around bodies, harm, care and power, as those were brought about by our own situatedness in, and response-ability towards, embodied experiences of chronic pain, infection and nausea.

Ignagni, E., Chandler, E., Collins, K., Darby, A., & Liddiard, K. (2019, June). Designing access together: Surviving the demand for resilience. In K. Aubrecht & N. La Monica (Eds.), Survivals, Ruptures, Resiliences: Perspectives from Disability Scholarship, Art and Activism [Special Issue]. Canadian Journal of Disability Studies, 8(4), 293-320. DOI: https://doi.org/10.15353/cjds.v8i4.536.

Together we engaged in a project to co-design and co-create a fictional near-future world that would enable us to interrogate our present techno-social dilemmas.  Accessibility was central to our workshop for the way that access is always central to enacting crip, mad, Deaf, and spoonie communities. Without access, we cannot meet, discuss, share, struggle, fight, dismantle or create. Crucially, access was tied to our desire to co-create crip near-futures.

Imgrund, M. (2018, August 8). Eco-ableism: What it is, what it matters and how it affects disabled people. Eco Warrior Princess [Website/Blog].

Blog post defining and discussing “eco-ableism” in response the author’s research into environmental activism and calls to ban plastic straws, without considering the consequences to disabled people.

Imrie, R., & Thomas, H. (2008) Guest editorial: The interrelationships between environment and disability. In R. Imrie & H. Thomas (Eds.), The Environment and Disability: Making the Connections [Special Issue]. Local Environment, 13(6), 477-483. DOI: https://doi.org/10.1080/13549830802259748.

“This issue of Local Environment contributes to the process of bridging the gulf between the two social movements and sets of substantive and theoretical concerns, which, we argue, have much to learn from, and contribute to, each other. Inevitably, this collection of papers touches on a selective sub-set of issues, often suggesting scope for further research. In particular, they identify, and take forward, themes of dependence/community, or how disabled people are able to forge ways of changing environmental contexts; the role of experts and their knowledge; and the development of policy-related tools to facilitate environmental learning and change. The papers highlight that a great deal remains to be done to map and relate the discussions in the sprawling cross- disciplinary literatures that are characteristic of both environmentalism and disability” (pp. 478-479).

International Disability Alliance. (n.d.). Towards COP26: Enhancing Disability Inclusion in Climate Action [Disability Inclusive Climate Action COP26 Advocacy Paper]. New York and Geneva: Author.

“This document highlights the disproportionate impact of climate change and the possible adverse impacts of climate mitigation and adaptation activities on persons with disabilities. It also proposes measures to ensure the inclusion and participation of persons with disabilities and their representative organisations in climate-related decision-making” (p. 1).

Jacobs, N. A. (2022). Disability and ecofeminist literature. In D. A. Vakoch (Ed.), The Routledge Handbook of Ecofeminism and Literature (pp. 301-310). New York: Routledge. DOI: https://doi.org/10.4324/9781003195610-30.

This chapter explores the generative interconnections that unite ecofeminist literature and theory with disability studies and justice. Defining humans’ relationship with nature, not through a framework of esthetics—clean beaches and untouched forest land—but rather through an acknowledgment of differential living and working conditions based upon class, race, gender, location, and accessibility, ecofeminism has much to contribute to the realm of disability theory and activism. Moreover, transnational and feminist of color disability studies, in particular, advance invigorating possibilities for ecofeminism, especially in the framing of precarious lives. Ranging from early modern insights on both religious and scientific notions of corporeality to readings of contemporary fantasy, the representative works examined in this chapter reimagine disability through narratives of the bodymind. It examines the teratological —the “wondrous” or hybrid humanoid birth—and connections to animals and nonhuman nature in order to center disability within ecofeminist literature.

Jampel, C. (2018). Intersections of disability justice, racial justice and environmental justice. Environmental Sociology, 4(1), 122-135. DOI: https://doi.org/10.1080/23251042.2018.1424497.

This paper argues that environmental justice (EJ) scholarship, activism and policy that aims to ‘be intersectional’ by definition needs to include disability and ableism and, moreover, will benefit from specifically considering disability as a category of analysis. Incorporating intersectionality into EJ work means considering the implications of intersectional theory for collective liberation, for explanations of the sources and consequences of multiple systems of oppression and for theorizing connections among related justice struggles. This paper first takes each of these in turn, providing an explanation of what constitutes an intersectional approach. It then demonstrates how a disability justice approach further enriches ongoing work at the intersections of EJ and racial justice.

Jandrić, P,. & Ford, D. R. (Eds.). (2022). Postdigital ecopedagogies: Genealogies, contradictions, and possible futures [Postdigital Science and Education Series] (pp 3–23). Springer. DOI: https://doi.org/10.1007/978-3-030-97262-2.

This book conceptualizes ecopedagogies as forms of educational innovation and critique that emerge from, negotiate, debate, produce, resist, and/or overcome the shifting and expansive postdigital ecosystems of humans, machines, nonhuman animals, objects, stuff, and other forms of matter. Contemporary postdigital ecosystems are determined by a range of new bioinformational reconfigurations in areas including capitalism, imperialism, settler-colonialism, and ontological hierarchies more generally. Postdigital ecopedagogies name a condition, a question, and a call for experimentation to link pedagogical research and practice to challenges of our moment. They pose living, breathing, expanding, contracting, fluid, and spatial conditions and questions of our non-chronological present. This book presents analyses of that present from a wide spectrum of disciplines, including but not limited to education studies, philosophy, politics, sociology, arts, and architecture.

Jodoin, S., Ananthamoorthy, N., & Lofts, K. (2020). A Disability Rights Approach to Climate Governance. Ecology Law Quarterly, 47(1) 73-116. DOI: http://dx.doi.org/10.15779/Z38W37KW48.

Despite international recognition of the greater vulnerability of persons with disabilities to climate change, disability issues have received little attention from practitioners, policy makers, and scholars in this field. As countries move forward with measures to combat climate change and adapt to its impacts, it is critical to understand how these efforts can be designed and implemented in ways that can respect, protect, and fulfill the human rights of disabled persons. Drawing on the human rights model of disability enshrined in the United Nations Convention on the Rights of Persons with Disabilities, we set out a disability rights approach to climate governance that identifies the differential impacts of climate change for disabled persons and outlines the principles, obligations, and standards for designing and adopting accessible climate mitigation and adaptation policies and programs. On the whole, we argue that States should identify and pursue synergies between the realization of disability rights and the pursuit of initiatives to decarbonize their economies as well as prepare their societies against future climate impacts. In addition to fulfilling the rights of persons with disabilities and fostering a more inclusive world, disability-inclusive climate solutions can have resonant outcomes that can enable a greater share of the population to contribute to the emergence of carbon neutrality and enhance the climate resilience of society as whole.

Jodoin, S., Buettgen, A., Groce, N., Gurung, P., Kaiser, C., Kett M et al. (2023). Nothing about us without us: The urgent need for disability-inclusive climate research. PLOS Climate, 2(3), e0000153. DOI: https://doi.org/10.1371/journal.pclm.0000153.

“Around the world, disability communities are becoming increasingly vocal in calling attention to the ways in which they are disproportionally affected by climate change and the need to ensure that disability rights are respected, protected, and fulfilled in climate solutions [1,2]. As we will explain in this opinion, one key element of this emerging agenda for disability-inclusive climate justice is the need for in-depth and participatory action research on the intersections of disability and climate change.”

Kafer, A. (2005). Hiking boots and wheelchairs: Ecofeminism, the body, and physical disability. In B. S. Andrew J. C. Keller, & L. H. Schwartzmann (Eds.), Feminist interventions in ethics and politics: Feminist ethics and social theory (pp. 131-150). Lanham, MD: Rowman.

“In this essay, I trace the ways in which ecofeminisms—theories and practices that link the oppression of women and other marginalized groups to the degradation of nature–continue the repudiation of disability that occurs in mainstream discourses about the environment. Most ecofeminist analyses of difference and marginalization, for example, neglect to incorporate examinations of disability oppression, and the issue of disability access is rarely raised. Moreover, many ecofeminist accounts of nature are predicated on an assumption of the nondisabled body, enacting an implicit theoretical disavowal of disability and disabled bodies. Ecofeminisms tend to assume that an engagement with nature requires a deep immersion experience in nature, and that such an immersion experience requires a nondisabled body. There appears to be no room within ecofeminism for the disabled body” (p. 132).

Kafer, A. (2013). Bodies of nature: The environmental politics of disability. In Feminist, queer, crip (pp. 129-148). Bloomington: Indiana University Press.

‘Although concern with the environment has long been an animating force in disability studies and activism, “environment” in this context typically refers to the built environment of buildings, sidewalks, and transportation technologies. Indeed, the social model of disability is premised on concern for the built environment, stressing that people are disabled not by their bodies but by their inaccessible environments. (The wheelchair user confronting a flight of steps is probably the most common illustration of this argument.) Yet the very pervasiveness of the social model has prevented disability studies from engaging with the wider environment of wilderness, parks, and nonhuman nature because the social model seems to falter in such settings. Stairs can be replaced or supplemented with ramps and elevators, but what about a steep rock face or a sandy beach? Like stairs, both pose problems for most wheelchair users, but, argues Tom Shakespeare, “it is hard to blame the natural environment on social arrangements.” He asserts that the natural environment—rock cliffs, steep mountains, and sandy beaches—offers proof that “people with impairments will always be disadvantaged by their bodies”; the social model cannot adequately address the barriers presented by those kinds of spaces. I, too, recognize the limitations of the social model and the need to engage with the materiality of bodies, but I am not so sure that the “natural environment” is as distinct from the “built environment” as Shakespeare suggests. On the contrary, the natural environment is also “built”: literally so in the case of trails and dams, metaphorically so in the sense of cultural constructions and deployments of “nature,” “natural,” and “the environment.” Disability studies could benefit from the work of environmental scholars and activists who describe how “social arrangements” have been mapped onto “natural environments” (pp. 129-130).

Kälin, W. (2022). Disaster and climate change-induced displacement of persons with disabilities: A human rights perspective. In M. H. Rioux, J. Viera, A. Buettgen, & E. Zubrow (Eds.), Handbook of disability. Springer, Singapore. DOI: https://doi.org/10.1007/978-981-16-1278-7_27-1.

Disasters and adverse effects of climate change may significantly exacerbate pre-existing vulnerabilities of persons with disabilities. This is particularly true if such persons are displaced within their country or across borders. The systematic promotion and mainstreaming of disability-inclusive and rights-based approaches to disaster risk management and climate action are crucial to mitigate these challenges. The human rights of persons with disabilities which remain applicable during disasters and the principles of non-discrimination and equality of opportunity, participation and inclusion, accessibility, and reasonable accommodation help in shaping disability-inclusive measures to prevent displacement as well as the provision of protection and assistance during displacement. Finally, including persons with disabilities in programs and projects on durable solutions and ensuring their participation in decisions aimed at ending their displacement are crucial to avoid replicating and rebuilding barriers and ensuring their full and effective participation in society.

Kenney, M. (2019). Fables of response-ability: Feminist science studies as didactic literature. In K. Fritsch, A. Hamraie, M. Mills, & D. Serlin (Eds.), Special Section on Crip Technoscience. Catalyst: Feminism, Theory, Technoscience, 5(1), 1-39.  DOI: https://doi.org/10.28968/cftt.v5i1.29582.

Recent literature in feminist science studies is rich with stories about how we are constituted by and in relation to (sometimes toxic) chemicals. Scholars such as Natasha Myers, Mel Chen, and Eva Hayward have written vivid accounts of the chemical ecologies of late industrialism, arguing that we cannot think of bodies as separate from environments. In this article, I read feminist scholarship on chemical ecologies as fables of responseability, stories that teach us to attend and respond within our more-than-human world. Amplifying their didactic registers, I pay attention to moments in the texts that are speculative, poetic, and personal, moments that work on the bodies, imaginations, and sensoria of their readers. By reading these texts together, I hope to both acknowledge the didactic work that feminist science studies scholars are already doing and encourage others to experiment with telling their own fables of response-ability.

Kett, M., Sriskanthan, G., & Cole, E. (2021, December). Disability and Climate Justice: A Research Project. New York: Open Society Foundations.

“We commissioned this report in order to learn more about the interconnections between climate and disability, and to listen to practitioners on the ground around the world, with the aim of developing a set of recommendations to move the agenda of reciprocal engagement forward” (p. 4).

Kim, E. (2019). Continuing presence of discarded bodies: Occupation harm, necroactivism, and living justice. In K. Fritsch, A. Hamraie, M. Mills, & D. Serlin (Eds.), Special Section on Crip Technoscience. Catalyst: Feminism, Theory, Technoscience, 5(1), 1-31. DOI: https://doi.org/10.28968/cftt.v5i1.29616.

This essay explores the coexistence of struggles against the foreclosure of disabled people’s lives and against occupational illness, debilitation, and deaths caused by the manufacturing process of electronics in South Korea. Starting from the two activist campsites set up in Seoul and the historical backgrounds of occupational health movement, I draw on two documentary films, The Empire of Shame (2014) and Factory Complex (2015), that depict workers who became ill and those who died due to toxic exposure at semiconductor manufacturing plants. Beyond commemoration, necro-activism emerges in the form of persistent involvements of dead bodies, mourning, and objects representing death as important agents for making claims for justice. Taking into account political and historical differences of locations in which disabled people are positioned differently in the global order redirects us from the language of worth toward sociality, collective reframing of suffering and disability, and justice as an ongoing practice of everyday life and afterlife.

King, M. M., & Gregg, M. A. (2022, January). Disability and climate change: A critical realist model of climate justice. Sociology Compass, 16(1), e12954. DOI: https://doi.org/10.1111/soc4.12954.

Existing literature on climate change as an issue of environmental justice documents the heightened vulnerability of people with disabilities to the effects of climate change. Additionally, there are numerous studies showing that access to information is a prerequisite for perceiving risk and taking action. Building on this work, our review seeks to understand how physical disability relates to perceptions of climate-related risk and adaptations to climate-related events. We introduce a critical realist model of climate justice to understand the relationships between the environmental features that disable, risk perception and information seeking, and adaptive capacity and resilience to climate change. In understanding the vulnerability and adaptive capacity of people with disabilities to climate change, this review synthesizes research on one of the U.S.’s largest minority communities with the goals of better understanding how vulnerable populations cope with climate change and integrating them into climate action and policy.

King, M. M., Gregg, M. A., Martinez, A. V., & Pachoud, E. Y. (2022). Teaching & learning guide for disability and climate justice. Sociology Compass, 16(6), e12986. DOI: https://doi.org/10.1111/soc4.12986.

“Disability is widespread: nearly one in four Americans has a disability (Taylor, 2018) and disability cuts across demographic categories. Among individuals aged 15 and over, 12.6% had some type of mobility disability; above age 65, it is nearly 40% (Brault, 2012). Mobility disabilities heighten vulnerability to climate change and climate-related disasters (UNHCHR, 2020). Reduced information resources and mobility, increased health risks, and a lack of visibility in climate change discourse put people with disabilities in a more vulnerable position in the climate crisis. However, this vulnerability can be mitigated through relevant and sufficient access to information, risk mitigation strategies, and policy-shaping power. However, when these resilience-building resources are not accessible to disabled people, it exacerbates their vulnerability to climate change and becomes an issue of climate (in)justice. This guide and the accompanying  article explore ways to teach the intersection of disability and climate justice for a better understanding of each.”

Kosanic, A., Petzold, J. Martın-Lopez, B., & Razanajatovo, M. (2022, April). An inclusive future: Disabled populations in the context of climate and environmental change. In O. P. Dube, V. Galaz & W. Solecki (Eds.), Open Issue 2022 [Themed Issue]. Current Opinion in Environmental Sustainability, 55(101159). DOI: https://doi.org/10.1016/j.cosust.2022.101159.

Climate and environmental change impacts are projected to increase, constituting a significant challenge for meeting the Sustainable Development Goals (SDGs) while disproportionately affecting disabled populations. However, current research lacks knowledge on context-specific impacts of climate and environmental change on disabled populations. We use the environmental justice perspective that emphasises distributional, recognitional, and procedural dimensions regarding disabled populations to understand impacts and adaptation concerns and their implications for achieving the SDGs.

Kuppers, P.  (2022). Eco Soma: Pain and Joy in Speculative Performance Encounters [Art After Nature Series]. Minneapolis: University of Minnesota Press.

In Eco Soma, Petra Kuppers asks readers to be alert to their own embodied responses to art practice and to pay attention to themselves as active participants in a shared sociocultural world. Reading contemporary performance encounters and artful engagements, this book models a disability culture sensitivity to living in a shared world, oriented toward more socially just futures.

Eco soma methods mix and merge realities on the edges of lived experience and site-specific performance. Kuppers invites us to become moths, sprout gills, listen to our heart’s drum, and take starships into crip time. And fantasy is central to these engagements: feeling/sensing monsters, catastrophes, golden lines, heartbeats, injured sharks, dotted salamanders, kissing mammoths, and more. Kuppers illuminates ecopoetic disability culture perspectives, contending that disabled people and their co-conspirators make art to live in a changing world, in contact with feminist, queer, trans, racialized, and Indigenous art projects. By offering new ways to think, frame, and feel “environments,” Kuppers focuses on art-based methods of envisioning change and argues that disability can offer imaginative ways toward living well and with agency in change, unrest, and challenge.

Traditional somatics teach us how to fine-tune our introspective senses and to open up the world of our own bodies, while eco soma methods extend that attention toward the creative possibilities of the reach between self, others, and the land. Eco Soma proposes an art/life method of sensory tuning to the inside and the outside simultaneously, a method that allows for a wider opening toward ethical cohabitation with human and more-than-human others.

This text is also available via Open Access on the University of Minnesota Press website. As noted on the press’s website, “Retail e-book files for this title are screen-reader friendly with images accompanied by short alt text and/or extended descriptions.”

Lacayo, A. (2022). Of Toxic Dust and Sad Places: Ecochronicity and Debility in Julio Hernández Cordón’s Polvo (Dust, 2012). In S. Rust, S. Monani, & S. Cubitt (Eds.), Ecocinema Theory and Practice 2. New York: Routledge. DOI: https://doi.org/10.4324/9781003246602-15.

Julio Hernández Cordón’s Polvo (Dust) is a 2012 fiction film that recounts the impossibility of shooting a documentary about the victims of the Guatemalan Civil War (1960–1996). What gets in the way of filming is dust itself, which debilitates the protagonists with allergies, migraines, and insomnia. This chapter argues that Polvo revisits the war’s legacy by interweaving disability and environmental concerns through ecochronicity—the process through which bodies become chronically debilitated in toxic environments. Working at the intersection between disability studies and the environmental humanities, this chapter develops the notion of ecochronicity from contemporary debates about the chronic. Examining ecochronicity in light of Elizabeth Freeman’s definition of the chronic as a state of endurance, Mel Y. Chen’s conceptualization of how toxicity circulates among bodies and debilitates them, and Heather I. Sullivan’s dirt theory, this chapter considers the political and ecological dimensions of dust, articulating the way in which Polvo instantiates a “dirty” aesthetics. In Polvo, an ecochronicity is carried out in the aftermath of war and its legacies of violence: dust disables weak bodies, fertilizer acts as a toxin, and the Mayan Highlands remain a nonhuman casualty of war.

Landorf, C., Brewer, G., & Sheppard, L. A. (2008). The urban environment and sustainable ageing: Critical issues and assessment indicators. In R. Imrie & H. Thomas (Eds.), The Environment and Disability: Making the Connections [Special Issue]. Local Environment, 13(6), 497-514. DOI: https://doi.org/10.1080/13549830802259896.

Later life is a diverse experience but for some it is associated with a variety of impairments that impact on quality of life. Attention to date has focused on supporting ageing in place through modification to the home environment to compensate for increasing levels of impairment. This paper explores a further link between later life and the environment beyond the home. In doing so, the paper argues that the disabling impact of the urban environment on older people should be an essential consideration in the urban sustainability debate. A multi-dimensional framework combining sustainable development and ageing in place criteria is used to test the extent to which three sustainable urban environment assessment tools address the issue. The findings suggest that the capacity of an urban environment to support ageing in place is not being assessed as an integral element of a sustainable urban environment. Identifying factors that influence healthy later life will allow the inclusion of a later-life perspective in future urban sustainability planning and assessment models.

Leonard-Williams, H. (2024). Disability and climate anxiety. In J. Anderson, T. Staunton, J. O’Gorman, & C. Hickman (Eds.),
Being a therapist in a time of climate breakdown. London: Routledge. DOI: https://doi.org/10.4324/9781003436096-13.

My experiences of climate anxiety deeply intersect with my experiences of disability and ill health. Due to the ableism we face at every level of society, disabled people are all too often treated as disposable in crisis situations and are much more likely to live in poverty and be isolated from our communities. This makes us particularly vulnerable to climate change and less able to access support for our mental health, including the deep feelings of anxiety, fear, anger and grief surrounding the climate crisis many of us experience. This lack of support is often exacerbated if we are multiply marginalised.

Leone, M. L. (2019, Spring). Reframing disability through an ecocritical perspective in Sara Mesa’s Cara de pan.  In E. Fernández & V. L. Ketz (Eds.), Re-imagining Female Disabilities in Luso-Hispanic Women’s Cultural Production [Special Issue]. Journal of Gender and Sexuality Studies / Revista de Estudios de Género y Sexualidades, 45(1), 161-184. DOI: https://www.jstor.org/stable/10.14321/jgendsexustud.45.1.0161.

This article establishes a dialogue between disability studies and ecocriticism to analyze Sara Mesa’s novel Cara de pan (2018), which narrates the relationship between a thirteen-year-old girl bullied at school and a fifty-four-year-old man with an atypical appearance who fixates on limited topics. The analysis examines the hegemony of normativity and dominant social narratives about disability, gender, and sexuality. Grounded in the idea that people with disabilities actively intervene in their environment, the essay argues that the characters’ environmental empathy supports the need for a diversity of experiences and perspectives, positively resituating disability and autism.

Leong, G. (2020). The impacts of climate change on persons with disabilities: An interdisciplinary approach to disability, climate change and policy studies. Pacific Rim International Conference on Disability and Diversity Conference Proceedings. Honolulu, Hawai’i: Center on Disability Studies, University of Hawai’i at Mānoa.

The overall intent of this study is to address the impacts and expected impacts of climate change and disasters on persons with disabilities (PWD), while exploring international policies for resilience initiatives. As a portion of the overall study, this paper was motivated by the recent United Nations Human Rights Council (UN-HRC) (2019) resolution adoption on climate change and the rights of persons with disabilities, which urges governments to adopt a disability-inclusive approach when dealing with climate change strategies. The objective of this paper is to explore academia & research’s role in adaptive capacity approaches to adopting the UN-HRC resolution through a multidisciplinary intersection of disability, climate change and policy studies. The objective is supported by empirical research, theoretical models, and inclusive strategies aimed to improve the safety and quality of life for PWD. This paper’s scope is covered through the development of a resilience framework that includes vulnerability index: exposure, sensitivity, and adaptive capacity (Intergovernmental Panel on Climate Change [IPCC], 2008); and three sets of engagement: theory, application, and praxis (Cho, Crenshaw, & McCall, 2013). Ultimately, the paper’s proposed framework will present an evidence-based, disability-inclusive resilience approach to addressing climate change aimed to influence public perception and policy decision-making. This paper is a tool for disability, climate change, and policy studies academics/researchers, and government officials interested in academia & research’s contribution to resilience planning.

Lindsay, S., Hsu, S., Ragunathn, S., & Lindsay, J. (2022). The impact of climate change related extreme weather events on people with pre-existing disabilities and chronic conditions: a scoping review. Disability and Rehabilitation. DOI: https://doi.org/10.1080/09638288.2022.2150328.

Purpose: People with disabilities experience a disproportionate impact of extreme weather events and there is a critical need to better understand the impact that climate change has for them. Most previous reviews focus on the risk of acquiring a new disability or injury after a climate-related event and not the impact on people with pre-existing disabilities or chronic conditions, which is the purpose of this study.

Methods: We conducted a scoping review while searching seven international databases that identified 45 studies meeting our inclusion criteria.

Results: The studies included in our review involved 2 337 199 participants with pre-existing disabilities and chronic conditions across 13 countries over a 20-year period. The findings demonstrated the following trends: (1) the impact on physical and mental health; (2) the impact on education and work; (3) barriers to accessing health and community services (i.e., lack of access to services, lack of knowledge about people with disabilities, communication challenges, lack of adequate housing); and (4) coping strategies (i.e., social supports and connecting to resources) and resilience.

Conclusions: Our findings highlight the critical need for rehabilitation clinicians and other service providers to explore opportunities to support their clients in preparing for climate-related emergencies.

Linett, M. V. (2020). Literary bioethics: Animality, disability, and the human [Crip Series]. New York: NYU Press.

Uses literature to understand and remake our ethics regarding nonhuman animals, old human beings, disabled human beings, and cloned posthumans.

Lundbad, M. (Ed.). (2020, Autumn). Animality/Posthumanism/Disability [Special Issue]. New Literary History, 51(4). DOI:  https://doi.org/10.1353/nlh.2020.0040.

“The title and focus of this special issue is meant to foreground the potential and pitfalls of thinking through critiques of ‘the human’ in relation to animality and disability within the framework of posthumanism, broadly conceived” (p. v).

Articles in this special issue include:

  • Animality/ Posthumanism/ Disability: An Introduction
  • Being Human, Being Animal: Species Membership in Extraordinary Times
  • Companion Thinking: A Response
  • The Art of Interspecies Care
  • Beyond Caring: Human-Animal Interdependency: A Response
  • We Have Laws for That: A Response to Jack Halberstam
  • Abnormal Animals
  • Restriction, Norm, Umwelt: A Response
  • Disanimality: Disability Studies and Animal Advocacy
  • The Political Economy of Disanimality: A Response
  • On the Transhumanist Imaginary and the Biopolitics of Contingent Embodiment
  • “Where Are You Taking Us?”: A Response
  • The Biopolitical Drama of Joseph Beuys
  • Animal Death as National Debility: Climate, Agriculture, and Syrian War Narrative
  • Atmospherics of War: A Response

Lundblad, M., & Grue, J. (2021). Companion prosthetics: Avatars of animality and disability. In S. McHugh, R. McKay, & J. Miller (Eds.), The Palgrave Handbook of Animals and Literature (pp. 557-574). New York: Palgrave Macmillan.

Avatar is rife with prosthetic relationships that blur the lines between human and animal, human and machine, and even animate and inanimate objects, raising the possibility of more productive conversations about the interface between disability and animality. Our argument in this chapter is that the problematic aspects of the film are not only inter-related, but also productive for developing what we will call companion prosthetics. We develop this concept from origins in disability studies, animality studies, and human-animal studies, illustrating the fertile new ground that exists when these fields meet” (p. 2).

Lupinacci, J., Happel-Parkins, A., & Lupinacci, M. W. (2018). Ecocritical contestations with neoliberalism: Teaching to (un)learn “normalcy.” In S. Gaches (Ed.), Preparing Teachers to Confront Neoliberal Discourses and to Teach Children Equitably [Special Issue]. Policy Futures in Education, 16(6), 652–668. DOI: https://doi.org/10.1177%2F1478210318760465.

This article seeks to address often overlooked cultural assumptions embedded within neoliberalism; specifically, the researchers explore what ecofeminist Val Plumwood describes as centric thinking, leading to a logic of domination. The authors argue that social justice educators and activists who are committed to critiquing neoliberalism must take into consideration the ways in which a logic of domination undergirds the unjust and destructive social and economic ideologies and policies that constitute neoliberalism. The authors examine and share pedagogical moments from experiences in teacher education seeking to: (a) challenge and disrupt dualistic thinking; (b) interrupt perceptions of hegemonic normalcy—referring to a socio-cultural process by which actions, behaviors, and diverse ways of interpreting the world are perceived by dominant society as ‘fitting in’ and being socially acceptable; and, (c) contest false notions of independence—the degree to which an individual is perceived as able to meet their social and economic responsibilities on their own—as measures of success in schools and society. The authors detail how they work with(in) teacher education programs to introduce how an ecocritical approach, drawing from ecofeminist frameworks, identifies and examines the impacts of neoliberal policies and practices dominated by ‘free’ market ideology. The authors assert that educators, especially teacher educators, can challenge harmful discourses that support the problematic neoliberal understandings about independence that inform Western cultural norms and assumptions. Concluding, the authors share a conceptualization for (un)learning the exploitation inextricable from the policies and practices of neoliberalism.

Martínez Benedí, P. (2020, Fall/Winter). A Different Side of the Story: On Neurodiversity and Trees. Iperstoria No. 16, 259-277.

This essay analyzes Richard Powers’s The Overstory (2018), a novel that ostensibly demands an eco-critical reading, under the lens of neurodiversity. Focusing on the idiosyncrasies of sensory perception in autism, the essay explores the atypical engagement with the more-than-human that neurodiversity (and specifically autism) fosters—a kind of engagement that deeply destabilizes neuro-normative, human-centered subjectivity, opening up to more egalitarian ways of relation with the environment. In a novel populated by neurodivergent characters with a keen ecological sensibility, Powers comes close to imagining this kind of non-hierarchical connection with the natural world. The essay explores how neurodiversity works in the novel at a characterological, thematic, and structural level, functioning as a bridge between human and non-human scales. In this way, neurodiversity finely glosses and articulates the kind of animistic, environmental message that Powers instils in his Pulitzer prize winning novel.

Mathers, A. R. (2008, August). Hidden voices: The participation of people with learning disabilities in the experience of public open space. In R. Imrie & H. Thomas (Eds.), The Environment and Disability: Making the Connections [Special Issue]. Local Environment, 13(6), 515-529. DOI: https://doi.org/10.1080/13549830802259912.

The self-advocacy of people with learning disabilities (PWLD) is an issue of high current importance. In the UK 210,000 people have severe and profound learning disabilities, whilst 25 in every 1000 of the population in England has a mild to moderate learning disability (Department of Health, Valuing people: a new strategy for learning disability for the 21st century, London, Stationery Office, 2001). At the most restricted end of the communication spectrum, PWLD are often forgotten members of their communities, whose label “learning disabled” wrongly causes confusion and fear. The Disability Discrimination Act (DDA) 1995 ensured “reasonable” adjustments must be made to environments and buildings so they are accessible to all. However, DDA legislation remains a predominately physical access issue with great attention focused on the built environment and little attention given to the experience of place or external environments. Researchers argue that it is attitudes and interactions in the person–environment relationship that have allowed our “disablist” society to label and segregate members of its community as “disabled”. The research comprised a longitudinal study working with PWLD participants at two sites in Yorkshire and in the northeast of England. This paper examines the resulting visual communication toolkit, able to unlock the experience of public open spaces by PWLD and, when used in context, to aid greater social participation.

Mihail, A. (2022, March 14). The intersections of disability in the face of disaster and climate activism. The Kingfisher Magazine. 

“Past and present catastrophes, such as Hurricane Katrina and the current COVID-19 pandemic, have shown how disabled people are often forgotten by society. The threat of climate change, flooding, heatwaves, droughts and wildfires will undoubtedly heighten their state of vulnerability. What will it take for society to value disabled lives?

According to the social model of disability, mental or physical impairments are not necessarily disabling by themselves. In most cases, they are turned into disabilities due to a society that fails to account for differences from the normative

We live in a deeply inaccessible society, where many are cut off from jobs, town halls, art galleries, educational institutions, restaurants, cinemas and other physical locations needed for personal development, socialisation and entertainment. This is because their bodies and mind, outside of their control, do not conform to how society thinks a human should function. Therefore, it is of little surprise when climate change threatens them disproportionately.”

Mitchell, D. T., Antebi, S., & Snyder, S. L. (Eds.). The Matter of Disability:  Materiality, Biopolitics, Crip Affect [Corporealities: Discourses of Disability Series]. Ann Arbor, MI: University of Michigan Press. DOI: https://doi.org/10.3998/mpub.9365129.

The Matter of Disability returns disability to its proper place as an ongoing historical process of corporeal, cognitive, and sensory mutation operating in a world of dynamic, even cataclysmic, change. The book’s contributors offer new theorizations of human and nonhuman embodiments and their complex evolutions in our global present, in essays that explore how disability might be imagined as participant in the ‘complex elaboration of difference,’ rather than something gone awry in an otherwise stable process. This alternative approach to materiality sheds new light on the capacities that exist within the depictions of disability that the book examines, including Spider-Man, Of Mice and Men, and Bloodchild.

Nocella, A. J., Bentley, J. K. C., & Duncan, J. M. (Eds.). (2012). Earth, animal, and disability liberation: The rise of the eco-ability movement. New York: Peter Lang.

This provocative and groundbreaking book is the first of its kind to propose the concept of Eco-ability: the intersectionality of the ecological world, persons with disabilities, and nonhuman animals. Rooted in disability studies and rights, environmentalism, and animal advocacy, this book calls for a social justice theory and movement that dismantles constructed «normalcy», ableism, speciesism, and ecological destruction while promoting mutual interdependence, collaboration, respect for difference, and inclusivity of our world. Eco-ability provides a positive, liberating, and empowering philosophy for educators and activists alike.

Nocella, A. J., & George, A. E. (in press). Vegans on speciesism and ableism: Ecoability voices for disability and animal justice [Radical Animal Studies and Total Liberation].  New York: Peter Lang Publishing, Inc. DOI: https://doi.org/10.3726/b18574.

This powerful intersectional social justice book examines animal, disability, and environmental oppression and justice. Located in disability studies, sociology, environmental justice, food justice, and critical animal studies, this book engages the reader in an intersectional ecological manner for an inclusive interdependent global community. This outstanding collection of original articles by scholars from around the world discusses the need to acknowledge the relationships among nonhuman animals, those with disabilities, and the environment. Adaptive sports from mountain biking to rock climbing is saving the lives of those with disabilities from extreme depression and suicide at the same time those with disabilities are becoming some of the most loyal advocates for defending the environment from human destruction. Those with disabilities are being welcomed into the animal rights movement and also introduced to nonhuman animals not as merely service animals, but as friends, allies, and companions.

Nocella, A. J., George, A. E., & Lupinacci, J. (Eds.). (2019). Animals, disability, and the end of capitalism: Voices from the eco-ability movement [Radical Animal Studies and Total Liberation Series]. New York: Peter Lang Publishing, Inc. DOI: https://doi.org/10.3726/b14134.

Animals, Disability, and the End of Capitalism is a collection of essays from the leaders in the field of eco-ability. The book is rooted in critical pedagogy, inclusive education, and environmental education. The efforts of diverse disability activists work to weave together the complex diversity and vastly overlooked interconnections among nature, ability, and animals. Eco-ability challenges social constructions, binaries, domination, and normalcy. Contributors challenge the concepts of disability, animal, and nature in relation to human and man. Eco-ability stresses the interdependent relationship among everything and how the effect of one action such as the extinction of a species in Africa can affect the ecosystem in Northern California. Animals, Disability, and the End of Capitalism is timely and offers important critical insight from within the growing movement and the current academic climate for such scholarship. The book also provides insights and examples of radical experiences, pedagogical projects, and perspectives shaped by critical animal studies, critical environmental studies, and critical disability studies.

Nocella, A. J., George, A. E., & Schatz, J. L. (2017). The intersectionality of critical animal, disability, and environmental studies: Toward eco-ability, justice, and liberation [Critical Animal Studies and Theory]. Lanham, MD: Lexington Books.

The Intersectionality of Critical Animal, Disability, and Environmental Studies: Toward Eco-ability, Justice, and Liberation is an interdisciplinary collection of theoretical writings on the intersectional liberation of nonhuman animals, the environment, and those with disabilities. As animal consumption raises health concerns and global warming causes massive environmental destruction, this book interweaves these issues and more. This important cutting-edge book lends to the rapidly growing movement of eco-ability, a scholarly field and activist movement influenced by environmental studies, disability studies, and critical animal studies, similar to other intersectional fields and movements such as eco-feminism, environmental justice, food justice, and decolonization. Contributors to this book are in the fields of education, philosophy, sociology, criminology, rhetoric, theology, anthropology, and English.

Nygren, A. (2023). Empathy with nature and an autistic spirituality. In A. Dare & V. Fletcher (Eds.), Labors of Love and Loss. Radical Acts of Human, Plant, and Nonhuman Mothering [Special Issue]. Journal of Ecohumanism, 2(1), 93–108. DOI: https://doi.org/10.33182/joe.v2i1.2740.

Anna Stenning does in the anthology Neurodiversity. A New Critical Paradigm (2020) introduce an autistic ethics using the autobiographies of Greta Thunberg (No One Is Too Small to Make a Difference (2019)) and Temple Grandin (Animals in Translation (2005)). Stenning points to how this autistic ethics do expand its acts of care to the more-than-human. Grandin describes her being in the world as more attuned to animals than humans. Thunberg argues that her Asperger’s is the reason why she can care so totally for the climate. This article further investigates the intersection of autism and the more-than-human, or the post humanist. Using the works of openly autistic authors Madeleine Ryan (A Room Called Earth (2020)) and Hannah Emerson (You Are Helping This Great Universe Explode (2020)) as well as Emily Dickinson, posthumously diagnosed with autism. I investigate the autistic theme of nature and the autistic relationship to other species. This relation often seems to be stronger and more genuine than the relation to other humans. I propose that the autistic sense of the more-than-human is at once a response to the oppressive view of the autistic as less-than-human – a way of finding one’s allies outside the realms of human civilization – and a special kind of autistic worldly spiritualness that includes an ethics that do not segregate one life form from another.

Office of the United Nations High Commissioner for Human Rights. (2020, April). Analytical study on the promotion and protection of the rights of persons with disabilities in the context of climate change. New York: United Nations General Assembly.

The present analytical study is submitted pursuant to Human Rights Council resolution 41/21. In the report, the impacts of climate change on persons with disabilities are examined; human rights obligations and the responsibilities of States and other actors
in relation to disability-inclusive approaches identified; and good practices shared. The
report ends with conclusions and recommendations.

Office of the High Commissioner for Human Rights. (n.d.). Issues in focus: The impact of climate change on the rights of persons with disabilities: OHCHR and climate change [Website]. New York: United Nations General Assembly.

Reports OHCHR’s work on disability-inclusive climate action, including activities, events, and reports.

Ortiz, N. (2022, February). Crip ecologies: Complicate the conversation to reclaim power. Poetry Magazine. Chicago: Poetry Foundation.

“Crip ecologies describe the messy, diverse, and profoundly beautiful ecosystems which exist for disabled people. It is impossible to fit ourselves to a mold that nondisabled people adhere to, which allows capitalism (making money and paying money to live) to flourish, borders to be maintained, and uniform solutions to address some of our most pressing and urgent problems like climate change.”

Perry, K. (2023). Climate migration and the rights of persons with disabilities. In T. Walker, J. McGaughey, G. Machnik-Kekesi, & V. Kelly (Eds.), Environmental migration in the face of emerging risks (pp.121–135). Palgrave Macmillan, Cham. DOI: https://doi.org/10.1007/978-3-031-29529-4_7.

This chapter explores the experiences of persons with disabilities when migrating due to climate change and other environmental factors and offers recommendations on how to protect, respect, and fulfill their human rights. The chapter uses the human rights model of disability when analyzing the literature and offering recommendations. Following the introduction to key topics and models, the chapter surveys selected international instruments, including treaties, conventions, outcome documents, etc., to examine how the rights of persons with disabilities are addressed in climate emergencies and in the migration literature. The chapter next highlights best practices from climate disasters and emergencies that can be used in the context of migrations due to climate change and other environmental factors. The chapter concludes by offering recommendations on how to advance the human rights of persons with disabilities in climate-related migration.

Preece, B. (2018). Environments, ecologies and climates of crises: Engaging disAbility arts and cultures as creative wilderness. In B. Hadley & D. McDonald (Eds.), The Routledge Handbook of Disability Arts, Culture and Media Studies (pp. 281-294). New York: Routledge.

This chapter provides the premise that Western orientations towards our perceptions of the ‘environment,’ ‘ecology,’ ‘nature,’ and ‘wilderness’ are synonymous with many of our societal perceptions of disability. Though tension between current discourses of disability cultures and environmental restoration remains, people with disabilities are actively positioned to advocate on behalf of variance, deviance, and mutability. There is a tendency for non-disabled environmental justice advocates to highlight the disabling impacts of resource extraction or contamination in ways that treat the tragedy of disabled bodies as self-evident. The social interpretation of disability advocates through disability studies for an embracing of the disabled person into the social/built environment as a recognised necessary phenomenon on a continuum. The effects of the climate crisis have quite possibly forced the need for an exaggerated form of performance – an acceleration of the improvisatory – unto the more-than-human world: inextricably a co-performative paradigm.

Puar, J. K. (2017). The right to maim: Debility, capacity, disability [ANIMA: Critical Race Studies Otherwise Series]. Durham, NC: Duke University Press. DOI: https://doi.org/10.1215/9780822372530.

In The Right to Maim Jasbir K. Puar brings her pathbreaking work on the liberal state, sexuality, and biopolitics to bear on our understanding of disability. Drawing on a stunning array of theoretical and methodological frameworks, Puar uses the concept of “debility”—bodily injury and social exclusion brought on by economic and political factors—to disrupt the category of disability. She shows how debility, disability, and capacity together constitute an assemblage that states use to control populations. Puar’s analysis culminates in an interrogation of Israel’s policies toward Palestine, in which she outlines how Israel brings Palestinians into biopolitical being by designating them available for injury. Supplementing its right to kill with what Puar calls the right to maim, the Israeli state relies on liberal frameworks of disability to obscure and enable the mass debilitation of Palestinian bodies. Tracing disability’s interaction with debility and capacity, Puar offers a brilliant rethinking of Foucauldian biopolitics while showing how disability functions at the intersection of imperialism and racialized capital.

Purcell, S. (2019). Beckett and disability biopolitics: The case of Cuchulain. In S. Kennedy (Ed.), Samuel Beckett and Biopolitics [Special Issue].  Estudios Irlandeses, 14(2), 52-64. DOI: https://doi.org/10.24162/EI2019-9171.

In his depiction of the hero Cuchulain, Samuel Beckett interrogates how disability and compulsory able-bodiedness are foundational myths for the Irish Free State. Taking the interpolation of disability in biopolitics, this essay examines the normalising impulses in revivalist literature and criticism, exemplified by Lady Gregory, Standish O’Grady, WB Yeats and Daniel Corkery. Against this normalising, nationalising literature, I situate Beckett’s satirical renderings of Cuchulain in ‘Censorship and the Saorstat’ and Murphy, as evidence of a profound discomfort and frustration with the biopolitical mechanisms of governance in the newly-founded Irish State.

Ray, S. J. (2013, Spring). Normalcy, knowledge, and nature in Mark Haddon’s The Curious Incident of the Dog in the Night-Time. Disability Studies Quarterly, 33(3). DOI: http://dx.doi.org/10.18061/dsq.v33i3.3233.

This article analyzes Mark Haddon’s 2003 novel, The Curious Incident of the Dog in the Night-Time, using a combination of both disability studies theory and ecocriticism.  The author argues that the novel’s main character, Christopher Boone, presents a social model of disability by challenging dominant society’s treatment of him as ‘not normal.’ Christopher is ostensibly diagnosed with Asperger’s Syndrome, although the novel never explicitly labels him as disabled in any way. Through Christopher’s views of nature, language, knowledge, and social constructions of disability, we learn that disability is an unstable category, and that dominant society can be disabling.  Importantly, though, Christopher’s critique of society is, as the author argues, fundamentally environmental. That is, Christopher’s views of language, knowledge, and even the more-than-human world itself are central to his destabilization of the category of disability. Christopher’s environmental sensibility and critique of society’s disabling qualities emerge primarily through his discussions of language, which he finds suspect because it distances humans from the world it describes.  Thus, the novel suggests that the disabling features of society that Christopher encounters are the same features that distance humans from nature, particularly through language.

Ray, S. J. (2009, August). Risking bodies in the wild: The “corporeal unconscious” of American adventure culture. In D. Mincyte, M. J. Casper, & C.L. Cole (Eds.), Sports and Environmental Politics II [Special Issue]. Journal of Sport & Social Issues, 33(3), 257-284. DOI: https://doi.org/10.1177%2F0193723509338863.

At the heart of American adventure sports is the appeal of personal challenge that has roots in 19th-century “wilderness cults. Preserving wilderness and testing oneself against it were part of a search for moral, physical, and even national purity. But, as critics have begun to argue, racism, expansion, and exclusion underpin the wilderness movement. Although these exclusions have been identified, there has been less attention to these exclusions in contemporary adventure culture and environmental thought, which borrow values from the early wilderness movement and suggest that an environ-mental ethic arises from risking the body in the wild. By examining adventure culture through disability studies, this article exposes the relationship between environmentalism and ableism. It argues that disability is the category of “otherness” against which both environmentalism and adventure have been shaped and revises environmental thought to include all kinds of bodies.

Ray, S. J., & Sibara, J. (Eds.). (2017). Disability Studies and the environmental humanities: Toward an eco-crip theory.  Lincoln & London: University of Nebraska Press.

Although scholars in the environmental humanities have been exploring the dichotomy between ‘wild’ and ‘built’ environments for several years, few have focused on the field of disability studies, a discipline that enlists the contingency between environments and bodies as a foundation of its scholarship. On the other hand, scholars in disability studies have demonstrated the ways in which the built environment privileges some bodies and minds over others, yet they have rarely examined the ways in which toxic environments engender chronic illness and disability or how environmental illnesses disrupt dominant paradigms for scrutinizing ‘disability.’ Designed as a reader for undergraduate and graduate courses, Disability Studies and the Environmental Humanities employs interdisciplinary perspectives to examine such issues as slow violence, imperialism, race, toxicity, eco-sickness, the body in environmental justice, ableism, and other topics. With a historical scope spanning the seventeenth century to the present, this collection not only presents the foundational documents informing this intersection of fields but also showcases the most current work, making it an indispensable reference.

Salvatore, C.,  & Wolbring, G. (2021). Children and Youth Environmental Action: The Case of Children and Youth with Disabilities. In C. Davey & M. Tataryn (Eds.), Studies and Sustainable Ecology [Special issue]. Sustainability, 13(17), 9950. DOI: https://doi.org/10.3390/su13179950.

Youth environmental activism is on the rise. Children and youth with disabilities are disproportionally impacted by environmental problems and environmental activism. They also face barriers towards participating in activism, many of which might also apply to their participation in environmental activism. Using a scoping review approach, we investigated the engagement with children and youth with disabilities by (a) academic literature covering youth environmental activism and their groups and (b) youth environmental activism group (Fridays For Future) tweets. We downloaded 5536 abstracts from the 70 databases of EBSCO-HOST and Scopus and 340 Fridays For Future tweets and analyzed the data using directed qualitative content analysis. Of the 5536 abstracts, none covered children and youth with disabilities as environmental activists, the impact of environmental activism or environmental problems such as climate change on children and youth with disabilities. Fourteen indicated that environmental factors ‘caused’ the ‘impairments’ in children and youth with disabilities. One suggested that nature could be beneficial to children and youth with disabilities. The tweets did not mention children and youth with disabilities. Our findings suggest the need for more engagement with children and youth with disabilities in relation to youth environmental activism and environmental challenges.

Sánchez Barba, M. G. (2020). “Keeping them down”: Neurotoxic pesticides, race, and disabling biopolitics. In R. Lee (Ed.), Special Section on Chemical Entanglements: Gender and Exposure. Catalyst: Feminism, Theory, Technoscience, 6(1), 1-31. DOI: https://doi.org/10.28968/cftt.v6i1.32253.

Chlorpyrifos, the most widely used insecticide in the US, has gained great notoriety as a contested chemical substance after the U.S. Environmental Protection Agency refused to ban it in 2017. Arguing that scientific studies support their observations and suspicions that agricultural pesticides subtly produce neurological and cognitive harm, concerned groups continue to demand US regulatory agencies to ban this chemical. Their narratives demonstrate how the maintenance of unequal racial and capitalist orders across generational time is tied to small chemical exposures permitted by state regulatory agencies during critical temporalities in the life course. This essay shows the importance of including local perspectives in research that seeks to understand how concerns for the mass neurological and cognitive disabling emerge from lived experiences entangled in histories of racism, exploitation, and neglect. Interweaving feminist science and technology studies, queer theory, and critical disability studies, this analysis contributes to the limited scholarship on cognitive disabling in contexts of environmental injustice through exposure to industrially produced chemicals.

Santinele Martino, A., & Lindsay, S. M. (2020). The Intersections of Critical Disability Studies and Critical Animal Studies [Special Issue]. Canadian Journal of Disability Studies, 9(2). DOI: https://doi.org/10.15353/cjds.v9i2.

“The papers in this special issue build on an exciting, and fast growing, body of scholarship located at the intersection of critical disability studies and critical animal studies, shedding light on disablism and speciesism as interconnecting oppressions, how animality and disability are mutually constitutive, as well as the tensions and coalitions shared by these two related fields” (p. 1).

Articles in this special issue include

  • Normative Tensions in the Popular Representation of Children with Disabilities and Animal-Assisted Therapy
  • Rights and Representation: Media Narratives about Disabled People and Their Service Animals in Canadian Print News
  • At Both Ends of the Leash: Preventing Service-Dog Oppression Through the Practice of Dyadic-Belonging
  • Interspecies Blendings and Resurrections: Material Histories of Disability and Race in Taxidermy Art
  • ‘What on earth was he—man or animal?’: Posthuman Permeability in H.G. Wells’s The Island of Doctor Moreau
  • Tricky Ticks and Vegan Quips: The Lone Star Tick and Logics of Debility

Saxton, M., & Ghenis, A. (2018). Disability Inclusion in Climate Change: Impacts and Intersections. In Climate Change and Intersectionality [Special Issue]. Interdisciplinary Perspectives on Equality and Diversity, 4(1).

The community of people with disabilities is uniquely affected by devastation brought on by climate change. This population is increasingly appearing on lists of “vulnerable” among many other groups in the social justice framework. Public policy in several countries, the Red Cross and United Nation’s documents have begun to include the voices of persons with disabilities among the planning constituencies. Yet the needs of this constituency are poorly understood regarding which measures could realistically enable survival in environmentally compromised circumstance. This very diverse group comprises approximately 10 to 15% of the global population, and within all other sub-populations, this figure will likely increase with climate change impact. Discriminatory attitudes and policies tend to simplify this multiply intersectional population to “people with special needs.” This simplification ignores the diverse, complex needs and circumstances of individuals with disabilities, for those with visual, hearing, and mobility impairments, and so on, as well as their various socio-economic cross-constituencies such as gender, ethnicity, age, etc. In this context, focus on climate change and disability is disturbingly rare. This article by U.S.-based authors explores key intersectional issues emphasizing their research in the U.S. related to disability and climate change impact, and recommending an educational, research and advocacy agenda for both the Climate Change and the Disability Rights movements.

Schaffer, D. (2023, March). Disabilities in disaster situations: How a rescuer handles what they encounter. In K. Takahashi, H. J. Park, & T. Conway (Eds.), 37th Annual Pacific Rim International Conference on Disability & Diversity 2022: Conference Proceedings [Feature Issue]. Review of Disability Studies, 18(3).

Individuals with disabilities are often disproportionately affected by disaster. With little research focused on rescue operations impacting individuals with disabilities during large disasters, three themes are reviewed: re-leveling expectations; misunderstanding of triage and crisis medical protocols; and light switch fallacy by responders and individuals with disabilities before, during, and after rescue operations.

Schleck, G., & Ben-Alon, L. (2024). Eco-ableism and access circularity in natural building. Frontiers of Architectural Research. DOI: https://doi.org/10.1016/j.foar.2023.11.005.

The climate crisis disproportionately impacts disabled people. Yet climate-related advocacy, planning, and policymaking often neglect to thoughtfully include disabled people. Responding to this gap, disabled and neurodivergent environmental activists coined the term eco-ableism to describe discrimination and silencing toward disabled and neurodivergent people (i.e., ableism) arising in environmental spaces (i.e., eco-ableism). Relatedly, building operations and construction practices contribute a significant percentage of global, energy-related CO2 emissions annually, which calls into question the relationships between the impending climate crisis, disability justice, and architecture. Climate-specific, natural building materials and methods present a potential pathway toward a more sustainable built future: low-carbon, locally sourced, minimally processed, and nontoxic materials. Despite a critical overlap, there is little published research on material access in the production phase and human access in the occupation phase of natural buildings. Applying eco-ableism and material circularity in an architectural framework, this research aims to investigate the gaps and possibilities of access, natural material applications, and resulting US natural buildings informed by scholarship in critical disability studies and semi-structured interviews with natural building professionals.

Schmidt, J. (2022). Cripping environmental education: Rethinking disability, nature, and interdependent futures. Australian Journal of Environmental Education First View. DOI: https://doi.org/10.1017/aee.2022.26.

“In this article, I call for a cripping of environmental education as a necessary move in shifting away from the field’s current conceptions of disability as defect and deficiency, and towards disrupting the structures and processes that operate as normalizing technologies within ableism/sanism. Through an examination of the ways that the field of environmental education has/has not engaged critical disability politics, I illuminate how disability is not often included within environmental education literature. When it is, it is often through the use of disability as metaphor or through recommendations for best practices in accommodating disabilities. More often though within environmental education, disability has operated as a hidden curriculum, underpinning much of the field’s curricular, pedagogical, and even philosophical foundations. Through a cripping of the field these compulsory able-bodied/able-minded assumptions are made apparent. I suggest that by centering crip bodies and minds through cripistemologies, we might enable new ways of knowing, being in, connecting to, and understanding the natural world.”

Schweik, S. (2017). Agent orange, monsters, and we humans. In H. Davis Taïeb (Ed.), From the Monstrous to the Human [Special Issue]. ALTER, European Journal of Disability Research, 11, 65-77. DOI: https://doi.org/10.1016/j.alter.2016.12.005.

This paper recounts the work of the American artist collective Yelling Clinic, a group of artists who have direct experience of disability and war, in collaboration with Vietnamese disabled artists and activists in Vietnam in 2011. Focusing on the toxic ecological effects of the herbicide Agent Orange, the essay explores the ethics of Agent Orange representation, focusing on a series of art pieces (and the collaborations that produced them) that work not as documentary evidence of the ravages of dioxin, not as an archive of monstrosity, but as vibrant expressions of and within a complex nexus of disability arts cultures.

Seetharaman, K., Mahmood, A., Rikhtehgaran, F., Akbarnejad, G., Chishtie, F., Prescott, M., Chung, A. Mortenson, W. B. (2024) Influence of the built environment on community mobility of people living with visual disabilities: A scoping review. Urban, Planning and Transport Research, 12(1), Article: 2296891. DOI: https//doi.org/10.1080/21650020.2023.2296891.

Understanding how the outdoor environment shapes the community mobility of people with visual disabilities is key to designing an accessible public realm and facilitating their rights to use outdoor spaces. A scoping review was conducted to explore 1) What aspects of the built environment affect the community mobility of persons with visual disabilities? and 2) How does the built environment affect the community mobility of persons with visual disabilities? Forty-three peer-reviewed publications from 2000 to 2022 were included after conducting database searches, screening of articles, and data charting. Studies focused on micro-environmental features related to sidewalks and crosswalks (e.g. landmarks, curbs, curb ramps, tactile warning/guiding surfaces, and accessible pedestrian signals), and broad environmental factors (e.g. neighbourhood amenities and street layout) and their influence on orientation, wayfinding, and safety. The paper discusses the role of the built environment in 1) posing barriers to outdoor mobility (e.g. potholes, poorly designed curb cuts, obstacles at waist-height or eye-level, poor lighting, inadequate pedestrian signal, complicated street layout), and 2) offering cues (e.g. visual, tactile, auditory, olfactory, kinaesthetic) for spatial perception and navigation. Focusing on how the built environment shapes community mobility is necessary to enhance accessibility through urban planning and design and assistive technology.

Selanon, P., & Chuangchai, W. (2023). Improving accessibility to urban greenspaces for people with disabilities: A modified universal design approach. Journal of Planning Literature. DOI: https://doi.org/10.1177/08854122231212662.

Despite the integration of universal design, access to urban greenspaces, which provide multiple health benefits, has been restricted among people with disabilities, particularly in developing countries. This article argues that the sole use of the seven principles of universal design is inadequate for urban greenspace planning as it consistently fails to prevent serious injuries, accommodate multiculturalism, and disregard subjective feelings when addressing people with disabilities. Additional approaches, including a safety strategy, diverse cultural behavior acceptability, and emotional design through landscape naturalness, are considered to improve accessibility, thereby reducing urban health inequalities and achieving an inclusive city.

Shotwell, A. (2016). Against purity: Living ethically in compromised times. Minneapolis: University of Minnesota Press.

In Against Purity, Alexis Shotwell proposes a powerful new conception of social movements as custodians for the past and incubators for liberated futures. Against Purity undertakes an analysis that draws on theories of race, disability, gender, and animal ethics as a foundation for an innovative approach to the politics and ethics of responding to systemic problems.

Slopek, C. (2021). Aboriginal speculations: Queer rhetoric, disability, and interspecies conviviality in The Interrogation of Ashala Wolf. In B. Burger, D. Kern, & L. Mattila (Eds.), Gender and Sexuality in Australian Speculative [Special Issue]. gender forum Issue 81.

The Anthropocene looms large in the 21st century, and queer and disabled people continue to be exposed to harassment and discrimination. What do these issues have in common, though? In Ambelin Kwaymullina’s speculative fiction novel The Interrogation of Ashala Wolf (2012), queer discourse collaborates with, promotes, and diversifies a non-anthropocentric world order, simultaneously implicating a dis-/ability dialectic. This article brings together queer, disability, interspecies studies and literary analysis to explore how Kwaymullina’s young adult novel creates links between queerness and interspecies relations and how disability comes into play. The rhetoric used against children with so-called special abilities in the novel, who come to occupy the structural position of the queer in Kwaymullina’s narrative at the expense of those living with disabilities, as well as the role interspecies conviviality plays for future community construction are focal points of the article. For the latter part, in particular, this article draws on Aboriginal knowledge systems to explore how The Interrogation of Ashala Wolf weaves these marginalised epistemologies into literature and thus changes the field of speculative fiction.

Smith, A. F. (2021). Surviving sustainability: Degrowth, environmental justice, and support for the chronically ill. The Journal of Philosophy of Disability, 1, 175-199. DOI: https://doi.org/10.5840/jpd20217263.

The quest for ecological sustainability—specifically via prioritizing degrowth—creates significant, often overlooked challenges for the chronically ill. I focus on type-1 diabetes, treatment for which depends on nonrenewables and materials implicated in the global proliferation of toxins that harm biospheric functions. Some commentators suggest obliquely that seeking to develop ecologically sustainable treatments for type-1 shouldn’t be prioritized. Other medical concerns take precedence in a post-carbon world marked by climate change and widespread ecological devastation. I challenge this view on three grounds. Its proponents (i) fail to treat type-1 as the public health issue it is, particularly within the context of what Sunaura Taylor calls disabled ecologies. They (ii) deny persons with type-1 an equal opportunity to pursue survival. And they (iii) presume without warrant that treating type-1 is an all-or-nothing affair. Indeed, research by biohackers points to suboptimal but potentially workable ways to make type-1 survivable in a post-carbon future—so long, I stress, as their findings are cripped in a manner that foregrounds the demands of environmental justice.

Socha, K. A., Bentley, J. K. C., & Schatz, J. L. (Eds.). (2014, May).  Eco-Ability the Intersection of Earth, Animal, and Disability [Special Issue]. Journal for Critical Animal Studies, 12(2). Retrieved from: http://www.criticalanimalstudies.org/volume12-issue-2-2014/.

“This special issue focuses on eco-ability, which ‘explore[s] the intersection of dis-ability studies, environmental awareness, and nonhuman animal liberation'” (p. 1).

This issue includes the following articles and reviews:

  • An Introduction to Eco-Ability: The Struggle for Justice, with Focus on Humans with Disabilities and Nonhuman Animals
  • An Interview with Sunaura Taylor
  • Grace for a Cure: Poisoned Ethics and Disabled-Nonhuman Images
  • Foreignness and Animal Ethics: A Secular Vision of Human and Constructed Social Disability
  • Applying the Argument from Marginal Cases to the Protection of Animal Subjects in Research: A Blueprint for Studying Nonhuman Animals in a Post-vivisection World
  • Intersectionality and the Nonhuman Disabled Body: Challenging the Neocapitalist Techno-scientific Reproduction of Ableism and Speciesism
  • Animal Crips
  • Ability Privilege: A Needed Addition to Privilege Studies
  • As the World Burns: 50 Simple Things You Can Do to Stay in Denial (2007)
  • Avatar (2009) and District 9 (2009) – Animals, Aliens, and (Dis)abled Bodies: A Post-structural, Comparative Analysis

Spielhagen, A.,Hernández, L. H., & Blevins, M. (2021, October 21). “My dude, are you tired? I’m tired:” An intersectional nethodological intervention. Frontiers in Communication, Sec. Science and Environmental Communication, 6(722465). DOI: https://doi.org/10.3389/fcomm.2021.722465.

This manuscript is a methodological intervention that addresses ethical considerations associated with conducting research in outdoor spaces, particularly with communities of color and other marginalized communities. The core issue is that BIPOC individuals, LGBTQIA + individuals, and disabled individuals face discrimination and violence in outdoor/recreational spaces. By investigating these issues, scholars can intensify the problem. We hope that our perspectives can assist ethical decision-making processes in methodology, advocacy, and interaction with outdoor communities of color.

Stavrianos, A., & Pratt-Adams, S. (2022, June). Representations of the benefits of outdoor education for students with learning disabilities: A thematic analysis of newspapers. Open Journal of Social Sciences, 10(6), 256-268. DOI: https://doi.org/10.4236/jss.2022.106020.

Outdoor Education (OE) has been described as an education taking place in a natural environment where the students learn about their natural surroundings (Torkos, 2017). Outdoor education was one of the precursors of Environmental Education (EE). Outdoor education is a non-formal education and is classified as an educational approach which occurs outside the classroom and with a wide range of subjects such as the natural environment, culture, mathematics, music, physical science. This study adopts a qualitative paradigm in order to explore the integration of Outdoor Education in the philosophy of inclusion. Eight newspaper articles representing stances and opinions of stakeholders in education, were thematically analysed into explore popular representations of benefits of outdoor education for students with learning difficulties. The themes which emerged from the data were: an active attitude towards learning, a holistic approach—transferable benefits, Inclusion, Edutainment, and Experiential Learning. The key themes identified, indicate that learners within an outdoor education context seem to be active participants of the learning process. Moreover, outdoor education is expandable to the learners’ environments, while it seems that academically and/or socially less able pupils in particular, can benefit out of outdoor education.

Stein, P. J. S,. & Stein, M. A. (2022, January). Comment: Climate change and the right to health of people with disabilities. The Lancet Global Health, 10(1), e24-e25. DOI: https://doi.org/10.1016/S2214-109X(21)00542-8.

“Climate change exacerbates existing inequalities with indirect disproportionate effects on people with disabilities due to their lack of access to health-care services and increased exposure to social determinants of health such as poverty, and lack of access to education, employment, or adequate housing” (p. e24).

Stein, P.J.S., & Stein, M. A. (2022, February). Disability, human rights, and climate justice. Human Rights Quarterly, 44(1), 81-110. DOI: https://doi.org/10.1353/hrq.2022.0003.

The universally dire threat of climate change disproportionately affects marginalized populations, including the over one billion persons with disabilities worldwide. States that disregard the Paris Agreement, or exclude disabled persons from climate change mitigation and adaptation efforts, are violating agreed-upon human rights obligations. Notably, the rights contained in the UN Convention on the Rights of Persons with Disabilities, are threatened by climate change. To date, however, disability has largely been excluded from international climate change negotiations as well as national-level discharge of climate-related measures. By contrast, a disability human rights approach views disabled persons as disproportionately experiencing environmental threats and unnatural disasters due to their exclusion from state laws, policies, and services available to their non-disabled peers. Additionally, a disability human rights approach mandates the removal of exclusionary barriers and the implementation of positive measures to ensure the equitable treatment of individuals with disabilities. Achieving disability-inclusive climate justice requires “participatory justice”—empowering persons with disabilities to ascertain climate mitigation and adaptation approaches that are efficacious for, successfully implementable by, and accountable to disabled people. Disability-inclusive climate justice solutions are in synergy with universal climate justice goals and benefit entire societies, not “only” those with disabilities.

Stein, P. J. S., Stein, M. A., Groce, N., & Kett, M. 2023). The role of the scientific community in strengthening disability-inclusive climate resilience. Nature Climate Change, 13, 108–109. DOI: https://doi.org/10.1038/s41558-022-01564-6.

Despite the trajectory towards climate catastrophe, governments are failing to take disability-inclusive climate action. We discuss how the scientific community could advance and hasten the development of disability-inclusive climate resilience, and which areas should be prioritized.

Stone, K. (2024). The earth’s prognosis: Doom and transformation in game design. In L. op de Beke, J. Raessens, S. Werning, & G. Farca (Eds.), Ecogames: Playful Perspectives on the Climate Crisis (pp. 447-462). Amsterdam: Amsterdam University Press. DOI:  https://doi.org/10.5117/9789463721196_ch21.

This chapter describes the design of four games created by the author: Ritual of the Moon (2019), Humaning (2017), the earth is a better person than me (2018), and UnearthU (2022). Each of these games portray aspects of physical and emotional transformation, and the way that transformation may come about through varied connections to the environment fostered primarily through gameplay accessing the player’s imagination. The paper puts together disability studies scholarship with ecocriticism to analyze the common affects of the climate crisis, such as despair, anxiety, and doom through the lens of game creation.

Tamopubolon, G. (2023, January). Climate justice for persons with disability: Few harmed much, fewer still harmed too much [WIDER Working Paper 2023/2]. Helsinki: United Nations University World Institute for Development Economics Research (UNU-WIDER). DOI: https://doi.org/10.35188/UNU-WIDER/2023/310-9.

Building on Rawls’ theory of justice and Sen’s theory of capabilities, I present an outline of social justice under climate shocks, illustrating it with the experiences of persons with disability. Social justice holds when inequality is responded to by rules that afford more primary goods, such as rights and incomes, to those who have less—the maximin principle of the Rawlsian social welfare function. Climate injustice consists in putting more climate bads, not primary goods, on those with slender shoulders—a maximin social ill-fare function. Cross-country climate injustice is a larger instance of this. The developed world has achieved much economic progress (including more primary goods) on the back of burning fossil fuels, which has put the planet on a heating curve that puts massive climate bads on lives and livelihoods today and in future. Most of these bads are put on the shoulders of developing countries. This work addresses within-country climate injustice, such as when persons with disability shoulder extra losses in capabilities, especially being without drinking water for 24 hours. The significant capability losses estimated to have been endured by persons with disability in Indonesia in 2018 and 2020 should inform a more enlightened and socially just response to climate injustice so that, along a just transition, few are harmed much, fewer still harmed too much.

Tatano, V., & Revellini, R. (2023). Excluded bodies: The body dimension of disability in the project for environmental accessibility. In P. Franzo & C. Scarpitti (Eds.), Bodies and Care [Special Issue]. OFFICINA: Quarterly Journal of Architecture, Technology and Environment No. 41. DOI: https://doi.org/10.57623/2384-9029.2023.41.52-61.

Barriers in cities and public spaces limit the autonomy of movement and life of people with physical disabilities. In this way, discrimination is more evident and fosters ableism, an ever-expanding approach that tends to favour bodies that can perform and develop as autonomous and self-sufficient entities, while discriminating those that do not correspond to standards arbitrarily set by society.

The paper focuses its attention to the body dimension of disability and its role concerning projects for environmental accessibility, to overcome the dualism between “able” bodies and “dis-abled” bodies and aims at the construction of buildings and spaces for real bodies.

Taylor, S. (2017). Beasts of burden: Animal and disability liberation. New York: The New Press.

How much of what we understand of ourselves as ‘human’ depends on our physical and mental abilities—how we move (or cannot move) in and interact with the world? And how much of our definition of ‘human’ depends on its difference from ‘animal’? Drawing on her own experiences as a disabled person, a disability activist, and an animal advocate, author Sunaura Taylor persuades us to think deeply, and sometimes uncomfortably, about what divides the human from the animal, the disabled from the nondisabled—and what it might mean to break down those divisions, to claim the animal and the vulnerable in ourselves, in a process she calls ‘cripping animal ethics.’ Beasts of Burden suggests that issues of disability and animal justice—which have heretofore primarily been presented in opposition—are in fact deeply entangled. Fusing philosophy, memoir, science, and the radical truths these disciplines can bring—whether about factory farming, disability oppression, or our assumptions of human superiority over animals—Taylor draws attention to new worlds of experience and empathy that can open up important avenues of solidarity across species and ability.

Taylor, S. (2019). Disability and Interdependence. In S. King, R. S. Carey, I. Macquarrie, V. N. Millious & E. M. Power (Eds.), Messy eating: Conversations on animals as food (pp. 143-156). New York: Fordham University Press.

Even as a young child, Sunaura Taylor, now an artist, activist, and disability and animal studies scholar, understood that humans, animals, and the environment are intensely interconnected. Taylor’s ecological orientation is not simply an intellectual focus but rather a set of political beliefs she endeavors to embody in her everyday life, though she admits that doing so is rarely easy. Taylor’s work demands that audiences rethink the worthiness of vulnerability, of dependency, and of interdependency, particularly as these concepts speak to shared experiences among all living organisms in times of environmental turmoil and fragility.

United Nations General Assembly, Human Rights Council. (2020, April). Analytical study on the promotion and protection of the rights of persons with disabilities in the context of climate change: Report of the Office of the United Nations High Commissioner for Human RightsNew York: Author.

“The present analytical study is submitted pursuant to Human Rights Council
resolution 41/21. In the report, the impacts of climate change on persons with disabilities are examined; human rights obligations and the responsibilities of States and other actors in relation to disability-inclusive approaches identified; and good practices shared. The report ends with conclusions and recommendations” (p. 1).

An easy-read version of the report is also available.

Wall-Reinius, S., Kling, K. G., & Ioannides, D. (2022). Access to nature for persons with disabilities: Perspectives and practices of Swedish tourism providers. Tourism Planning & Development Online First. DOI: https://doi.org/10.1080/21568316.2022.2160489.

Despite the growing popularity of outdoor recreation, nature is not equally accessible to everyone. In the case of persons with disabilities, access to nature remains a largely under-researched area, especially in terms of the role of private and public providers of products and facilities for a diverse range of visitors. This study investigates the challenges and opportunities for developing inclusive forms of accessible nature-based tourism in three different natural settings in Sweden. By focusing on the supply side of nature-based tourism, we examine views and practices in providing inclusive activities and environments. Despite growing stakeholder interest in accessible nature-based tourism, our findings reveal several challenges, including limited knowledge about the consumers, lack of financial resources and long-term planning, and the absence of a holistic accessibility perspective. We discuss these challenges and propose that they can be collectively met through increased stakeholder collaboration for creating accessible nature-based tourism.

Walters, S. (2014). Unruly rhetorics: Disability, animality, and new kinship compositions. PMLA, 129(3), 471-477. DOI: https://doi.org/10.1632/pmla.2014.129.3.471.

“As intersections among rhetoric and composition, disability studies, and animal studies evolve, it will be necessary to develop ways of valuing the unruliness of interspecies- kinship compositions and to foster theories and practices for exploring them” (p. 476-477).

White, M. (2022). Greta Thunberg is ‘giving a face’ to climate activism: Confronting anti-feminist, anti-environmentalist, and ableist Memes. Australian Feminist Studies. DOI: https://doi.org/10.1080/08164649.2022.2062667.

Anti-feminists, anti-environmentalists, and ableists use memes of activist Greta Thunberg, especially representations of her face, to angrily depict her as irrational and a monster. Participants in these interlinked groups create straw versions of feminist activists and distinguish men’s purported rational development of civilisation from emotional girls, women, and nature. Individuals perform such contemptuous operations, as I argue throughout this article, by misrepresenting Thunberg’s climate and feminist platform and shifting the debate from her environmental advocacy to her embodiment and emotions. I closely read these texts and employ academic literature on anti-feminisms, straw arguments, and straw feminisms to suggest how anti-feminists render simplified figurations. Given my consideration of how anti-feminist, anti-environmentalist, and ableist positions are enmeshed in dismissing Thunberg’s activism and physiognomy, I also outline environmental scholarship that addresses gender and disability studies literature on Asperger syndrome and enfreakment. These are complicated critical gestures, but they are necessary since the over 3,000 memes that I studied, and the associated politics, function by simultaneously dismissing girls, women, feminism, the environment, and people with disabilities. Such an analysis of online texts is pressing since anti-feminisms are designed to disqualify feminist thinking about oppression and the vitality of feminist dialogues with related political movements.

Wolbring, G. (2019, October 21). A culture of neglect:  Climate discourse and disabled people. In A. Gorman-Murray & G. Gordon Waitt (Eds.), Climate [Feature Issue]. M/C Journal, 12(4). DOI: https://doi.org/10.5204/mcj.173.

“The scientific validity of climate change claims, how to intervene (if at all) in environmental, economic, political and social consequences of climate change, and the adaptation and mitigation needed with any given climate change scenario, are contested areas of public, policy and academic discourses. For marginalised populations, the climate discourses around adaptation, mitigation, vulnerability and resilience are of particular importance. This paper considers the silence around disabled people in these discourses.”

Wolbring, G. (2013). Ecohealth through an ability studies and disability studies lens. In M. K. Giaslason (Ed.), Ecological Health: Society, Ecology and Health [Vol. 15], (pp. 91-107).  Emerald: London, UK. Available: http://hdl.handle.net/1880/49856.

Purpose – The goal of this chapter is to cultivate interest in the societal dynamic of ability expectations and ableism, a dynamic first thematized by the disabled people rights movement but which is also broadly applicable to the study of the relationship between humans, animals, and environments. Another aim of this chapter is to think about disabled people within ecosystem approaches to health through the ableism framework and to show that insights gained from disability studies are applicable to a broader study of health within contexts of environmental degradation. Building from this approach, the reader is invited to consider the utility of the conceptual framework of eco-ability ‘expectations’ and eco-ableism as a way to understand health within coupled social- ecological systems. Methodology/approach – This chapter uses an ability expectation and ableism lens and a disability studies and ability studies approach to analyze the relationship between humans, animals, and environments. Findings – Certain ability expectations and ableism are responsible for (a) the invisibility of disabled people in ecological health discourses; (b) the standoff between anthropocentric and biocentric/ecocentric approaches to health; and (c) the application of scientific and technological advancements to address problems arising out of current relationships between humans, animals, and environments. Originality/value of chapter – The reader is introduced to the concepts of ableism and eco-ableism, which have not yet been used in EcoHealth discourses and flags the need for further engagement with disability issues within the field.”

Wong, A. (2019). The rise and fall of the plastic straw: Sucking in Crip defiance. In K. Fritsch, A. Hamraie, M. Mills, & D. Serlin (Eds.), Special Section on Crip Technoscience. Catalyst: Feminism, Theory, Technoscience, 5(1), 1-12. DOI: https://doi.org/10.28968/cftt.v5i1.30435.

A personal essay on the recent efforts to ban single use plastic straws, and how this ban is problematic for disabled people.

Wong, S., Rush, J., Bailey, F., & Just, A. C. (2023). Accessible Green Spaces? Spatial Disparities in Residential Green Space among People with Disabilities in the United States. Annals of the American Association of Geographers, 113(2), 527-548. DOI: https://doi.org/10.1080/24694452.2022.2106177.

This article presents new quantitative results on the distribution of residential green space for people with disabilities in the United States, building on and bridging scholarly research in two distinct domains: one involving approaches that quantify disparities in green space access among racialized minorities and socioeconomically disadvantaged groups, and the other using qualitative methods that demonstrate that most green spaces remain inaccessible and unwelcoming to disabled visitors. Using generalized additive models (GAMs) that controlled for demographic factors and climatological characteristics, we find that residential areas with more green space generally have a higher proportion of disabled residents. The statistical results run counter to expectations from the literature, thus complicating the prevailing narrative and indicating a need for mixed-methods research to examine multiple dimensions of access and environmental justice. Using cluster analysis to assess spatial trends, we detect residential clusters of high disability and low green space and find that they are located in predominantly non-White, urban, and more socioeconomically disadvantaged neighborhoods compared to clusters of high disability and high green space. Cluster analysis results suggest that there are inequities in green space access at the intersection of disability, race, and class, as well as across the urban–rural continuum.

The World Bank. (2023, October). Climate Change and Disability Inclusion in Uzbekistan. DOI:
https://doi.org/10.1596/40538. Washington, DC: Author.

The impacts of climate change will be unevenly felt within and across countries partly due to social and economic inequalities. Persons with disabilities represent 16 percent of the global population and face widespread forms of social and economic marginalization yet have received little attention in prior studies of climate change and social inequality. The mortality rate of persons with disabilities in natural disasters is “up to four times higher than people without disabilities” (Stein and Stein 2021). How do the fast-moving shocks, flooding, drought, heatwaves and slower-moving social and economic effects of climate change impact persons with disabilities How can climate change adaptation efforts be disability inclusive This study examines these questions through original fieldwork and qualitative interviews conducted in Uzbekistan. In November 2022, the authors interviewed persons with disabilities in three regions of the country. The resulting qualitative data afford key insights into how climate change and disability status interact to generate distinct vulnerabilities. Within the nascent field of climate change and disability studies, this report represents one of the first fieldwork-based accounts of how climate change presents heightened risks to persons with disabilities in a developing country context.

Ziarkowska, J. (2022). Cherishing the Impaired Land: Traditional Knowledge and the Anthropocene in the Poetry of Gwen Westerman. In M. Premoli & D. Carlson (Eds.), Indigeneity and the Anthropocene II [Special Issue]. Transmotion, 8(1). DOI: https://doi.org/10.22024/UniKent/03/tm.1007.

In the article I propose to read the work of Sisseton Wahpeton Oyate poet Gwen Westerman from the perspective of environmental humanities and disability studies. Following the insights of Heather Davis and Zoe Todd, I would like to indigenize the field by emphasizing the importance of traditional Indigenous knowledge in the responses to the effects of the Anthropocene. In Westerman’s poetry, the Anthropocene and the accompanying destruction of the environment begin with settler colonialism, which has more serious consequences than the ecological crisis: the loss of traditional lifestyles, foodways, and languages. If Westerman’s speakers believe in Indigenous survival, it can be found in the preservation of traditions and attention to/care for the land that is polluted, altered, and in pain. The emphasis on the need to return the land to the state of balance stands in sharp contrast with the way the discourse of capitalism describes the polluted environment as overexploited, useless, and “impaired.” As Sunaura Taylor has eloquently argued in her presentation “Disabled Ecologies: Living with Impaired Landscapes”, such a use of the “impaired” modifier demonstrates the extent to which Western preoccupation with and privileging of ableism – able bodies which are productive under capitalism – has penetrated thinking about damaged environments. Again, in Westerman’s work, “impairment” is an invitation to  a relationship with the land and its human, non-human, and inanimate beings. The condition of environmental change and pollution necessitates a new understanding of this relationship rather than its abandonment due to the capitalist logic of profit accumulation.

Zúñiga, D (2020). To think and act ecologically: The environment, human animality, nature.  Critical Review of International Social and Political Philosophy Online Before Print. DOI: https://doi.org/10.1080/13698230.2020.1772605.

Much work in care ethics and disability studies is concerned with the flourishing of human animals as an independent species. As a result, it focuses on how the built environments and the social structures that produce them restrict and exclude us. This paper addresses this problem and provides tentative first steps towards sketching an account of ethics that is structured around the interdependent nature of human and more than human life. I argue that our embodied existence places us in a shared condition of vulnerability with all forms of life on earth. This allows us to conceive of caring as an essential condition of the sustainability and well-being of social and ecological life systems. To this end, I discuss the notion of anthropocentrism – and the attendant notion of Anthropocene – and argue that the conception of human animality that underwrites it posits a disembodied and homogenous ‘anthropos’ that is equally responsible for and equally affected by unsustainable social systems. Further, I examine the debate that opposes realist and constructivist accounts of nature, and I argue that it is inadequate to look at nature through the lenses of the predatory social systems that are responsible for ecological injustices in the first place.

Southeast ADA Center Announces Launch of Disability Rights Today Podcast Series in celebration of the ADA 31st Anniversary

Court House stepsThe Southeast ADA Center, a project of the Burton Blatt Institute at Syracuse University, is pleased to announce the launch of a new podcast series, Disability Rights Today –your source for in depth discussion about important court cases that shape the Americans with Disabilities Act (ADA).  In celebration of the 31st ADA anniversary, please join us on July 26 for our next episode featuring the recently decided court case – Crawford v. Hinds County Board of Supervisors, (5th Circuit Court of Appeals, 2021). Topics include jury duty and courthouse access.  Our guests will be the plaintiff, Dr. Scott Crawford and his lead counsel, Andrew Bizer, with the law firm Bizer & Dereus, New Orleans, LA. Continue Reading

Image and Audio Description Resources

updated 9/16/2024

Books, Articles, and Chapters

Guidelines and Toolkits

Legislation/Code/Definitions

  • Movie Captioning and Audio Description Final Rule (ADA.gov)  – “ Title III of the ADA requires public accommodations, including movie theaters, to provide effective communication through the use of auxiliary aids and services.  This rulemaking specifies requirements that movie theaters must meet to satisfy their effective communication obligations to people with hearing and vision disabilities unless compliance results in an undue burden or a fundamental alteration.”
  • FCC Guidance on Audio Description – “Audio description (referred to as video description in the Commission’s rules) is audio-narrated descriptions of a television program’s key visual elements. These descriptions are inserted into natural pauses in the program’s dialogue. Audio description makes television programming more accessible to individuals who are blind or visually impaired.” https://www.fcc.gov/consumers/guides/audio-description
  • A guide to understanding and implementing Web Content Accessibility Guidelines 2 – Understanding SC 1.2.5 – Audio Description (Prerecorded): Audio description is provided for all prerecorded video content in synchronized media. (Level AA) “The intent of this Success Criterion (SC) is to provide people who are blind or visually impaired access to the visual information in a synchronized media presentation. The audio description augments the audio portion of the presentation with the information needed when the video portion is not available. During existing pauses in dialogue, audio description provides information about actions, characters, scene changes, and on-screen text that are important and are not described or spoken in the main sound track.”

Media-Specific Guidelines and Resources

Blogs, Podcasts, and Projects

OIPO New York State COVID-19 Resources

Updated 7/29/2021

PLEASE NOTE: this listing of resources was initially created in April 2020 and has been periodically updated. However, due to changing circumstances concerning COVID-19, we cannot attest to availability of programs, funding, or information. If you discover any erroneous information, please contact us via email at OIPO@syr.edu.

Contents

Introduction

The team at the Office of Interdisciplinary Programs and Outreach (OIPO) at the Burton Blatt Institute (Syracuse University College of Law) joins our colleagues at the Southeast ADA Center (SEADA) in gathering and organizing resources that center the rights, access, and experiences of disabled people during the time of COVID-19. Please note that inclusion of a resource herein does not necessarily mean an endorsement. This OIPO resources listing focuses on New York State, with particular attention paid to Central New York—and Syracuse, specifically. We cannot attest to every site’s accessibility. You are also welcome to visit a guide created by Diane R. Wiener for a broad set of wellness, creativity, and advocacy resources in the time of COVID-19.

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Syracuse University Resources

Resources for Syracuse University students, faculty, staff and administrators, alumni, parents, and community members, as well as resources produced and circulated by Syracuse University projects and initiatives.

ADA Live! (brought to you by SEADA) Podcast: 3-Part Series – Protecting Your Mental Health during the Coronavirus Outbreak
Listen to the series and all prior episodes on SoundCloud ADA Live! plus NEW! options for captions (CC) available by interactive transcript and text version at the ADA Live! website. Learn more & explore: www.adalive.org. ADA Live! is produced by the Southeast ADA Center, a member of the ADA National Network and a project of the Burton Blatt Institute (BBI) at Syracuse University.
Web: adasoutheast.org

Lerner Center for Public Health Promotion – COVID-19
lerner@syr.edu or (315) 443-2692
Web: lernercenter.syr.edu

Lerner Center for Public Health Promotion: COVID-19 Tracker for NYS Counties
lerner@syr.edu or (315) 443-2692
Web: lernercenter.syr.edu

Lerner Center for Public Health Promotion: Population Health Research Brief Series
lerner@syr.edu or (315) 443-2692
Web: lernercenter.syr.edu

Mid-State Partnership, School of Education
The Mid-State Partnerships consists of three projects working collaboratively to support students, families, and educational organizations to build capacity and improve educational and post-educational outcomes for students with disabilities:

  • The Mid-State Regional Partnership Center (RPC) – rpc@syr.edu 
  • The Mid-State School-Age Family and Community Engagement (SA-FACE) Center – safacecenter@syr.edu, (315) 443-4195 
  • The Mid-State Early Childhood Family and Community Engagement (EC-FACE) Center – ecfacecenter@syr.edu, (315) 443-4352
  • NOTE: Both the Mid-State SA-FACE Center and the Mid-State EC-FACE Center have been sending weekly emails with information around essentials, wellness, and other relevant topics. If you would like to join either Listserv, please email them at the email addresses, cited above.

Web: soe.syr.edu

Project ENABLE – Expanding Non-discriminatory Access By Librarians Everywhere
This time of quarantine is stressful and upsetting; simultaneously, it provides opportunities for the library community to gain new knowledge and develop new skills; to provide a more accessible library; and to support and educate inclusive librarians, now and in the future. Project ENABLE (Expanding Nondiscriminatory Access By Librarians Everywhere) has launched an updated, enhanced version of the Project ENABLE training site. Please share this information with your library staff, colleagues, students, and anyone who is interested in libraries and disabilities.
Web: projectenable.syr.edu

Southeast ADA Center COVID-19 Resources Portal
Information, Training, and Guidance on the Americans with Disabilities Act (ADA).
Serving Alabama, Florida, Georgia, Kentucky, Mississippi, North Carolina, South Carolina, and Tennessee.
Toll-Free: 1-800-949-4232
Phone: 404-541-9001
Email: adasoutheast@law.syr.edu
Web: adasoutheast.org

Stay Safe
The official source of public health information for Syracuse University.
Coronavirus Help Line: (315) 443-8472
Web: syracuse.edu

Study on the Impact of COVID-19
Dr. Tiago Barreira and Dr. Kevin Heffernan at Syracuse University began studying the impact of COVID-19 on mental health and physical activity in May 2020 using a survey to collect data; anyone over 18 years old can participate. Questions about the research or survey can be directed to Dr. Barreira: tvbarrei@syr.edu.

Syracuse University COVID-19 Dashboard
Syracuse University reports on the number of student and employee COVID cases located in Central New York.
Web: syracuse.edu

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Central New York Resources

Resources pertaining to the City of Syracuse and the Central New York region.

2-1-1 CNY Disability Portal
Call 2-1-1 or (844) 245-1922
Serves St. Lawrence, Jefferson, Lewis, Oswego, and Onondaga counties.
Web: 211cnydisability.com

2-1-1 Mid-York
For community, social, or government services, dial 2-1-1.
Hearing impaired, dial relay 7-1-1, ask for 1-844-342-5211
S
erves Oneida, Madison and Herkimer counties.
2-1-1 Mid-York Disability Information
Web: 211midyork.org

2-1-1/Life Line COVID-19 Resources
Dial 2-1-1 or 1-877-356-9211
Serves Monroe, Wayne, Ontario, Livingston, Cayuga and Seneca counties.
Web: 211lifeline.org

ACCESS
ACCESS is the engagement, assessment, planning and referral process for children/youth with emotional and behavioral challenges and their families in Onondaga County.”
315-463-1100 Phone (this phone line is staffed 24/7)
Send email via their online contact form.

AccessCNY Statement on the Novel Coronavirus
(315) 455-7591
Web: accesscny.org

Advocacy Center – COVID-19: Agency Updates/FAQs 2021
“As the current Coronavirus & COVID-19 public health crisis continues to evolve, the Advocacy Center remains all too aware of the impact it is having on our community, survivors, and some of our most vulnerable populations. This page will have updates to agency services, relevant information for survivors, and those we serve. For immediate assistance or questions, please contact our 24 hour hotline (607-277-5000) to speak with an advocate.”
The Advocacy Center is dedicated to providing support, advocacy and education for survivors, friends, and families of domestic violence, and sexual assault in Tompkins County.
Web: actompkins.org

ARISE
Syracuse / Main Office:
(315) 472-3171; TTY: (315) 479-6363
ARISE at the Farm: (315) 687-6727
ARISE Oswego County: (315) 342-4088; TTY: (315) 342-8696
ARISE Fulton Mental Health: (315) 887-5156
ARISE Madison County: (315) 363-4672; TTY: (315) 363-2364
ARISE Cayuga/Seneca County (315) 255-3447; TTY: (315) 282-0762
Web: ariseinc.org

Aurora of Central New York Inc. Coronavirus/COVID-19 Resources
Phone: (315) 422-7263
TTY/TDD: (315) 422-9746
Video Phone: (315) 679-4168
Web: auroraofcny.org

Bridges for Brain Injury, Inc.
(585) 396-0070
Bridges has received funding from the United Way of Rochester and the Community Foundation of Rochester for a meal delivery program. People with disabilities (in Ontario County and more, including Canandaigua, Farmington, Newark, and Palmyra) can call to find out how to get meals delivered to you regardless of your disability. This is available right now though this Covid19 pandemic.
Web: bridgesforbraininjury.org

Broome County Health Department – Coronavirus 
Broome County Health Department Hotline: (607) 778-8885
Web: gobroomecounty.com

CenterState CEO’s Generation Next & OneGroup present CNY LIVE: Home. Safe. Together.
Register and Watch
Thursday, May 7, 2020, 6:30 p.m. Eastern
Sponsored by OneGroup with support from KeyBank. Generation Next is an initiative of CenterState CEO and is supported in part by M&T Bank.
“Join Generation Next and leaders from across the community to celebrate the essential workers and businesses keeping Syracuse safe and strong. Enjoy performances from Symphoria and Syracuse Stage, meet business owners working to keep Syracuse running, enjoy a tribute to the region’s 2020 graduates, messages of thanks from the community, and so much more.”
Web: crowdcast.io

Central New York Community Foundation – The COVID-19 Community Support Fund
(315) 422-9538
Web: cnycf.org

Central New York Community Foundation – Regional & Affiliate COVID-19 Community Support
(315) 422-9538
This page is for those applying for or donating to COVID-19 support efforts from the Community Foundation’s regional funds or the Women’s Fund of CNY. Applicants and donors to the Onondaga County-based COVID-19 Community Support Fund should visit the Onondaga County-based site.” Includes:

  • Oswego County COVID-19 Fund
  • Cayuga County COVID-19 Fund
  • Greater Pulaski Community Endowment Fund
  • Madison County Rural Poverty Fund
  • Women’s Fund of Central New York

Web: cnycf.org

The Child Care Council of Cornell Cooperative Extension
(315) 223-7850 extension 222
earlycareandlearning@cornell.edu
The Child Care Council of Cornell Cooperative Extension is a resource & referral education program dedicated to promoting quality, accessible child care for our community. We offer various services to individuals working with young children in Herkimer, Madison & Oneida counties. We also provide programs and education opportunities to help you understand and comply with the rules and regulations of providing quality child care.
Web: cconeida.com

Child Care Solutions – COVID-19 & Child Care Providers
Syracuse Office: (315) 446-1220 Ext. 0; 1-888-729-7290
Auburn Office: 315-446-1220 Ext. 0; 888-729-7290 Ext. 0

Web: childcaresolutionscny.org

Child Development Council – COVID19 – Services and Resources
“This page summarizes current state and federal supports and additional services Council staff are offering to assure the well-being of children, families, and child care providers in our community.”

Web: childdevelopmentcouncil.org

City of Syracuse Coronavirus (COVID-19) Updates and Notifications
(315) 448-8005
Web: syrgov.net

Community Action Partnership for Madison County – Community Resources
Morrisville Office: (315) 684-3144
Canastota Office: (315) 697-3588
E-mail: info@capmadco.org
Web: capmadco.org

Community Action Programs Cayuga/Seneca- COVID-19 Information
Agency Headquarters: (315) 255-1703
Seneca Office: (315) 539-5647
Online contact form
“Community Action Programs Cayuga/Seneca (CAP) remains open to provide meaningful services and assistance to individuals and families in need.”

  • Current Needs Survey – Community Action Programs Cayuga/Seneca (CAP): Please take a few minutes to complete our survey that will enable us to provide programming and services to better meet the needs of our community due to the unprecedented challenges associated with COVID-19.

Web: caphelps.org

The Community Foundation of Rochester – COVID-19 Resource Page
“To help our nonprofit partners and the communities they serve, we set out to build a list of resources where people can find vital information about meeting immediate needs during the COVID-19 crisis. We will monitor and update this page frequently. Please help spread the word by sharing our short URL on social media.”
Web: racf.org/COVID

Community Crisis Fund
“Established by United Way of Greater Rochester and the Community Foundation to rapidly deploy flexible resources to community-based organizations that are disproportionately impacted by the COVID-19 pandemic, the economic consequences of the outbreak, community and organizational recovery, and future community emergencies.”
Web: racf.org

Congressman John Katko’s COVID-19 Priorities Survey
An opportunity to share the issues that are most important to you and your family with Congressman Katko.
Web: katko.house.gov

Coronavirus COVID-19 Updates for Cayuga County
Emergency Operations Center Hotline: (315) 253-1355
Web: cayugacounty.us

COVID-19 Vaccine Trials at Upstate Medical University
“The study will be conducted through Upstate’s Institute for Global Health and Translational Science. Currently, there are no available vaccines that have been proven to prevent COVID-19. Interested individuals can call (315) 464-9869 or email trials@upstate.edu for more information.”
Source: cnycentral.com

Crouse Health Updates: Coronavirus (COVID-19)
(315) 470-7111
Online contact form
Web: crouse.org

Exceptional Family Resources
(315) 478-1462

Web: contactefr.org

Family Resources Centers of Tioga County
“Virtual Parent Talk Times every Wednesday at 2 pm facilitated by Parenting Educators Donna Gibson and Joan Shultz. Designed for parents and caregivers of children birth to 5 years at home. Topics include stress management, sensory play, managing routines, and more!  Email Joan at jes49@cornell.edu for the weekly link to join!”

  • Owego FRC – (607) 687-4020 ext 308, Donna Vergason-Gibson, Site Coordinator, dlv22@cornell.edu
  • Waverly FRC – (607) 687-4020, Joan Shultz, Site Coordinator, jes49@cornell.edu

Web: tioaga.cce.cornell.edu

Food Bank of Central New York – Important COVID-19 Information & Resources
(315) 437-1899
Web: foodbankcny.org

Foodnet Meals On Wheels
(607) 266.9553
info@foodnet.org
“Foodnet Meals on Wheels’ mission is to provide meals and other nutrition services that promote dignity, well-being and independence for older adults and other persons in need in Tompkins County.”
Web: foodnet.org

Fulton County – COVID-19 Information
(518) 736-5720
Web: fultoncountyny.gov

Greater Syracuse H.O.P.E. (Healing Opportunity Prosperity Empowerment) – COVID-19: Agency Resources in Syracuse
greatersyracusehope@gmail.com
Online Contact Form
Web: greatersyracusehope.org

Greater Syracuse H.O.P.E., in partnership with the Syracuse-Onondaga Food Systems Alliance (SOFSA) – Syracuse COVID-19 Needs Assessment

Hamilton County CORONAVIRUS COVID-19
Phone: (518) 648-6131
Web: hamiltoncounty.com/health-human-services

Herkimer County Coronavirus Information
“For public information, a phone line is available weekdays from 8:00 a.m. till 4:00 p.m. the number is (315) 867-1351.”
Web: herkimercounty.org

LAUNCH
“LAUNCH is open to support clients on a limited basis at this time. Please call 315-432-0665 to confirm appointments and/or service availability.”
info@launchcny.org
Online Contact Form
Web: launchcny.org

LDA of the Mohawk Valley/Resource Center for Independent Living
Toll-free at 1-800-627-2981
Utica Office: (315) 797-4642
The Dorothy Smith Center for Advocacy: (315) 624-2554
Amsterdam Office: (518) 842-3561
Herkimer Office: (315) 866-7245
Online contact form
Web: rcil.com

Liberty Resources – Coronavirus/COVID-19
Liberty Resources remains open and here to help our communities during the COVID-19 pandemic and in the future!  Within the span of a day, we were able to shift our behavioral health services to telehealth and continue accepting new referrals.”

  • Online Contact Form
  • Connect with a Counselor Now @ (315) 498-5961.
  • In Crisis? Connect with our Mobile Crisis Team through our partner Contact Community Services:
    • Onondaga County: Adults (315) 251-0800; Youth (315) 463-1100
    • Madison County (315) 366-2327
    • Cayuga & Oswego (315) 251-0800
    • Cortland County (607) 756-3771
  • Main Office: (315) 425-1004
  • Canastota: (315) 697-5200
  • Cortland: (607) 218-6055
  • Fulton: (315) 592-7978
  • Oneida: (315) 363-0052
  • Liberty POST Syracuse: (315) 425-1004
  • Syracuse Integrated Health Care Clinic: (315) 472-4471
  • Short Term Crisis Respite for ADULTS – Wellness and relaxation at your home away from home, serving Onondaga, Oswego, and Madison counties via a “Warm Peer Line”: 1-855-778-1900 – 24/7

Web: liberty-resources.org

Liberty Resources Help Restore Hope Center
Hotline 855-966-9723 (24/7)
Languages spoken: English/Spanish
“Liberty Resources Help Restore Hope Center is formerly known as the Victims of Violence Program. Our program services take a leadership role in Madison and Chenango Counties, New York by providing services for survivors, education, and prevention on domestic violence, child abuse, dating violence and other forms of abuse.”
Web: helprestorehopecenter.org

Living in Cayuga County: 2019-2020 Community Services Directory (PDF Format, 72 pages) 
Web: human-services.org

Madison County COVID-19
(315) 366-2361

  • If you have a concern related to COVID-19 in Madison County regarding social distancing, hygiene practices, or an essential business, please dial the Madison County non-medical COVID-19 hotline at 315-366-2770 or complete this online form.
  • If you would like to file a complaint about non-essential businesses that are continuing to operate, complete the Department of Labor’s Complaint Form.

Web: madisoncounty.ny.gov

Madison County Mental Health Crisis Hotline
(315) 366-2327

Madison County Office for the Aging, Inc. 
(315) 697-5700
TDD: 7-1-1
information@ofamadco.org
“Madison County Office for the Aging, Inc. (OFA) has temporarily closed all congregate Senior Nutrition and County Kitchen (SNACK) sites effective March 6, 2020. Please note that home delivered meal clients will continue to have their meals delivered, and congregate clients should have been contacted by OFA staff to discuss their food options. Contact them with any questions or concerns.”
Web: ofamadco.org

McMahon Ryan Child Advocacy Center
For questions or any general inquiries: (315) 701-2985
Online contact form
Web: mcmahonryan.org

Mohawk Valley COVID-19 Response Fund
Web: unitedwayvgu.org

Northeast Region 2-1-1
Call 2-1-1 or 1-888-366-3211
Serves Albany, Columbia, Fulton, Greene, Hamilton, Montgomery, Rensselaer, Saratoga, Schenectady, Schoharie, Warren, and Washington counties.
Intellectual and Developmental Disabilities Services
Web: 211neny.com

Northern Onondaga Public Library 
NOPL Brewerton: (315) 676-7484
NOPL Cicero: (315) 699-2032
NOPL North Syracuse: (315) 458-6184
“Our locations may be closed but we’re open 24/7 online!  Visit NOPL’s website to access digital resources such as ebooks, audiobooks, magazines, streaming music, movies, and more. At NOPL.org you can read our blog to find helpful posts for keeping all ages engaged and inspired with a library card and PIN. No library card? Sign up for a temporary digital library card and get started today.” 

Web: nopl.org

Oneida County Health Department CORONAVIRUS (COVID-19)

  • Oneida County Mental Health Hotline: 1-800-678-0888
  • Oneida County Health Department COVID-19 Hotline: 315-798-5431
  • Oneida County Department of Family and Community Services’ Helpline: 315-798-5439

Web: ocgov.net

Onondaga Community Living
Main Office, Syracuse: (315) 434-9597
Referral & Services Line: (315) 913-4801
Fulton Office: (315) 602-2828
Web: oclinc.org

Onondaga County – Coronavirus (COVID-19)
Web: ongov.net

Onondaga County Aging Services – Nutrition Services
Emergency Meals Hotline Number for Onondaga County Seniors Age 55 or Older: (315) 218-1987
Web: ongov.net/aging

Onondaga County Department of Children and Families Services/Youth Bureau
(315) 435-2884, ext 4293

Web: ongov.net/cfs

Onondaga County Health Department
Due to the presence of COVID-19 in Onondaga County, the John H. Mulroy Civic Center building is closed to the public except for critical services. Anyone with County business should call ahead. The following changes to Health Department services are also in effect until further notice:

  • WIC Clinic: All appointments will be done over the phone. If you have an upcoming appointment, our WIC staff will be calling you during the week of your scheduled appointment. If you have a new phone number please call the WIC office at 315.435.3304 to update your records.
  • Office of Vital Statistics: Closed to walk-in traffic effective immediately. Birth and death certificates can continue to be ordered by mail, by fax, or online. Please call 315.435.3241 with any questions.
  • TB Clinic and Sexual Health Center (STD Center): Visits by appointment only, no walk-in hours. Please call 315.435.3236 to schedule an appointment.
  • Family Planning Service: The clinic at 113 East Taft Road in North Syracuse is closed. Patients will be seen at the Slocum Avenue clinic by appointment only, no walk-ins. For information or an appointment call or text 315.325.2010. Telehealth will be used whenever possible.
  • Immunization Clinic: Closed until further notice
  • Rabies Clinics: Cancelled until further notice

Web: ongov.net/health

Onondaga County Health Department, Bureau of Special Children Services, Early Intervention Program
315-435-3230

Web: ongov.net/health

Onondaga County Mental Health COVID 19 Response Telephonic Support – Volunteers Needed (PDF Document, 1 page)
“Contact Community Services is seeking volunteers willing to provide support by phone. This is solely being used to provide social/emotional support for those dealing with the stress of the current crisis, particularly those with new challenges or general support for those with preexisting conditions. If you are willing to offer some time to this effort, please complete their online survey.”
Web: ongov.net/aging

Oswego County Office for the Aging – Meals for Seniors
(315) 349-3484 or 1-800-596-3200 extension 3484

Web: oswegocounty.com

Oswego County Opportunities  – Updates on OCO Services related to COVID-19 Outbreak
(315) 598-4717
Contact OCO with Suggestions, Comments, or Concerns

OCO Crisis Hotlines – Crisis intervention and support for:

  • Victims of domestic violence, dating violence, sexual assault, stalking or other violent crimes: (315) 342-1600 
  • People experiencing a Housing crisis, difficulty meeting basic needs and other crisis situations: (315) 342-7618 or 1-877-342-7618 (toll free)

Web: oco.org

Oswego YMCA – Spotlight: COVID-19
(315) 342-6082
“Oswego YMCA remains open to provide childcare to all City of Oswego essential workers, to ensure that they can continue to work.”

Web: oswegoymca.org

Opportunities of Otsego COVID-19 Resources
(607) 433-8000
1-800-986-5463
Online Contact Form

Web: ofoinc.org

Otsego County Department of Public Health – COVID19 – Corona Virus Information Resource Center
(607) 547-4200
Web: otsegocounty.com

Refugee and Immigrant Self-Empowerment (RISE)
“COVID-19 UPDATE–RISE has set up a 24/7 phone line to help connect Limited English Speakers to a live person who speaks their language: RISE Emergency Phone Number (315) 214-4480 (follow prompts for language needed): English * Nepali * French * Swahili * Lingala * Somali * Kizigua * Karen * Burmese * Kinyarwandan * Kirundi * Arabic * Please visit our Facebook page for live updates!”
Web: syracuserise.org

Rochester Spinal Association – Grants
RSA has two small grant opportunities for people with spinal cord disability that may assist with offsetting unexpected costs due to COVID-19.
Web: rochesterspinalassociation.org

St. Joseph’s Health – Coronahealth
1-888-STJOES1
Web: sjhsyr.org

Support Syracuse-Onondaga Food Systems Alliance (SOFSA) via the the COVID-19 Community Support Fund
Support food access in Syracuse-Onondaga County! TCI Syracuse and SOFSA are working in collaboration with the community partners supporting the Central New York COVID-19 Community Support Fund to collect donations to support rapid response initiatives to assist Onondaga County residents to access food during the COVID-19 crisis. Enter “SOFSA” (Syracuse-Onondaga Food Systems Alliance) as a comment in your online donation form to earmark your donation for food-related needs.
Web: cnycf.org/covid19-home

Susquehanna River Region 2-1-1
Dial 2-1-1 or 1-800-901-2180
Online Contact Form
Serves Broome, Chenango, Delaware, Otsego and Tioga counties.
Web: helpme211.org

Syracuse.com – Sign up for free text messages about important updates on coronavirus in Central New York
Web: syracuse.com

Syracuse Refugee and Immigrant Defense Network (SIRDN) Resources Document
Documento de recursos sobre Coronavirus/COVID-1
De la Red de Defensa de Refugiados e Inmigrantes de Syracuse (SIRDN)
Para español, haga click aquí.
For the English version, click here.
“Whenever possible, we included both English and Spanish versions of resources. When the resource is only available in one language, you can use these instructions to have Google translate the page to other languages.”

United Way of Central New York Information and Resources Amid Covid-19
(315) 428-2211
Web: unitedway-cny.org

United Way of the Valley and Greater Utica – Coronavirus (COVID-19)
For immediate help finding community resources, call 2-1-1 or visit 211midyork.org.
(315) 733–4691
Online Contact Form
Web: unitedwayvgu.org

Upstate University Hospital Triage Line
“Upstate’s COVID-19 triage number is (315) 464-3979. The triage line will serve the following counties: Onondaga, Cayuga, Oswego, Madison, Cortland, Chenango, Tompkins, Tioga, Broome, Oneida, Herkimer, Lewis, Jefferson, St. Lawrence.”
Source: upstate.edu

U.S. Congressman John Katko – Coronavirus: Information and Resources
Representing 24th Congressional District in New York, which includes Onondaga, Cayuga, and Wayne Counties and the western portion of Oswego County.
Online contact form
Web: katko.house.gov

Vera House – Our Response to COVID-19
(315) 468-3260
Web: verahouse.org

Westcott Mutual Aid
Westcott Mutual Aid is a newly formed alliance with Salt City Market and its restaurants and food merchants to keep staff employed by making meals to be distributed at community centers. These meals are being made at cost (supplies and labor) and distributed to neighborhoods with the greatest need. Immediate funding for this initiative is being provided by individual residents and business owners in the Westcott neighborhood. Please consider assisting financially with these efforts to keep people working and keep people fed.
Web: saltcitymarket.com

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New York State Resources

Resources specific to New York State.

2-1-1 – COVID-19 (Coronavirus) Pandemic Resources
Call 2-1-1 or search 2-1-1 by zip code or city and state to find resources for your region.

Accessible New York 
“This year is the 30th anniversary of the Americans with Disabilities Act. New York State offers many opportunities for travelers with accessibility needs. Hundreds of attractions across the state offer accessibility features, with some even providing specialty programming like sensory-friendly museum days and adaptive skiing and snowboarding.”
Web: iloveny.com

Alcoholism and Substance Abuse Providers of New York State (ASAP) – Corona Virus Helpline
(518) 426.3122
General Inquiries: slafountain@asapnys.org
Web: asapnys.org

APART + CONNECTED: NYC Deaf Life During the Pandemic
Gallaudet University’s Schuchman Deaf Documentary Center is hosting a virtual panel discussion on NYC Deaf life during the pandemic on Tuesday, May 12, 2020, 1-2 p.m. ET. Panelists include Roxanna Aguilo, Carlos Aponte-Salcedo Jr., Patrice Creamer, Marina Fanshteyn, and Alexandria Pucciarelli-Miller; moderated by Brianna DiGiovanni. Panelists will use American Sign Language (ASL). ASL to spoken English interpreting and real-time captioning provided. This panel is being broadcast via Zoom.
Web: gallaudet.edu

Center for Disability Rights – Action Steps for Attendant Service Users in Response to Coronavirus Disease 2019 (COVID-19)
Rochester: TEL (585) 546-7510; TTY (585) 546-7512
Albany: TEL (518) 320-7100; TTY (518) 320-7100
Canandaigua: TEL (585) 546-7055
Corning: TEL (607) 654-0030
Geneva: TEL (315) 789-1800; TTY (315) 789-1800
Web: cdrnys.org

CityMD – Free testing – Uninsured New Yorkers can get a free diagnostic COVID-19 test at any CityMD urgent care facility. All CityMD locations are offering nasal swab tests seven days a week, and walk-ins are accepted. Also a reminder that New York health insurers have been directed to waive all costs associated with COVID-19 testing. If you believe you have COVID symptoms, don’t wait — get tested.
Source: New York Post

Codeacademy – Supporting New Yorkers Affected by COVID-19 Through State and City Partnerships
New York-based startup Codecademy has provided technical training to 1,500 state personnel on the frontlines of the State’s pandemic response as part of the COVID-19 Technology SWAT Team. Through this pro-bono partnership, Codecademy is providing six-month training licenses to NYS’ Office of Information Technology Services. Leading tech companies from around the country have participated in the Tech SWAT Team Initiative, saving taxpayers over $14 million.
Web: https://news.codecademy.com

Consumer Directed Personal Assistance Association of New York State – COVID-19 Consumer Impact Survey
CDPAANYS is collecting data from consumers and designated representatives to learn how COVID-19 is affecting your daily routine and access to care. Participation in this survey will help CDPAANYS learn where resources are needed and better advocate for CDPA.”

Cornell Cooperative Extension – New York Extension Disaster Education Network – COVID-19 Resources
If you have Coronavirus resources, programs, or information to submit to NY EDEN, please use this form.
Web: eden.cce.cornell.edu

Cornell Cooperative Extension Tioga County – COVID-19 Financial Wellness Resources
Web: tioga.cce.cornell.edu

Coronavirus & Responsible Behaviors by State – “New York State named most responsible state in fight against COVID-19”
This new study by a health care data group named New York the “most responsible state” in fighting COVID-19, due to New Yorkers’ widespread mask wearing as well as the state’s robust testing capacity and health care system, among other factors.
Source: https://www.weny.com/story/42372092/new-york-state-named-most-responsible-state-in-fight-against-covid-19

COVID 19: Resources for Kinship Caregivers in NYS – NYS Kinship Navigator
The NYS Kinship Navigator is an information, referral and education program for kinship caregivers in New York State. A kinship caregiver is an individual that is caring for a child that is not biologically their own.”
Web: nysnavigator.org

COVID Act Now – New York
This website shares COVID data and risk level for communities throughout the state and all other states, 2,100+ counties.
“New York is on track to contain COVID. Cases are steadily decreasing and New York’s COVID preparedness meets or exceeds international standards.”
Web: covidactnow.org

COVID-19 Consumer Impact Survey
CDPAANYS is collecting data from consumers and designated representatives to learn how COVID-19 is affecting your daily routine and access to care. Participation in this survey will help CDPAANYS learn where resources are needed and better advocate for CDPA.”
Source: CDPAANYS

COVID-19 Special Needs Resources – Information For Families with A Child with an Intellectual and/or Developmental Disability During the Covid-19 Pandemic
Source: STRYDD Center (Supporting Trauma Recovery for Youth with Developmental Disabilities)

Dance/NYC – Coronavirus Impact Survey (Shared by Art Beyond Sight: Bringing Art and Culture to All in solidarity with Dance/NYC)

  • From Art Beyond Sight: “At Art Beyond Sight, dance is one of the several arts disciplines which we focus on. We ask all dancers to please take this Coronavirus Impact Survey and share it with friends and colleagues who are dancers, who have a dance company, or a dance school. This survey will garner important coronavirus impact information for disability dance which may impact the greater disability arts community as well.”
  • From Dance/NYC: “Dance/NYC is monitoring the impact of Coronavirus (COVID-19) on the dance field. We value your input and will use it to create public awareness and guide policy, resources, and program development for dance makers and organizations based in the metropolitan New York City area.”

Learn about the Dance/NYC Coronavirus Dance Relief Fund

Disability Rights New York (DRNY) COVID-19 Resource Guide
Phone: (518) 432-7861
TTY: (518) 512-3448
Toll Free: (800) 993-8982

Web: drny.org

Families Together in New York State – Resources for Families Affected by COVID-19
(518) 432-0333
Hotline: 1-888-326-8644
info@ftnys.org
Web: ftnys.org

Feed the Frontlines NYC
By purchasing meals through Feed the Frontlines NYC, you’ll help fuel the extraordinary efforts of our city’s healthcare and social services workers while supporting our local restaurants and their workers.”

Feeding New York State
“Feeding New York State is incorporated as a non-profit whose mission is to lead a unified effort for a hunger-free New York State.”
Web: feedingnys.org

First Responders Fund – COVID-19 NYS Emergency Response
To help support our hero frontline workers, New York created the First Responders Fund. The fund will assist COVID-19 healthcare workers and first responders with expenses and costs, including child care. We encourage New Yorkers to donate if you can: Donations can be made electronically [online] or by check, mailed to “Health Research, Inc., 150 Broadway, Suite 560, Menands, NY 12204.” (For checks, the donor should specify the donation is for “COVID-19 NYS Emergency Response.”)

Hite – ONLINE RESOURCE DIRECTORY
Connecting New Yorkers with free and low-cost health and social services
Web: hitesite.org

 “It’s Up To Us, New York”  (PDF Document, 8 pages)
NY is launching a new series of public service announcements to remind New Yorkers to keep doing their part to fight Coronavirus. The advertisements will appear across social media, on MTA buses and trains and on billboards across the state. Masks are mandatory when riding public transportation systems and New Yorkers should follow all guidelines and protocols when riding, including maintaining social distancing to the extent possible, using hand sanitizer and observing decal guidance.
Web: governor.ny.gov

League of Women Voters of New York State 
COVID-19 Voting and Government resources:

Web: lwvnyonline.org

I Love NY – 16 of New York City’s Best Museum Reopenings
A guide to New York City museums as they begin to reopen
Web: iloveny.com

Managed Care Community of Practice – COVID-19 Resources & Guidance
(518) 795-3590
mccop.info@nyu.edu
Web: mc-cop.com

“Mask Up America” Campaign
“New York Shares Message with Nation to Promote Mask Wearing and to Help Stop the Spread of the Virus”
Web: governor.ny.gov

MTA Service During the Coronavirus Pandemic
“We’re here to get you where you’re going as the New York region reopens. Remember that you’re required to wear a mask when you ride with us.”
To help avoid crowding on buses as New York City reopens, the myMTA app has added a feature to provide the real-time number of riders on any given bus line. To download the app:

Web: mta.info

Multisystem Inflammatory Syndrome in Children in New York State
This research articles offers an update on the Kawasaki Disease-like syndrome that has affected children in NYS. As of Friday, July 24, 2020, NYS has investigated 240 cases of the syndrome, also known as MIS-C. “The State Department of Health published a study of patients younger than 21 who met the criteria for MIS-C in the New England Journal of Medicine. One of the findings of the study is that the hyper-inflammatory syndrome is associated with cardiac dysfunction. Among the findings of the study are that the hyper-inflammatory syndrome is associated with cardiac dysfunction. The majority of the patients in the study had no documented underlying conditions” (SOURCE: NYS Coronavirus Update).
Web: nejm.org

New York Alliance for Inclusion & Innovation – Coronavirus Resources
The NY Alliance is continuing to monitor the Covid-19 crisis and provide information in real-time. If you are a NY Alliance member and would like to receive this information directly, please email kconnally@nyalliance.org. If you are not a member of the NY Alliance and would like to receive these updates, please email skittle@nyalliance.org to discuss options.”
Web: nyalliance.org

New York Blood Center – Convalescent Plasma COVID-19 Donor Request Form
(212) 570-3000
Online contact form
Web: nybc.org

New York Business Express – NYS Support Programs or Incentives
“Small business owners can check if they are eligible for New York State support programs or incentives. There are a number of business incentives that small business owners may be able to take advantage of. To get started, simply answer questions about your business and New York’s Business Express Incentive Wizard will provide a list of New York State programs and services that could help your business get off the ground.”
Web: businessexpress.ny.gov

NYC Administration for Children’s Services – Novel Coronavirus/COVID-19 General Information
ACS Main Office Phone: (212) 341-0900
Outside NYC: (877) KIDSNYC (543-7692)
Online Contact Form or Other Contact Information
Web: nyc.gov

NYC Department of Health and Mental Hygiene COVID-19: Businesses and Other Facilities
“NYC guidance for businesses and other commercial and residential facilities”

Web: www1.nyc.gov

New York City’s Mayor’s Office for People with Disabilities (MOPD) – COVID-19 Resources for People with Disabilities
Voice Phone: (212) 788-2830
Video Phone: (646) 396-5830
MOPD COVID-19 Feedback Form
Accessible Virtual Meetings Guide (PDF Document Guide, 13 pages)
MOPD Virtual Activities Toolkit
Web: www1.nyc.gov

NYC COVID-19 City-wide Information Portal
“3-1-1 is available online, by texting 311-692, or by calling 3-1-1 from within the City or 212-NEW-YORK outside the five boroughs. TTY service is also available by dialing 212-504-4115.”
Web: nyc1.gov

NYC Department of Youth & Community Development (DYCD) – Virtual Resources For All Ages
Web: nyc1.gov

NY’s Canals – Explore Upstate NY’s Canals
Take advantage of the beauty of New York’s canals and hiking trails this summer. Through Labor Day, the NYS Canal Corporation is promoting six hubs of canals and trail activity and celebrating local canalside businesses across Upstate NY. The program will offer free outdoor excursions by kayak and/or bike in Schenectady, Chittenango, Seneca Falls and Rochester.
Web: canals.ny.gov

NY Connects
1-800-342-9871
Online resource to search for available services in NYS
Find local offices
Web: nyconnects.ny.gov

NY Project Hope
(844) 863-9314
Email: nyprojecthope@omh.ny.gov
“The Emotional Support Helpline was initially launched at the request of Governor Andrew Cuomo in response to the mental health needs of New Yorkers during the COVID-19 pandemic. It was originally manned by thousands of trained volunteers with a background in mental health, including licensed mental health professionals. The Helpline has now transitioned into NY Project Hope, the official Crisis Counseling Response, funded by the Federal Emergency Management Administration. It remains a program of the Office of Mental Health and is now staffed by trained crisis counselors.”
Web: omh.ny.gov

New York Public Library
New York State residents may open a free account at the New York Public Library, permitting users to check out ebooks and other electronic resources; How to Access the Library’s Digital Resources 24/7.
Web:
nypl.org

New York State Child Abuse Hotline
1-800-342-3720

New York State COVID Hotspot Lookup – Find COVID-19 Hot Spot Zones by Address
Search to see if you live or work in a Cluster Action Initiative Zone. As part of our Cluster Action Initiative, there are new restrictions in six clusters in the State, which allow us to stop the spread from these clusters and protect our progress in the fight against COVID-19. Look up your address to see if you live or work in a COVID-19 Hot Spot Zone where there are new restrictions. Maps of the six cluster zones and the state’s COVID-19 Micro-Cluster Strategy can be found online.

  • 11-19-2020 – New York will modify micro-cluster focus zones in response to updated metrics. Part of Erie County’s Yellow Zone will transition to an Orange Zone. Parts of Niagara County and the Bronx will go into Yellow Zones. There will be an expanded Yellow Zone in Queens. Meanwhile, due to improvements, the Yellow Zones in Broome County and Orange County will be removed, and the Brooklyn cluster’s Orange Zone will transition to a Yellow Zone. These changes go into effect Friday for businesses and Monday for schools” 

Web: forward.ny.gov

New York State COVID-19 Technology SWAT Team
“New York State is launching technology driven products with leading global tech companies to accelerate and amplify our response to COVID-19. We are looking for impactful solutions and skilled tech employees to help. Individuals from leading global technology companies are being deployed across high-impact and urgent coronavirus response activities.”
Web: ny.gov

New York State – Domestic Violence Task Force
Following a spike in domestic violence cases since the onset of the pandemic, Secretary to the Governor Melissa DeRosa issued a report outlining the COVID-19 Domestic Violence Task Force’s initial recommendations to reimagine New York’s approach to services for domestic violence survivors. The recommendations call for overhauling and reimagining a 40-year-old system to meet survivors where they are and to empower them to have the maximum control of their future. Read the full report by the task force online:

Web: governor.ny.gov

New York State – Executive Order No. 202.8 – Continuing Temporary Suspension and Modification of Laws Relating to the Disaster Emergency 3-20-20

Web: governor.gov.ny

New York State – Executive Order No. 202.36: Continuing Temporary Suspension and Modification of Laws Relating to the Disaster Emergency – 6-2-2020

This executive order allows low-risk, outdoor recreational activities and businesses providing such activities to open in regions that have met the public health and safety metrics required for Phase 1. These include tennis, non-motorized boat use and rentals (such as kayaks and rowboats), and golf and driving ranges.

Web: governor.gov.ny

New York State – Getting Involved: How You Can Help
“New York State is doing all it can to keep New Yorkers safe and stop the spread of COVID-19. But we’re stronger if we all work together. Governor Cuomo is calling on health care professionals, schools of public health or medicine and PPE products providers and manufacturers to come forward to support the state’s response. It’s going to be hard, it’s going to be disruptive, but we will get through this together.”
Web: health.ny.gov

New York State – Interfaith Advisory Council
Starting May 21st, religious gatherings of no more than 10 people will be allowed statewide. Social distancing measures must be enforced and all participants must wear masks. Additionally, drive-in and parking lot services will be permitted. The state is convening an Interfaith Advisory Council to discuss proposals to safely bring back religious services. A list of council members (PDF Document, 3 pages) has been released.
Web: governor.ny.gov

New York State – New York Forward
“Governor Cuomo outlined a plan to reopen New York State. Our plan focuses on getting people back to work and easing social isolation without triggering renewed spread of the virus or overwhelming the hospital system. New York will reopen on a regional basis as each region meets the criteria necessary to protect public health as businesses reopen. New York State remains on PAUSE through May 15.”

Web: forward.ny.gov

New York Forward Loan Fund
“New York Forward Loan Fund (NYFLF) is a new economic recovery loan program aimed at supporting New York State small businesses, nonprofits and small landlords as they reopen after the COVID-19 outbreak and NYS on PAUSE.”
Web: connect2capital.com

New York Paid Sick Leave
New Yorkers can use accrued paid sick leave starting 1/1/2021. Under NY’s Paid Sick Leave law, paid sick leave is secured for workers at medium and large businesses and paid or unpaid leave for those at small businesses, depending on the employer’s net income. New Yorkers can use guaranteed sick leave to recover from an illness themselves, care for a sick family member and more.
Web: ny.gov/programs/new-york-paid-sick-leave

New York State of Health – The Official Health Plan Marketplace
“The 2021 NY State of Health Open Enrollment Period has been extended. As we continue to fight COVID-19, making sure every New Yorker is insured and has access to health care has only become more critical. If you are not insured, make 2021 the year you change that. View health plan options online, or you can go online at https://nystateofhealth.ny.gov/ or call NY State of Health at 1-855-355-5557 for assistance.” Note that Empire Plan, Medicaid and Child Health Plus are continuous enrollment.
Web: nystateofhealth.ny.gov

New York State – Reimagine Education Advisory Council
Effective 5-8-2020, New York announced the members of the state’s Reimagine Education Advisory Council. We are so grateful to the state’s teachers who rose to the occasion when school facilities closed and have been teaching students remotely — but we know there is no substitute for in-class learning. Made up of teachers, students, parents and education leaders, this council will help districts strengthen our state’s schools for the challenges of today and tomorrow. See the full list of council members online.

Translations of this announcement are available:

Web: governor.ny.gov

New York State – Sign Up For Coronavirus Updates – Governor Andrew M. Cuomo
(518) 474-8390
Contact Gov. Cuomo
Web: governor.gov.ny

New York State – Tell Us What You Think
“The COVID crisis highlighted a number of shortcomings and New York wants to identify ways technology can be used to help New York build back better for everyone. From ensuring access to high-speed internet, better-paying jobs and career pathways, we are committed to ensuring that our most vulnerable residents are able to overcome root causes of inequity, and to access the digital economy. We’d love to hear from you — please take a moment to fill out this survey and let us know how we can Reimagine New York and build back better.”
Web: gov.ny

New York State Association of County Health Officials – Contact Your County Health Office
(518) 456-7905
Web: nysacho.org

New York State Bar Association – Coronavirus (COVID-19) Information Center
(518) 463-3200
Web: nysba.org

New York State Bar Association – COVID-19 Pro Bono Network
“New York State needs the help of attorneys to handle a surge in legal matters resulting from the coronavirus pandemic and ensuing economic fallout. For additional information please contact us at: covidvolunteer@nysba.org.”
(518) 463-3200
Web: nysba.org

New York State Child Abuse Hotline
1-800-342-3720

New York State Contact Tracing Pilot Program (Press Release from Governor’s Office)

Web: governor.ny.gov

New York State Coalition Against Domestic Violence (NYSCADV)  New York State Domestic Violence Program Directory

https://www.governor.ny.gov/sites/governor.ny.gov/files/atoms/files/DVTF-Report-FINAL.pdf

Web: nyscadv.org

New York State Council on Women and Girls: COVID-19 Domestic Violence Task Force (PDF Documents, 7 pages)

Web: governor.ny.gov

New York State Council on Women and GirlsNew COVID-10 Maternity Task Force Launched

Web: governor.ny.gov

New York State Department of Agriculture and Markets – Interim Guidance for “Feeding New York” by Holding a Charitable Food Donation Drive-through Event to Provide Food to Communities During The COVID-19 Public Health Emergency April 28, 2020 (PDF Document, 2 pages)
Web: agriculture.ny.gov

New York State Department of Agriculture and Markets – Nourish NY

  • Funding Will Be Distributed Regionally to Food Banks and Emergency Food Providers Based on Need
  • Food Banks Will Use Funding for Drive-Through Food Distribution Events, Voucher Programs at Grocery Stores, and the Direct Purchase of Products From New York Producers and Processors

Web: agriculture.ny.gov

New York State Department of Environmental Conservation –  Adventure NY
“The Department of Environmental Conservation is hosting a virtual series called Adventure at Home, designed to help New Yorkers find ways to take advantage of outdoor recreational activities in their own communities.”

New York State Department of Environmental Conservation – NY’s Outdoors Are Open
#RecreateLocal – Safely and Responsibly
“New York State is encouraging people to engage in responsible recreation during the ongoing COVID-19 public health crisis. New York State DEC and State Parks recommendations for getting outside safely incorporate guidance from the Centers for Disease Control and Prevention and the New York State Department of Health for reducing the spread of infectious diseases.”

New York State Department of Financial Services – Coronavirus: Information for Consumers and Small Businesses

  • Effective 5-1-2020: The Governor has announced that the State Department of Financial Services will require New York State-regulated health insurers to waive cost-sharing, including deductibles, copayments and coinsurance, for in-network mental health services for New York’s frontline essential workers during COVID-19. DFS will also issue an emergency regulation to prohibit insurers from imposing cost-sharing for telehealth and in-person mental health services rendered by in-network providers on an outpatient basis to frontline essential workers eligible to be tested at one of the State’s drive through or walk-in COVID-19 testing sites. (SOURCE: Governor’s Press Office)
  • If you have a general question about coverage for Coronavirus (COVID-19) send an email to consumers@dfs.ny.gov.
  • If you have a problem with an existing account or insurance policy, use our online Consumer Complaint form to file a complaint about a product, service, or institution that we supervise. You can also check the status of a complaint, or add information to an existing complaint.
  • The State Department of Financial Services will issue an emergency regulation to help businesses and consumers who suffered damage from looting and vandalism. DFS is directing insurers to expedite claims, provide free mediation of disputes and accept photos as reasonable proof of loss so businesses don’t have to wait for police reports. More information is available at dfs.ny.gov
  • Effective 6-19-2020: The New York State Department of Financial Services has reached an agreement with credit reporting agencies to provide free credit reports to consumers and help reduce negative consumer credit reporting. This agreement will help New York consumers facing hardship caused by COVID-19 to avoid unjustified negative impacts on their credit reports. DFS also urges New York State-regulated financial institutions to furnish credit information in ways that minimizes negative impacts on consumers.
  • The COVID eviction moratorium has been extended until January 1, 2021. Residential tenants are protected from eviction if they are suffering from financial hardship due to the COVID-19 public health emergency under the Tenant Safe Harbor Act. Previous Executive Orders also prohibit charges or fees for late payments for tenants facing financial hardship. No New Yorker should be forced from his or her home as a result of COVID.
  • Effective 10-20-2020: The moratorium on commercial evictions is extended until May 1st. This measure extends protections already in place for commercial tenants and mortgagors in recognition of the financial toll the pandemic has taken on business owners, including retail establishments and restaurants. This date aligns with the moratorium on residential evictions. For official executive order, visit: Executive Order No 202.70: Continuing Temporary Suspension and Modification of Laws Relating to the Disaster Emergency 

Web: dfs.nys.gov

New York State Department of Health Bureau of Early Intervention – COVID-19 Guidance 

Web: health.ny.gov

New York State Department of Health Bureau of Early Intervention – Early Intervention Steps: A Parent’s Basic Guide to the Early Intervention Program (PDF Document, 28 pages is an online publication that provides more detailed information about the Early Intervention Program. Resources available in this booklet include tips for being an effective parent advocate, a checklist of important evaluation information, and sample letters to help parents exercise their due process rights. The booklet is available at: www.nyhealth.gov/publications/0532/index.htm in English and the following languages:

Web: health.ny.gov

New York State Department of Health – COVID-19 Symptom Check (PDF Document, 2 pages)
This is a card created to assist Medical Professionals and Deaf and hard of hearing individuals communicate better regarding assessment of COVID-19 symptoms.
Web: health.ny.gov

New York State Department of Health – COVID Alert NY
“Download the app to get COVID-19 exposure alerts and help protect your community while maintaining your privacy.”

New York State Department of Health – COVID Report Card
“New York school districts will be providing the Department of Health with daily data on the number of people who have tested positive for COVID-19. When the reporting starts to come back, the COVID Report Card will be live.”

New York State Department of Health – COVID-19 Testing

Web: coronavirus.health.ny.gov

New York State Department of Health – COVID-19 Tracker
Web: health.ny.gov

New York State Department of Health – COVID-19 Vaccine
A new web application will help New Yorkers determine if they are eligible to get the vaccine. By answering a series of simple questions, New Yorkers can find out if they are eligible for the vaccine and, if so, where to make an appointment. See if you’re eligible here.
Web: covid19vaccine.health.ny.gov

New York State Department of Health – COVID-19 Vaccine Equity Task Force
“The NYS COVID-19 Vaccine Equity Task Force is a dynamic group of community, policy and health experts who will assist the Governor in reducing barriers to vaccination and ensuring an equitable distribution of COVID-19 vaccine. The Task Force is made up of persons with expertise in addressing health equity for the purpose of reducing disparities among communities of color related to COVID-19 vaccination promotion, distribution, engagement and administration.”
Web: covid19vaccine.health.ny.gov

New York State Department of Health – COVID-19 Vaccine – I am Eligible App
Web-based app to determine if you are currently eligible to receive the COVID-19 vaccine in NYS.
Web: am-i-eligible.covid19vaccine.health.ny.gov/

New York State Department of Health – COVID-19 Vaccine – Phased Distribution of the Vaccine
New York is currently vaccinating Phase 1a and Phase 1b groups.
Web: covid19vaccine.health.ny.gov

New York State Department of Health – COVID-19 Vaccine – COVID-19 Vaccine Tracker
Data on New York State’s COVID-19 Vaccination Program, updated daily.
Web: covid19vaccine.health.ny.gov

New York State Department of Health – Disability and Health
Public Health Duty Officer Helpline 1-866-881-2809 (Use this number nights and weekends for public health emergencies, including communicable disease reports)
Department of Health Contacts (includes other phone numbers and helplines)
Web: health.ny.gov

New York State Department of Health – Expanded Guidelines for Nursing Home Visitations
New regulations on nursing home visitations will go into effect Friday, February 26. These full guidelines depend on a county’s COVID risk level, and continue to depend on the nursing home facility being free of COVID-19 cases for 14 days. For counties with COVID-19 positivity rates between 5-10 percent (on a 7-day rolling average), visitor testing is required and visitors must have a negative test before entry. For counties with COVID-19 positivity rates below 5 percent, visitor testing is strongly encouraged and rapid tests maybe be utilized. Alternatively, visitors may provide proof of a completed COVID-19 vaccination no less than 14 days from the date of the visit. Visitation was not be permitted if the county’s COVID-19 positivity rate is greater than 10 percent. Compassionate care visits are always permitted.

Translations

Previous Health Advisories on Facility Visitation:

Web: health.ny.gov

New York State Department of Health – Find Your Regional Food Bank
This map-based web page will assist you to find the regional food bank distributing food within Emergency Food Relief Organizations (EFROs); it is also recommended to visit this listing by county for other potential food sources.
Any philanthropies that would like to help the state’s food banks are asked to email COVIDPhilanthropies@exec.ny.gov.
Web: health.ny.gov

New York State Department of Health – Health Advisory: COVID-19 Updated Guidance for Hospital Operators Regarding Visitation (PDF Document, 3 pages)
Web: opwdd.ny.gov

New York State Department of Health – Health Advisory: Pediatric Multi-system Inflammatory Syndrome Temporally Associated with Covid-19 Interim Case Definition In New York State (PDF Document, 2 pages)
Web: health.ny.gov

New York State Department of Health – Health and Related Professionals Survey
NYS is requesting the assistance of additional qualified health and related professionals to temporarily supplement existing personnel to support less acute patients and provide support services.
Web: health.ny.gov

New York State Department of Health – Home and Community-Based Services Regarding COVID-19 (Update) (PDF Document, 4 pages)
This document provides agencies and organizations with information about home and community-based services as it relates to COVID-19, and provides updates to the March 16, 2020 guidance titled “Interim Guidance for Home Care Services Regarding COVID-19″ (PDF Document, 3 pages).
Web: health.ny.gov

New York State Department of Health – INTERIM GUIDANCE FOR PRIVATE AUTO TRANSPORTATION ACTIVITIES DURING THE COVID-19 PUBLIC HEALTH EMERGENCY (PDF Document – 12 pages)
“The State has issued updated guidance for taxis, for-hire vehicles and other transportation services. Drivers are encouraged to transport passengers with the windows down to increase ventilation, and to implement physical barriers between rider and driver, in addition to the mandatory mask wearing requirement for both drivers and passengers.”
Web: health.ny.gov

New York State Department of Health – Interim Advisory for In-Person Special Education Services and Instruction During the COVID-19 Public Health Emergency (PDF Document, 5 pages)
Web: health.ny.gov

New York State Department of Health – Interim Guidance for Graduation Celebrations During the COVID-19 Public Health Emergency (PDF Document, 4 pages)
Web: health.ny.gov

New York State Department of Health – Interim Guidance for Pools and Recreational Aquatic Spray Grounds During the COVID-19 Public Health Emergency (PDF Document, 2 pages)
Web: health.ny.gov

New York State Department of Health – Medicaid in New York State – COVID-19 Guidance for Medicaid Providers
Web: health.ny.gov

New York State Department of Health – Novel Coronavirus
Hotline: 1-888-364-3065

Web: health.ny.gov

New York State Department of Health – Novel Coronavirus – Food Pantries
This is a listing by county to find potential food sources; it is also recommended to visit this map-based web page to find your regional food bank distributing food within Emergency Food Relief Organizations (EFROs).
Web: coronavirus.health.ny.gov

New York State Department of Health – Pfizer/BioNTech COVID-19 Vaccine Vial Extra Doses- Guidance on the use of the New York State Immunization Information System (NYSIIS)
The Department of Health issued guidance on administering “extra” doses of the Pfizer COVID-19 vaccine from vials. COVID-19 vaccine providers have consistently been able to withdraw more than five doses from one five-dose vial of the Pfizer/BioNTech vaccine. As a result, after consulting with the FDA and the manufacturer, the State Department of Health issued guidance permitting vaccinators to withdraw more than five doses from a single vial, and to use any extra vaccine that can easily be drawn up in a syringe to meet the 0.3 milliliter dose requirement. But extra vaccine fluid from more than one vial cannot be combined to produce extra doses. (PDF Document – 4 pages)
Web: governor.ny.gov

New York State Department of Health – “surge and flex” protocol
In order to manage hospital capacity during this expected surge, New York State will begin implementing our “surge and flex” protocol. As part of this strategy, all hospitals must begin expanding their bed capacity by 25 percent. Hospital systems must also balance patient loads within their system to make sure no one hospital is overstressed. (In Spring, there was an issue with individual hospital overload, but not system-wide overload.)
Web: governor.ny.gov

New York State Department of Health – Third Party Testing Aid Vetting Questionnaire
“This questionnaire is for third parties offering goods and services to aid the State of New York’s testing capacity.”
Web: health.ny.gov

New York State Department of Health – Traveler Health Form
A travel enforcement program commenced July 14th at airports across the state to help ensure travelers are following quarantine protocols. Enforcement teams will be stationed at airports to ensure compliance with the mandatory State Department of Health traveler form, which is being distributed by airlines to passengers flying to New York State. Travelers who fail to provide their contact information will receive a summons with a $2,000 fine.
Web: forms.ny.gov

New York State Department of Health – Updated DOH/OPWDD COVID-19 Guidance Documents Related to Vaccine Prioritization
NYS Office for People with Developmental Disabilities (OPWDD) and Department of Health have available guidance on the COVID-19 vaccine prioritization for individuals with intellectual and developmental disabilities. General guidance on COVID-19 is also available.
Web: opwdd.gov.ny

New York State Department of Health – Updated Interim Guidance: Protocol for COVID-19 Testing Applicable to All Health Care Providers and Local Health Departments – Updated 4-26-2020 (PDF Document, 3 pages)
Web: health.ny.gov

New York State Department of Health – WIC Program – COVID-19 Update
Web: health.ny.gov

New York State Department of Health – What You Should Know About the Flu
Includes range of data on seasonal flu in NYS, including a flu tracker, displaying daily and weekly flu data and provides timely information about local, regional and statewide flu activity.
Web: health.ny.gov

New York State Department of Labor – Pandemic Unemployment Assistance (PUA) Program
NYS has launched a new unemployment program titled Pandemic Unemployment Assistance (PUA) which provides unemployment benefits for individuals who are ineligible for traditional unemployment insurance.

Web: labor.ny.gov

New York State Department of Public Service – Utilities to Suspend Disconnections for Households Facing Hardships During COVID-19 Outbreak (PDF Document, 2 pages)

New York State Department of Taxation and Finance – Economic Impact Payment Information: What You Need to Know
Web: tax.ny.gov

New York State Division of Consumer Protection
To report suspected price gouging, call 1-800-697-1220 or file a complaint online.
Web: dos.ny.gov/consumerprotection

New York State Education Department – Cancellation of the January 2021 Administration of the New York State (NYS) High School Regents Examination Program in Response to the Ongoing Impact of the COVID-19 Pandemic (PDF Document – 3 pages)
This memorandum provides guidance regarding the cancellation of the January 2021 administration of the Regents Examinations
Web: nysed.gov

New York State Education Department – Continuity of Learning: Technology Options
General Information: (518) 474-3852
Frequently Requested Contact Information
Web: nysed.gov

New York State Education Department – Coronavirus (COVID-19)
General Information: (518) 474-3852
Frequently Requested Contact Information
The Board of Regents and the New York State Education Department (NYSED) are providing information and guidance for P-12 schools, colleges and universities, licensed professionals, adult education programs, and NYSED employees in response to the Novel Coronavirus (COVID-19).
Web: nysed.gov

New York State Education Department – Federal Coronavirus Response and Relief Supplemental Appropriations Act, 2021 (CRRSA Act) Funding

 

  • On December 27, 2020, the President signed into law the Coronavirus Response and Relief Supplemental Appropriations Act, 2021 (CRRSA Act).
  • New York State has been allocated $4 billion under a second Elementary and Secondary School Emergency Relief (ESSER) Fund. A minimum of 90% of these funds must be allocated to local educational agencies (LEAs), including charter schools that are LEAs. Individual LEA allocations will be calculated by NYSED using the relative shares of grants awarded under Title I, Part A of the Elementary and Secondary Education Act (ESEA) for the 2019-20 fiscal year. The CRRSA Act does not require that a portion of these funds be made available for providing equitable services to students and teachers in non-public schools.
  • New York State has been allocated $322.9 million under the second Governor’s Emergency Education Relief (GEER) Fund. Of the $322.9 million, $250.1 million is for a new Emergency Assistance to Non-Public Schools (EANS) grant program and the remaining $72.8 million is for the Governor to determine programming.
  • NYSED is working to develop application forms and LEA specific allocations for the ESSER funds. When the application and LEA allocation amounts are final, NYSED will ask LEAs to submit an application for the ESSER funds using our online Application Business Portal.

Web: nysed.gov

New York State Education Department – Provision of Services to Students with Disabilities During Statewide School Closures Due to Novel Coronavirus (COVID-19) Outbreak in New York State
“The Board of Regents and the New York State Education Department (NYSED) continue to work with our partners at the state, local, and federal levels to keep school leaders, educators and parents/guardians informed as the Coronavirus pandemic evolves.  The Office of Special Education is providing the following Covid-19 related guidance specific to students with disabilities.”

Web: p12.nysed.gov/specialed

New York State Education Department – Recovering, Rebuilding, and Renewing: The Spirit of New York’s Schools – Reopening Guidance
“This section of the NYSED website provides guidance to schools and districts with the flexibility they will need to develop and implement creative solutions to their unique, local circumstances. It describes the reopening actions schools must take and recommended best practices to be considered.”
Web: nysed.gov

NYSED – Sample School COVID-19 Testing Consent

New York State Education Department – School Health Examinations in Light of COVID-19 Pandemic
Web: nysed.gov

New York State Eduction Department – Update to the 2020-21 School Reopening – Instructional Models Report and Report of School Closure and Report of School Reopening for Approved Special Education Programs Guidance 

  • Approved Special Education Programs (ASEPs), including nonpublic schools with approved special education programs (853 Schools), State-Operated Schools, State-Supported Schools (4201 Schools), and approved private preschool special class and special class in an integrated setting programs, are authorized to participate in the 2020-21 School Year COVID-19 Snow Day Pilot Program which allows schools to shift to remote instruction for scheduled in-person session days that an ASEP would have otherwise closed due to a snow emergency.
  • To review and evaluate the snow day pilot program for possible future extension, ASEPs are now required to report days where a school site is closed for snow or weather conditions and whether the ASEP elected to provide remote instruction during such closure.  This report will be incorporated into the existing ASEP Report of School Closure and Report of School Reopening.
  • Questions may be directed to the Office of Special Education at OSEreopeningplan@nysed.gov

New York State Empire State Development – Economic Recovery and COVID-19 Loans for Small Businesses
Web: esd.ny.gov

New York State Empire State Development – Information Regarding Executive Orders for 100% Workforce Reductions to Combat COVID-19

Web: esd.ny.gov

New York State Empire State Development – EMPIRE STATE DIGITAL
“Connecting New York State-based small businesses with new customers, broader markets and bigger opportunities.”
Web: esd.ny.gov

New York State “Find Services” App
The State launched a new web application to help New Yorkers find state services and benefits in partnership with Google.org, to assist New Yorkers in locating appropriate services with one streamlined web application.
Web: findservice.ny.gov

New York State Health Foundation – COVID-19 Resources for Nonprofits and Community-Based Organizations
(212) 664-7656
Web: nyshealthfoundation.org

New York State Homes and Community Renewal – COVID Rent Relief Program

  • Effective 7/16/2020, renters impacted by the pandemic can apply to a new COVID Rental Assistance Program. The program will provide direct aid for tenants who lost income due to the COVID-19 pandemic and is funded through the Coronavirus Relief Fund, which is part of the CARES Act.
  • Please note the application period will be open through July 30. This program is not providing assistance on a first come, first served basis.
  • HCR has created a dedicated call center to provide residents with help Monday through Saturday, 8 a.m. until 7 p.m. Call the COVID Rent Relief Program Call Center at 1-833-499-0318 or email at covidrentrelief@hcr.ny.gov
  • If you are unsafe at home, contact the NYS Domestic & Sexual Violence hotline at 800.942.6906

Web: hcr.ny.gov

New York State Independent Living Council, Inc. (NYSILC) – Critical Needs Survey
This survey will assess the critical needs faced by New Yorkers with disabilities as impacted by the coronavirus. Collective survey results will better inform the public and providers of changing situations that may impact services. If you have any questions about the survey, contact us through NYSILC’s contact form or call (518) 427-1060 and leave a voicemail message. If you experience any difficulty accessing or completing the survey, contact us at the information provided above and we will assist you. We have a Word version of the survey available, with instructions, for anyone who has difficulty navigating Survey Monkey.”

New York State Multiple Systems Navigator
“Access health, education, human service and disability information on one easy website. Information on supports from multiple child and family serving systems. Developed by the Council on Children and Families and Funded by the Developmental Disabilities Planning Council.”
Web: msnavigator.org/

New York State of Health Marketplace
“The state is extending the special open enrollment period in the New York State of Health Plan Marketplace to May 15, 2021.”  Empire Plan, Medicaid and Child Health Plus are continuous enrollment.
Web: nystateofhealth.ny.gov

A NY State of Mind (Headspace)
Free mental health resources are available from Headspace. The company Headspace is offering free meditation and mindfulness exercises to educators, health care professionals, and New Yorkers who are out of work. (If you are unemployed, you can get a free one-year subscription to the Headspace app). Free curated content available for all New Yorkers continues to be available at headspace.com/ny.

Web: headspace.com

New York State Office for People with Developmental Disabilities: Our Response to the COVID-19 Pandemic
General Information – (866) 946-9733
Information Request or Complaint Form

Web: opwdd.ny.gov

New York State Office for the Prevention of Domestic Violence – Domestic Violence Support Hotlines

  • For the hotline number of your local domestic violence program, call the New York State Domestic and Sexual Violence Hotline at 1-800-942-6906, English & Español/Multi-language Accessibility.
  • Deaf or Hard of Hearing: 7-1-1
  • In NYC: 1-800-621-HOPE (4673) or dial 3-1-1 TDD: 1-800-810-7444
  • For a listing of domestic violence hotlines by county, visit the New York State Coalition Against Domestic Violence – New York State Domestic Violence Program Directory.
  • “NYS launched a new texting program and confidential service to help New Yorkers experiencing domestic violence. Unfortunately, there has been a rise in domestic violence reports during this pandemic. Abuse victims are often closely watched by their abuser, making these tools needed. We want you to know: You are not alone and you do not have to stay in a dangerous situation. We will help you. Text 844-997-2121 or visit www.opdv.ny.gov to confidentially chat with a professional at any time of day or night.”

Web: opdv.ny.gov

New York State Office of Addiction Services and Supports – Resources for Individuals and Families
“Information on accessing addiction services amid the COVID-19 pandemic.”
Web: oasas.ny.gov

New York State Office of the Attorney General – Fighting Medicaid and Nursing Home Patient Abuse and Neglect
File a complaint by calling 833-249-8499 or by completing this online form.

New York State Office of the Attorney General – Guidance on Coronavirus Resources and Warnings about Consumer Scams
General Helpline: 1-800-771-7755
TDD/TTY Toll Free Line:  1-800-788-9898
Healthcare Hotline: 1-800-428-9071
Medicaid Fraud Control Unit: (212) 417-5397
Web: ag.ny.gov

New York State Office of Mental Health – COVID-19 Billing Guidance for OMH-Licensed Clinic Programs (PDF Document,  3 pages)
Web: omh.ny.gov

New York State Office of Mental Health – COVID-19 Resources
Web: omh.ny.gov

New York State Office of Mental Health – Crisis Prevention

Emergency Assistance:

Hotlines:

  • Crisis Text Line: New York State has partnered with Crisis Text Line, an anonymous texting service available 24/7. Starting a conversation is easy. Text GoT5 to 741-741; the Governor also recently announced the state is partnering with the Kate Spade New York Foundation and Crisis Text Line to provide a 24/7 emotional support service for frontline health care workers. Workers can text NYFRONTLINE to 741-741 to access these emotional support services.
  • National Suicide Prevention Lifeline: If your life or someone else’s is in imminent danger, please call 9-1-1. If you are in crisis and need immediate help, please call: 1-800-273-TALK (8255) 
  • Domestic Violence: If you or someone else is in a relationship is being controlled by another individual through verbal, physical, or sexual abuse, or other tactics, please call: 1-800-942-6906

Crisis Services

  • Suicide Prevention If your life or someone else’s is in imminent danger, please call 9-1-1. If you are in crisis and need immediate help, please call (800) 273-8255, 24/7.

Web: omh.ny.gov

New York State Office of Mental Health – Emotional Support Helpline
1-844-863-9314
The Emotional Support Helpline provides free and confidential support, helping callers experiencing increased anxiety due to the coronavirus emergency. Staffed by volunteers, including mental health professionals, who have received training in crisis counseling, the helpline will accept calls daily from 8 a.m. to 10 p.m.

New York State Office of Mental Health – Mental Health Program Directory
“The Full Directory allows Users to search programs by County, City, Program Category, and Program Subcategory.”
Web: omh.ny.gov

New York State Office of Temporary and Disability Assistance – SNAP COVID-19 Information
UPDATE – “We are taking action to reduce food insecurity among community college students, older adults and disabled New Yorkers. Food insecurity has increased due to COVID, and New York is responding. Today’s actions expand eligibility for SNAP (food stamps) to up to nearly 75,000 low-income college students enrolled in career or technical education course work. Food insecurity affects a wide breadth of low-income New Yorkers and we have an obligation to help in their time of need.”
Web: otda.ny.gov

New York State Parent Portal – Coronavirus – Resources for Parents 
“Parenting tips, activities and information on how to talk to your children about the Coronavirus.”
Web: nysparenting.org

New York State Parks, Recreation and Historic Preservation – COVID19 Updates

  • COVID-19 UPDATE: New York State Parks are currently open. If you plan on visiting, please wear a face covering and maintain safe social distance. Park density limits are in effect, so have an alternate plan ready in case the park you are visiting reaches capacity.” Visit parks.ny.gov for Park Capacity Alerts
  • Parks Explorer App – “The New York State Office of Parks, Recreation and Historic Preservation has launched a mobile app to provide visitors and prospective visitors helpful information about the variety of destinations, activities and adventures available throughout the Empire State’s state parks and historic sites”
  • State Parks with outdoor pools

Web: parks.ny.gov

New York State Senator Thomas O’Mara’s “One-Stop Webpage” to Access COVID-19 Information
Albany Office: (518) 455-2091
District Office: (607) 735-9671
Satellite Office: (607) 776-3201
Web: nysenate.gov/senators/thomas-f-omara

The New York Times
Sign up to read articles and/or to access a newsletter about the coronavirus for free.
Web: nytimes.com

New York University Center for Disability Studies – Disability Justice and COVID-19 Resources
NYU CDS has compiled disability justice resources for nondiscrimination in education and healthcare during the COVID-19 crisis.
Web: disabilitystudies.nyu.edu

Niagara University First Responders Disability Awareness Training – COVID-19 Resources
“We are the nation’s premier training program and resource for first responders to best serve & respond to individuals with disabilities”
Join their weekly email list, as they share many timely events and resources on COVID-19 for first-responders.
Web: frdat.niagara.edu/

Office of the New York State Comptroller – COVID-19 Financial Survival Toolkit for New Yorkers
Web: osc.state.ny.us

Parent to Parent of New York State
(518) 381-4350 or 1-800-305-8817

  • Caregiver Connections—New Virtual Parent/Family Support Meetings will be hosted via Zoom (for more information or if you have questions, please email: smarrella@ptopnys.org)
  • Text4Caregiversfree support service distributing timely and relevant self-care and stress-management support for family caregivers through text messaging. Subscribe in either English or Spanish
  • Several more webinars have been scheduled for April and May. Visit the Statewide Events section of the Parent to Parent website for more information and to register.

Preparing Individuals with Intellectual/Developmental Disabilities for Medical Treatment at HospitalsForm for NYS [PLEASE NOTE: The information and forms on this website are for general informational purposes only and should not be relied upon as a basis for any medical, legal or business decision. Any reliance placed on such information shall be at the user’s own risk].
Web: you.stonybrook.edu

Project Access for All – Community Survey on How COVID-19 is Impacting the Arts and Education in New York City
“Project Access coordinated by Art Beyond Sight is requesting your participation in monitoring the impact of Coronavirus (COVID-19) on the arts and education field. We value your input and will use it to create public awareness and guide policy, resources, and program development for dance makers and organizations based in the metropolitan New York City area.”

Project Connect: Disability Support Phone Line
A collaborative effort of The Arc of California and the Stony Brook University School of Social Welfare, this new service has been created in the midst of the COVID-19 pandemic to make mental health support more accessible for anyone who needs assistance.
Project Connect is available by calling 888-847-3209.

Queens Public Library – #QueensCOVID
“The Queens Memory COVID-19 Project is making a lasting record of how we are living, working, learning, and helping one another in Queens during the COVID-19 pandemic. Through first-person stories, it captures the state of mind and reality we are experiencing from one day to the next. This selection includes contributions from the first weeks of citywide shutdown.”
Web: qplnyc.urbanarchive.me

Self-Advocacy Association of New York State (SANYS)
(518) 382-1454 (general inquiries)
Find Your Regional Office
Web: sanys.org

Special Education Task Force – Virtual Training: Coping with the Challenges of Remote Learning: Maintaining Social Relationships, Reducing Trauma, and Building Resiliency
“COVID-19 has flipped everyone’s world upside down. For parents, teachers, and school administrators, it can be difficulty adjusting to the “new normal” of remote learning. Please join us to learn about how school districts, large and small, are adjusting to support their students with disabilities, tips and techniques for parents to help their child keep up on remote assignments, resources for students, parents, and district staff to support and supplement remote learning, and how to blend resiliency characteristics into academic lessons and conversations.”

Spectrum Internet Assist
“Get high-speed internet at an affordable price. Spectrum Internet Assist is available exclusively to qualified households.”
Download their application or contact your local provider to see if you qualify:

Web: spectrum.com

State of New York Unified Court System – Memorandum on Updated Protocols, March 15, 2020 (PDF Document, 9 pages)
“In light of further recent developments in the coronavirus public health emergency in New York State, please be advised of the following updated operational protocols for the trial courts of the Unified Court System, as well as all other UCS offices.”
Web: www1.nyc.gov

Strong Center for Developmental Disabilities – Masks Toolkit
Tips to help children manage wearing masks during the pandemic.
Web: https://www.urmc.rochester.edu/

State University of New York – SUNY – COVID-19 Case Tracker
“A live, up-to-date dashboard that provides data on COVID-19 testing and other vital information at each of our 64 colleges and universities. The data is reported by individual campuses every 24 hours. The data can be viewed on a system-wide or campus by campus level.”
Web: suny.edu

State University of New York – SUNY – The Future of Pandemic Response
The SUNY Prepare Innovation and Internship Program will provide $10,000 for students and faculty who want to develop innovative alternatives to the PPE our frontline workers need as we continue the fight against COVID-19. Applications are open to students and faculty at all SUNY state operated and Community College campuses, and SUNY is accepting applications through November 15th and the first grant will be awarded December 15th.”
Web: suny.edu

Tech Kids Unlimited (TKU) – Free Virtual Parent Talks
“Tech Kids Unlimited (TKU) is a NYC-based not-for-profit organization that teaches computer science thinking and technology to kids who learn differently.”
There are also many online resources available for educators, parents, and disabled teens.
Web: techkidsunlimited.org

United for Brownsville (UB) – Brooklyn COVID-19 & Community Resource Guide
Web: unitedforbrownsville.org

Vaccinate NY
The New York State Department of Health hosted a webinar for all people eligible to receive the COVID-19 vaccine on 1/11/2021 to help answer any questions.
Web: dreamlab.com/vaccinateny

Verizon – Lifeline Discount Program
Qualifications for the Lifeline discount program vary by state and region. Only eligible customers may enroll (there are specific income and other qualifications that need to be met for this program). Due to COVID-19 there are many self-installation and technician assisted options, or you can schedule to have a technician come into your home at a later date when it is safe. Contact Verizon for set up availability in your area.
Web: Verizon.com

Wash Your Hands Song: 20 Seconds or More (YouTube video)
New York State and Hip Hop Public Health have partnered together to remind you to wash your hands for ‘20 Seconds or More.’  In collaboration with DJ Doug E. Fresh and a crew of hip hop legends, Hip Hop Public Health has created a fun educational video teaching New Yorkers how to stay safe and stop the spread of Coronavirus.” Watch the video and learn more about the campaign.
Web: YouTube.com

Wear a Mask
New Yorkers were asked to help communicate why it is so important to wear a mask to stop the spread of coronavirus. More than 600 submissions were collected from New Yorkers across the state as part of the “Wear a Mask New York Ad Contest.” New Yorkers are being asked to choose their favorite from the five finalists included online. Voting closes May 25th. Winners will be announced May 26th.
Web: coronavirus.health.ny.gov

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