Universal Design

OIPO Disability Abstracts: Design

This literature review contains relevant material across several disciplines taking into account the interrelationship of design and disability. Included are books, articles, and other resources on topics such as:

  • Disability interaction (DIX)
  • Geography, inclusive and accessible architecture, and the built environment
  • Inclusive design and inclusive design education
  • Makerspaces
  • Participatory and inclusive research, co-production, co-design, co-creation, and methodologies
  • Social media, technology and web accessibility
  • Universal design
  • User involvement and user experience

Updated 10/24/2024

Allen, M. (2021, February 10). Designing for Disability Justice: On the need to take a variety of human bodies into account. Harvard University Graduate School of Design News Cambridge, MA. 

“Disability ought to be an exciting subject for architects: it’s about lived experience, problem solving, and designing a better built environment. While the topic engages with critical theory and aspirations for collective life, it’s often seen as a field that requires checking boxes and fulfilling requirements, or worse, a touchy subject strewn with outdated terms and outmoded habits of thought. The typical routines of design don’t always take the variety of human bodies into account. But I recently had the chance to talk to four practitioners who are changing minds and moving the field forward: Aimi Hamraie is associate professor of Medicine, Health, and Society and American Studies at Vanderbilt University; Sara Hendren (MDes ’13) is a professor at Olin College and the author of What Can a Body Do?; Sierra Bainbridge is senior principal and managing director at MASS Design Group; and Jeffrey Mansfield (March ’14) is a design director at MASS.”

Aniyamuzaala, J.R. (2023). Inclusion of persons with disabilities by design: From product centered to justice and person centered inclusive co-design. In M. H. Rioux, J. Viera, A. Buettgen, & E. Zubrow (Eds.), Handbook of disability: Critical thought and social change in a globalizing world (pp. 1-16). Singapore: Springer. DOI: https://doi.org/10.1007/978-981-16-1278-7_51-1.

Persons with disabilities and their needs were excluded by design according to the article 2 of the Convention on the Rights of Persons with Disabilities. The review of the literature and secondary data revealed the three inclusive design school of thoughts and practices, and these included the following: The Canadian, the United Kingdom (UK), and the Technology Industry’s Inclusive Design school of thoughts and practices. The qualitative critical analysis of the three inclusive design school of thoughts resulted into the Justice and Person Centered Inclusive Co-Design (JPCICD) as the fourth inclusive design school of thought and practice. The JPCICD expands on the Canadian inclusive design school of thought and practice to comprehensively cover justice, equity, and human diversity dimensions of design. The JPCICD shifted the focus of inclusive design from product and market system to person’s social, political, economic, cultural, and technological justice or total justice. It also considers the equity principle in its definition. The JPCICD was developed based on the foundation of the human rights and justice principles such as equity and equality human diversity, freedom of choice, and others. JPCICD focuses on equitable distribution of resources and power to the diverse excluded persons with disabilities by design.

Anonymous 1, Anonymous 2, Anonymous 3, Herd, N., Anonymous 4, & Kalifer, D. (with support from Erin Kuri and Ann Fudge Schormans) (2022) Justice vs. injustice: Poetic dialogue about the meaning of Disability Justice among people labelled/with intellectual disability. In P. D. C. Bones, J. Smartt Guillion, & D. Barber (Eds.), Redefining Disability [Personal/Public Scholarship Series Vol. 12] (pp. 84–89). Boston: Brill. DOI: https://doi.org/10.1163/9789004512702_013

“The DiStory project is a multi-year, multi-generational inclusive project in which co-researchers labelled/with an intellectual disability have been collaborating with non-labelled academic and community-based co-researchers to design, develop, and conduct a project whose primary purpose is the co-production of knowledge and development of teaching materials for postsecondary students about the lives of people labelled/with intellectual disabilities. (We use the language labelled/with in recognition of the heterogeneity of people understood to have intellectual disability and of the hurtful impacts being labelled can have on people’s lives.)

Co-researchers labelled/with intellectual disabilities include survivors of Ontario’s large-scale institutions, as well as younger generations of people labelled/with intellectual disabilities. This was by design. It is a means of preserving and sharing survivors’ history of institutional ‘care’ with younger generations of people labeled/with intellectual disabilities who, while never incarcerated in these institutions, nonetheless experience institutionalized care and ongoing experiences of discrimination and violence. It was intended as well to challenge perceptions that the closure of institutions has meant that life is now ‘better’ for people labelled/with intellectual disabilities. Instead, it makes plain that while large-scale institutions may, at this moment, be closed in Ontario, institutions and such forms of care continue, and living ‘in the community’ is no guarantee of a ‘good life’ of one’s choosing.

In what follows, the co-researchers labelled/with intellectual disabilities re-define disability using a framework of disability justice. They do so by using a form of poetic dialogue to contrast meanings of disability (in particular, ‘intellectual disability’) as articulated in their understandings of ‘disability justice’ and its converse—’disability injustice’” (pp. 84-85).

DREEM: Moving from Empathy to Enculturation in Disability Related Human-Centered Design

Baltaxe-Admony, L. B., Duval, J., & Ringland, K. E. (2024). DREEM: Moving from Empathy to Enculturation in Disability Related Human-Centered Design. In ASSETS ’24: Proceedings of the 26th International ACM SIGACCESS Conference on Computers and Accessibility, Article No. 50, 1-17. New York: DOI: https://doi.org/10.1145/3663548.3675642.

Empathy-building, the first stage in human-centered design, often involves methods that inadvertently reinforce negative stereotypes and biases toward disabled communities. In this work, we introduce a new method: Disability-Related Empathy from Existing Media (DREEM). This method focuses on enculturation rather than traditional ideas of empathy. DREEM leverages media created by disabled individuals to facilitate a deeper, culturally informed understanding. Cultural content is rich with authentic perspectives and tacit design knowledge from people with disabilities. Our four-step process includes (1) discovering relevant media, (2) close reading, (3) reflective journaling, and (4) aggregation of insights. In this article, we present our process of creating DREEM using research through design in multiple research and education contexts. Our findings show that DREEM can be applied in both design classrooms and research contexts to foster a more nuanced understanding of disability for newcomers to the space.

Bayor, A. A., Brereton, M., Sitbon, L., Ploderer, B., Bircanin, F., Favre. B., & Koplick, S. (2021, June). Toward a competency-based approach to co-designing technologies with people with intellectual disability. ACM Transactions on Accessible Computing, 14(2), 6. DOI: https://doi.org/10.1145/3450355

Ability-based design is a useful framework that centralizes the abilities (all that users can do) of people with disabilities in approaching the design of assistive technologies. However, although this framework aspires to support designing with people with all kinds of disabilities, it is mainly effective in supporting those whose abilities can be clearly defined and measured, in particular, physical and sensory attributes of ability. As a result, the ability-based design framework only provides limited guidance to design with users with intellectual disability, whose cognitive, physical, sensory, and practical abilities vary along a spectrum. In this article, we reflect on a long-term co-design study where we leveraged what we termed “competencies,” i.e., the representative practical skills people develop from their participation in life activities, in particular, mainstream technologies, such as social media and the Internet. Our reflection is based on our experience in designing SkillsTube, a web application we co-designed with young adults with intellectual disability to support them to learn life skills through videos. The app’s design, which explored and leveraged their social media participation competencies, supported the fundamental participation of all participants and their peers. Their familiarity with the app’s social media-inspired design features fostered confidence in their participation, usability, and engagement. Drawing on the findings and design process of the app, we discuss a Competency-based approach to designing with people with disabilities that extends upon ability-based design, by grounding it in user competencies.

Bennett, C. L., Peil, B., & Rosner, D. K. (2019, June). Biographical prototypes: Reimagining recognition and disability in design. In DIS ’19: Proceedings of the 2019 on Designing Interactive Systems Conference (pp. 35–47). DOI: https://doi.org/10.1145/3322276.3322376.

This paper aims to elevate stories of design by people with disabilities. In particular, we draw from counter-storytelling practices to build a corpus of stories that prioritize disabled people as contributors to professional design practice. Across a series of workshops with disabled activists, designers, and developers, we developed the concept of biographical prototypes: under-recognized first-person accounts of design materialized through prototyping practices. We describe how the creation of such prototypes helps position disabled people as central contributors to the design profession. The artifacts engendered an expanded sense of coalition among workshop participants while prompting reflection on tensions between recognition and obligation. We end by reflecting on how the prototypes-and the practices that produced them-complement a growing number of design activities around disability that reveal complexities around structural forms of discrimination and the generative role that personal accounts may play in their revision.

Blanchard, E. (2022). Cripping assistive tech design: How the current disability framework limits our ability to create emancipatory technology. In T. Borangiu, D. Trentesaux, P. Leitão, O. Cardin, & L. Joblot (Eds.), Service Oriented, Holonic and Multi-agent Manufacturing Systems for Industry of the Future SOHOMA 2021 [Studies in Computational Intelligence, vol 1034] (pp. 377-388). Cham, Switzerland: Springer. DOI: https://doi.org/10.1007/978-3-030-99108-1_27

Recent advances in assistive technologies have blurred the lines between compensating for impairments — for disabled users — and augmenting capabilities — such as with cobotic systems. This article examines how assistive technologies generally seek to compensate for a single deficiency, as opposed to being more generalist tools meant to improve the lives and autonomy of (not necessarily) disabled users. It starts with a brief presentation of the different frameworks used to model disability in the social sciences, and how some of these frameworks could be used to boost creativity in the design of assistive devices. It then showcases a series of examples where innovative design ideas allowed for devices that go beyond trying to fix disability and instead liberate their users. The article concludes with a reflection on the ethical interactions between transhumanism and disability, as well as the possibilities created by new distributed design/construction networks affiliated with open-source/open-design models. This reflection can serve as a basis for a discussion about the necessary evolution of industrial practices in the design of assistive technologies, no matter whether they are designed to compensate impairments or augment capabilities.

Cerdan Chiscano, M. (2021). Giving a voice to students with disabilities to design library experiences: An ethnographic study. In G. Wolbring (Ed.), Ability Expectation and Ableism Studies (Short Ability Studies) [Topical Collection]. Societies, 11(2), 61. DOI: https://doi.org/10.3390/soc11020061

Although librarians generally display an inclusive management style, barriers to students with disabilities remain widespread. Against this backdrop, a collaborative research project called Inclusive Library was launched in 2019 in Catalonia, Spain. This study empirically tests how involving students with disabilities in the experience design process can lead to new improvements in users’ library experience. A mix of qualitative techniques, namely focus groups, ethnographic techniques and post-experience surveys, were used to gain insights from the 20 libraries and 20 students with disabilities collaborating in the project. Based on the participants’ voices and follow-up experiences, the study makes several suggestions on how libraries can improve their accessibility. Results indicate that ensuring proper resource allocation for accessibility improves students with disabilities’ library experience. Recommendations for library managers are also provided.

Chang, Y., Sitbon, L., & Simpson, L. (2021, October). Towards a secured and safe online social media design framework for people with intellectual disability. In ASSETS ’21: The 23rd International ACM SIGACCESS Conference on Computers and Accessibility, Art. No.: 91, 1–4. DOI: https://doi.org/10.1145/3441852.3476540

This paper aims to create a tangible design framework for practitioners to follow when designing an online social media platform for individuals with intellectual disability. Currently, legislation and best practice consider cyber security and safety for the general public, giving particular attention to the protection of children. However, despite the support in health care, financial assistance, and education, individuals with intellectual disability are rarely considered when it comes to cybersafety. To achieve inclusivity, an integrative review was conducted to make connections between disciplines of education and information technology and law. The process was split into three phases: (i) understanding the challenges those with intellectual disability face, both when using a social media interface and when evaluating safety risks; (ii) identifying gaps and understanding the implications for persons with intellectual disability from legislative and design and design principles; and (iii) visualisation of data flow to model interactions. In conclusion, an inclusive framework is proposed for practitioners when designing online social media platforms for people with intellectual disability.

Coleman, D., & Trudelle, M. (2019). How to make design thinking more disability inclusive. Stanford Social Innovation Review. DOI: https://doi.org/10.48558/BSDF-A033

A three-tiered framework for making human-centered design more inclusive of people with disabilities can help organizations improve their own programs.

Cook, L., Rothstein, P., Emeh, L., Frumiento, P., Kennedy, D., McNicholas, D., Orjiekwe, I., Overton, M., Snead, M., Steward, R., Sutton. J. M., Bradshaw, M., Jeffreys, E., Charteris, S., Ewans, S., Williams, M., Grierson, M., & Chapko, D. (2021, September). In the physical to digital transition with friends—A story of performing inclusive research together no matter what life throws at you. In I. Strnadová, J. Loblinzk, M. L. Wehmeyer (Eds.), Transitions in the Lives of People with Intellectual Disability [Special Issue]. British Journal of Learning Disabilities, 49(3), 271-281. DOI: https://doi.org/10.1111/bld.12408

Background: As part of “The Hub” project at Wellcome Collection, a team of eight co-researchers with learning disabilities along academics created an online survey to challenge public understanding of learning disabilities. Using creative and arts-based methods, co-researchers remotely co-analysed the survey results amid COVID-19 lockdown challenges. Here, we explore our unexpected “transition” journey from the physical “Hub” to the digital space.

Methods: We organised 20 sessions at The Hub and used audio/video/photo recordings to capture key moments. With the lockdown, we ensured that every co-researcher had access to and support for digital technologies. Throughout 2020, we organised 28 Zoom meetings involving all co-researchers. In June, Lilly (a multi-media journalist and she lives by the motto striving for equal opportunities for people with disabilities and fairness throughout) and Sue (an independent Leadership Coach and Mentor) conducted Zoom interviews with the co-research team to reflect on our transition journey. In this creative video-form submission accompanied by an accessible report, Lilly puts together a story of how we transitioned and felt throughout this process.

Findings: We identify that trust and the social bonds established at The Hub are the key components of our transition to the digital environment. There is the tension between longing for in-person contact and trying to make the most out of the situation to maintain these relationships. At the heart of this is the motivation to “change the world” and strive for social justice. Having time and opportunity to improve, and co-researchers’ steady growth in confidence are equally important.

Conclusions: The determination for maintaining friendships among co-researchers and the motivation to “change the world” overcome COVID-19-related challenges in continuing co-research.

Accessible summary:

  • We are members of an arts organisation who support the creative talents of people with learning disabilities and autistic people.
  • We have been working on a research project at “The Hub” at Wellcome Collection in a team consisting of academic and nonacademic professionals with diverse abilities.
  • Because of coronavirus, we all had to stay home to stay safe. To carry on with our research project, we participated in 28 creative research meetings on Zoom.
  • In this paper and accompanying video, we will tell you how we did it. We will also tell you how we felt about moving away from “The Hub” and trying to do research remotely from home.
  • We hope our project has shown that people with learning disabilities can transition well to working online when there is trust and mutual respect.

Costanza-Chock, S. (2020, March). Design justice: Community-led practices to build the worlds we need. Cambridge, MA: The MIT Press.

What is the relationship between design, power, and social justice? “Design justice” is an approach to design that is led by marginalized communities and that aims explicitly to challenge, rather than reproduce, structural inequalities. It has emerged from a growing community of designers in various fields who work closely with social movements and community-based organizations around the world.

This book explores the theory and practice of design justice, demonstrates how universalist design principles and practices erase certain groups of people —specifically, those who are intersectionally disadvantaged or multiply-burdened under the matrix of domination (white supremacist heteropatriarchy, ableism, capitalism, and settler colonialism) — and invites readers to “build a better world, a world where many worlds fit; linked worlds of collective liberation and ecological sustainability.” Along the way, the book documents a multitude of real-world community-led design practices, each grounded in a particular social movement. Design Justice goes beyond recent calls for design for good, user-centered design, and employment diversity in the technology and design professions; it connects design to larger struggles for collective liberation and ecological survival.

The full text of Design Justice is Open Access.

Cottrell, C. (2020). Gentle House: Co-designing with an autistic perception. Co-constructing Body-Environments [Special Issue]. Idea Journal, 17(2), 105-20.  DOI: https://doi.org/10.37113/ij.v17i02.371.

This article discusses the early phases of Gentle House, a spatial design research project that works with concepts of autistic perception and a collaborative design process to renovate the home of a family of four. The family includes a ten-year-old autistic child who is currently being educated via correspondence schooling. In working alongside the family and understanding the uniqueness and complexity of their needs, the goal is to create spaces that are stimulating and enjoyable for them to live in.
The autistic child’s experience of the physical world is pathologised as sensory processing disorder. This is a condition where there are differences in the integration of sense modalities that can lead to moments of being overwhelmed by some stimulus and a more highly tuned receptivity to other stimuli, such as texture and smell. This design research rejects a pathological framework for characterising these experiences and uses co-design approaches with the aim of learning from his engagement with the world. In particular, his highly tuned awareness of phenomena that ‘neurotypical’ perception tends to tune out or overlook. The larger implication of this project and approach is a rethinking of our living and working environments towards sensorially richer and more inclusive ends.
The early phases of the project have involved a series of spatial, material, and sensory design prototypes, which are discussed in terms of their co-creation and the perceptual richness of space-time experiences. The design knowledge gleaned from these prototypes is briefly contextualised within existing frameworks for inclusive design, before outlining future trajectories for the research.

Davis, J. (2022). Accessibility in/as caring. In The caring city: Ethics of urban design (pp. 63-87). Bristol, UK: Bristol University Press. DOI: https://doi.org/10.51952/9781529201222.ch004.

I began to allude to the importance of accessibility in facilitating new patterns of care in the previous chapter, and the goal of this chapter is to consider in depth how urban design can mobilize notions of access to influence care needs, relations and practices. However, I begin the discussion with a quandary since two of the major goals of accessibility as constructed in the context of urban design theory have an uneasy relationship with the ideas of care and from the ethics of care which I have presented thus far. The first of these goals is personal autonomy. The accessibility of built form is often seen to shape the autonomy that people such as those with a mobility or sensory impairment have in looking after themselves and choosing how and where to live. The second goal is universality. The goal of accessible urban design, such as within the context of ‘universal design’ discourses, is seen to be the creation of city forms and places that are navigable by all, satisfying principles of inclusivity and equity (see, for example, Steinfeld and Maisel, 2012).

DePoy, E., & Gilson, S. (2010). Disability design and branding: Rethinking disability within the 21st Century. Disability Studies Quarterly, 30(2). DOI: https://doi.org/10.18061/dsq.v30i2.1247

“In this paper, we present our recent thinking about disability as disjuncture and the significant role that design and branding play in creating this ill-fit. However, simultaneously, design and branding provide the contemporary opportunity and relevant strategies for rethinking disability and social change, and healing disjuncture. As always, this thinking is a work in progress with invitation for criticism and dialogue. We begin by setting the chronological and intellectual context that informs our ideas. We then clarify Disjuncture Theory and link design and branding to revisioning a globe in which disjuncture is healed by contemporary relevant theorizing and praxis.”

Dokumaci, A. (2018). Disability as method: Interventions in the habitus of ableism through media-creation. In H.Thompson & V. Warne (Eds.), Blindness Arts [Special Issue]. Disability Studies Quarterly, 38(3). DOI: https://doi.org/10.18061/dsq.v38i3.6491

In this article, I share and reflect on a research-creation video that introduces what I call ‘disability as method’ to critical disability and media studies. The video draws on a year-long visual ethnography, during which I collaborated with a blind and a physically disabled participant to explore the specificities of their mobility experiences in the city of Montreal. In making this video, I use the affordances of filming and editing in creative ways both to explore what access could mean to differently disabled people in the space of the city and to reimagine new possibilities of media-making informed by blindness gain. To this end, I introduce a new audio description (AD) technique by using stop-time as crip-time, and deploying AD not only as an accessibility feature but also as a blind intervention in the creative process of filmmaking itself.

Also available are Supplementary Video Resources for this article.

Doucet, M., Pratt, H., Dzhenganin, M., & Read, J. (2022, August). Nothing About Us Without Us: Using Participatory Action Research (PAR) and arts-based methods as empowerment and social justice tools in doing research with youth ‘aging out’ of care. In D. Collin-Vézina & M. Sebrena Jackson (Eds.), Relations at the Hearth of Foster Children, Youth and Families Wellness [Special Issue]. Child Abuse & Neglect, 130(3), 105358. DOI: https://doi.org/10.1016/j.chiabu.2021.105358

Child welfare practices and policies are often disconnected from youth in care’s perspectives and lived realities. Youth ‘aging out’ of care should be empowered to define their own needs, goals and success based on the unique context they are transitioning from. In research, this can be supported by engaging them as co-researchers through emancipatory approaches.

Participatory Action Research (PAR) requires collaboration with those who are affected by the issue being studied in all aspects of the research, with the aim to build advocacy capacity and affect transformative social change. Photovoice employs photography and group dialogue – the fusion of images and words – as an empowerment tool, through which individuals can work together to represent their own lived experiences rather than have their stories told and interpreted by others. This is a particularly powerful approach in engaging youth with care experience, as they are often systemically disenfranchised, isolated and in need of connections to the community.

This article presents the Relationships Matter for Youth ‘Aging Out’ of Care project, a Participatory Action Research (PAR) photovoice research project with young people with lived experience, as a case study. The project aimed to take a closer look at the relationships that matter to youth from care and how they can be nurtured over time. Narratives about the experience of participating in the project are also featured, from the perspectives of three of the youth co-researchers. Some of the benefits, challenges and lessons learned are also explored, framed within the Relationships Matter project methodology and process. Recommendations for future social work research are also presented.

Fletcher, V., Bonome-Sims, G., Knecht, B., Ostroff, E., Otitigbe, J., Parente, M., & Safdie, J. (2015, January). The challenge of inclusive design in the US context. Applied Ergonomics, 46(B), 267-273. DOI: https://doi.org/10.1016/j.apergo.2013.03.006.

The paper considers the evolution of thinking and practice of inclusive design in the United States since 1993, the year of the first special edition of Applied Ergonomics on inclusive design. It frames the examination initially in terms of the US social mores that substantially influence behavior and attitudes from a defining individualism to legal mandates for accessibility to the nation’s ingrained obsession with youth and delusional attitudes about aging. The authors explore the disparate patterns across the design disciplines and identify promising linkages and patterns that may be harbingers of a more expansive embrace of inclusive design in the years ahead.

Foley, K., Attrill, S., & Brebner, C. (2021). Co-designing a methodology for workforce development during the personalisation of allied health service funding for people with disability in Australia. BMC Health Services Research, 21, 680. DOI: https://doi.org/10.1186/s12913-021-06711-x

Background: Internationally, health and social services are undergoing creative and extensive redesign to meet population demands with rationed budgets. This has critical implications for the health workforces that serve such populations. Within the workforce literature, few approaches are described that enable workforce development for health professions in the service contexts that emerge from large scale service redesign in times of industry shift. We contribute an innovative and robust methodology for workforce development that was co-designed by stakeholders in allied health during the personalisation of disability funding in Australia (the introduction of the National Disability Insurance Scheme).

Methods: In the context of a broad action research project, we used program logic modelling to identify and enact opportunities for sustainable allied health education and workforce integration amidst the changed service provision context. We engaged with 49 industry stakeholders across 92 research engagements that included interviews (n = 43), a workshop explicitly for model development (n = 8) and a Project Advisory Group (n = 15). Data from these activities were inductively coded, analysed, and triangulated against each other. During the program logic modelling workshop, we worked with involved stakeholders to develop a conceptual model which could be used to guide trial and evaluation of allied health education which was fit-for-purpose to emerging workforce requirements.

Results: Stakeholder interviews showed that drivers of workforce design during industry shift were that (1) service provision was happening in turbulent times; (2) new concerns around skills and professional engagement were unfolding for AHP in the NDIS; and (3) impacts to AHP education were being experienced. The conceptual model we co-designed directly accounted for these contextual features by highlighting five underpinning principles that should inform methodologies for workforce development and AHP education in the transforming landscape: being (1) pedagogically sound; (2) person- or family-centred; (3) NDIS compliant; (4) informed by evidence and (5) having quality for all. We use a case study to illustrate how the co-designed conceptual model stimulated agility and flexibility in workforce and service redesign.

Conclusions: Proactive and situated education of the emerging workforce during policy shift is essential to realise future health workforces that can appropriately and effectively service populations under a variety of changing service and funding structures – as well as their transitions. We argue that collaborative program logic modelling in partnership with key stakeholders including existing workforce can be useful for broad purposes of workforce (re)design in diverse contexts.

Forlano, L. (2021). Dispatches on humanity from a disabled cyborg. In S. Maffei (Ed.), Galaxy of Design Research [Feature Issue]. Diid disegno industriale industrial design No. 75, 7. DOI:  https://doi.org/10.30682/diid7521g

This essay engages with the more than human from the perspective of the disabled cyborg in order to explore themes around human-machine relations and pluriversal design in the context of hundreds of years of dehumanization. Drawing on my own experiences with “smart” medical devices I argue for the value of autoethnographic accounts and praxis as a mode of expanding who can participate in the production of knowledge as well as in the field of design. In the quest for new design practices around the more than human, I ask who is missing from these conversations and why?

Fraser-Barbour, E., Robinson, S., Gendera, S., Burton-Clark, I., Fisher, K. R., Alexander, J. & Howe, K. (2023). Shifting power to people with disability in co-designed research. Disability & Society. DOI: https://doi.org/10.1080/09687599.2023.2279932.

This paper explores tensions navigated by researchers and project leaders when involving people with disability as experts in co-design and in the core team. Part of an evaluation aiming to improve paid employment of people with intellectual disability is used to consider this work. Assemblage analysis of the data assisted in identifying a range of material and social conditions, flows, and factors that de- and re-territorialise power in the co-design process. The expertise of people with disability informed research design. Structural conditions of funding and institutional support were foundational to the co-design. These included accessible practices, core roles for people with disability and resolving ableist conditions. Power shifts were easily undermined by institutionalised norms that disrespected the co-design contributions. When people in decision-making positions and allies recognised the value of codesigning research, it was key to centring valuable knowledge in articulating key issues, methodology, and analysis.

Froehlich, J. E., Brock, A. M., Caspi, A., Guerreiro, J., Hara, K., Kirkham, R., Schöning, J., & Tannert, B. (2019, March-April). Grand challenges in accessible maps. Interactions, 26(2), 78–81. DOI: https://doi.org/10.1145/3301657

In this forum we celebrate research that helps to successfully bring the benefits of computing technologies to children, older adults, people with disabilities, and other populations that are often ignored in the design of mass-marketed products.

Fudge Schormans, A., Wilton, R., & Marquis, N. (2019, September). Building collaboration in the co-production of knowledge with people with intellectual disabilities about their everyday use of city space. In L. Holt, J. Jeffries, E. Hall & A. Power (Eds.), Geographies of Co-production: Learning from Inclusive Research Approaches at the Margins [Special Issue]. Area, 51(3), 415-422. DOI: https://doi.org/10.1111/area.12492

We engage with scholarship in participatory geographies and critical disability studies to consider the difficulties and prospects of co-producing knowledge with people with intellectual disabilities in a project examining their uses of urban public space. The research employed an inclusive, collaborative design and had an explicit focus on social change, articulated in the research process (e.g., the development of research and self-advocacy skills) and outcomes (e.g., lobbying to improve material conditions, challenging ableist assumptions about “intellectual disability”). Our analysis highlights three tensions: the time/spaces constraints faced in “slow” participatory work, the nature and duration of relationships among collaborators and the shifting relations of power and influence within the project. We reflect critically on how these tensions were negotiated and what lessons might be learned for participatory practice.

Galán, I. G. (2022, June). Unlearning ableism: Design knowledge, contested models, and the experience of disability in 1970s Berkeley. Journal of Design History, epac018. DOI:  https://doi.org/10.1093/jdh/epac018

This article explores the design pedagogies developed through the alliance between disability activists at the Center for Independent Living (CIL) and a number of faculty led by Raymond Lifchez at U.C. Berkeley in the 1970s and 80s. Founded by Bay Area activists including disabled students at U.C. Berkeley, the CIL provided a critical platform for advocacy and services within the disability community. In a number of seminars and studios, Lifchez and others followed the initiatives of the CIL, documented the transformation of the built environment by disabled individuals in Berkeley, and incorporated their experiences in the design process. Rather than approaching disabled individuals as bearers of special needs, a number of specific pedagogical strategies explored their expertise and resourcefulness and incorporated them as informants, consultants, and designers. Supported by archival sources, oral histories, and publications of the period, this article contributes to ongoing discussions concerning the relationship between design and the environmental and social construction of disabilities as well as to the definition of design and architecture expertise. These pedagogies critically mobilized models to advance partial and flexible design interventions and simultaneously transformed the classroom into a model that challenged the naturalization of able-bodiedness in the built environment.

Ganesh, K., & Lazar, A. (2021). The work of workplace disclosure: Invisible chronic conditions and opportunities for design. PACM on Human-Computer Interaction, 5(CSCW1), Article 73. DOI: https://dl.acm.org/doi/10.1145/3449147

Health disclosure at work is complicated for people with invisible chronic conditions. Due to the lack of visible symptoms, invisible conditions affect the work life of people in ways that are not obvious to others. This study examines how people disclose and conceal their conditions in the workplace and opens the design space for this topic. In the first phase, we analyzed posts on two subreddit forums, r/migraine and r/fibromyalgia, and found a range of strategies that individuals use to disclose or conceal their conditions. In the second phase, we created five technological design concepts based on these strategies that were shown to eight people with migraines or fibromyalgia in semi-structured interviews. Based on these phases, we contribute understandings of disclosure and concealment of invisible conditions in the workplace for future research, such as potential areas for intervention ranging from individual to societal level efforts, as well as the potential and limitations of relying on empathy from others.

Graeme. (2021, August 12). A11y and Neurodiversity in Design: Towards a more Inclusive Web. Prototypr Digest Issue #210. 

Curated list of articles on neurodiversity, accessibility and more with a focus on the web.

Groulx, M., Freeman, S, & Lemieux, C. (2022, March). Accessible nature beyond city limits – A scoping review. Journal of Outdoor Recreation and Tourism, 37. DOI: https://doi.org/10.1016/j.jort.2022.10049

The health and well-being benefits of nature contact are well known, but inequitably distributed across society. Focusing on the access needs of persons with a disability, the purpose of this study was to systematically examine research on the accessibility of nature-based tourism and recreation spaces outside of urban/community settings. Following a scoping review methodology, this study sought to examine policies, services, physical infrastructures, and regulatory standards intended to enable equitable use of nature-based settings by individuals of all ages and abilities, particularly persons with a disability. In total, 41 relevant studies were identified and analyzed. Findings indicate that there are considerable gaps in the provision of services and information that enable self-determination in the use and enjoyment of nature, and that accessibility in nature-based settings is conceptualized through three interrelated policy/design pathways: the adaptation pathway, the accommodation pathway, and the universal design pathway. As a whole, accessibility policy and standards research specific to natural settings outside of urban/community settings is highly limited.

Management implications: There are growing calls to promote inclusive nature experiences in tourism and recreation spaces outside of community settings. Management of such spaces must reconcile equity concerns with a host of other priorities like environmental conservation. In the case of promoting universal accessibility, few studies offer insight into the detailed standards that must be met to create barrier-free access, let alone how to integrate such standards with other management priorities. Transdisciplinary research partnerships that involve management personnel, environmental and public health researchers, and persons with a disability are needed to identify effective management synergies.

Guedes, L. S., Gibson, R. C., Ellis, K., Sitbon, L., & Landoni, M. (2022, October). Designing with and for People with Intellectual Disabilities. ASSETS ’22: Proceedings of the 24th International ACM SIGACCESS Conference on Computers and Accessibility, Article No.: 106. DOI: https://doi.org/10.1145/3517428.3550406.

People with intellectual disabilities often experience inequalities that affect the standard of their everyday lives. Assistive technologies can help alleviate some of these inequalities, yet abandonment rates remain high. This is in part due to a lack of involvement of all stakeholders in their design and evaluation, thus resulting in outputs that do not meet this cohort’s complex and heterogeneous needs. The aim of this half-day workshop is to focus on community building in a field that is relatively thin and disjointed, thereby enabling researchers to share experiences on how to design for and with people with intellectual disabilities, provide internal support, and establish new collaborations. Workshop outcomes will help to fill a gap in the available guidelines on how to include people with intellectual disabilities in research, through more accessible protocols as well as personalised and better fit-for-purpose technologies.

Guffey, E. (Ed.). After Universal Design: The Disability Design Revolution. New York: Bloomsbury Publishing.

How might we develop products made with and by disabled users rather than for them? Could we change living and working spaces to make them accessible rather than designing products that “fix” disabilities? How can we grow our capabilities to make designs more “bespoke” to each individual? After Universal Design brings together scholars, practitioners, and disabled users and makers to consider these questions and to argue for the necessity of a new user-centered design.

As many YouTube videos demonstrate, disabled designers are not only fulfilling the grand promises of DIY design but are also questioning what constitutes meaningful design itself. By forcing a rethink of the top-down professionalized practice of Universal Design, which has dominated thinking and practice around design for disability for decades, this book models what inclusive design and social justice can look like as activism, academic research, and everyday life practices today.

With chapters, case studies, and interviews exploring questions of design and personal agency, hardware and spaces, the experiences of prosthetics’ users, conventional hearing aid devices designed to suit personal style, and ways of facilitating pain self-reporting, these essays expand our understanding of what counts as design by offering alternative narratives about creativity and making. Using critical perspectives on disability, race, and gender, this book allow us to understand how design often works in the real world and challenges us to rethink ideas of “inclusion” in design.

Hamraie, A. (2013). Designing collective access: A feminist disability theory of universal design. In S. Tremain (Ed.), Improving Feminist Philosophy and Theory By Taking Account of Disability [Special Issue]. Disability Studies Quarterly, 33(4). DOI: https://doi.org/10.18061/dsq.v33i4.3871

Universal Design (UD) is a movement to produce built environments that are accessible to a broad range of human variation. Though UD is often taken for granted as synonymous with the best, most inclusive, forms of disability access, the values, methodologies, and epistemologies that underlie UD require closer scrutiny. This paper uses feminist and disability theories of architecture and geography in order to complicate the concepts of “universal” and “design” and to develop a feminist disability theory of UD wherein design is a material-discursive phenomenon that produces both physical environments and symbolic meaning. Furthermore, the paper examines ways in which to conceive UD as a project of collective access and social sustainability, rather than as a strategy targeted toward individual consumers and marketability. A conception of UD that is informed by a politics of interdependence and collective access would address the multiple intersectional forms of exclusion that inaccessible design produces.

Hamraie, A. (2016). Universal design and the problem of “post-disability” ideology. Design and Culture: The Journal of the Design Studies Forum, 8(3), 285-309. DOI: https://doi.org/10.1080/17547075.2016.1218714.

Although Universal Design gains popularity as a common sense strategy for crafting built environments for all users, accessibility for disabled people remains a marginal area of inquiry within design practice and theory. This article argues that the tension between accessibility and Universal Design stems from inadequate critical and historical attention to the concept of disability as it relates to discourses of “good design.” This article draws upon critical disability theory to reveal the persistence of “post-disability” narratives and “ideologies of ability” from the eugenics era into the present theory and practice of Universal Design.

Hamraie, A. (2017). Building access: Universal design and the politics of disability. Minneapolis: University of Minnesota Press.

Building Access investigates twentieth-century strategies for designing the world with disability in mind. Illustrated with a wealth of rare archival materials, this book brings together scientific, social, and political histories in what is not only the pioneering critical account of Universal Design but also a deep engagement with the politics of knowing, making, and belonging in twentieth-century United States.

Hamraie, A. (2018). Enlivened city: Inclusive design, biopolitics, and the philosophy of liveability. Built Environments, 44(1), 77-104. DOI: https://doi.org/10.2148/benv.44.1.77

Shortly after the United States announced its withdrawal from the Paris climate accords, mayors of global cities committed to addressing climate change via urban-scale projects aimed at promoting liveable, sustainable, and healthy communities. While such projects are taken for granted as serving the common good, this paper addresses the ideological dimensions of planning liveable cities with health promotion in mind. Liveability, I argue, is a normative ideology wherein liveliness and activation perform affective roles, associating urban design methods with feel-good imagined futures while rendering built structures as polemics against disabled and racialized populations. Using Nashville, Tennessee, a mid-sized US city, as a case study, the paper parses the progressive vision of the liveable city from the ideologies, political economies, and development practices that simultaneously activate some lives while excluding others.

Hamraie, A., & Fritsch, K. (2019). Crip technoscience manifesto. In K. Fritsch, A. Hamraie, M. Mills, & D. Serlin (Eds.), Special Section on Crip Technoscience. Catalyst: Feminism, Theory, Technoscience, 5(1), 1-34. DOI: https://doi.org/10.28968/cftt.v5i1.29607

As disabled people engaged in disability community, activism, and scholarship, our collective experiences and histories have taught us that we are effective agents of world-building and -dismantling toward more socially just relations. The grounds for social justice and world-remaking, however, are frictioned; technologies, architectures, and infrastructures are often designed and implemented without committing to disability as a difference that matters. This manifesto calls attention to the powerful, messy, non-innocent, contradictory, and nevertheless crucial work of what we name as ‘crip technoscience,’ practices of critique, alteration, and reinvention of our material-discursive world. Disabled people are experts and designers of everyday life. But we also harness technoscience for political action, refusing to comply with demands to cure, fix, or eliminate disability. Attentive to the intersectional workings of power and privilege, we agitate against independence and productivity as requirements for existence. Instead, we center technoscientific activism and critical design practices that foster disability justice.

Hendren, S. (2020). What can a body do? How we meet the built world. New York: Penguin Random House. 

Furniture and tools, kitchens and campuses and city streets—nearly everything human beings make and use is assistive technology, meant to bridge the gap between body and world. Yet unless, or until, a misfit between our own body and the world is acute enough to be understood as disability, we may never stop to consider—or reconsider—the hidden assumptions on which our everyday environment is built.

In a series of vivid stories drawn from the lived experience of disability and the ideas and innovations that have emerged from it—from cyborg arms to customizable cardboard chairs to deaf architecture—Sara Hendren invites us to rethink the things and settings we live with. What might assistance based on the body’s stunning capacity for adaptation—rather than a rigid insistence on “normalcy”—look like? Can we foster interdependent, not just independent, living? How do we creatively engineer public spaces that allow us all to navigate our common terrain? By rendering familiar objects and environments newly strange and wondrous, What Can a Body Do? helps us imagine a future that will better meet the extraordinary range of our collective needs and desires.

Holloway, C. (2019, March-April). Disability interaction (DIX): A manifesto. Interactions, 26(2), 44-49. DOI: https://doi.org/10.1145/3310322

“Disability has often spurred designers to create novel technologies that have later become universal; for example, both the typewriter and the commercial email client originated from a need to communicate by blind and deaf people. The design constraints imposed by disability have pushed ingenuity to thrive within the design process. Recent technological advances in artificial intelligence (AI), the Internet of Things, and pervasive computing provide great scope for designers and researchers to explore this symbiosis when considering future innovations for disability, as well as for society at large. Here, we propose a new agenda for harnessing such opportunities; we call it disability interaction (DIX). DIX views disability as a source of innovation, one that can push the boundaries of the possible” (pp. 44-45).

Holloway, C., & Barbareschi, G. (2022). Disability interactions: Creating inclusive innovations [Synthesis Lectures on Human-Centered Informatics (SLHCI) Series]. Cham, Switzerland: Springer. DOI: https://doi.org/10.1007/978-3-031-03759-7

Disability interactions (DIX) is a new approach to combining cross-disciplinary methods and theories from Human Computer Interaction (HCI), disability studies, assistive technology, and social development to co-create new technologies, experiences, and ways of working with disabled people. DIX focuses on the interactions people have with their technologies and the interactions which result because of technology use. A central theme of the approach is to tackle complex issues where disability problems are part of a system that does not have a simple solution. Therefore, DIX pushes researchers and practitioners to take a challenge-based approach, which enables both applied and basic research to happen alongside one another. DIX complements other frameworks and approaches that have been developed within HCI research and beyond. Traditional accessibility approaches are likely to focus on specific aspects of technology design and use without considering how features of large-scale assistive technology systems might influence the experiences of people with disabilities. DIX aims to embrace complexity from the start, to better translate the work of accessibility and assistive technology research into the real world. DIX also has a stronger focus on user-centered and participatory approaches across the whole value chain of technology, ensuring we design with the full system of technology in mind (from conceptualization and development to large-scale distribution and access). DIX also helps to acknowledge that solutions and approaches are often non-binary and that technologies and interactions that deliver value to disabled people in one situation can become a hindrance in a different context. Therefore, it offers a more nuanced guide to designing within the disability space, which expands the more traditional problem-solving approaches to designing for accessibility. This book explores why such a novel approach is needed and gives case studies of applications highlighting how different areas of focus—from education to health to work to global development—can benefit from applying a DIX perspective. We conclude with some lessons learned and a look ahead to the next 60 years of DIX.

Howlett, R., Sitbon, L., Hoogstrate, M., Sundeepa Balasuriya, S. (2021, October). Accessible citizen science, by people with intellectual disability In ASSETS ’21: The 23rd International ACM SIGACCESS Conference on Computers and Accessibility 2021 Article No.: 48, 1–3. DOI: https://doi.org/10.1145/3441852.3476558

This research explores the conditions and opportunities for citizen science applications to enhance their accessibility to people with intellectual disability (ID). In this paper, we present how the knowledge gathered by co-designing with a group of 3 participants with ID led to a design judged accessible and engaging by another group of 4 participants with ID. We contribute the key elements of that design: static subject, visual engagement, embodiment and social connectedness.

Hudson, W. (2019, March-April). Asperger’s syndrome, autism, and camouflaging: Reduced empathy revisited. Interactions, 26(2), 55–59. DOI: https://doi.org/10.1145/3305356

“The autism spectrum has an important role in technology fields. High systemizing skills are obviously very valuable in technological ventures, but the concomitant reduction in empathy raises real risks for interactive systems. We need to better understand and communicate these issues so that staff on the autism spectrum are more likely to be recruited and feel supported in their working environment. At the same time, we should recognize that higher adoption rates of user-centered methods are needed to ensure that users are involved throughout the development process: from early research through to regular usability evaluations” (p. 59).

Ignagni, E., Chandler, E., Collins, K., Darby, A., & Liddiard, K. (2019). Designing access together: Surviving the demand for resilience. Canadian Journal of Disability Studies, 8(4), 293–320. DOI: https://doi.org/10.15353/cjds.v8i4.536.

Together we engaged in a project to co-design and co-create a fictional near-future world that would enable us to interrogate our present techno-social dilemmas.  Accessibility was central to our workshop for the way that access is always central to enacting crip, mad, Deaf, and spoonie[1] communities.  Without access, we cannot meet, discuss, share, struggle, fight, dismantle or create. Crucially, access was tied to our desire to co-create crip near-futures.

[1] The term spoonie refers to those who live with chronic conditions. Miserandino, C. (n.d.). Retrieved from: https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/

Imrie, R. (2011). Universalism, universal design and equitable access to the built environment. Disability and Rehabilitation34(10), 873–882. DOI: https://doi.org/10.3109/09638288.2011.624250.

Purpose: The concept of universal design (UD) has acquired global significance and become orthodoxy of what is presented as the very best of design practice. This is despite limited evaluation of the theoretical content of the concept. This article seeks to redress this shortfall in knowledge by providing a critique of the theoretical and conceptual components that underpin the principles of universal design.

Method: Commentary.

Results: The content of UD appears to be reductive and functionalist, with an appeal to discourses of technical flexibility, or the notion that the problems confronting disabled people by poorly designed built environments may be redressed by recourse to technical and management solutions. UD is characterized by its advocation of the marketization of access as the primary means to ensure the accessibility of products, including the built environment. This has the potential to reduce the “right to access” to a right to be exercised through a market presence or transaction. There is also lack of clarity about what advocates of UD understand universalism to be, as illustrated by evidence of some ambivalence towards specialist or particular design solutions.

Conclusions: UD provides a useful, yet partial, understanding of the interrelationships between disability and design that may limit how far inequalities of access to the built environment can be overcome.

Jakupi, A., Morina, G., & Hasimja, D. (2023). Architecture challenges in attaining a complete education cycle for people with disabilities: Sharing experience from Kosovo. Journal of Accessibility and Design for All13(1), 94–112. DOI: https://doi.org/10.17411/jacces.v13i1.369.

Background: Education is continuing to develop different academic roles and services to meet the needs of society. The important value of education is more underlined in their built environment when they were supposed to undertake careful designs to avoid non-accessibility among space users. They also aim to create a good, efficient, and safe environment inside their premises. The built environment is a severe share of people with disabilities (PWDs)* attendance and continuation of the educational cycle. Objectives: Exploring the preparedness of the educational built environment in Kosovo for the PWD’s accessibility concerning building design modifications when ensuring adequate education, socialization, and a safe environment. Consequently, it reveals the contrasting ways architects and educational institutions outline and design for PWDs, and the range of doubtful models and approaches they bring to bear upon processes of architectural production and designing for PWDs (Hall et al., 1999). Furthermore, to understand the importance of architecture as one of the main factors influencing the education cycle of PWDs. Finally, and most importantly, how architecture causes this journey to stop. Methods: The descriptive research method’s survey, observation, and case study approach helps investigate the topic more in-depth and multi-sided. The research is conducted in all four educational levels: preschool, elementary school, high school, and higher education institutions. Conclusions: All four educational levels (preschool, elementary school, high school, university/college) showcase more or less the same physical barriers, but what needs to be noted is that the higher education facilities foster more PWDs accessibility than preschool or elementary school. Nevertheless, it is of utmost importance that the first levels of educational facilities have fulfilled the universal design standards, thus not discontinuing the educational cycle from the beginning and creating involuntary isolation and social non-inclusion. As a result, it will further influence thinking and how architects design in their practice besides sharing Kosovo’s experience. The concept deals with the recommendations proposed on two scenarios for the Kosovo relevant institutions, the architect’s community and educational institutions.

Joseph, S., & Namboodiri, V. (2023). Measuring economic benefits of built environment accessibility technologies for people with disabilities. Studies in Health Technology and Informatics, 306, 381-388. DOI: https://doi.org/10.3233/shti230648.

Given the challenges of wayfinding in large indoor built environments, especially for persons with disabilities (PWDs), a new class of accessible technologies called built environment accessible technologies (BEAT) are being developed. Such technologies are envisioned to help achieve product and opportunity parity for PWDs. The impact and adoption of these BEATs depends largely on clear and quantifiable (tangible and intangible) economic benefits accrued to the end-users and stakeholders. This paper describes the results of a survey conducted to measure potential benefits in terms of quality of life and quality of work life (work productivity) by increased accessibility provisions within built environments as it relates to navigation for PWDs and those without disabilities. Results of this work indicate that BEATs have the greatest potential to improve mobility and exploratory activities for people with disabilities, exploratory activities for people without disabilities, and improve job security for everyone.

Kille-Speckter, L., and Nickpour, F. (2022) The evolution of inclusive design: A first timeline review of narratives and milestones of design for disability. In D. Lockton, S. Lenzi, P. Hekkert, A. Oak, J. Sádaba, & P. Lloyd (Eds.), DRS2022: Bilbao, 25 June – 3 July, Bilbao, Spain. DOI: https://doi.org/10.21606/drs.2022.690.

This paper sets out to critically review the history of Inclusive Design on two distinct levels, i.e. the narratives that shape it and the historical milestones which contribute to its evolution. Through an illustrative review of literature and object ethnography, two sets of timelines are outlined. First, a milestone timeline helps establish the chronological evolution of Inclusive Design based on historical milestones and sociocultural perspectives. Second, a narrative timeline helps uncover the underlying narratives around matters of disability, design and inclusivity, and how they evolved. Though identifying historical and emerging shifts in mentality, the timeline review of narratives and milestones offer granular as well as holistic views on Inclusive Design as a field in need of more critically reflective approaches – conceptually and in practice.

Luchs, C. (2021). Graduate Member Musings: Considering neurodiversity in learning design and technology. TechTrends, 65, 923–924. DOI: https://doi.org/10.1007/s11528-021-00667-9

“Following in the footsteps of the Culture Learning, and Technology Graduate Student Collective’s (Clark-Stallkamp et al., 2021) focus on how positionality affects our design and our field, this article seeks to highlight the often overlooked neurotypical positionality in our LDT design and research. This call for critical theories, models and practices that question or replace the dominant deficit narrative is especially important considering the rapidly growing number of students with disabilities our institutions are serving (Clouder et al., 2020). Much of our learning design is based on what we have traditionally considered normal (neurotypical) learning rates of reading, comprehension, and recall. However, as we become more inclusive organizations and embrace our unique intersectionalities, what happens when more and more of our students, staff, and colleagues do not identify as neurotypical?”

McDonald, K., Schwartz,. A., & Fialka-Feldman, M. (2021). Belonging and knowledge production: Fostering influence over science via participatory research with people with developmental disabilities. In J. L. Jones & K. L. Gallus (Eds.), Belonging and resilience in individuals with developmental disabilities: Community and family engagement [Emerging Issues in Family and Individual Resilience Series] (pp. 97-118). Cham, Switzerland: Springer. DOI: https://doi.org/10.1007/978-3-030-81277-5_7

Research with people with developmental disabilities has a bleak history, marred by abuse and exclusion. In order to enhance the ability of science to promote the quality of life and human rights for all, we must transform relationships between scientists and individuals with developmental disabilities. Authentically partnering with community researchers with developmental disabilities is an ethical approach to enhance research quality and social validity. This chapter discusses historical and ethical issues related to previous research, followed by actions scientists without developmental disabilities can take to foster belonging of researchers with developmental disabilities in research partnerships, and beyond. Scientists can begin by developing a foundation in disability history and rights and becoming an ally and advocate for inclusion. Long-term and mutual relationships are critical for research partnerships, and full and authentic inclusion are facilitated by structures that show respect and foster engagement, participation, and shared decision-making. Additionally, transformative scientific relationships require ongoing reflective practice.

Mikulak, M., Ryan, S., Bebbington, P., Bennett, S., Carter, J., Davidson, L., Liddell, K., Vaid, A., & Albury, C. (2022, March). ‘’Ethno…graphy?!? I can’t even say it”: Co-designing training for ethnographic research for people with learning disabilities and carers. British Journal of Learning Disabilities, 50(1), 52-60. DOI: https://doi.org/10.1111/bld.12424

Background: There is a strong ethical case and an urgent need for more participatory research practices in disability research but a lack of resources to support this. It is important to involve people with learning disabilities and carers at all stages, including when designing training for co-research.

Methods: We co-developed training materials to support people with learning disabilities and carers to work as ethnographic co-researchers and for academic researchers to facilitate co-research. We focused on what people with learning disabilities and carers thought was important to learn.

Findings: Whilst not all types of research methods are easy to democratise, ethnographic observation is a research method that lends itself well to participatory co-research.

Conclusions: For people to be able to meaningfully participate, research processes need to become more accessible and transparent. Training that considers the needs and priorities of people with learning disabilities and carers and addresses the confidence gap is key for meaningful co-research.

Accessible Summary

  • We are a team of academic researchers, people with learning disabilities and carers. We worked together to design training materials for people with learning disabilities and carers to work as co-researchers on research projects.
  • The training was for doing a type of research called ethnography. When you do ethnography, you spend time with people to learn about their lives.
  • In this article, we describe what we did and what we learnt.
  • We think more people with learning disabilities and carers should be involved in research but many do not have the confidence to do it. Training can help with that.
  • We also think that ethnography is a type of research that can be easier to do than other types of research. This is because ethnography uses the skills lots of us already have the following: watching, listening and talking to people.

Mondelli, M,. & Justice, J. (2023). Aesthetic In-Access: Notes from a CripTech Metaverse Lab. Leonardo 2023; DOI: https://doi.org/10.1162/leon_a_02491.

“Metaverse” technologies, such as spatial audio, virtual reality (VR), and augmented reality (AR), present new possibilities for disabled artists. To explore how artists use metaverse technologies – as well as the frictions that inhibit access – the authors describe the events of “CripTech Metaverse Lab,” which invited a cohort of disabled artists for a three-day workshop featuring metaverse experiences and a speculative design lab. Observing how participants creatively navigated these encounters, we introduce “aesthetic in-access” as a shared praxis developed by disabled users that transforms barriers to access into artistic expression. In doing so, we outline a metaverse future that centers disabled expression and joy.

Moore, A., Keller, J. S., Reilly-Sanders, E., & Williamson, B. (2022). Towards an accessible crit: Disability and diversity in architectural reviews. In G. Napell & S. Mueller (Eds.), 2022 AIA/ACSA Intersections Research Conference: Resilient Futures, October 6-7, 2022 (pp. 16-23). Washington, DC: Association of Collegiate Schools of Architecture (ASCA). DOI: https://doi.org/10.35483/ACSA.AIA.Inter.22.2.

The United Nations and many of the world’s governments define accessibility in the built environment as a human right, and U.S. architectural degree accreditation requires that accessible design be included in architectural degree curricula. However, architecture programs themselves have rarely been examined for their (in)accessibility. Looking at the architectural critique, or the crit, we note barriers for people with physical, sensory, mental, and cognitive disabilities including uncomfortable seating, long sessions with few breaks, and high-pressure extemporaneous speaking. These practices often go unquestioned, but the inaccessibility of crits is part of an overall culture of discouragement and discrimination for anyone who does not fit traditional expectations, and particularly people with disabilities. An accessible crit consciously addresses the range of abilities and needs that may be present among both students and critics. Here we highlight four different perspectives on accessibility: historical representation of disabled people in architecture training, diversity and equity-focused practices in critiques, applying constructivist pedagogy to architectural critiques, and accessibility as critical to sustainability and resilience. Each perspective offers opportunities for transforming the traditional crit to better meet the needs of participants while furthering architectural education. Disability is rarely included in professional discussions of diversity; for example, the American Institute of Architects (AIA) keeps statistics on members’ race, ethnicity, and gender, but not disability. Meanwhile, statistics on college and graduate students show a significant portion who experience disability, including physical and sensory disabilities along with the “invisible” disabilities of mental illness, neurodiversity, and chronic illness. Since 2020 the physical and mental stresses of higher education have been even more apparent, as well as related stresses of both in-person and remote learning during a pandemic. Rather than returning to “normal” operations that present barriers, we propose taking this moment to re-examine one of the most fundamental practices in architectural education, and using it to leverage a more equitable and productive learning environment.

 

Motahar,  T., Brown, N., Stampfer Wiese, E., & Wiese, J. (2024). Toward building design empathy for people with disabilities using social media data: A new approach for novice designers. In DIS ’24: Proceedings of the 2024 ACM Designing Interactive Systems Conference (pp. 3145-3160). New York: Association for Computing Machinery. DOI: https://doi.org/10.1145/3643834.3660687.

Design empathy is a core HCI concept for understanding user perspectives in design processes. Although researchers advocate for leveraging design empathy in the design of assistive technology, educating novice designers about this is challenging; this is especially true in HCI classrooms when the target population includes people with disabilities, and students who do not have a disability are less aware of the diversity of disability. To help students better understand disability experiences, HCI education often adopts “be-like” (mimicking disabled-experience) approaches. However, accessibility researchers advocate adopting the “be-with” approach—learning about other’s experiences through companionship. To mitigate the logistical challenges of being-with in a classroom setting, we developed a “be-connected” approach, which facilitates learning about the disability experience through the narratives of real individuals. Using social media posts from a spinal cord injury subreddit, we developed and deployed an activity aiming to develop design empathy. Our qualitative evaluation showed a notable transformation in students’ design thinking process, suggesting an opportunity to leverage social media data to learn about disabled perspectives and develop design empathy.

Murray, V. (2019, September). Co-producing knowledge: Reflections on research on the residential geographies of learning disability. In L. Holt, J. Jeffries, E. Hall & A. Power (Eds.), Geographies of Co-production: Learning from Inclusive Research Approaches at the Margins [Special Issue]. Area, 51(3), 423-432. DOI: https://doi.org/10.1111/area.12491

Most adults are able to take some control over where they live and are able to reflect on their migration histories, those places where they have lived and worked, and those places where they might aspire to live in the future. These life-altering decisions have been negotiated either autonomously or in conjunction with significant others in their lives. For some adults, most notably those with learning disabilities, these life decisions are partially, if not wholly, made for them by others. It is therefore the aim of this paper to uncover more about the decision-making opportunities afforded to people with learning disabilities regarding their home-spaces as they navigate “moving landscapes” that they have perhaps not envisaged for themselves. The paper identifies the need for a co-production of knowledge that recognises alternative methods of communication and participation in research, which seeks to de-mystify the authentic, and perhaps mundane, realities of living with a learning disability. Indeed, some geographers have questioned the integrity of research that fails to allow those with learning disabilities to control at least some part of the process. And so, by embracing lives that are “differently normal,” the paper seeks to challenge the role of the expert by engaging with methods that allow the distinction between researched and researcher to become blurred, allowing the voice of the learning-disabled individual clearly to be heard. Finally, the paper will discuss the disconnect between intended methodological approaches and those undertaken “in the field.”

National Endowment for the Arts. (2021, October). Disability design: Summary report from a field scan. Washington, DC: National Endowment for the Arts’ Accessibility Office in collaboration with the Design Program.

To better understand current trends in the disability design field, the NEA commissioned a field scan, which included a review of recent research and news articles as well as interviews with key subject matter experts. This report provides a summary of the field scan, sharing current trends and making recommendations for disability design in public spaces and for the human body and mind.

Also available is a podcast episode featuring an interview between Joshua Halstead, researcher for the report and Grace Jun, CEO of Open Style Lab.

Nilsson, E.M., Lundälv, J., & Eriksson, M. (2022). Design opportunities for future development of crisis communication technologies for marginalised groups – Co-designing with Swedish disability organisations. In M. Fabri & N. Newbutt (Eds.), Designing Enabling Technologies for Marginalised Groups [Special Issue]. Journal of Enabling Technologies, 16(3), 159-171. DOI: https://doi.org/10.1108/JET-01-2022-0006.

Purpose: The purpose is to firstly, provide an example of how voices of people with various disabilities (motor, visual, hearing, and neuropsychiatric impairments) can be listened to and involved in the initial phases of a co-design process (Discover, Define). Secondly, to present the outcome of the joint explorations as design opportunities pointing out directions for future development of crisis communication technologies supporting people with disabilities in building crisis preparedness. The study was conducted during the Covid-19 pandemic.

Design/methodology/approach: The study assumes a design research approach including a literature review, focus group interviews, a national online survey and collaborative (co-)design workshops involving crisis communicators and representatives of disability organisations in Sweden. The research- and design process was organised in line with the Double Diamond design process model consisting of the four phases: Discover, Define, Develop and Deliver, whereof the two first phases are addressed in this paper.

Findings: The analysis of the survey data resulted in a series of challenges, which were presented to and evaluated by crisis communicators and representatives from the disability organisations at the workshops. Seven crisis communication challenges were identified, for example, the lack of understanding and knowledge of needs, conditions and what it means to build crisis preparedness for people with disabilities, the lack of and/or inability to develop digital competencies and the lack of social crisis preparedness. The challenges were translated into design opportunities to be used in the next step of the co-design process (Develop, Deliver).

Originality/value: This research paper offers both a conceptual approach and empirical perspectives of design opportunities in crisis communication. To translate identified challenges into design opportunities starting with a “How Might We”, creates conditions for both researchers, designers and people with disabilities to jointly turn something complex, such as a crisis communication challenge, into something concrete to act upon. That is, their joint explorations do not stop by “knowing”, but also enable them to in the next step take action by developing potential solutions for crisis communication technologies for facing these challenges.

O’Brien, P. (2022). Inclusive Research: Is the Road More or Less Well Travelled? [Special Issue]. Social Sciences, 11(3).

‘In this Special Issue how far have we come in terms of living up to the principles of inclusive research captured in the disability slogan, “Nothing about us without us”, or more pithily, “No researching about us without us” will be explored. The foundational principles of inclusive research were introduced in 2003 by Walmsley and Johnson with outcomes aimed at people with intellectual disability having ownership over the “what” and the “how “of the research agenda. The purpose of this Special Issue on inclusive research is to capture internationally, “Where have we come to?” and “Where do we need to go?” Such questions are relevant now that it has been 18 years since Johnson and Walmsley (2003) first introduced the inclusive research paradigm in their text, Inclusive research with people with learning disabilities: past present and future.

While there has been much growth in people with intellectual disability becoming visible and vocal as researchers across a range of content and methodologies (Jones et al, 2020), there has also been ongoing debate and development associated with Johnson and Walmsley’s foundational principles. Bigby and Frawley (2014a, 2014b) illustrated a three-component framework of inclusive research which ranged from an advisory role, to that of collaboration between co-researchers with intellectual disability and those without, to that of researchers with intellectual disability leading and controlling the research process. Whereas Nind and Vinha (2014) and Riches et al (2017) identified a less divided landscape placing importance on inclusive research being characterised by shared learning, mutuality, and reciprocity.    Riches et al heightened the value of such characteristics by reporting a sense of belonging that came from being a member of an inclusive research team.

Johnson and Walmsley re-joined the debate in 2017 updating their original definition to additionally guide a second generation of inclusive researchers to work towards social change, campaigning for others, as well as standing with others on issues important to them (Walmsley, Strnadova & Johnson, 2018). Beyond the characteristics of the second-generation Milner and Frawley (2019) have called for space for a third wave of inclusive research where the focus is placed on research praxis that is self-directed by the researcher with the lived experience of disability. Such methodology aims to circumvent “othering” that can come from the unquestioned expectation that co-researchers with intellectual disability will fit into the mode of traditional research data collection methods.

The Special Issue promotes inclusive research as a paradigm that has continued to promote transfer of power from those that were once the “researched” to being and becoming the “researchers”. This issue draws upon the work of researchers who have adopted this paradigm to redress the exclusion of people with intellectual disability as partners in the research process. Apart from contributing to the journal in an area of their own interest they reflect as research practitioners on how their involvement in inclusive research has developed over the years. Also, this issue provides opportunities for all members of inclusive research teams to co-author articles through use of accessible innovative contributions. Publishing for authors with intellectual disability has proved challenging (Riches et al, 2020) and this Special Issue supports digital contributions such as video abstracts, video interviews, PowerPoint slide sets and photographs. Such innovation is aimed at bridging the divide between those inclusive research team members that publish and those who do not. Further all articles are cost neutral to bridge the economic gap between salaried and non-salaried researchers. Articles assigned to this special issue include:

  • Inclusive Research in Health, Rehabilitation and Assistive Technology: Beyond the Binary of the ‘Researcher’ and the ‘Researched’
  • Relationships of People with Intellectual Disabilities in Times of Pandemic: An Inclusive Study 
  • A Closer Look at the Quest for an Inclusive Research Project: ‘I Had No Experience with Scientific Research, and then the Ball of Cooperation Started Rolling’
  • On the Road Together: Issues Observed in the Process of a Research Duo Working Together in a Long-Term and Intense Collaboration in an Inclusive Research Project
  • Reflections on Working Together in an Inclusive Research Team
  • Reflecting on the Value of Community Researchers in Criminal Justice Research Projects
  • Doing Research Inclusively: Understanding What It Means to Do Research with and Alongside People with Profound Intellectual Disabilities
  • Inclusive Research and the Use of Visual, Creative and Narrative Strategies in Spain
  • How Being a Researcher Impacted My Life
  • Experiences of Inclusive Action and Social Design Research with Social Workers and People with Intellectual Disabilities
  • Graduating University as a Woman with Down Syndrome: Reflecting on My Education
  • Reflections on the Implementation of an Ongoing Inclusive Research Project
  • Being an Inclusive Researcher in a National Consultation Exercise—A Case Study

Oswal, S. K. (2022). Reshaping the philosophical backdrop for disability-inclusive user experience design: The case of a socially-aware, collaborative, international translation project. In IEEE International Professional Communication Conference (ProComm), Limerick, Ireland (pp. 358-363). DOI: https://doi.org/10.1109/ProComm53155.2022.00073.

This paper extends Bruce Maylath’s translation work to incorporate the values of disability and accessibility as an essential aspect of language work in a digitally-restructured, international industry aimed at supplying on-call translations using online tools integrated in websites and search engines, as well as, the traditional translations. In this paper, first, I briefly discuss a virtual, international collaboration among three classes focusing on the teaching of accessibility in the context of business planning and website design as an example of integrated accessibility pedagogy. In the second half of the paper, I describe the design of a new collaboration that takes Maylath’s translation-based, international collaboration project in the direction of disability inclusion in translation while inviting instructors in our field to participate in virtual, collaborative translation partnerships that would provide a platform for inclusive translation processes and products. The partnership’s aim will be to engage student teams in questions of access for disabled participants in translation work for generating accessible user experiences. Instead of indulging in the rhetoric of social justice or service learning, this approach asks our field to develop professional competency in accessible translation processes and design that honors the rights of users with disabilities to access information on par with all other users, enjoy meaningful and inclusive design experiences, and accept them as participant users and co-designers of translations.

Özdemir, Ş., & Sungur, A. (in press). A model proposal for university campuses in the context of inclusive design. A|Z ITU Journal of the Faculty of Architecture Articles in Press: ITUJFA-92342. DOI: https://doi.org/10.5505/itujfa.2022.92342

Urban public spaces should be shaped according to the need as they occupy an important place in urban development. The campuses serve as a small city due to the facilities and social environment they have and thus emerge as important public spaces. Campus areas affect our attitudes towards education and should be tailored to the needs and designed to cover all campus users. As a modern design approach, the inclusive design philosophy; To create quality spaces by increasing the livability and quality of university campuses as a public space, and to spread this philosophy to the whole society in their professional lives by ensuring that this design concept is placed on university students, who are the main campus users, who will provide the development of the society. It is to determine the problems faced by the users in the university campuses, research the approaches and examples that will allow all users to access the campus equipment, use this equipment as they wish, and develop solutions for the problems encountered. This study aims to create an evaluation model to create an inclusive campus environment. The creation of the checklist, which was prepared as a priority, as detailed in the field study. The field study continued with the implementation and results of the checklist in the selected Davutpaşa campus. The fieldwork carried out in the Davutpaşa campus was divided into four categories: psycho-social arrangements, administrative arrangements, outdoor and indoor physical arrangements.

Pérez Liebergesell, N.,Vermeersch, P., & Heylighen, A. (2021). Urban chandelier: How experiences of being vision impaired inform designing for attentiveness. Journal of Interior Design, 46(1), 73-92. DOI: https://doi.org/10.1111/joid.12192.

Prevailing conceptions of disability in architectural discourse give rise to the devaluing of disabled people’s lived experiences. However, several studies in architecture and disability studies show how disability experience may lead to a careful attentiveness toward the qualities of the built environment that are relevant for design. Using focused ethnography, we examine how architect William Feuerman’s disruptive vision impairment restructured his attention. The insights gained from his experience were incorporated conceptually into his design practice, and the resulting design principles were realized in one of his office’s projects—Urban Chandelier, a design intervention positioned in an urban installation. Feuerman’s experiences encouraged him to deliberately introduce disruption into his design, aiming not to disable everyone, but to make passers-by attentive to their surroundings. He re-organizes people’s modes of attention through the distinct visual qualities of architecture, generating new meaning, in a similar manner as the stroke that affected his attention. We conclude that considering disabled people’s lived experiences demonstrates potential in designing artifacts experientially interesting for a broad population, including but not limited to disabled people.

Pineda, V. S. (Ed.). (2022). Universally Accessible Public Spaces for All [Special Issue]. The Journal of Public Space, 7(2).

At the occasion of the 10th session of the World Urban Forum in Abu Dhabi (2020), the World Blind Union (WBU) and City Space Architecture committed to develop and publish a special issue of The Journal of Public Space with a specific focus on universally accessible public spaces. This voluntary commitment was included in the Forum’s outcome declaration, the Abu Dhabi Declared Actions (2021), intended to support accelerating the implementation of the New Urban Agenda (NUA) and urban dimension of the Sustainable Development Goals (SDGs) during the Decade of Action. In particular this Special Issue is contributing to Goal 17 – Strengthen the means of implementation and revitalize the global partnership for sustainable development, and its outcomes are focusing on Goal 11 – Make cities and human settlements inclusive, safe, resilient and sustainable.

Today, more than half of the world’s population live in cities, 15 percent of them being persons with disabilities. By 2050, 70 percent of the world’s population will live in urban communities including over two billion persons with disabilities and older persons requiring inclusive and accessible infrastructure and services to live independently and participate on an equal basis in all aspects of society. Local and regional governments, and other key urban stakeholders, face immense pressure to adapt strategies, policies, and urban planning and design practices to fully respond to the rights and needs of all persons with disabilities and intersecting social groups.

Pullin, G. (2009). Design meets disability. Cambridge, MA: The MIT Press. 

How design for disabled people and mainstream design could inspire, provoke, and radically change each other.

Eyeglasses have been transformed from medical necessity to fashion accessory. This revolution has come about through embracing the design culture of the fashion industry. Why shouldn’t design sensibilities also be applied to hearing aids, prosthetic limbs, and communication aids? In return, disability can provoke radical new directions in mainstream design. Charles and Ray Eames’s iconic furniture was inspired by a molded plywood leg splint that they designed for injured and disabled servicemen. Designers today could be similarly inspired by disability.

In Design Meets Disability, Graham Pullin shows us how design and disability can inspire each other. In the Eameses’ work there was a healthy tension between cut-to-the-chase problem solving and more playful explorations. Pullin offers examples of how design can meet disability today. Why, he asks, shouldn’t hearing aids be as fashionable as eyewear? What new forms of braille signage might proliferate if designers kept both sighted and visually impaired people in mind? Can simple designs avoid the need for complicated accessibility features? Can such emerging design methods as “experience prototyping” and “critical design” complement clinical trials?

Pullin also presents a series of interviews with leading designers about specific disability design projects, including stepstools for people with restricted growth, prosthetic legs (and whether they can be both honest and beautifully designed), and text-to-speech technology with tone of voice. When design meets disability, the diversity of complementary, even contradictory, approaches can enrich each field.

Purcell, C., Fisher, K. R., Robinson, S., Meltzer, A., & Bevan, N. (2019, September). Co-production in peer support group research with disabled people. In L. Holt, J. Jeffries, E. Hall & A. Power (Eds.), Geographies of Co-production: Learning from Inclusive Research Approaches at the Margins [Special Issue]. Area, 51(3), 405-414. DOI: https://doi.org/10.1111/area.12441

Peer support action research is a co-production method used by groups of people with a shared experience, in order to generate knowledge and mutual assistance. This paper analyses co-production experiences from a recent Australian research project, which formed peer support groups to explore how disabled people were managing their transition to self-directed support. Using the project as a case study and applying a community participation framework derived from social geography, this paper addresses questions about which collaborative mechanisms strengthen peer support research so that the research process and outputs benefit each of the participants involved. The project used a mixed-method, co-production approach. University researchers formed research partnerships with disability community organisations to support the research activity in each Australian state. The community organisations formed peer support groups, facilitated the groups and communicated group processes and findings to the university researchers. The group members and facilitators decided what they wanted to do in the group and how to do it. The academics provided research support, training, a topic guide and resources for group activities. All participants reflected on challenges and lessons learnt and modified the project as it progressed. Both the methods and findings have implications for peer support as co-productive research. The process enhanced the research capacity of the participants, disability community and academics, and strengthened peer support, advocacy and confidence about self-directed support. The findings from the peer support groups about their transition to self-directed support demonstrated their preference for, and trust in, peers as information sources. The regular collective reflections with the facilitators produced an additional level of data collection and analysis that enhanced the quality of the co-production, enabling greater participant control over design and knowledge generation.

Race, L., James, A., Hayward, A., El-Amin, K., Gold Patterson, M., & Mershon, T. (2021, October). Designing sensory and social tools for neurodivergent individuals in social media environments. In ASSETS ’21: The 23rd International ACM SIGACCESS Conference on Computers and Accessibility Article No.: 61, 1–5. DOI: https://doi.org/10.1145/3441852.3476546

Sensory guides and social narratives are learning tools that provide sensory and social support to neurodivergent individuals. These tools—and their design guidelines—have historically been developed for physical environments, such as museums and classrooms. They lack support for social media environments, where sensory stimuli and social contexts can be complex and uncertain. We address these challenges by designing a novel social media sensory guide and social narrative, specifically adapted for social media interaction. We leverage our use case, Twitter Spaces—an audio-only conversation feature in beta. The goal of this pilot study is to determine whether neurodivergent users want sensory guides and social narratives adapted for social media, and if users find them helpful in setting expectations for social media interaction. We evaluate these tools with eight neurodivergent Twitter users, using tasks and thinking aloud. Results indicate a strong potential for adoption of both tools among neurodivergent individuals to reduce overstimulation in social media environments.

Rieger, J., & Rolfe, A. (2021, May). Breaking barriers: Educating design students about inclusive design through an authentic learning framework. The International Journal of Art & Design Education, 40(2), 359-373. DOI: https://doi.org/10.1111/jade.12348

Current studies in design education suggest that students and educators base their designs on what they already know about themselves and their peers, or on stereotypical notions of others. This article presents a critical examination of a pedagogical approach employed in several architecture and interior design studios to determine how best to develop student understanding of how to design for real users and users with abilities different from themselves. This authentic learning approach with spatial design students and teachers from the School of Design, Queensland University of Technology, Australia and with people with differing abilities, used qualitative and quantitative questionnaires, student journals and design studio projects to create a multimodal data set. While there are no simple conclusions, or easy answers to unravel the complexity in creating inclusive designs, our findings point towards enabling new engagements and knowledge processes and scaffolding these activities around authentic learning, so that design students and educators can begin to understand the differing ways of designing for/with people with disabilities. The significance of this research is that it opens up new approaches for teaching design students about inclusive design beyond fake personas, building codes and anthropometric data, and provides evidence of the need for a more holistic, authentic and scaffolded approach.

Safari, M.C., Wass, S. and Thygesen, E., 2021. ‘I got to answer the way I wanted to’: Intellectual disabilities and participation in technology design activities. Scandinavian Journal of Disability Research, 23(1),192–203. DOI: http://doi.org/10.16993/sjdr.798

User involvement in technology design processes can have positive implications for the designed service, but less is known about how such participation affects people with intellectual disabilities. We explored how 13 individuals with intellectual disabilities experienced participation in the design of a transport support application. The study is based on qualitative interviews, photovoice interviews, participant observations, and Smileyometer ratings. A thematic analysis generated the following themes: a sense of pride and ownership, an experience of socialization, and a sense of empowerment. The findings suggest that participation in design activities is a primarily positive experience that develops the participants’ skills. However, experiences such as boredom may occur. The variability within the experiences of the participants show that it is crucial to be aware of individuality, preferences, and personal interests when designing with people with intellectual disabilities.

Sánchez, F. (2018). Enabling geographies: Mapping campus spaces through disability and access. Pedagogy, 18(3), 433–456. DOI: https://doi.org/10.1215/15314200-6936867

This article discusses the advantages of asking students to consider issues of access and disability as they map campus spaces. Putting place-based and mapping pedagogy in conversation with scholarship on disability, I propose that having students learn to better account for different uses of space can help them consider the ideologies that shape spaces.

Seale, J., Colwell, C., Coughlan, T., Heiman, T., Kaspi-Tsahor, D., & Olenik-Shemesh. D. (2021. March). ‘Dreaming in colour’: disabled higher education students’ perspectives on improving design practices that would enable them to benefit from their use of technologies. Education and Information Technologies, 26(2), 1687–1719. DOI: https://doi.org/10.1007/s10639-020-10329-7

The focus of this paper is the design of technology products and services for disabled students in higher education. It analyses the perspectives of disabled students studying in the US, the UK, Germany, Israel and Canada, regarding their experiences of using technologies to support their learning. The students shared how the functionality of the technologies supported them to study and enabled them to achieve their academic potential. Despite these positive outcomes, the students also reported difficulties associated with: i) the design of the technologies, ii) a lack of technology know-how and iii) a lack of social capital. When identifying potential solutions to these difficulties the disabled students imagined both preferable and possible futures where faculty, higher education institutions, researchers and technology companies are challenged to push the boundaries of their current design practices.

Siregar, H. F. M. (2024). Exploring the Relationship Between Media Use and Resilience in the context of green communities. IOP Conference Series: Earth and Environmental Science, Volume 1404, International Symposium and Workshop on Sustainable Buildings, Cities and Communities (SBCC) 2024 27/02/2024 – 29/02/2024 Bandung, Indonesia. DOI: https://doi.org/10.1088/1755-1315/1404/1/012045.

Everyone has a relationship with the spatial space they occupy, this study investigates the dynamic relationship between individuals’ media use patterns and their spatial orientation in a community, the evolving media landscape and people’s mobility patterns have a significant influence on green community and resilience. This study seeks to explore the different effectiveness of vertically and horizontally moving media such as stairs, lifts, ramps, escalators and single loaded and double loaded corridors, the main objective is to investigate the relationship between place media consumption, mobility patterns, and development on sustainable behaviour and personal resilience, a methodological approach will be used by examining the comparison between media use and resilience levels to explore the influence of vertically and horizontally moving media on green community attitudes. The findings are expected to reveal interactions between media users with varying mobility abilities, people’s mobility patterns, green community values, and resilience that impact urban planning, media design, and evolving communities. Understanding the relationship between how people move both horizontally and vertically with green communities and resilience is crucial in promoting sustainable development and environmental behaviour in the context of evolving media landscapes and human mobility.

Skillington, T., & Kirsch, J. M. (2024). Assessing inequalities in access to the city’s green and blue spaces through the experiences of its residents. Urban Resilience and Sustainability, 2(3), 272-288.DOI: https://doi.org/10.3934/urs.2024014

We report on the findings of a qualitative research study exploring the benefits to mental, physical, and social well-being of regular interaction with the city’s green and blue spaces using a walking interview method to gauge the views of fifty frequent visitors to the city’s parks. This was followed by a second phase of research consisting of four focus groups exploring the experiences of those whose access to the city’s green and blue spaces is restricted, noting the effects of these limitations on their general well-being. Despite government-backed urban sustainable redesign initiatives to promote greater access to the city’s biodiversity, its elderly, disabled, and poorer socio-economic communities continue to encounter restrictions regarding their access to its green and blue spaces. By highlighting these issues, our aim is to show how a partial membership of the city’s sustainable development plan is enacted (i.e., a simultaneous inclusion of all community members rhetorically and an exclusion of the needs of many in practice) and reinforced in ways that reproduce socially embedded patterns of inequality. It calls for a more sociologically grounded analysis of the persistence of such inequalities as an important appendage to current discourse on the restorative benefits of the ‘15-minute city’ and as a corrective to current public participation measures that fail to incorporate lived experiences of unequal access to the city’s nature. It proposes a framework that addresses more effectively the distributive, recognition, and procedural dimensions of inclusive, sustainable city living.

Stephens, L., Smith, H., Epstein, I., Baljko, M., Mcintosh, I., & Dadashi, N. (2023). Accessibility and participatory design: time, power, and facilitation. CoDesign: International Journal of CoCreation in Design and the Arts. DOI: https://doi.org/10.1080/15710882.2023.2214145.

This paper documents the goals, techniques, and outcomes of nine interventions designed to improve the accessibility of a design charette (DC). These interventions focused on Time, Power, and Facilitation and were developed based on critiques found in design literature, critical disability scholarship, and the lived expertise of disabled people. Data was collected through recording activities and outputs, recorded observations, and elicited feedback. We found that adjusting time, which is essential for access, was difficult and required trade-offs. We also suggest that the presence of a ‘vibes watch’ facilitation role to monitor participation frequency, emotional tone, and power dynamics can be useful to address uneven power relations, caucusing can also be valuable but should be used at specific moments. Non-neutral facilitation, anti-oppression training, and regular reflection can help facilitation/design teams identify and address exclusionary practices. Technology can aid but also constrain access. Finally, despite all interventions, access remains a site of friction and political choices. Stakeholders continue to participate in different and not always equally valued ways, so secondary analysis is useful for understanding charette products or outputs.

Smith, D. (2018). Architectural sites of discrimination: Positive to negative. In K. Ellis, R. Garland-Thomson, M. Kent, & R. Robertson (Eds.), Manifestos for the Future of Critical Disability Studies Vol. 1 (pp. 142-155). New York: Routledge. DOI: https://doi.org/10.4324/9781351053341

Architecture and interior settings are important aspects of everyday life for people with disabilities. An environmental situation consists of the contextually located architectural envelope, the interior – as well as constituent parts such as furniture – as well as its occupants. The physical environment can be an enabler for those who have impairments – the environmental concepts of space and place are thus implicated in the discourse of disability. Architecture and interior settings are important aspects of everyday life for people with disabilities. Places where author reside, study, shop, recuperate and play provide a multitude of possibilities for each and every one of them. Concurrently, these same places are sites of differentiation and discrimination – opportunities to interpret and judge are inherent. In the field of design for people with disabilities, these assumptions and expectations are underpinned by the same principles, and are just as important.

Spektor., F., & Fox, S. (2020, December). The ‘working body’: Interrogating and reimagining the productivist impulses of transhumanism through crip-centered speculative design. In S. Moran (Ed.), The Somatechnics of Critical Design [Feature Issue]. Somatechnics, 10(3), 327-354. DOI: https://doi.org/10.3366/soma.2020.0326

Appeals to ‘nature’ have historically led to normative claims about who is rendered valuable. These understandings elevate a universal, working body (read able-bodied, white, producing capital) that design and disability studies scholar Aimi Hamraie argues ‘has served as a template […] for centuries’ (2017: 20), becoming reified through our architectural, political, and technological infrastructures. Using the framing of the cyborg, we explore how contemporary assistive technologies have the potential to both reproduce and trouble such normative claims. The modern transhumanism movement imagines cyborg bodies as self-contained and invincible, championing assistive technologies that seek to assimilate disabled people towards ever-increasing standards of independent productivity and connecting worth with the body’s capacity for labor. In contrast, disability justice communities see all bodies as inherently worthy and situated within a network of care-relationships. Rather than being invincible, the cripborg’s relationship with technology is complicated by the ever-present functional and financial constraints of their assistive devices. Despite these lived experiences, the expertise and agency of disabled activist communities is rarely engaged throughout the design process. In this article, we use speculative design techniques to reimagine assistive technologies with members of disability communities, resulting in three fictional design proposals. The first is a manual for a malfunctioning exoskeleton, meant to fill in the gaps where corporate planned obsolescence and black-boxed design delimit repair and maintenance. The second is a zine instructing readers on how to build their own intimate prosthetics, emphasizing the need to design for pleasurable, embodied, and affective experience. The final design proposal is a city-owned fleet of assistive robots meant to push people in manual wheelchairs up hills or carry loads for elderly people, an example of an environmental adaptation which explores the problems of automating care. With and through these design concepts, we begin to explore assistive devices that center the values of disability communities, using design proposals to co-imagine versions of a more crip-centered future.

Spiel, K. (2021). The bodies of TEI – Investigating norms and assumptions in the design of embodied interaction. In TEI’21: ACM International Conference on Tangible, Embedded and Embodied Interaction, Feb 14–17, 2021, Salzburg, Austria (pp. 1-19). New York: ACM. DOI: https://doi.org/10.1145/3430524.3440651

In the few decades since the first mainframe computers, computing technologies have grown smaller, and more pervasive, moving onto and even inside human bodies. Even as those bodies have received increased attention by scholars, designers, and technologists, the bodily expectations and understandings articulated by these technological artefacts have not been a focus of inquiry in the field. I conducted a feminist content analysis on select papers in the proceeding of the ACM International Conference on Tangible, Embedded and Embodied Interaction (TEI) since its inception in 2007. My analysis illustrates how artefacts are implicitly oriented on unmarked bodily norms, while technologies designed for non-normative bodies treat those as deviant and in need of correction. Subsequently, I derive a range of provocations focused on material bodies in embodied interaction which offer a point of reflection and identify potentials for future work in the field.

Spiel, K., & Angelini, R. (2022). Expressive bodies engaging with embodied disability cultures for collaborative design critiques. In Proceedings of the 24th International ACM SIGACCESS Conference on Computers and Accessibility (ASSETS ’22), Article 7, 1–6. New York: Association for Computing Machinery. DOI: https://doi.org/10.1145/3517428.3551350.

In our experience as researchers engaging with non-academic audiences, we observed that it remains a challenge to receive direct and critical feedback from participants. This is particularly amplified in the context of disabilities even if the researchers identify themselves as disabled given that the interaction is governed by social status and material power dimensions to say the least. To work productively with these power dynamics, we explored embodied approaches to articulating critique acknowledging the different ways of knowing stemming from different bodyminds. Here, we line out two exploratory cases illustrating how physical bodies can be directly attended to to express critiques in more direct ways than participants might be used to on a language based level (spoken or signed). We show how communication and critique can take on many forms encouraging us to broaden our methodological toolset to incorporate practices common in disability cultures. Our experiences show that we need to embrace crip approaches to knowledge production to receive more actionable and useful feedback in developing technologies with disabled communities.

Stark, E., Ali, D., Ayre, A., Schneider, N., Parveen, S., Marais, K., Holmes, N., & Pender, R. (2021). Coproduction with Autistic Adults: Reflections from the Authentistic Research Collective. Autism in Adulthood, 3(2), 195-203. DOI: http://doi.org/10.1089/aut.2020.0050.

This article explores coproduction in relation to autistic people. We reflect on the coproduction process with autistic adults from the Authentistic Research Collective at University College London. We aimed to support the autistic population’s mental health needs by coproducing a document on adapting psychological therapy, and by developing a set of reflective guidelines to guide and encourage future coproduction initiatives between autistic and nonautistic team members. We reflect upon six elements that are of potential importance for future coproduction projects with autistic adults: (1) the meaning of coproduction; (2) ground rules and a traffic light system; (3) environmental adaptations; (4) digital communication tools; (5) encouraging authenticity; and (6) supporting autistic strengths. We conclude by discussing future research avenues into optimizing coproduction with autistic people, and how such research may influence both practice and policy.

Storer, K. M., & Branham, S. M. (2021, October). Deinstitutionalizing independence: Discourses of disability and housing in accessible computing. In ASSETS ’21: The 23rd International ACM SIGACCESS Conference on Computers and Accessibility Article No. 31, 1-14. DOI: https://doi.org/10.1145/3441852.3471213

The meaning of “homes” is complicated for disabled people because of the historical link between (de)institutionalization, housing, and civil rights. But, it is unclear whether and how this history impacts Accessible Computing (AC) research in domestic spaces. We performed Critical Discourse Analysis on 101 AC articles to explore how (de)institutionalization affects domestic AC research. We found (de)institutionalization motivates goals of “independence” for disabled people. Yet, discourses of housing reflected institutional logics which are in tension with “independence”—complicating how goals were set, housing was understood, and design was approached. We outline three discourses of housing in AC and identify parallels to those used to justify institutionalization in the USA. We reflect upon their consequences for AC research. We offer principles derived from the Independent Living Movement as frameworks for challenging institutional conceptions of housing, to open new avenues for more holistic and anti-ableist domestic AC research.

Waggoner, T., Jose, J. A., Nair, A., &  Susanthika, M. D. (2021). Inclusive Design: Accessibility Settings for People with Cognitive Disabilities. Journal of Information Technology and Software Engineering,11(2), No:252. 

The advancement of technology has progressed faster than any other field in the world. And with the development of these new technologies, it is important to make sure that these tools can be used by everyone, including people with disabilities. Accessibility options in computing devices help ensure that everyone has the same access to advanced technologies. Unfortunately, for those who require more unique and sometimes challenging accommodations, such as people with Amyotrophic lateral sclerosis (ALS), the most commonly used accessibility features are simply not enough. While assistive technology for those with ALS does exist, it requires multiple peripheral devices that can become quite expensive collectively. The purpose of this paper is to suggest a more affordable and readily available option for ALS assistive technology that can be implemented on a smartphone or tablet.

Waardenburg, T., van Huizen, N., van Dijk, J., Dortmans, K., Magnée, M., Staal, W., Teunisse, J. P., & van der Voort, M. (2022). Design your life: User-initiated design of technology to empower autistic young adults. Journal of Enabling Technologies, 16(3), 172-188. DOI: https://doi.org/10.1108/JET-11-2021-0064.

Purpose: This article describes the development and initial experiences of Design Your Life, a new design approach implementing user-initiated design of technological environments that support autistic young adults to live independently.

Design/methodology/approach: This article makes use of a phenomenological Research-through-Design approach. Investigation of possible ways in which a set of four guiding principles could be applied into a design toolkit for autistic young adults and their caregivers by means of three design case studies was conducted. Promising methods from the design practice and literature were applied and contrasted with the lived experiences and practical contexts of autistic young adults and their caregivers.

Findings: This exploratory research yielded several important insights for the design direction of Design Your Life. Reflecting on how the guiding principles played out in practice it was noted that: the case studies showed that stakeholders appreciate the approach. The design principles applied cannot be used without the help of a sparring partner. This suggests that caregivers may be trained in design-thinking to fulfil this role. The Design Your Life method will be iteratively developed, refined and validated in practice.

Originality/value: The presented approach puts design tools in the hands of the people who will use the technology. Furthermore, the approach sees technologies as empowering interventions by which a person can strengthen their own living environment. According to this article, this approach is new for this application. It provides valuable perspectives and considerations for autistic people, caregivers, researchers and policy makers.

Wickman, R. (2020. Accessible architecture: Beyond the ramp. Winnipeg: Gemma B. Publishing.

Growing up with a father who was disabled by an industrial accident, Architect Ron Wickman determined to help build an accessible world, one project at a time. “Accessibility is an essential feature of all successful architecture. No one should be denied access to the built environment.”

This easy-to-read book develops nine concepts toward the creation of greater accessibility in both public and private spaces. The book is illustrated with photos, working drawings and space plans with commentary from Wickman’s practise and elsewhere. 

Williamson, B. (2020). Accessible America: A history of disability and design [Crip]. New York: New York University Press. 

Have you ever hit the big blue button to activate automatic doors? Have you ever used an ergonomic kitchen tool? Have you ever used curb cuts to roll a stroller across an intersection? If you have, then you’ve benefited from accessible design—design for people with physical, sensory, and cognitive disabilities. These ubiquitous touchstones of modern life were once anything but. Disability advocates fought tirelessly to ensure that the needs of people with disabilities became a standard part of public design thinking. That fight took many forms worldwide, but in the United States it became a civil rights issue; activists used design to make an argument about the place of people with disabilities in public life.

In the aftermath of World War II, with injured veterans returning home and the polio epidemic reaching the Oval Office, the needs of people with disabilities came forcibly into the public eye as they never had before. The US became the first country to enact federal accessibility laws, beginning with the Architectural Barriers Act in 1968 and continuing through the landmark Americans with Disabilities Act in 1990, bringing about a wholesale rethinking of our built environment. This progression wasn’t straightforward or easy. Early legislation and design efforts were often haphazard or poorly implemented, with decidedly mixed results. Political resistance to accommodating the needs of people with disabilities was strong; so, too, was resistance among architectural and industrial designers, for whom accessible design wasn’t “real” design.

Bess Williamson provides an extraordinary look at everyday design, marrying accessibility with aesthetic, to provide an insight into a world in which we are all active participants, but often passive onlookers. Richly detailed, with stories of politics and innovation, Williamson’s Accessible America takes us through this important history, showing how American ideas of individualism and rights came to shape the material world, often with unexpected consequences.

Williamson, B., & Guffey, E. (Eds.). (2020). Making disability modern: Design histories. New York: Bloomsbury Visual Arts.

Making Disability Modern: Design Histories brings together leading scholars from a range of disciplinary and national perspectives to examine how designed objects and spaces contributes to the meanings of ability and disability from the late 18th century to the present day, and in homes, offices, and schools to realms of national and international politics. The contributors reveal the social role of objects – particularly those designed for use by people with disabilities, such as walking sticks, wheelchairs, and prosthetic limbs – and consider the active role that makers, users and designers take to reshape the material environment into a usable world. But it also aims to make clear that definitions of disability-and ability-are often shaped by design.

Wilson, C., Sitbon, L., Brereton, M., Johnson, D., & Koplick, S. (2016). ‘Put yourself in the picture’: designing for futures with young adults with intellectual disability. In OzCHI ’16: Proceedings of the 28th Australian Conference on Computer-Human Interaction (pp. 271–281) DOI: https://doi.org/10.1145/3010915.3010924.

Individuals with intellectual disability are all too often overlooked in the planning of their own support. Responding to this concern, and in line with person-centred planning, this paper outlines the collaborative development of a mobile app to support the communication, interests and goals of young adults who attend a disability support organisation. Existing technologies focus predominantly on enhancing academic abilities, such as literacy or numeracy, disregarding the potential to support personal interests and individual goals. Through a process of Reflective Agile Iterative Design (RAID), a mobile app was developed which enabled young adults with intellectual disability to produce an image of themselves achieving a certain goal. Although the app was designed for individual use in formal goal-setting meetings, participants used the app for social activities, such as taking ‘group selfies’, emailing their images to proxies and ‘layering’ selfies. The app supported the individuals beyond the planning process, contributing more broadly to enhancing overall communication, self-expression, and socialisation.

Wolf-Meyer M. (2022). Human-centred design, disability and bioethics.
Human-centred design methodologies provide a means to align bioethical advocacy with the needs and desires of disabled people. As a method, human-centred design seeks to locate points of friction in an individual’s experience of everyday interactions, specifically in relation to technologies, but potentially in relation to processes and institutions. By focusing on disabled persons and their experiences of institutional organisation, human-centred design practices serve to create a foundation for a bioethical practice that addresses idiosyncratic needs and desires while providing support for disabled persons and their families. In considering how a design-focused bioethics might operate in this way, I focus on advanced sleep phase syndrome and delayed sleep phase syndrome as a way to show how the temporal ordering of institutions disable the participation of individuals with atypical sleep needs. I then turn to the education of deaf students through the exclusive use of sound, which puts them at a significant disadvantage relative to their hearing peers; this example shows how normative ableism obscures itself in attempts to aid disabled people, but an attention to the experience of deaf students show how exclusively auditory learning can be redesigned. Advocating for flexible institutional organisation and practices situates bioethical advocacy as a means to engage with social organisations in ways that create novel opportunities for able-bodied and disabled people alike.
Worsley, M., & Bar-El, D. (2020). Inclusive making: designing tools and experiences to promote accessibility and redefine making. Computer Science Education Ahead of Print. DOI: https://doi.org/10.1080/08993408.2020.1863705

Background and Context: Making is celebrated for bringing exciting tools and learning opportunities to non-traditional designers. However, people with disabilities may find themselves excluded from many making activities and makerspaces. This exclusion is present in making and computer science more broadly.

Objective: We describe a university course that helps broaden their awareness of accessibility in computing and promote accessible making solutions. The course engages students in critical examination of making and allows them to instantiate their learning by designing accessible interfaces and experiences. We study the design of the course and its impacts on students.

Method: We use techniques from grounded theory to analyze data from surveys, projects, and case studies to elucidate the need and the impact of this experience.

Findings: The course filled an important need for students and people with disabilities. By applying a critical disability lens to making, participants developed expansive views of making, both in terms of what “counts” as making and who can participate in it.

Implications: Courses on accessibility address important societal and individual needs that are currently not met by CS curricula. Courses that address these needs should include critical discussions of the domain in question and involve various types of community partnerships. Including these course elements can expand the course’s impact, lead to better project designs, and change perceptions of what is valuable in computing experiences.

Worth, N. (2008, September). The significance of the personal within disability geography. Area, 40(3), 306-314. DOI: https://doi.org/10.1111/j.1475-4762.2008.00835.x.

Drawing on in-depth qualitative data, this article critically examines disability geography as a subfield where the personal is highly valued. The value and the risks inherent in this personal approach will be evaluated, including the usefulness of being an ‘insider’ and the difficulties of being reflexive and critically making use of one’s positionality. The article concludes with reflections regarding how disability geography can confront its marginal status, appealing to researchers who claim no experience of disability while also supporting and encouraging those with personal experiences of disability to participate in the field.

Zallio, M., & Clarkson, J. (2021, December). Inclusion, diversity, equity and accessibility in the built environment: A study of architectural design practice. Building and Environment, 206, 108352. DOI: https://doi.org/10.1016/j.buildenv.2021.108352

Accessibility is generally recognised as an important element of architectural design practice. However, studies suggest that the adoption of Inclusive Design by the architectural design community is still quite limited. Inclusive Design embraces the principles of accessibility and its extended definition considers key sociological and behavioural aspects such as physical, sensory and cognitive needs.

This paper presents the results of an ethnographic study, conducted amongst 26 professionals from the building industry, on the adoption of Inclusive Design.

This research aims to explore the challenges and limitations that professionals experience in their daily working practice and to identify strategies to expand the use of Inclusive Design and its extended definition.

The findings emphasise how education and awareness are essential factors to encourage an inclusive mindset amongst architectural design professionals and other stakeholders. In particular, holistically mapping the user journey during the design phase and collecting and evaluating post-occupancy user feedback are complementary strategies that can foster a design process based on inclusion, diversity, equity and accessibility principles for the built environment.

OIPO Disability Abstracts: Eco-criticism

This literature review contains relevant material across several disciplines taking into account the interrelationship of the environment and disability, often referred to as “eco-crip theory” (Ray and Sibara, 2017). Included are books, articles, and other resources on topics such as:

  • Bioethics and biopolitics
  • The built environment and mapping for access
  • Climate justice and human rights
  • Crip eco-poetics
  • Crip ecology
  • Disability and animality
  • Disability and the environmental humanities
  • Eco-ableism
  • Environmental justice
  • Natural disasters, climate change, and migration
  • Nature, environment, and ecology
  • Recreation and leisure
  • Science and technology
  • Sustainable ecological systems
  • Urban environments and inaccessible spaces and places

Updated 9/23/2024

Abrahams, Y. (2018, Winter). How must I explain to the dolphins? An intersectional approach to theorizing the epistemology of climate uncertainty. In T. Glazebrook & A. Kola-Olusanya (Eds.), African Environmental Philosophy [Special Issue]. Environmental Ethics, 40(4), 389-404. DOI: https://doi.org/10.5840/enviroethics201840436.

The story of change and growth, i.e., evolution, in the traditional manner, involves an epistemology of indigenous knowledge systems that admits both evolution and the divine—and therefore the human capacity for free choice—that tells us that fossil fuels are a bad choice. Steven Biko’s message of “Black Consciousness” responds to the dilemma of how we belong to the species that is damaging the planetary ecosystem, amd yet how we can deny complicity by saying that reclaiming our culture enables us to see what we have done, so we can refuse complicity with the system that has divided us and take responsibility for giving birth to new life. The uncertainties of climate change can be thought through using race, class, gender, sexual orientation, indigeneity, and disability as categories of analysis. The result is an understanding that through both climate science and lived experience, we can know enough to know we ought to act on climate change. We do not need more research; we need instead an acceptance of our ignorance amid a sense of ethical responsibility

Alaimo, S. (2010). Bodily natures: Science, environment, and the material self. Bloomington, IN: Indiana University Press.

How do we understand the agency and significance of material forces and their interface with human bodies? What does it mean to be human in these times, with bodies that are inextricably interconnected with our physical world? Bodily Natures considers these questions by grappling with powerful and pervasive material forces and their increasingly harmful effects on the human body. Drawing on feminist theory, environmental studies, and the sciences, Stacy Alaimo focuses on trans-corporeality, or movement across bodies and nature, which has profoundly altered our sense of self. By looking at a broad range of creative and philosophical writings, Alaimo illuminates how science, politics, and culture collide, while considering the closeness of the human body to the environment.

Aldred, R., & Woodcock, J. (2008). Transport: Challenging disabling environments. In R. Imrie & H. Thomas (Eds.), The Environment and Disability: Making the Connections [Special Issue]. Local Environment, 13(6), 485-496. DOI: https://doi.org/10.1080/13549830802259847.

This article brings together the concerns of environmental and disability movements through examining the role of transport. Both movements critique current transport policy and practice. The disability movement has analysed how it marginalises the needs of disabled people, while environmentalists argue current transport trends are unsustainable and marginalise alternatives. Although these critiques operate independently and even seem opposed to each other, a common agenda can be developed through extending the social model of disability. The social model can be used to understand how car-dominated transport systems can be understood as disabling populations larger than those conventionally recognised as “disabled”. The car offers the technological fix of enabling abilities, in particular speed and strength, but in practice disables in a number of ways. Urban sprawl and traffic increase barriers to participation and access for many both ‘able-bodied’ and ‘disabled,’ while car dominance damages social interaction and limits sensory perception. Furthermore, the car economy is a major cause of impairment through crashes and physical inactivity. Understanding these together requires integrating the social model of disability with an eco-social model of impairment. This can show how unequal forms of social organisation are embodied in people and environments to produce patterns of impairment, disability and disadvantage. Finally we suggest policies to move towards sustainable societies with increased opportunities for broader social participation. The article argues that the two movements can create and benefit from a shared vision of socially inclusive, low-energy, sustainable transport.

Anderson, D. R. (2018). “This is the way I was”: Urban ethics, temporal logics, and the politics of cure. In K. Blanchard & C. Sandilands (Eds.), Sex and the (Motor) City: Ecologies of Middlesex [Special Forum]. The Goose: A Journal of Arts, Environment, and Culture in Canada, 17(1), Article 51.

This article employs Eli Clare’s concept of the ‘politics of cure’ in order to discuss issues of disability, temporality, and ethical relations to rehabilitation, restoration, and cure in the Sex and the (Motor) City: Ecologies of Middlesex special cluster. The special cluster compiles twelve short essays, originally presented in two linked roundtables at the Association for the Study of Literature and Environment (ASLE) conference in Detroit in June 2017, examining Jeffrey Eugenides’ 2002 Pulitzer Prize-winning novel, Middlesex.

Arathoon, J. (2022). Towards a research agenda for animal and disability geographies: Ableism, speciesism, care, space, and place. Social & Cultural Geography. DOI: https://doi.org/10.1080/14649365.2022.2152087.

Animal and disability geographies have become recognized fields of inquiry gaining traction with geographers of differing interests, approaches, and methods. To date, however, there has been limited engagement between the two fields themselves, despite healthy suggestions for such debate in the wider social sciences and humanities. This paper provides a series of provocations about the interconnections between animal and disability geographies to examine what they might add to each other, and why there is a need for (critical) work at this intersection. First, I suggest that animal and disability geographies share interconnections that encompass: their shared ontological challenges towards deconstructing speciesism and ableism respectively, and a growing focus on intersectional work. Second, I explore spaces of speciesist and disabling violence, arguing that thinking through these spaces will enable geographers to problematize and challenge ableism and speciesism. Third, I outline current engagement between the subfields, through the themes of space, place, and care. I argue that bringing the two together can build a stronger critical geography of justice by highlighting: i) ableism within animal studies, ii) speciesism within disability studies; and iii) the potential for constitutive relationships where both are brought to bear on issues and conceptual resources.

Armstrong, M., Sharaievska, I., B. M. Crowe, B. M., & Gagnon, R. J. (2022). Experiences in outdoor recreation among individuals with developmental disabilities: Benefits, constraints, and facilitators. Journal of Intellectual & Developmental Disability Online Before Print. DOI: https://doi.org/10.3109/13668250.2022.2104449.

Background: Individuals with developmental disabilities have specific physical and psychosocial needs that can require extra support to participate fully in and enjoy many benefits of recreation activities. Unfortunately, little is known about individuals with developmental disabilities’ experiences in outdoor recreation. The purpose of this study was to explore adults with developmental disabilities’ perceived benefits of outdoor recreation, and the conCramstraints or facilitators that affected their participation.

Method: Qualitative, semi-structured interviews were conducted with seven adults with developmental disabilities. Interviews were analysed using open, axial, and selective coding techniques.

Results: Results revealed three themes: (a) benefits of; (b) constraints to; and (c) facilitators of outdoor recreation. Benefits of outdoor recreation reported by study participants included their experiencing satisfaction, mental reprieve, empowerment, enlightenment, social connectedness, and thrill. Participants also shared intrapersonal, interpersonal, and structural constraints and facilitators related to their outdoor recreation participation.

Conclusions: Practical implications and future research recommendations are discussed.

Asamoah, P. G., Sanka, C. G., & Asafu-Adjaye, P. A. (2019, December). Mutualism and co-existence in Johanne Spyri’s Heidi.  Journal of Mother-Tongue Biblical Hermeneutics and Theology (MOTBIT), 1(2), 43-56. Article 4. DOI: https://doi.org/10.32051/12301904.

Reflections on the state of the environment and how some wish it to be are mirrored in the literary productions of some writers. The focus of this work is to analyze such a text as Heidi by Johanne Spyri which offers alternatives of survival which are mutualism and co-existence. Studies on Heidi have focused on other theories like psychoanalysis, however, none has looked at the text from an ecocritical perspective with mutualism and co-existence in mind. This work looks at the concept of mutualism and co-existence as metaphors from ecology. These metaphors are further sub-divided into other tropes which offer a better alternative way of life which are neither parasitic nor predatory, but positive symbioses. Using Heidi as the primary text, this purely qualitative study uses ecocritical tropes as an approach in tackling the relationship between humans and non-human aspects of the environment. The tropes used in this case are dwelling-, a geographical place and sense of belonging: animals, mutualism and co-existence with other humans; wilderness: the role of nature as a healer; and positive growth towards the good and the morally sound. The work recognizes that mutualism and co-existence in reality are underplayed in our world today and recommends a complete change-over of attitude towards the best possible way of living for both humans and non-humans within our environment.

Atkins, P. (2021). ‘All the living I have left to do’: A disability poetics of dwelling. In Z. Brigley, K. Evans & R. A. Mackenzie (Eds.), Dwelling [Feature Issue]. Magna 79.

We dwell in our bodies; our bodies in the world. Everything we experience of the world we experience in and through and with our bodies. Our relationship with our body informs our relationship with the world. For some people, this is easier to forget than for others. There are times I have wished I could relinquish tenancy of my body, and live easefully out with its structural issues, but it is my home on the earth.

Bares, A. (2019, Fall). “Each unbearable day”: Narrative ruthlessness and environmental and reproductive injustice in Jesmyn Ward’s Salvage the Bones. MELUS, 44(3), 21-40. DOI: https://doi.org/10.1093/melus/mlz022.

Jesmyn Ward’s 2011 novel Salvage the Bones tells the story of Esch Batiste and her family in the days leading up to Hurricane Katrina. Ward represents Esch’s unexpected pregnancy and the environmental degradation of her rural Mississippi Gulf Coast home as linked by the slow, quotidian forms of violence and risk exposure that characterize Jasbir K. Puar’s formulation of debility. Through scenes of reproductive and environmental injustice, Salvage the Bones elucidates the processes through which racially inflected political-economic systems unevenly produce debility in certain populations and environments while capacitating others. When put in conversation with critical race theory, critical disability theory, and environmental criticism, Salvage the Bones emphasizes the logics that underpin debility rather than sensationalizing or pathologizing its consequences. In its refusal to revert to ableist, racist literary codes and conventions, the novel theorizes and practices “narrative ruthlessness,” Ward’s description of her literary strategy to respond to debility’s representational conundrums of inevitability and invisibility. In so doing, narrative ruthlessness exceeds liberal humanist impulses to propose restoration, cure, or uplift as desirable solutions, insisting instead on kinship, care, redress, and salvage as possibilities for radical survival and futurity.

Bauman, W. A. (2015). Disability Studies, queer theory, and the new materialism: Environmental metaphors for a planet on the move. In J. W. Belser (Ed.), Religion, Disability, and the Environment [Special Issue]. Worldviews, 19(1), 69-73. DOI: https://doi.org/10.1163/15685357-01901005.

“In an exhibit by eco-artist Elizabeth Demaray at the 2014 meeting of the Association for Environmental Studies and Sciences in New York, the artist showcased a new project she is working on with engineer, Dr. Qingze Zou, entitled: `IndaPlant Project: An Act of Trans-Species Giving.’ In this project, the artist and engineer are working together to create ‘technologies’ for plants. The robotic ‘floraborgs’ allow houseplants to move freely in domestic settings in search of sunlight and water. These floraborgs are metaphors for some trans possibilities for future becomings of the planetary community. These hybrid formations, reminiscent of the moving trees known as ‘Ents’ in the Lord of the Rings trilogy, suggest the possibilities of interspecies communication and highlight the nature of life itself as assemblage. The authors in this issue of Worldviews bring disability studies and ecological thought together with queer theory, environmental justice and disaster studies. Since each article deals in some way with issues of hybridity and the possibilities for future becoming, the IndaPlant exhibit is a good place to begin reflecting on these intersecting (and at times conflicting) discourses. In this brief response, I suggest three important loci for the ongoing discussions of a nomadic ecology of planetary becoming, which derive from the three main articles in this issue: the intersections of queering nature, hybrid identities, and assemblages one can glean from disability studies; implications for thinking about the future of climate change; and the importance of what Rob Nixon (2011) calls the ‘geography of violence.’ Perhaps such a nomadic approach—what Sharon Betcher, following Jane Bennett, calls ‘vitalist materialism’—might help us deal better with the evolving multitude of the planetary community in ways that prevent us from narrowing multiple possibilities for becoming into singular movements toward progress” (p. 69).

Bell, S. L. (2019, June). Experiencing nature with sight impairment: Seeking freedom from ableism. Environment and Planning E: Nature and Space, 2(2), 304-322. DOI: https://doi.org/10.1177/2514848619835720.

The idea of nature as freedom has long captured the human imagination, particularly since the Romantic era when notions of escapism were underpinned by the idealisation and externalisation of nature. The drive for freedom persists in the findings of much contemporary research examining the contribution of nature to human health and wellbeing. Yet, this work tells us little about how cultural narratives of freedom play out in the lives of people living with impairment and disability, or the constraining ableist assumptions that often underpin popular discourses of nature. This paper aims to address this, drawing on the findings of an in-depth qualitative study exploring how 31 people with varying forms and severities of sight impairment, living in rural and urban areas of England, describe their experiences with(in) diverse types of nature through the life course. Moving beyond the ‘wilderness ideal’ and sensationalised ‘supercrip’ stories that reproduce ableist ideas of bodies without limitation, this paper foregrounds the richly textured ways in which participants experienced feelings of freedom with nonhuman nature. These freedoms are characterised as social, mobile and exploratory. In doing so, it seeks to make room for a range of nature experiences, folding social justice into the growing momentum to connect people with nature in the name of health and wellbeing.

Bell, S. L., Jodoin, S., Bush, T. N., Crow, L., Eriksen, S. H., Geen, E., Keogh, M., & Yeo, $. (2024). Beyond the single story of climate vulnerability. International Journal of Disability and Social Justice, 4(2), 48-70. DOI: https://doi.org/10.13169/intljofdissocjus.4.2.0048.

Health. Disability. Vulnerability. These words are often used when discussing the risks of climate disruption. These discussions warn of the potential for climate impacts to “undermine 50 years of gains in public health” (as stated by the Lancet Countdown on Climate Change). Increasingly, such discussions also acknowledge climate injustice, examining who will benefit or lose out from climate change, how and why. The embodied vulnerability of disabled people is often assumed within such discussions, with less consideration of the social, economic or political conditions that create this vulnerability.

By bringing disability justice and disability studies into correspondence with care, environmental and climate justice scholarship, this reflective paper challenges the master narratives that blur differentiated experiences of disability and climate impacts into a single story of inevitable vulnerability. Recognising disabled people as knowers, makers and agents of change, it calls for transformative climate action, underpinned by values of solidarity, mutuality and care.

Bell, S. L., Tabe, T., & Bell, S. (2019). Seeking a disability lens within climate change migration discourses, policies and practices. Disability & Society, 35(4), 682-687. DOI: https://doi.org/10.1080/09687599.2019.1655856.

Around 15% of the global population is estimated to live with disability. With the Millennium Development Goals failing to recognise disability issues, the Sustainable Development Goals seek to promote a stronger focus on the alleviation of poverty and inequality amongst disabled people. Since then, the vulnerability of disabled people has been highlighted within international climate change agreements. Yet a critical disability lens is largely lacking from broader aspects of climate change adaptation planning. Focusing primarily on examples from the Asia-Pacific region (a region including low-lying coastal areas and islands that are frequently highlighted as exemplars of communities on the front line of climate change), this article discusses the need to integrate critical insights from disability studies into current understandings of climate change adaptation and mobility if we are to facilitate more inclusive, democratic and equitable adaptation in the face of climate change.

Belser, J. W. (2015). Disability and the social politics of “natural” disaster: Toward a Jewish feminist ethics of disaster tales. In J. W. Belser (Ed.), Religion, Disability, and the Environment [Special Issue]. Worldviews, 19(1), 51-68. DOI: https://doi.org/10.1163/15685357-01901004.

The stories we tell about crisis and catastrophe often intensify structural violence, augmenting existing dynamics of racism, sexism, classism, and ableism. Disaster stories often reinforce cultural narratives of suffering womanhood and tragic stories of disability to portray people with disabilities—especially women—as “natural” and “inevitable” victims of a harsh new world. Examining both contemporary rhetoric in the wake of Hurricane Katrina and classical rabbinic Jewish narrative, I argue that tales of communities in crisis commonly depoliticize disaster. By inscribing the disabled body with a narrative of “natural” vulnerabilities and inevitable suffering, conventional disaster discourse obscures the political significance of structural inequalities that render people with disabilities more at risk in disaster. Bringing together disability studies scholarship and Jewish feminist ethics, I challenge the discursive tendency to portray disabled individuals as symbols of suffering—and to focus on the pathos of an individual in distress instead of critiquing social inequality. I advocate a constructive, redemptive storytelling that illuminates and critiques social and political exclusion, that underscores the agency and dignity of people in crisis, that valorizes the disability justice movement’s call for interdependence in community, and that captures the artistry and resiliency of disabled lives.

Belser, J. W. (2020, Fall). Disability, Climate Change, and Environmental Violence: The Politics of Invisibility and the Horizon of Hope. Disability Studies Quarterly, 40(4). DOI: https://doi.org/10.18061/dsq.v40i4.6959.

This article brings disability theory and activism into conversation with environmental justice, a conversation that has often been stymied by a fundamental difference in approaching disability. Environmental justice movements position disability as a visceral marker of environmental harm, while disability movements claim disability as a site of value and vitality, a position I call “disability embrace.” Rather than adjudicate these differences, I use them to pinpoint a barrier to political alliance: environmental disability is a consequence of structural violence. I argue that disability politics offer vital resources for grappling with climate change. Applying insights from disability studies and disability activism to the analysis of environmental damage reveals the political stakes of diagnosis—the way power contours how, when, and to what ends we recognize human and ecological impairment. Disability insights illuminate pervasive cultural patterns of invisibility and climate denial. Disability critiques of futurity and cure can also reconfigure the way we approach hope and help fashion a new narrative of what it might mean to live well in the Anthropocene.

Betcher, S. V. (2015). The picture of health: “Nature” at the intersection of disability, religion and ecology. In J. W. Belser (Ed.), Religion, Disability, and the Environment [Special Issue]. Worldviews, 19(1), 9-33. DOI: https://doi.org/10.1163/15685357-01901002.

“We carry our most intimate view of nature within our pictures of health. These images of health, often more amenable to ablenationalism than to a world of intra-active becoming, inform not only neoliberal policy, but ecological vision, including ecospiritualities. Increasingly “the politics of health” constitutes something like a structure of exclusion, a “racism that is biological” (Foucault). Since these intimate images of nature—these “pictures of health”—may be aggravating the next great planetary divide, disability studies might differently shape what we make of the picture of health, the “nature” that informs it, and a religious response to it. This article uses critical dis- ability studies to examine the ways in which the ideology of health, often motivating ecological concern and religious seeking, can coincidentally collude with neoliberal responsibilization and biotechnologically supported transhumanism, generating pol- icy enclosures of the gen-rich against the “refuse/d” or “waste/d.”

Bodies of Nature: Survival Lessons from Disabled Communities [Feature Issue]. (2021, Winter). Orion: People and Nature Magazine, 40(4).

IN THIS ISSUE, we gather a selection of writers and artists whose experiences broaden our understanding of sickness and disability, to foster a conversation among them about how the body informs our perception of and engagement with our surroundings. In “Age of Disability,” Sunaura Taylor follows a community threatened by toxic groundwater that fights ecological ableism. In “The Long View,” Sarah Capdeville faces autoimmunity and an ecosystem caught in chaos. Taylor Brorby lives with diabetes in the era of climate crisis in “In Range.” Marina Tsaplina tells the story of Dream Puppet, the poetic knowledges of ancient forests and disabled communities. Glenis Redmond writes about labor, lineage, and cancer. In “Retriever of Souls,” Amy Irvine’s daughter Ruby McHarg and her service dog navigate a forest of epilepsy. Enjoy columns by Lisa Wells, Meera Subramanian, Aimee Nezhukumatathil, and more. This issue is art directed by Georgina Kleege, a blind scholar who has consulted the Met and the Tate on access and equity.

Bowen, L. (2021, Summer). Learning to read ecologically: Disability, animality, and metaphor in Toni Morrison’s A Mercy. ELH, 88(2), 525-550. DOI: https://doi.org/10.1353/elh.2021.0020.

Metaphor has become somewhat unfashionable, as new materialist and non-symptomatic reading approaches have rightly championed the value of the literal in literary criticism. But does metaphorical interpretation necessarily empty its objects of their material stakes? This essay examines Toni Morrison’s engagement with metaphors of disability and animality, two categories whose associated scholarly fields have been especially critical of metaphor. The characters in A Mercy, who often read nonhuman animals and disabled humans metaphorically, model two methods of reading figurative bodies, which I term extractive and ecological. If we learn how to read bodies ecologically, metaphors need not flatten difference or material complexity, but can in fact make it more meaningful.

Calgaro, E. (2021). Climate disaster risk, disability, and resilience. Current History, 120(829): 320–325.
DOI: https://doi.org/10.1525/curh.2021.120.829.320.

This essay examines the everyday inequalities, stigmas, and injustices that leave people with disabilities highly vulnerable to escalating climate change risks. It argues that including people with disabilities in disaster risk reduction processes is essential to shaping inclusive, effective policies and practices. Examples of several programs that have done so are discussed. Focusing on the strengths of people with disabilities as resilient change-makers and as the experts in their own lives—instead of viewing them as dependent on others—can lead to the changes necessary to recognize their personal sovereignty and deliver disaster justice. Third in a series on disability rights around the world.

Campos, P. A. (2021, Fall). Disability panic and environmental advocacy. In Environmental Justice [Feature Issue]. Natural Resources & Environment, 36(2), 41-44.

Disability plays an important but often unrecognized role in environmental law. Attorneys can play a role in reducing bias against people with disabilities.

Castres, P. (2022, October 13). Climate policy and activism need to make space for disabled people. BMJ, o2387, 379. DOI: https://doi.org/10.1136/bmj.o2387.

In this commentary, the author makes salient points on how “Disabled people are disproportionately affected yet highly underrepresented by climate change, yet the disability community hasn’t been at the forefront of climate policy and activism,” a situation which needs to change.

Cella, M. J. C. (2013, Summer). The ecosomatic paradigm in literature: Merging disability studies and ecocriticism. Interdisciplinary Studies in Literature and Environment, 20(3), 574-596. DOI: https://doi.org/10.1093/isle/ist053.

“Th(e) deep entanglement—the dialectic of embodiment and emplacement—is the central subject of this essay as this dialectic forms the basis for what I call the ecosomatic paradigm. The ecosomatic paradigm assumes contiguity between the mind-body and its social and natural environments; thus, under this scheme, the work of negotiating a ‘habitable body’ and ‘habitable world’ go hand in hand” (pp. 574-575).

Cella, M. J. C. (Ed.). (2016). Disability and the environment in American literature: Toward an ecosomatic paradigm. Lanham, MD: Lexington Books.

This book includes a collection of essays that explore the relationship between Disability Studies and literary ecocriticism, particularly as this relationship plays out in American literature and culture. The contributors to this collection operate from the premise that there is much to be gained for both fields by putting them in conversation, and they do so in a variety of ways. In this manner, the collection contributes to what Joni Adamson and Scott Slovic have referred to as a ‘third wave of ecocriticism.’ Adamson and Slovic attribute the rise of this “third wave” to the richly diverse contributions to ecocriticism over the past decade by scholars intent on including postmodernism, ecofeminism, transnationalism, globalization, and postcolonialism into ecocritical discussions. The essays in Toward an Ecosomatic Paradigm extend this approach of this ‘third wave’ by analyzing disability from an ‘environmental point of view’ while simultaneously examining the environmental imagination from a disability studies perspective. More specifically, the goal of the collection is to investigate the role that literary narratives play in fostering the ‘ecosomatic paradigm.’ As a theoretical framework, the ecosomatic paradigm underscores the dynamic and inter-relational process wherein human mind-bodies interact with the places, both built and wild, they inhabit. That is, the ecosomatic paradigm proceeds from the assumption that nature and culture are meshed in an ongoing and deep relationship that has implications for both the human subject and the natural world. An ecosomatic approach highlights the profound overlap between embodiment and emplacement, and is therefore enriched by both disability studies and ecocritical insight. By drawing on points of confluence between disability studies and ecological criticism, the various ecosomatic readings in this collection challenge normative (even ableist) constructions of the body-environment dyad by complicating and expanding our understanding of this relationship as it is represented in American literature and culture. Collectively, the essays in this book augment the American environmental imagination by highlighting the relationship between disability and the environment as reflected in American literary texts across multiple periods and genres.

Chen, M. Y. (2012). Animacies: Biopolitics, Racial Mattering, and Queer Affect [Perverse Modernities: A Series].  Durham, NC:  Duke University Press.

In Animacies, Mel Y. Chen draws on recent debates about sexuality, race, and affect to examine how matter that is considered insensate, immobile, or deathly animates cultural lives. Toward that end, Chen investigates the blurry division between the living and the dead, or that which is beyond the human or animal. Within the field of linguistics, animacy has been described variously as a quality of agency, awareness, mobility, sentience, or liveness. Chen turns to cognitive linguistics to stress how language habitually differentiates the animate and the inanimate. Expanding this construct, Chen argues that animacy undergirds much that is pressing and indeed volatile in contemporary culture, from animal rights debates to biosecurity concerns. Chen’s book is the first to bring the concept of animacy together with queer of color scholarship, critical animal studies, and disability theory. Through analyses of dehumanizing insults, the meanings of queerness, animal protagonists in recent Asian/American art and film, the lead in toys panic in 2007, and the social lives of environmental illness, Animacies illuminates a hierarchical politics infused by race, sexuality, and ability. In this groundbreaking book, Chen rethinks the criteria governing agency and receptivity, health and toxicity, productivity and stillness—and demonstrates how attention to the affective charge of matter challenges commonsense orderings of the world.

Chen, M. Y. (2015). The reproduction in/of disability and environment. In J. W. Belser (Ed.), Religion, Disability, and the Environment [Special Issue]. Worldviews, 19(1), 78-92. DOI: https://doi.org/10.1163/15685357-01901007.

“What are the methods of disability studies when it works in the realm of environmental studies? Disability studies has long staked a practiced ambivalence toward medicalization and the deployment of science for ends of ‘health.’ Given this stance, what can be made of science’s overwhelming deployment within environmentalist discourses?” (p. 79)

Claasen, A., van den Eijenden, J., & Geurts, M. (2013, November). Transversal ecocritical praxis:  An interview with Patrick Murphy. Ecocriticsm [Feature Issue]. Frame: Journal of Literary Studies, 26(2), 101-112.

Dr. Patrick D. Murphy is a Professor and Chair of the Department of English at the University of Central Florida. He has authored Ecocritical Explorations in Literary and Cultural Studies (2009), Farther Afield in the Study of Nature Oriented Literature (2000), A Place for Wayfaring: The Poetry and Prose of Gary Snyder (2000), and Literature, Nature, and Other: Ecofeminist Critiques (1995). He has also edited or co-edited such books as The Literature of Nature: An International Sourcebook (1998) and Ecofeminist Literary Criticism and Pedagogy (1998). He is the founding editor of ISLE: Interdisciplinary Studies Literature and Environment. His ecocritical work has been translated into Chinese, Danish, Japanese, Korean, and Spanish. Frame conducted an interview with Murphy to learn more about his new book, Transversal Ecocritical Praxis (2013), and to discuss with him the field of ecocriticism in general.

Clare, E. (2015). Exile and pride: Disability, queerness, and liberation (3rd ed.). Durham, NC: Duke University Press.  DOI: https://doi.org/10.1215/9780822374879.

First published in 1999, Exile and Pride is essential to the history and future of disability politics. Eli Clare’s revelatory writing about his experiences as a white disabled genderqueer activist/writer established him as one of the leading writers on the intersections of queerness and disability and changed the landscape of disability politics and queer liberation. With a poet’s devotion to truth and an activist’s demand for justice, Clare unspools the multiple histories from which our sense of self unfolds. His essays weave together memoir, history, and political thinking to explore meanings and experiences of home. Here readers will find an intersectional framework for understanding how we actually live with the daily hydraulics of oppression, power, and resistance. At the root of Clare’s exploration of environmental destruction and capitalism, sexuality and institutional violence, gender and the body politic, is a call for social justice movements that are truly accessible to everyone.

Clare, E. (2017). Brilliant imperfection: Grappling with cure. Durham, NC: Duke University Press.

In Brilliant Imperfection, Eli Clare uses memoir, history, and critical analysis to explore cure—the deeply held belief that body-minds considered broken need to be fixed. Cure serves many purposes. It saves lives, manipulates lives, and prioritizes some lives over others. It provides comfort, makes profits, justifies violence, and promises resolution to body-mind loss. Clare grapples with this knot of contradictions, maintaining that neither an anti-cure politics nor a pro-cure worldview can account for the messy, complex relationships we have with our body-minds. The stories he tells range widely, stretching from disability stereotypes to weight loss surgery, gender transition to skin lightening creams. At each turn, Clare weaves race, disability, sexuality, class, and gender together, insisting on the nonnegotiable value of body-mind difference. Into this mix, he adds environmental politics, thinking about ecosystem loss and restoration as a way of delving more deeply into cure. Ultimately Brilliant Imperfection reveals cure to be an ideology grounded in the twin notions of normal and natural, slippery and powerful, necessary and damaging all at the same time.

Comer, T. A., & Junker, C. (2020). Disability Studies and Ecocriticism: Creative Critical Intersections [Special Thematic Volume]. Studies in the Humanities, 46(1-2).

This double journal issue of Studies in the Humanities is merely the most recent attempt to further the academic conversation occurring at the intersection of disability and ecology. In our call for papers we asked for essays focused on the following questions: What can be gained by investigating ecological issues through the lens of disability studies? What can be gained by investigating disability through the lens of ecocriticism? How can these two viewpoints be joined?

Articles published in this feature issue include an Introduction and the following:

  • On (Dis-)Ability and Nature in A Song of Ice and Fire
  • Ableism in Avatar: The Transhuman, Postcolonial Rapprochement to Bioregionalism
  • Ecstatic Others: Transcendent Mutant Bodies in Milligan and Allred’s X-Statix
  • Green Our Vaccines: Jenny McCarthy’s Environmentalist, Ableist Rhetoric
  • Eco-ability and the Corporeal Grotesque: Environmental Toxicity in Cherrie Moraga’s Heroes and Saints and Ambikasutan Mangad’s Swarga
  • The Ableist Human: Rethinking Agency with Ability through Max Frisch’s Man in the Holocene
  • Undoing Bodies: Tentacular Spaces and Sympoiesis in Octavia Butler’s Lilith’s Brood
  • Green Lovin’ Mamas Don’t Vax! The Pseudo-Environmentalism of Anti-Vaccination Discourse
  • Writing the Unruly Body: Disability, Femininity, and the Environment in Wallace Stegner’s Angle of Repose
  • Shimerda’s Ghost: Disability and the Myth of the Frontier in Great Plains Fiction

Cram, E., Law, M. P., & Pezzullo, P. C. (2022). Cripping Environmental Communication: A Review of Eco-Ableism, Eco-Normativity, and Climate Justice Futurities. Environmental Communication, 16(7), 851-863. DOI: https://doi.org/10.1080/17524032.2022.2126869.

The field of environmental communication has yet to integrate disability or ableism as a primary area of research or intersectional investment. The ableist silences and disability slights are notable, however. This review essay provides a working definition of eco-ableism, including a summary of disability imagined through medical and social models. Then, the authors reflect on the role of voice as a method. Next, the essay synthesizes existing interdisciplinary literature to establish three broad trajectories of environmental communication research: (1) ecoableism in wilderness and outdoor recreation; (2) eco-normativities in public health discourses; and (3) climate justice futurism as public advocacy. While not exhaustive, the authors hope this review essay will help prompt the overdue cripping of environmental communication.

Crock, M.E., McCallum AO, R.C. (2022). Disability, conflict, and environmental conditions – An Introduction. In M. H. Rioux, J. Viera, A. Buettgen, & E. Zubrow (Eds.), Handbook of disability. Springer, Singapore. DOI: https://doi.org/10.1007/978-981-16-1278-7_73-1.

It is now accepted that persons with disabilities suffer disproportionate harms in disaster and displacement contexts, most particularly when persons with disabilities cross international borders in search of protection. Advances in domestic and international laws and policies are changing attitudes and approaches for these people. However, achieving equal treatment and mainstreaming disability-inclusive and rights-based approaches to disaster risk management is a work in progress. The COVID-19 pandemic and ongoing conflicts around the world underscore the importance of the insights provided by the authors in this collection. The shared aim is to lay out a road map to ensuring the full and effective participation of all persons with disabilities in society, acknowledging the intersecting and cross-cutting issues that create barriers in contexts of disaster and displacement.

Dahlberg, A., Borgström, S., Rautenberg, M., & Sluimer, N. (2022, September). A Nearby Park or Forest Can Become Mount Everest. Access to Urban Green Areas by People in Wheelchair from an Environmental Justice Perspective: A Stockholm Case. In B. Plüschke-Altof & H. Sooväli-Sepping (Eds.), Whose Green City? Contested Urban Green Spaces and Environmental Justice in Northern Europe [Sustainable Development Goals Series Series (SDGS)] (pp. 19–40). Springer Nature Switzerland AG.

That green areas in rapidly urbanising landscapes are important for human well-being is well established. Parks, woodlands, nature reserves, street trees and backyards provide multiple benefits, e.g. through providing physical, mental, social, educational and cultural benefits. These effects should reach all ‘the people’. However, a precondition is accessibility, which has received growing research attention. The aim of this chapter is to contribute to this body of knowledge by presenting and discussing accessibility to urban nature from the viewpoint of people whose mobility is dependent on a wheelchair. Very few studies have focused on this group, and then primarily on physical access. We include a broader perspective on underlying factors affecting accessibility—juxtaposed with an environmental justice approach. Our exploration rests primarily on interviews with people dependent on a wheelchair and representatives of supporting organisations. To this is added data from an online survey. Our results highlight that access to urban green areas must be understood in a broad sense, e.g. where physical access includes the whole route from home and back again, and where mental and social access is equally crucial. Further, green areas include the whole spectrum from a window-view to an urban national park. The study sends valuable signals to planners, e.g. concerning and including people in wheelchairs in all stages of planning and maintenance.

Davey, C., & Tataryn, M. (Eds.). (2021). Disability Studies and Sustainable Ecology [Special Issue]. Sustainability, 13(17).

The accelerating climate crisis forces us to face current socio-economic inequalities and how crises disproportionately impact certain sectors of society. In many respects, the ongoing COVID-19 pandemic is a foreshadowing of how the burden of responding to a global crisis falls unequally. Other publications (e.g., Twig et al., 2011, Gartrel et al., 2020, Peek and Stough, 2010) explore how disabled people are disproportionately negatively affected by such crises. This is an injustice that must be remedied. Yet, in this Special Issue we want to consider the relationship between disability and sustainability from a different angle. Instead of just focusing on people with disabilities as a vulnerable group, and ecological changes as a risk, we want to explore how the conceptual thinking around disability in society interacts with the challenging rethinking of society that will be necessary for sustainability. We are asking: how can a critical perspective on disability, and a view of sustainability that incorporates the diversity inherent in disability, help guide us towards a future that incorporates a more holistic notion of interdependence and, hence, sustainability in our relationship with each other as humans but also with the natural world that surrounds and sustains us? This exploration of interdependence will indeed touch upon questions about our physical and social environments. How do we build our cities and communities? What can perspectives on disabilities teach us about what this says and/or determines about our relationships with each other and with our natural environments? What do different communities (i.e., indigenous people) have to offer in this regard? Finally, how can we conceptualize welfare for all in a way that does not depend on the exploitation of other people and the rest of the ecology?

Day, A. (2020). Crip Time and the toxic body: Water, waste and the autobiographical self. In F. Allon, R. Barcan, & K. Eddison-Cogan (Eds.), The Temporalities of Waste: Out of Sight, Out of Time (pp. 167-178). New York: Routledge. DOI: https://doi.org/10.4324/9780429317170.

Our relationship to climate change will vary depending on our proximity to fresh water and ocean water, poverty, illness and disability—a constellation of intersecting tensions that differentially deploy disaster and debility. This chapter explores three contemporary nonfiction writers, all of whom write of an intimate relationship with water and disability: Leah Laksmi Piepzna-Samarasinha’s Dirty River, Sandra Steingraber’s Living Downstream and Kristen Iversen’s Full Body Burden. Taken together, these three writers move us geographically across the United States, following the linear timeline of U.S. colonial occupation from Massachusetts to the American West, exploring eighteenth- and nineteenth-century industrial factory waste, nineteenth- and twentieth-century farm waste, and late twentieth-century nuclear waste. Focusing on the relationships Piepzna-Samarasinha, Steingraber and Iversen have to water and waste leads us to carefully consider the relationship of individual bodies to time and disability. Utilising a key conceptualisation in critical disability studies, Crip Time, this chapter explores how exposure to environmental toxins is a kind of slow violence enacted on the human body, causing us to think differently about cause and effect, contagion and illness, human debility and planet precarity.

Disability Inclusive Climate Action Research Program & International Disability Alliance. (2022, June). Disability Rights in National Climate Policies: Status Report. Disability Inclusive Climate Action. Montreal, PQ & New York: Research Program at the McGill Centre for Human Rights & Legal Pluralism and the International Disability Alliance.

Produced and released jointly by the Disability Inclusive Climate Action Research Program at
McGill University and the International Disability Alliance, this report provides a systematic
analysis of the inclusion of persons with disabilities and their rights in the climate commitments and policies adopted by State Parties to the United Nations Framework Convention on Climate Change (UNFCCC). Section 1 reiterates the key obligations owed by states to persons with disabilities under international law. Section 2 reviews whether and how States have recognized persons with disabilities and their rights in their communications to the UNFCCC and in their domestic climate adaptation and mitigation policies. Section 3 summarizes the key conclusions of our analysis and provide recommendations for enhancing disability inclusion in national climate policy-making. In the appendix to this report, we provide a compendium of references to disability from our dataset of domestic climate policies. (p. 2).

Duke Disability Alliance.  (2022). Jen Deerinwater: Accompliceship Now! Disability and Indigeneity on the Frontlines of Climate Crisis [YouTube Video]. Durham, NC: Duke University.

“How does climate crisis impact disabled and indigenous communities? What can we learn about resistance from crip wisdom and indigenous knowledges? Hear about the intersections of these topics from disabled Cherokee organizer and journalist, Jen Deerinwater.”

Eisen, N., Duyck, S., & Jodoin, S. (2019, December). The Rights of Persons with Disabilities in the Context of the UN Framework Convention on Climate Change: Relevant International Frameworks and Compilation of Decisions adopted by the Parties to the UNFCCC. Winnipeg, MB, Washington, DC, Council of Canadians with Disabilities (CCD), ONG Inclusiva, and Center for International Environmental Law (CIEL).

The Parties to the UN Climate Agreements have recognized that persons with disabilities are key stakeholders in the international response to climate change. As such, they must be engaged throughout the UNFCCC processes and their rights respected and promoted through any climate activity, including mitigation, adaptation, or capacity building. This document recalls the relevant provisions of the UN Convention on the Rights of Persons with Disabilities and of the Sendai Framework and provides a compilation of all references to persons with disabilities adopted by governments under the UN Framework Convention on Climate Change.

Engelman, A., Craig, L., & Iles, A. (2022, October). Global Disability Justice In Climate Disasters: Mobilizing People With Disabilities As Change Agents. In A. R. Weil (Ed.), Disability and Health [Feature Issue]. Health Affairs, 41(10), 1496-1504. DOI: https://doi.org/10.1377/hlthaff.2022.00474.

Disabled people are highly susceptible to climate change impacts and disasters, yet they often remain sidelined or largely invisible. Policy makers, humanitarian agencies, and governments need to address the climate-related vulnerabilities that disabled people encounter during acute events and in the course of more creeping forms of climate change. As deaf researchers, we call for integrating disability justice into climate and disaster preparedness policies and practices worldwide. A disability justice approach can embrace the strengths that disabled people bring to disaster planning and climate mitigation and advocacy efforts. In this article we present case studies from different global regions to illustrate how disability is overlooked in responding to climate-related health impacts and disaster planning. We also draw particular attention to mutual aid networks led by disabled people in adapting to climate-related health impacts. We then suggest questions to help policy makers and practitioners integrate disability justice into their work. Above all, disabled people, organizations, and service providers should take ownership over the process of developing policies and actions to better prevent, prepare for, and respond to climate disasters.

Eriksen, S. H., Grøndahl, R., & Sæbønes, A. (2021, December).On CRDPs and CRPD: why the rights of people with disabilities are crucial for understanding climate-resilient development pathways [Personal View]. Lancet Planetary Health, 5(12), e929-e939. DOI: https://doi.org/10.1016/S2542-5196(21)00233-3.

In this Personal View, we examine how the Convention on the Rights of Persons with Disabilities and lived experiences of disability can deepen understanding of four key features of climate-resilient development: social justice and equity as normative goals; the ethical underpinnings of social choices; the inequitable relations that drive marginalisation; and the ways in which society navigates uncertainty through inclusive and contestatory politics. A disability lens not only helps to understand how marginalisation generates vulnerability; it also helps to elaborate the ethic of solidarity as underpinning social choices and steering development towards climate-resilient pathways. Social justice concerns non-discrimination and equitable participation in everyday informal arenas, as well as formal decision making processes. The resilience knowledges of disabled people help to rethink sustainable development by expounding human interdependence and everyday problem solving in the face of uncertainties. They also contribute to opening up climate change decision making and knowledge processes in ways crucial to engendering transformative change. Embracing human diversity by recognising dignity and capacity is required to counter othering and marginalisation, ensure human wellbeing and planetary health, and achieve socially just development. As such, solidarity is not just a normative goal, but also a means of building climate-resilient development.

Fenney, D. (2017, August). Ableism and disablism in the UK environmental movement. Environmental Values, 26(4), 503-522. DOI: https://doi.org/10.3197/096327117X14976900137377.

This article considers disabled people’s involvement with the UK environmental movement. It draws on findings from qualitative research with disabled people in the UK exploring experiences of access to sustainable lifestyles. A number of experiences of disablism (the manifestation of oppression against disabled people) and ableism (assumptions and valorisations of non-disabled normality) were described. Similar issues were also identified in relevant documentary sources and from research into disabled people’s experiences in the context of other movements such as the wider anti-capitalist movement. These findings suggest that ableism may be a significant feature of the UK environmental movement. If this is the case, there are important implications for the wider success of this movement’s aims in terms of achieving environmental protection, as well as for the ongoing exclusion experienced by disabled people with regard to pro-environmental activities.

Fritsch, K., & McGuire, A. (2018, Spring). The Biosocial Politics of Queer/Crip Contagions [Special Issue]. Feminist Formations, 30(1).

“In this special issue, we chart the limits and possibilities of queer/crip biosocial politics by examining the ways these ideas intersect and commingle with the narratives, practices, and temporalities of contagion. Crip and queer mark out, and indeed, flaunt the failures of normativity. And, in their fierce assertion of the possibility of an outside or more-than-one, crip and queer share a striking range of political and imaginative affinities. Feminist scholars have variously theorized queer and crip as unsettling, strange, twisted, unintelligible, or disruptive (Ahmed 2006; Butler 1993; Kafer 2013; McRuer 2006; Muñoz 2009; Kuppers 2011; Sandahl 2003; Chen 2012; Puar 2012; Johnson 2015; Clare 2001; McRuer and Mollow 2012). Building upon and extending these insights, this issue traces the multiple and unexpected ways queer and crip influence and infect one another” (p. vii).

Fritsch, K., Hamraie, A., Mills, M., & Serlin, D. (2019). Special Section: Crip Technoscience. Catalyst: Feminism, Theory, Technoscience, 5(1). DOI: https://doi.org/10.28968/cftt.v5i1.

“This special section of Catalyst maps the central nodes of the emerging field of crip technoscience, which we situate at the intersection of feminist technoscience studies and critical disability studies. Crip technoscience marks areas of overlap between these fields as well as productive disciplinary and political tensions. Our section brings together critical perspectives on disability and science and technology in order to grapple with historical and contemporary debates related to digital and emerging technologies, treatments, risk, and practices of access, design, health, and enhancement” (pp. 1-2).

Global Action on Disability (GLAD) Network. (n.d.). Promoting Disability-Inclusive Climate Change Action. Geneva, Switzerland and New York, NY: Author.

The preamble to the 2015 Paris Agreement includes persons with disabilities as one of the populations most acutely affected by climate change. However, subsequent provisions omit disability inclusion as an essential principle in action against climate change.

Persons with disabilities remain largely excluded from decision-making processes and plans to address and prevent climate change and the responses to climate-related disasters and emergencies at sub-national, national, regional, and international levels. The inclusion of persons with disabilities is pivotal to ensuring that efforts to implement the UN Framework Convention on Climate Change (UNFCCC) and out comes of the Paris Agreement are inclusive. Conversely, persons and organizations of persons with disabilities must advocate for a holistic approach to disability inclusion.

To address this, the Secretariat of the GLAD Network, in close consultation with and guidance by the GLAD Network’s working group on disability-inclusive climate action, is pleased to present to you with an issue paper and guide to promoting disability-inclusive climate change as well as 3 Steps Toward Disability-Inclusive Climate Action.

Good, G. A. (2022). Guest Editorial: Disasters and Disability: A Call to Action. Journal of Visual Impairment & Blindness, 116(6), 761-763. DOI: https://doi.org/10.1177/0145482X221144405.

“In recent years, most people living on the planet have been affected by or have witnessed devastating disasters such as earthquakes, floods, hurricanes, and wildfires, not to mention the fact that we have all been living through the COVID-19 pandemic. As researchers and professionals who work with disabled people (in this editorial, I will use the language of the Social Model of Disability, which acknowledges that disability is socially imposed by society onto those living with impairments); as parents, family members, and friends of those living with disability; and as disabled persons ourselves, I am sure we have all been concerned about the safety and welfare of those we care about who are coping with these crises, emergencies, and disasters.

There are many potential disasters to prepare for, including natural disasters, human-made and industrial disasters, economic or state collapse, school shootings, and other emergencies. These crises affect people who are blind or have low vision and those with other impairments across the age spectrum, as well as their families, educators, practitioners, and the first responders, healthcare workers, policymakers, and stakeholders charged with leading a coordinated response to any disaster. It is clear that innovative research, effective policies, and practices are needed, along with a massive awareness campaign, so that visually impaired people, and those with other impairments, are not forgotten in the various stages of disasters and emergencies such as preparation, planning, response, and recovery” (p. 761).

Goodley, D. (2020). Challenging transhumanism: Clutching at straws and assistive technologies. Balkan Journal of Philosophy, XII(1), 5-16.

This paper cautiously ponders the offerings of transhumanism. We begin the paper by introducing the transhumanist movement and related transdisciplinary thinking before giving space to the emergence of critical disability studies. We argue that the latter field has the potential to ground a critical and reflexive analysis of transhumanism– not least through a consideration of the contributions of posthuman and green disability studies. Drawing on these two perspectives, two specific areas of transhuman contemplation are offered. First, we consider (in the section titled, ‘The Ban on Straws: Disability prosthetics and the complication of eco-politics’) the relationship between disability advocacy politics and the potential ableism present in popular eco-political discourse. Second, we explore mainstreaming assistive technologies and e-waste collateral. These analytical thematics highlight the complexities of a critical transhuman disability studies, not least, in relation to the clash of disability and green politics. We conclude the paper with some considerations for future theory and research that trouble an uncritical acceptance of transhumanism in the area of critical disability studies.

Goodrow, G. (2019). Biopower, disability and capitalism: Neoliberal eugenics and the future of ART regulation. Duke Journal of Gender Law & Policy, 26(139), 137-155.

Discourse around reproductive and contraceptive technology in the United States is typically organized around ideas of autonomy, privacy, and free choice. The dichotomy of ‘pro-choice’ and ‘pro-life’ structures all debates on the topic, and the political framework of neoliberalism channels discussion into prepackaged frameworks of cost-benefit analysis and the primacy of free market choice. However, an examination of history and present policy developments paints a different picture. This Note argues that access to and regulation around contraception, abortion, and overall reproductive health and technology has been informed by and continues to interact with ideas of biopower and both positive and negative eugenics, and that neoliberal conceptions of free reproductive choice ignore the implications of this connection. Part II traces the history of the eugenics movement in America, exemplified by forced and coerced sterilization of people considered mentally or physically ‘degenerate,’ particularly those confined to institutions, and explores the rhetoric in early contraceptive-focused treatises and court decisions that reflect eugenicist views. Part III analyzes the modern trends on legal access to and regulation of reproductive and contraceptive technology and its interaction with race, socioeconomic status, and, in particular, disability (one of the more anxiety-producing categories of humanity in the neoliberal era). In Part IV, the Note goes on to argue that construction of a rational and compassionate legal framework where a woman’s right to choose is preserved (or revived) and the humanity of disabled persons is also respected is not only possible, but essential. A truly feminist reproductive framework must be built on justice, not market choice, and must respect both the agency and autonomy of pregnant women and the humanity and individual subjectivity of disabled persons. Policy strategies towards this end will not be easy, but attention to all the intersectional and overlapping factors that affect women’s reproductive decision-making, especially with regard to disability and reproductive technology, can change the way we view and value disabled personhood in our society.

Gottlieb, R. S. (2015, January). Disability and environment: Cautions and questions. In J. W. Belser (Ed.), Religion, Disability, and the Environment [Special Issue]. Worldviews, 19(1), 74–78. DOI: https://doi.org/10.1163/15685357-01901006.

“The essays in this issue utilize and advance current thinking about intersections of environmental crisis, disability, politics, morality, and religion. They are passionate and creative, challenging both common sense and the theoretical status quo. They utilize resources from culture, philosophical critique, political movements, and current events. My critical comments are made in the same spirit as the essays themselves, and in appreciation for the authors’ intellectual accomplishments. I write as the father of a 28 year old daughter, Esther, who has multiple physical, neurological, and development disabilities” (p. 74).

Grassi, S. (2017). “Queer natures”: Feminist ecocriticism, performativities, and Ellen van Neerven’s “Water.”  LEA – Lingue e letterature d’Oriente e d’Occidente, 6, 177-192. DOI: https://doi.org/10.13128/LEA-1824-484x-22336.

This paper brings together queer ecological thought, ecofeminism, and feminist ecocriticism to explore forms of embodied resistance against intersectional, complex oppressions of women, races, and lands. It looks at the award-winning Indigenous Australian writer Ellen van Neerven’s short story, ‘Water’ (from the 2014 collection, Heat and Light) to canvas an anti-essentialised queer feminist politics and ethics of care through which to shape utopian futures after sovereignty, after the West, after patriarchy, after whiteness.

Grossman, S. J. (2019, May). Living lexicon for the environmental humanities: Disabilities. Environmental Humanities, 11(1), 242-246.  DOI: https://doi.org/10.1215/22011919-7349532.

In this brief entry, I give shape to the affective ties [between disability (visible and invisible) and ravaged environments] by exploring the relation between physical disability and ravaged environments as one of resonance and echo and not as a canonized history or a tested theory. I draw on my personal history, as well as emerging work in disability studies and environmental humanities, in order to literalize these resonances and echoes across nature-cultures” (p. 242).

Groulx, M., Freeman, S, & Lemieux, C. (2022, March). Accessible nature beyond city limits – A scoping review. Journal of Outdoor Recreation and Tourism, 37. DOI: https://doi.org/10.1016/j.jort.2022.10049.

The health and well-being benefits of nature contact are well known, but inequitably distributed across society. Focusing on the access needs of persons with a disability, the purpose of this study was to systematically examine research on the accessibility of nature-based tourism and recreation spaces outside of urban/community settings. Following a scoping review methodology, this study sought to examine policies, services, physical infrastructures, and regulatory standards intended to enable equitable use of nature-based settings by individuals of all ages and abilities, particularly persons with a disability. In total, 41 relevant studies were identified and analyzed. Findings indicate that there are considerable gaps in the provision of services and information that enable self-determination in the use and enjoyment of nature, and that accessibility in nature-based settings is conceptualized through three interrelated policy/design pathways: the adaptation pathway, the accommodation pathway, and the universal design pathway. As a whole, accessibility policy and standards research specific to natural settings outside of urban/community settings is highly limited.

Management implications: There are growing calls to promote inclusive nature experiences in tourism and recreation spaces outside of community settings. Management of such spaces must reconcile equity concerns with a host of other priorities like environmental conservation. In the case of promoting universal accessibility, few studies offer insight into the detailed standards that must be met to create barrier-free access, let alone how to integrate such standards with other management priorities. Transdisciplinary research partnerships that involve management personnel, environmental and public health researchers, and persons with a disability are needed to identify effective management synergies.

Grue, J., & Lundbad, M. (2019). The biopolitics of disability and animality in Harriet McBryde Johnson. In N. Watson & S. Vehmas (Eds.), Routledge Handbook of Disability Studies (2nd ed.) (pp. 117-126). New York and London: Routledge.

“This chapter represents a multidisciplinary and collaborative approach to an enduring problem in disability studies, namely the valuation of different lives and kinds of lives. The authors believe that this problem can be explored in interesting ways if disability studies and human animal studies interact more closely. Historically, the academic fields that study disability and animality have not been in close communication. In fact, their relationship can perhaps more accurately be described as being wary of the implications of findings in the other field. We feel, however, that communication – and collaboration – may turn out to be essential. This is partly because key problem areas that concern both fields, including the criteria according to which different lives are valued and what exactly constitutes a life that is worth protecting, are also approached through other lines of inquiry, including the neo-utilitarianism that is most closely associated with the philosopher and ethicist Peter Singer. In Singer’s approach (admittedly simplified), capacities for higher cognitive functions and for suffering often become the major criteria that are deployed across species boundaries in order to determine the relative value of different beings, and thereby the lives of many animals and disabled people are potentially devalued. The 2002 debate between Singer and Harriet McBryde Johnson, one of the major disability activists of her generation, is one of the points of departure for this chapter. In a much vaunted encounter at Princeton University, USA, Johnson defended the intrinsic value of the lives of human beings with disabilities, while effectively refusing to countenance Singer’s position that species boundaries cannot by themselves constitute grounds for distinguishing between different forms of life. In this chapter, we delve deeper into what lies beneath the Singer-Johnson encounter, along with Johnson’s other writing, to consider the broader issues at stake. The chapter is structured as a dialogue. This reflects our desire not to conflate or artificially collapse animality studies and disability studies into a single disciplinary endeavour, but rather to find those areas and problems to which both fields have something important to contribute. We hope that the text will read not as a debate, but as an exploratory conversation with the shared purpose of finding out what disability studies and animality studies can teach each other, as well as other disciplines” (p. 117).

Hall, K. Q. (2014). No failure: Climate change, radical hope, and queer crip feminist eco-future. Radical Philosophy Review, 17(1), 203-225. DOI: https://doi.org/10.5840/radphilrev201432614.

This paper offers a critique of the emphasis on anti-futurity and failure prevalent in contemporary queer theory. I argue that responsibility for climate change requires commitments to futures that are queer, crip, and feminist. A queer crip feminist commitment to the future is, I contend, informed by radical hope.

Hamraie, A. (2018). Enlivened city: Inclusive design, biopolitics, and the philosophy of liveability. Built Environments, 44(1), 77-104. DOI: https://doi.org/10.2148/benv.44.1.77

Shortly after the United States announced its withdrawal from the Paris climate accords, mayors of global cities committed to addressing climate change via urban-scale projects aimed at promoting liveable, sustainable, and healthy communities. While such projects are taken for granted as serving the common good, this paper addresses the ideological dimensions of planning liveable cities with health promotion in mind. Liveability, I argue, is a normative ideology wherein liveliness and activation perform affective roles, associating urban design methods with feel-good imagined futures while rendering built structures as polemics against disabled and racialized populations. Using Nashville, Tennessee, a mid-sized US city, as a case study, the paper parses the progressive vision of the liveable city from the ideologies, political economies, and development practices that simultaneously activate some lives while excluding others.

Hamraie, A., & Fritsch, K. (2019). Crip technoscience manifesto. In K. Fritsch, A. Hamraie, M. Mills, & D. Serlin (Eds.), Special Section on Crip Technoscience. Catalyst: Feminism, Theory, Technoscience, 5(1), 1-34. DOI: https://doi.org/10.28968/cftt.v5i1.29607.

As disabled people engaged in disability community, activism, and scholarship, our collective experiences and histories have taught us that we are effective agents of world-building and -dismantling toward more socially just relations. The grounds for social justice and world-remaking, however, are frictioned; technologies, architectures, and infrastructures are often designed and implemented without committing to disability as a difference that matters. This manifesto calls attention to the powerful, messy, non-innocent, contradictory, and nevertheless crucial work of what we name as ‘crip technoscience,’ practices of critique, alteration, and reinvention of our material-discursive world. Disabled people are experts and designers of everyday life. But we also harness technoscience for political action, refusing to comply with demands to cure, fix, or eliminate disability. Attentive to the intersectional workings of power and privilege, we agitate against independence and productivity as requirements for existence. Instead, we center technoscientific activism and critical design practices that foster disability justice.

Hart, D. (2022). Finding the Weight of Things: Larry Eigner’s Ecrippoetics. University of Alabama Press.

Larry Eigner (1927–1996) wrote thousands of poems in his lifetime, despite profound physical limitations caused by cerebral palsy. Using only the thumb and index finger of his right hand, Eigner generated a torrent of urgent and rich language, participating in vital correspondences as well as publishing widely in literary magazines and poetry journals.

While Eigner wrote before the emergence of ecopoetics, his poetry reflected a serious engagement with scientific writing and media, including Rachel Carson’s seminal Silent Spring. Eigner was writing about environmental disasters and climate change long before such concerns took on a moral incumbency. Similarly, Eigner was ahead of his time in his exploration of disability. The field of disability studies has expanded rapidly in the new millennium. Eigner was not an overtly biographical poet, at least as far as his physical limitations were concerned, but his poetry spoke volumes on the idea of embodiment in all its forms.

Finding the Weight of ThingsLarry Eigner’s Ecrippoetics is the first full-length study of Eigner’s poetry, covering his entire career from the beginning of his mature work in the 1950s to his last poems of the 1990s. George Hart charts where Eigner’s two central interests intersect, and how their interaction fueled his work as a poet-critic—one whose work has much to tell us about the ecology and embodiment of our futures. Hart sees Eigner’s overlapping concerns for disability, ecology, and poetic form as inextricable, and coins the phrase ecrippoetics here to describe Eigner’s prescient vision.

Hemingway, L., & Priestly, M. (2014). Natural hazards, human vulnerability and disabling societies: A disaster for disabled people?  Review of Disabiilty Studies, 2(3).

The policy and research literature on disaster management constructs disabled people as a particularly “vulnerable group.” In this paper, we combine concepts from disaster theory and disability theory to examine this assumption critically. Drawing on primary, secondary and tertiary sources, we assess the vulnerability of disabled people in two globally significant disasters: Hurricane Katrina in August 2005 and the Asian tsunami of December 2004. In both cases, disabled people were adversely affected in terms of their physical safety and access to immediate aid, shelter, evacuation and relief. Using a social model analysis we contest the view that this vulnerability arises from the physical, sensory or cognitive limitations of the individual and show how it may be attributed to forms of disadvantage and exclusion that are socially created. The paper concludes that “natural hazards” are realised disproportionately as “human disasters” for disabled people, and most notably for disabled people in poor communities. Social model approaches and strong disabled people’s organisations are key to building greater resilience to disaster amongst “vulnerable” communities in both high-income and low-income countries.

Heylighen, A. (2008). Sustainable and inclusive design: A matter of knowledge? In R. Imrie & H. Thomas (Eds.), The Environment and Disability: Making the Connections [Special Issue]. Local Environment, 13(6), 531-540. DOI: https://doi.org/10.1080/13549830802259938.

In analysing parallels between sustainable and inclusive design, the paper investigates reasons for architects’ disappointing uptake of these approaches so far. A common reason seems to be the lack of knowledge that has the applicability required by architectural practice. Researchers produce knowledge on why and how we should accomplish more sustainable practices in building, which rarely filters down to practicing architects. Vice versa, the knowledge developed through architects’ design experiences rarely feeds back into academic research. Moreover, in the case of inclusive design, the user side represents a valuable body of knowledge as well: through their specific interaction with buildings/spaces, users with disabilities appreciate qualities and detect misfits most architects are unaware of. If the uptake of sustainability and inclusiveness in architecture is to be improved, the major challenge thus seems less a need to generate more knowledge than a need to make more effective use of what is already available.

Hickman, L. N. (2015). Lead me beside still waters: Toxic water, Trisomy 21 and a theology of eco-social disability. In J. W. Belser (Ed.), Religion, Disability, and the Environment [Special Issue]. Worldviews, 19(1), 34-50. DOI: https://doi.org/10.1163/15685357-01901003.

Artist Ena Swansea paints a provocative paradox in ‘One’ from her ‘4 Seasons’ quadtych: Is the child in the bathtub playfully holding a bubble, the orb of our global commons, or a crystal ball that portends an ominous future? As the viewer is confronted with the image of a child who, in the middle of an ordinary daily routine, is up to his armpits in a pool of blood red water, the question of water toxicity becomes central in the painting. Working from that image, this paper explores the interaction between water toxicity and Trisomy 21, proposing the need for a ‘precautionary principle’ to guide decisionmaking. The rationale for that principle is developed here through a study of communities with heightened links between water toxicity and Trisomy 21, a deepened theology of water across worldviews drawing on the work of John Hart’s Sacramental Commons, and a proposed model for ‘eco-social disability.’ Because scientific studies linking toxic water and Trisomy 21 are inconclusive, the precautionary principle serves as a guide to prevent the potential disabling effects of toxic water causing unjust generation of disablement.

Hilton, E. (2022, May). Building a more inclusive climate movement: Climate change and disabilities. Journal of Environmental Health, 84(9), 34-36.

In November 2021, world leaders gathered at the 26th United Nations Climate Change Conference of the Parties (COP26) to discuss global climate policy and the urgent need to address harmful emissions that arc accelerating global warming and extreme weather events devastating communities worldwide. Given the importance of this event and the need to hear from diverse voices, it was disappointing that the Israeli Energy Minister Karine Elharrar could not attend the first day of discussions because she uses a wheelchair and the meeting venue was not accessible. Climate change is accelerating with visible impacts around the world. Climate change can also cause increased disease and worsened physical, mental, and community health conditions. Exacerbating the outsized impact of climate change factors on people with disabilities is the fact that actions being pursued by those in the environmental and environmental justice movements can be at odds with the needs of people with disabilities.

Hughes, B. (2019). The abject and the vulnerable: The twain shall meet: Reflections on disability in the moral economy. The Sociological Review Monographs, 67(4), 829-846. DOI: https://doi.org/10.1177%2F0038026119854259.

The meaning of impairment is often Janus-faced. On the one hand, it is associated with defect, deformity, monstrosity and other tropes that carry the weight of ontological ruin, haunting narratives of physical, mental or sensory catastrophe that disturb the normate sense of being human. Impairment is invested with the debilitating social and moral consequences that symbolise disability. Disavowed and repudiated by the non-disabled community, disability represents the murky, shadow side of existence that separates normal embodiment from its benighted, abject ‘other’. Disgust – on the part of non-disabled, ‘clean and proper’ subjects – is the likely emotional response to the pollution and impropriety that disability represents. The emotional relation between the two parties may be mired in normate repulsion.

Humalisto, N. (2022) Generative spaces of climate change adaptation: Focus on disability inclusion. In H. Katsui & V. Mesiäislehto (Eds.), Embodied inequalities in disability and development (pp. 13-34). Stellenbosch, South Africa: African Sun Media. DOI: https://doi.org/10.52779/9781991201812

Climate change increases livelihood vulnerability and exposure to risks around the globe, but these impacts are not equally distributed among different people and places. Among the disadvantaged are persons with disabilities but their inclusion in projects and planning for climate change adaptation is low. Nepal is a challenging but typical context in the global South, where persons with disabilities have limited capacities to demand their basic rights, from secure livelihoods to sanitation, to be respected. Concurrently, (localised) institutions might not have the capacity to protect their constitutional rights. Consequently, while Nepalese policy encourages disability inclusion in adaptation planning, doing so in practice faces manifold political, cultural and social barriers. This chapter examines the conditions for inclusive adaptation based on ethnographic data from development projects run by seven Nepalese NGOs. The results show that demographic governance needs to be enhanced, and that the accountability of state institutions must co-evolve with the resilient livelihood opportunities for persons with disabilities. Inclusive adaptation hinges on creating trade-offs and positive feedback looks by generating opportunities for communal participation, refining evidence for circulation, and enabling scalar linkages between stakeholders and duty-bearers. 

Hyatt, B. (2021, August 18). Disability-Inclusive Local Climate Action Planning in the United States. Vibrant Environment Blog [Website]. Washington, DC: Environmental Law Institute.

“In order to protect people with disabilities from the worst impacts of climate change, local planners must build disability-inclusive climate action plans that draw upon lessons learned domestically from previous natural disasters and from abroad. They must take decisive steps to ensure the active participation of people with disabilities in the climate action planning process. If carried out effectively, these actions will save lives.”

Iengo, I. (2022). Endometriosis and environmental violence: An embodied, situated ecopolitics from the Land of Fires in Campania, Italy. Environmental Humanities, 14(2), 341–360. DOI: https://doi.org/10.1215/22011919-9712412.

This toxic autobiography seeks to open the conversation around the intersecting injustices marking the epistemological, material, political, and porous entanglements between endometriosis, the bodily inflammatory chronic condition the author is affected by, and the toxic waste fires raging in the territory known as the Land of Fires, between the provinces of Naples and Caserta, in southern Italy. Thinking with the sprouting intersection of environmental humanities and disability justice, while rooted in a critical environmental justice and transfeminist standpoint, the article uncovers the toxic embodiment where bodies and places are enmeshed. Although a growing body of literature acknowledges the role of chemical buildup and endocrine-disrupting toxins in the occurrence of endometriosis, the author delineates the epistemic injustices that keep this relationship silent in mainstream medical discourses. Through the blend of environmental memoir, embodied knowledge, activist campaigns, and medical literature, the article exposes the accumulation of environmental, medical, ableist, misogynist, and capitalist slow violence that living with endometriosis brings about. While emerging from the materiality of experiencing trauma and pain, the article reclaims the emancipatory possibilities that can be articulated. From the politicization of an “invisible” illness standpoint, the article proposes a toxic autobiography in which transfeminist, environmental, and disability justice politics are collectively affirmed through situated ecopolitics of response-ability that accounts for interdependence and self-determination of marginal bodies and territories.

Iengo, I., Kotsila, P., & Nelson, I. L. (2023). Ouch! eew! blech! A trialogue on porous technologies, places and embodiments. In W. Harcourt, A. Agostino, R. Elmhirst, M. Gómez, & P. Kotsila (Eds.), Contours of feminist political ecology: Gender, development and social change. Palgrave Macmillan, Cham. DOI: https://doi.org/10.1007/978-3-031-20928-4_4.

In this chapter, we bring political ecologies of health and the body into conversation with environmental justice and crip theory, science, technology and society studies (STS) and biopolitics. We present a trialogue that highlights three cases of health and embodiment examining the crosscutting themes of porosity and technologies as they offer us ways to insist on the right to be and signal a politics of health in FPE: (a) the lived experience of chronic pain as a catalyst for learning about environmental injustice in Naples, southern Italy, and the epistemic activism of crip communities producing counter-knowledge and mutual aid; (b) the spread of malaria among immigrant farmworkers in southern Greece as invisibilised intersectional and embodied injustice; and (c) embracing pharmaceuticals and vlogs with ambivalence while living with the temporary condition, hyperemesis gravidarum (HG) in the northeastern United States. We bring to the fore questions around bodies, harm, care and power, as those were brought about by our own situatedness in, and response-ability towards, embodied experiences of chronic pain, infection and nausea.

Ignagni, E., Chandler, E., Collins, K., Darby, A., & Liddiard, K. (2019, June). Designing access together: Surviving the demand for resilience. In K. Aubrecht & N. La Monica (Eds.), Survivals, Ruptures, Resiliences: Perspectives from Disability Scholarship, Art and Activism [Special Issue]. Canadian Journal of Disability Studies, 8(4), 293-320. DOI: https://doi.org/10.15353/cjds.v8i4.536.

Together we engaged in a project to co-design and co-create a fictional near-future world that would enable us to interrogate our present techno-social dilemmas.  Accessibility was central to our workshop for the way that access is always central to enacting crip, mad, Deaf, and spoonie communities. Without access, we cannot meet, discuss, share, struggle, fight, dismantle or create. Crucially, access was tied to our desire to co-create crip near-futures.

Imgrund, M. (2018, August 8). Eco-ableism: What it is, what it matters and how it affects disabled people. Eco Warrior Princess [Website/Blog].

Blog post defining and discussing “eco-ableism” in response the author’s research into environmental activism and calls to ban plastic straws, without considering the consequences to disabled people.

Imrie, R., & Thomas, H. (2008) Guest editorial: The interrelationships between environment and disability. In R. Imrie & H. Thomas (Eds.), The Environment and Disability: Making the Connections [Special Issue]. Local Environment, 13(6), 477-483. DOI: https://doi.org/10.1080/13549830802259748.

“This issue of Local Environment contributes to the process of bridging the gulf between the two social movements and sets of substantive and theoretical concerns, which, we argue, have much to learn from, and contribute to, each other. Inevitably, this collection of papers touches on a selective sub-set of issues, often suggesting scope for further research. In particular, they identify, and take forward, themes of dependence/community, or how disabled people are able to forge ways of changing environmental contexts; the role of experts and their knowledge; and the development of policy-related tools to facilitate environmental learning and change. The papers highlight that a great deal remains to be done to map and relate the discussions in the sprawling cross- disciplinary literatures that are characteristic of both environmentalism and disability” (pp. 478-479).

International Disability Alliance. (n.d.). Towards COP26: Enhancing Disability Inclusion in Climate Action [Disability Inclusive Climate Action COP26 Advocacy Paper]. New York and Geneva: Author.

“This document highlights the disproportionate impact of climate change and the possible adverse impacts of climate mitigation and adaptation activities on persons with disabilities. It also proposes measures to ensure the inclusion and participation of persons with disabilities and their representative organisations in climate-related decision-making” (p. 1).

Jacobs, N. A. (2022). Disability and ecofeminist literature. In D. A. Vakoch (Ed.), The Routledge Handbook of Ecofeminism and Literature (pp. 301-310). New York: Routledge. DOI: https://doi.org/10.4324/9781003195610-30.

This chapter explores the generative interconnections that unite ecofeminist literature and theory with disability studies and justice. Defining humans’ relationship with nature, not through a framework of esthetics—clean beaches and untouched forest land—but rather through an acknowledgment of differential living and working conditions based upon class, race, gender, location, and accessibility, ecofeminism has much to contribute to the realm of disability theory and activism. Moreover, transnational and feminist of color disability studies, in particular, advance invigorating possibilities for ecofeminism, especially in the framing of precarious lives. Ranging from early modern insights on both religious and scientific notions of corporeality to readings of contemporary fantasy, the representative works examined in this chapter reimagine disability through narratives of the bodymind. It examines the teratological —the “wondrous” or hybrid humanoid birth—and connections to animals and nonhuman nature in order to center disability within ecofeminist literature.

Jampel, C. (2018). Intersections of disability justice, racial justice and environmental justice. Environmental Sociology, 4(1), 122-135. DOI: https://doi.org/10.1080/23251042.2018.1424497.

This paper argues that environmental justice (EJ) scholarship, activism and policy that aims to ‘be intersectional’ by definition needs to include disability and ableism and, moreover, will benefit from specifically considering disability as a category of analysis. Incorporating intersectionality into EJ work means considering the implications of intersectional theory for collective liberation, for explanations of the sources and consequences of multiple systems of oppression and for theorizing connections among related justice struggles. This paper first takes each of these in turn, providing an explanation of what constitutes an intersectional approach. It then demonstrates how a disability justice approach further enriches ongoing work at the intersections of EJ and racial justice.

Jandrić, P,. & Ford, D. R. (Eds.). (2022). Postdigital ecopedagogies: Genealogies, contradictions, and possible futures [Postdigital Science and Education Series] (pp 3–23). Springer. DOI: https://doi.org/10.1007/978-3-030-97262-2.

This book conceptualizes ecopedagogies as forms of educational innovation and critique that emerge from, negotiate, debate, produce, resist, and/or overcome the shifting and expansive postdigital ecosystems of humans, machines, nonhuman animals, objects, stuff, and other forms of matter. Contemporary postdigital ecosystems are determined by a range of new bioinformational reconfigurations in areas including capitalism, imperialism, settler-colonialism, and ontological hierarchies more generally. Postdigital ecopedagogies name a condition, a question, and a call for experimentation to link pedagogical research and practice to challenges of our moment. They pose living, breathing, expanding, contracting, fluid, and spatial conditions and questions of our non-chronological present. This book presents analyses of that present from a wide spectrum of disciplines, including but not limited to education studies, philosophy, politics, sociology, arts, and architecture.

Jodoin, S., Ananthamoorthy, N., & Lofts, K. (2020). A Disability Rights Approach to Climate Governance. Ecology Law Quarterly, 47(1) 73-116. DOI: http://dx.doi.org/10.15779/Z38W37KW48.

Despite international recognition of the greater vulnerability of persons with disabilities to climate change, disability issues have received little attention from practitioners, policy makers, and scholars in this field. As countries move forward with measures to combat climate change and adapt to its impacts, it is critical to understand how these efforts can be designed and implemented in ways that can respect, protect, and fulfill the human rights of disabled persons. Drawing on the human rights model of disability enshrined in the United Nations Convention on the Rights of Persons with Disabilities, we set out a disability rights approach to climate governance that identifies the differential impacts of climate change for disabled persons and outlines the principles, obligations, and standards for designing and adopting accessible climate mitigation and adaptation policies and programs. On the whole, we argue that States should identify and pursue synergies between the realization of disability rights and the pursuit of initiatives to decarbonize their economies as well as prepare their societies against future climate impacts. In addition to fulfilling the rights of persons with disabilities and fostering a more inclusive world, disability-inclusive climate solutions can have resonant outcomes that can enable a greater share of the population to contribute to the emergence of carbon neutrality and enhance the climate resilience of society as whole.

Jodoin, S., Buettgen, A., Groce, N., Gurung, P., Kaiser, C., Kett M et al. (2023). Nothing about us without us: The urgent need for disability-inclusive climate research. PLOS Climate, 2(3), e0000153. DOI: https://doi.org/10.1371/journal.pclm.0000153.

“Around the world, disability communities are becoming increasingly vocal in calling attention to the ways in which they are disproportionally affected by climate change and the need to ensure that disability rights are respected, protected, and fulfilled in climate solutions [1,2]. As we will explain in this opinion, one key element of this emerging agenda for disability-inclusive climate justice is the need for in-depth and participatory action research on the intersections of disability and climate change.”

Kafer, A. (2005). Hiking boots and wheelchairs: Ecofeminism, the body, and physical disability. In B. S. Andrew J. C. Keller, & L. H. Schwartzmann (Eds.), Feminist interventions in ethics and politics: Feminist ethics and social theory (pp. 131-150). Lanham, MD: Rowman.

“In this essay, I trace the ways in which ecofeminisms—theories and practices that link the oppression of women and other marginalized groups to the degradation of nature–continue the repudiation of disability that occurs in mainstream discourses about the environment. Most ecofeminist analyses of difference and marginalization, for example, neglect to incorporate examinations of disability oppression, and the issue of disability access is rarely raised. Moreover, many ecofeminist accounts of nature are predicated on an assumption of the nondisabled body, enacting an implicit theoretical disavowal of disability and disabled bodies. Ecofeminisms tend to assume that an engagement with nature requires a deep immersion experience in nature, and that such an immersion experience requires a nondisabled body. There appears to be no room within ecofeminism for the disabled body” (p. 132).

Kafer, A. (2013). Bodies of nature: The environmental politics of disability. In Feminist, queer, crip (pp. 129-148). Bloomington: Indiana University Press.

‘Although concern with the environment has long been an animating force in disability studies and activism, “environment” in this context typically refers to the built environment of buildings, sidewalks, and transportation technologies. Indeed, the social model of disability is premised on concern for the built environment, stressing that people are disabled not by their bodies but by their inaccessible environments. (The wheelchair user confronting a flight of steps is probably the most common illustration of this argument.) Yet the very pervasiveness of the social model has prevented disability studies from engaging with the wider environment of wilderness, parks, and nonhuman nature because the social model seems to falter in such settings. Stairs can be replaced or supplemented with ramps and elevators, but what about a steep rock face or a sandy beach? Like stairs, both pose problems for most wheelchair users, but, argues Tom Shakespeare, “it is hard to blame the natural environment on social arrangements.” He asserts that the natural environment—rock cliffs, steep mountains, and sandy beaches—offers proof that “people with impairments will always be disadvantaged by their bodies”; the social model cannot adequately address the barriers presented by those kinds of spaces. I, too, recognize the limitations of the social model and the need to engage with the materiality of bodies, but I am not so sure that the “natural environment” is as distinct from the “built environment” as Shakespeare suggests. On the contrary, the natural environment is also “built”: literally so in the case of trails and dams, metaphorically so in the sense of cultural constructions and deployments of “nature,” “natural,” and “the environment.” Disability studies could benefit from the work of environmental scholars and activists who describe how “social arrangements” have been mapped onto “natural environments” (pp. 129-130).

Kälin, W. (2022). Disaster and climate change-induced displacement of persons with disabilities: A human rights perspective. In M. H. Rioux, J. Viera, A. Buettgen, & E. Zubrow (Eds.), Handbook of disability. Springer, Singapore. DOI: https://doi.org/10.1007/978-981-16-1278-7_27-1.

Disasters and adverse effects of climate change may significantly exacerbate pre-existing vulnerabilities of persons with disabilities. This is particularly true if such persons are displaced within their country or across borders. The systematic promotion and mainstreaming of disability-inclusive and rights-based approaches to disaster risk management and climate action are crucial to mitigate these challenges. The human rights of persons with disabilities which remain applicable during disasters and the principles of non-discrimination and equality of opportunity, participation and inclusion, accessibility, and reasonable accommodation help in shaping disability-inclusive measures to prevent displacement as well as the provision of protection and assistance during displacement. Finally, including persons with disabilities in programs and projects on durable solutions and ensuring their participation in decisions aimed at ending their displacement are crucial to avoid replicating and rebuilding barriers and ensuring their full and effective participation in society.

Kenney, M. (2019). Fables of response-ability: Feminist science studies as didactic literature. In K. Fritsch, A. Hamraie, M. Mills, & D. Serlin (Eds.), Special Section on Crip Technoscience. Catalyst: Feminism, Theory, Technoscience, 5(1), 1-39.  DOI: https://doi.org/10.28968/cftt.v5i1.29582.

Recent literature in feminist science studies is rich with stories about how we are constituted by and in relation to (sometimes toxic) chemicals. Scholars such as Natasha Myers, Mel Chen, and Eva Hayward have written vivid accounts of the chemical ecologies of late industrialism, arguing that we cannot think of bodies as separate from environments. In this article, I read feminist scholarship on chemical ecologies as fables of responseability, stories that teach us to attend and respond within our more-than-human world. Amplifying their didactic registers, I pay attention to moments in the texts that are speculative, poetic, and personal, moments that work on the bodies, imaginations, and sensoria of their readers. By reading these texts together, I hope to both acknowledge the didactic work that feminist science studies scholars are already doing and encourage others to experiment with telling their own fables of response-ability.

Kett, M., Sriskanthan, G., & Cole, E. (2021, December). Disability and Climate Justice: A Research Project. New York: Open Society Foundations.

“We commissioned this report in order to learn more about the interconnections between climate and disability, and to listen to practitioners on the ground around the world, with the aim of developing a set of recommendations to move the agenda of reciprocal engagement forward” (p. 4).

Kim, E. (2019). Continuing presence of discarded bodies: Occupation harm, necroactivism, and living justice. In K. Fritsch, A. Hamraie, M. Mills, & D. Serlin (Eds.), Special Section on Crip Technoscience. Catalyst: Feminism, Theory, Technoscience, 5(1), 1-31. DOI: https://doi.org/10.28968/cftt.v5i1.29616.

This essay explores the coexistence of struggles against the foreclosure of disabled people’s lives and against occupational illness, debilitation, and deaths caused by the manufacturing process of electronics in South Korea. Starting from the two activist campsites set up in Seoul and the historical backgrounds of occupational health movement, I draw on two documentary films, The Empire of Shame (2014) and Factory Complex (2015), that depict workers who became ill and those who died due to toxic exposure at semiconductor manufacturing plants. Beyond commemoration, necro-activism emerges in the form of persistent involvements of dead bodies, mourning, and objects representing death as important agents for making claims for justice. Taking into account political and historical differences of locations in which disabled people are positioned differently in the global order redirects us from the language of worth toward sociality, collective reframing of suffering and disability, and justice as an ongoing practice of everyday life and afterlife.

King, M. M., & Gregg, M. A. (2022, January). Disability and climate change: A critical realist model of climate justice. Sociology Compass, 16(1), e12954. DOI: https://doi.org/10.1111/soc4.12954.

Existing literature on climate change as an issue of environmental justice documents the heightened vulnerability of people with disabilities to the effects of climate change. Additionally, there are numerous studies showing that access to information is a prerequisite for perceiving risk and taking action. Building on this work, our review seeks to understand how physical disability relates to perceptions of climate-related risk and adaptations to climate-related events. We introduce a critical realist model of climate justice to understand the relationships between the environmental features that disable, risk perception and information seeking, and adaptive capacity and resilience to climate change. In understanding the vulnerability and adaptive capacity of people with disabilities to climate change, this review synthesizes research on one of the U.S.’s largest minority communities with the goals of better understanding how vulnerable populations cope with climate change and integrating them into climate action and policy.

King, M. M., Gregg, M. A., Martinez, A. V., & Pachoud, E. Y. (2022). Teaching & learning guide for disability and climate justice. Sociology Compass, 16(6), e12986. DOI: https://doi.org/10.1111/soc4.12986.

“Disability is widespread: nearly one in four Americans has a disability (Taylor, 2018) and disability cuts across demographic categories. Among individuals aged 15 and over, 12.6% had some type of mobility disability; above age 65, it is nearly 40% (Brault, 2012). Mobility disabilities heighten vulnerability to climate change and climate-related disasters (UNHCHR, 2020). Reduced information resources and mobility, increased health risks, and a lack of visibility in climate change discourse put people with disabilities in a more vulnerable position in the climate crisis. However, this vulnerability can be mitigated through relevant and sufficient access to information, risk mitigation strategies, and policy-shaping power. However, when these resilience-building resources are not accessible to disabled people, it exacerbates their vulnerability to climate change and becomes an issue of climate (in)justice. This guide and the accompanying  article explore ways to teach the intersection of disability and climate justice for a better understanding of each.”

Kosanic, A., Petzold, J. Martın-Lopez, B., & Razanajatovo, M. (2022, April). An inclusive future: Disabled populations in the context of climate and environmental change. In O. P. Dube, V. Galaz & W. Solecki (Eds.), Open Issue 2022 [Themed Issue]. Current Opinion in Environmental Sustainability, 55(101159). DOI: https://doi.org/10.1016/j.cosust.2022.101159.

Climate and environmental change impacts are projected to increase, constituting a significant challenge for meeting the Sustainable Development Goals (SDGs) while disproportionately affecting disabled populations. However, current research lacks knowledge on context-specific impacts of climate and environmental change on disabled populations. We use the environmental justice perspective that emphasises distributional, recognitional, and procedural dimensions regarding disabled populations to understand impacts and adaptation concerns and their implications for achieving the SDGs.

Kuppers, P.  (2022). Eco Soma: Pain and Joy in Speculative Performance Encounters [Art After Nature Series]. Minneapolis: University of Minnesota Press.

In Eco Soma, Petra Kuppers asks readers to be alert to their own embodied responses to art practice and to pay attention to themselves as active participants in a shared sociocultural world. Reading contemporary performance encounters and artful engagements, this book models a disability culture sensitivity to living in a shared world, oriented toward more socially just futures.

Eco soma methods mix and merge realities on the edges of lived experience and site-specific performance. Kuppers invites us to become moths, sprout gills, listen to our heart’s drum, and take starships into crip time. And fantasy is central to these engagements: feeling/sensing monsters, catastrophes, golden lines, heartbeats, injured sharks, dotted salamanders, kissing mammoths, and more. Kuppers illuminates ecopoetic disability culture perspectives, contending that disabled people and their co-conspirators make art to live in a changing world, in contact with feminist, queer, trans, racialized, and Indigenous art projects. By offering new ways to think, frame, and feel “environments,” Kuppers focuses on art-based methods of envisioning change and argues that disability can offer imaginative ways toward living well and with agency in change, unrest, and challenge.

Traditional somatics teach us how to fine-tune our introspective senses and to open up the world of our own bodies, while eco soma methods extend that attention toward the creative possibilities of the reach between self, others, and the land. Eco Soma proposes an art/life method of sensory tuning to the inside and the outside simultaneously, a method that allows for a wider opening toward ethical cohabitation with human and more-than-human others.

This text is also available via Open Access on the University of Minnesota Press website. As noted on the press’s website, “Retail e-book files for this title are screen-reader friendly with images accompanied by short alt text and/or extended descriptions.”

Lacayo, A. (2022). Of Toxic Dust and Sad Places: Ecochronicity and Debility in Julio Hernández Cordón’s Polvo (Dust, 2012). In S. Rust, S. Monani, & S. Cubitt (Eds.), Ecocinema Theory and Practice 2. New York: Routledge. DOI: https://doi.org/10.4324/9781003246602-15.

Julio Hernández Cordón’s Polvo (Dust) is a 2012 fiction film that recounts the impossibility of shooting a documentary about the victims of the Guatemalan Civil War (1960–1996). What gets in the way of filming is dust itself, which debilitates the protagonists with allergies, migraines, and insomnia. This chapter argues that Polvo revisits the war’s legacy by interweaving disability and environmental concerns through ecochronicity—the process through which bodies become chronically debilitated in toxic environments. Working at the intersection between disability studies and the environmental humanities, this chapter develops the notion of ecochronicity from contemporary debates about the chronic. Examining ecochronicity in light of Elizabeth Freeman’s definition of the chronic as a state of endurance, Mel Y. Chen’s conceptualization of how toxicity circulates among bodies and debilitates them, and Heather I. Sullivan’s dirt theory, this chapter considers the political and ecological dimensions of dust, articulating the way in which Polvo instantiates a “dirty” aesthetics. In Polvo, an ecochronicity is carried out in the aftermath of war and its legacies of violence: dust disables weak bodies, fertilizer acts as a toxin, and the Mayan Highlands remain a nonhuman casualty of war.

Landorf, C., Brewer, G., & Sheppard, L. A. (2008). The urban environment and sustainable ageing: Critical issues and assessment indicators. In R. Imrie & H. Thomas (Eds.), The Environment and Disability: Making the Connections [Special Issue]. Local Environment, 13(6), 497-514. DOI: https://doi.org/10.1080/13549830802259896.

Later life is a diverse experience but for some it is associated with a variety of impairments that impact on quality of life. Attention to date has focused on supporting ageing in place through modification to the home environment to compensate for increasing levels of impairment. This paper explores a further link between later life and the environment beyond the home. In doing so, the paper argues that the disabling impact of the urban environment on older people should be an essential consideration in the urban sustainability debate. A multi-dimensional framework combining sustainable development and ageing in place criteria is used to test the extent to which three sustainable urban environment assessment tools address the issue. The findings suggest that the capacity of an urban environment to support ageing in place is not being assessed as an integral element of a sustainable urban environment. Identifying factors that influence healthy later life will allow the inclusion of a later-life perspective in future urban sustainability planning and assessment models.

Leonard-Williams, H. (2024). Disability and climate anxiety. In J. Anderson, T. Staunton, J. O’Gorman, & C. Hickman (Eds.),
Being a therapist in a time of climate breakdown. London: Routledge. DOI: https://doi.org/10.4324/9781003436096-13.

My experiences of climate anxiety deeply intersect with my experiences of disability and ill health. Due to the ableism we face at every level of society, disabled people are all too often treated as disposable in crisis situations and are much more likely to live in poverty and be isolated from our communities. This makes us particularly vulnerable to climate change and less able to access support for our mental health, including the deep feelings of anxiety, fear, anger and grief surrounding the climate crisis many of us experience. This lack of support is often exacerbated if we are multiply marginalised.

Leone, M. L. (2019, Spring). Reframing disability through an ecocritical perspective in Sara Mesa’s Cara de pan.  In E. Fernández & V. L. Ketz (Eds.), Re-imagining Female Disabilities in Luso-Hispanic Women’s Cultural Production [Special Issue]. Journal of Gender and Sexuality Studies / Revista de Estudios de Género y Sexualidades, 45(1), 161-184. DOI: https://www.jstor.org/stable/10.14321/jgendsexustud.45.1.0161.

This article establishes a dialogue between disability studies and ecocriticism to analyze Sara Mesa’s novel Cara de pan (2018), which narrates the relationship between a thirteen-year-old girl bullied at school and a fifty-four-year-old man with an atypical appearance who fixates on limited topics. The analysis examines the hegemony of normativity and dominant social narratives about disability, gender, and sexuality. Grounded in the idea that people with disabilities actively intervene in their environment, the essay argues that the characters’ environmental empathy supports the need for a diversity of experiences and perspectives, positively resituating disability and autism.

Leong, G. (2020). The impacts of climate change on persons with disabilities: An interdisciplinary approach to disability, climate change and policy studies. Pacific Rim International Conference on Disability and Diversity Conference Proceedings. Honolulu, Hawai’i: Center on Disability Studies, University of Hawai’i at Mānoa.

The overall intent of this study is to address the impacts and expected impacts of climate change and disasters on persons with disabilities (PWD), while exploring international policies for resilience initiatives. As a portion of the overall study, this paper was motivated by the recent United Nations Human Rights Council (UN-HRC) (2019) resolution adoption on climate change and the rights of persons with disabilities, which urges governments to adopt a disability-inclusive approach when dealing with climate change strategies. The objective of this paper is to explore academia & research’s role in adaptive capacity approaches to adopting the UN-HRC resolution through a multidisciplinary intersection of disability, climate change and policy studies. The objective is supported by empirical research, theoretical models, and inclusive strategies aimed to improve the safety and quality of life for PWD. This paper’s scope is covered through the development of a resilience framework that includes vulnerability index: exposure, sensitivity, and adaptive capacity (Intergovernmental Panel on Climate Change [IPCC], 2008); and three sets of engagement: theory, application, and praxis (Cho, Crenshaw, & McCall, 2013). Ultimately, the paper’s proposed framework will present an evidence-based, disability-inclusive resilience approach to addressing climate change aimed to influence public perception and policy decision-making. This paper is a tool for disability, climate change, and policy studies academics/researchers, and government officials interested in academia & research’s contribution to resilience planning.

Lindsay, S., Hsu, S., Ragunathn, S., & Lindsay, J. (2022). The impact of climate change related extreme weather events on people with pre-existing disabilities and chronic conditions: a scoping review. Disability and Rehabilitation. DOI: https://doi.org/10.1080/09638288.2022.2150328.

Purpose: People with disabilities experience a disproportionate impact of extreme weather events and there is a critical need to better understand the impact that climate change has for them. Most previous reviews focus on the risk of acquiring a new disability or injury after a climate-related event and not the impact on people with pre-existing disabilities or chronic conditions, which is the purpose of this study.

Methods: We conducted a scoping review while searching seven international databases that identified 45 studies meeting our inclusion criteria.

Results: The studies included in our review involved 2 337 199 participants with pre-existing disabilities and chronic conditions across 13 countries over a 20-year period. The findings demonstrated the following trends: (1) the impact on physical and mental health; (2) the impact on education and work; (3) barriers to accessing health and community services (i.e., lack of access to services, lack of knowledge about people with disabilities, communication challenges, lack of adequate housing); and (4) coping strategies (i.e., social supports and connecting to resources) and resilience.

Conclusions: Our findings highlight the critical need for rehabilitation clinicians and other service providers to explore opportunities to support their clients in preparing for climate-related emergencies.

Linett, M. V. (2020). Literary bioethics: Animality, disability, and the human [Crip Series]. New York: NYU Press.

Uses literature to understand and remake our ethics regarding nonhuman animals, old human beings, disabled human beings, and cloned posthumans.

Lundbad, M. (Ed.). (2020, Autumn). Animality/Posthumanism/Disability [Special Issue]. New Literary History, 51(4). DOI:  https://doi.org/10.1353/nlh.2020.0040.

“The title and focus of this special issue is meant to foreground the potential and pitfalls of thinking through critiques of ‘the human’ in relation to animality and disability within the framework of posthumanism, broadly conceived” (p. v).

Articles in this special issue include:

  • Animality/ Posthumanism/ Disability: An Introduction
  • Being Human, Being Animal: Species Membership in Extraordinary Times
  • Companion Thinking: A Response
  • The Art of Interspecies Care
  • Beyond Caring: Human-Animal Interdependency: A Response
  • We Have Laws for That: A Response to Jack Halberstam
  • Abnormal Animals
  • Restriction, Norm, Umwelt: A Response
  • Disanimality: Disability Studies and Animal Advocacy
  • The Political Economy of Disanimality: A Response
  • On the Transhumanist Imaginary and the Biopolitics of Contingent Embodiment
  • “Where Are You Taking Us?”: A Response
  • The Biopolitical Drama of Joseph Beuys
  • Animal Death as National Debility: Climate, Agriculture, and Syrian War Narrative
  • Atmospherics of War: A Response

Lundblad, M., & Grue, J. (2021). Companion prosthetics: Avatars of animality and disability. In S. McHugh, R. McKay, & J. Miller (Eds.), The Palgrave Handbook of Animals and Literature (pp. 557-574). New York: Palgrave Macmillan.

Avatar is rife with prosthetic relationships that blur the lines between human and animal, human and machine, and even animate and inanimate objects, raising the possibility of more productive conversations about the interface between disability and animality. Our argument in this chapter is that the problematic aspects of the film are not only inter-related, but also productive for developing what we will call companion prosthetics. We develop this concept from origins in disability studies, animality studies, and human-animal studies, illustrating the fertile new ground that exists when these fields meet” (p. 2).

Lupinacci, J., Happel-Parkins, A., & Lupinacci, M. W. (2018). Ecocritical contestations with neoliberalism: Teaching to (un)learn “normalcy.” In S. Gaches (Ed.), Preparing Teachers to Confront Neoliberal Discourses and to Teach Children Equitably [Special Issue]. Policy Futures in Education, 16(6), 652–668. DOI: https://doi.org/10.1177%2F1478210318760465.

This article seeks to address often overlooked cultural assumptions embedded within neoliberalism; specifically, the researchers explore what ecofeminist Val Plumwood describes as centric thinking, leading to a logic of domination. The authors argue that social justice educators and activists who are committed to critiquing neoliberalism must take into consideration the ways in which a logic of domination undergirds the unjust and destructive social and economic ideologies and policies that constitute neoliberalism. The authors examine and share pedagogical moments from experiences in teacher education seeking to: (a) challenge and disrupt dualistic thinking; (b) interrupt perceptions of hegemonic normalcy—referring to a socio-cultural process by which actions, behaviors, and diverse ways of interpreting the world are perceived by dominant society as ‘fitting in’ and being socially acceptable; and, (c) contest false notions of independence—the degree to which an individual is perceived as able to meet their social and economic responsibilities on their own—as measures of success in schools and society. The authors detail how they work with(in) teacher education programs to introduce how an ecocritical approach, drawing from ecofeminist frameworks, identifies and examines the impacts of neoliberal policies and practices dominated by ‘free’ market ideology. The authors assert that educators, especially teacher educators, can challenge harmful discourses that support the problematic neoliberal understandings about independence that inform Western cultural norms and assumptions. Concluding, the authors share a conceptualization for (un)learning the exploitation inextricable from the policies and practices of neoliberalism.

Martínez Benedí, P. (2020, Fall/Winter). A Different Side of the Story: On Neurodiversity and Trees. Iperstoria No. 16, 259-277.

This essay analyzes Richard Powers’s The Overstory (2018), a novel that ostensibly demands an eco-critical reading, under the lens of neurodiversity. Focusing on the idiosyncrasies of sensory perception in autism, the essay explores the atypical engagement with the more-than-human that neurodiversity (and specifically autism) fosters—a kind of engagement that deeply destabilizes neuro-normative, human-centered subjectivity, opening up to more egalitarian ways of relation with the environment. In a novel populated by neurodivergent characters with a keen ecological sensibility, Powers comes close to imagining this kind of non-hierarchical connection with the natural world. The essay explores how neurodiversity works in the novel at a characterological, thematic, and structural level, functioning as a bridge between human and non-human scales. In this way, neurodiversity finely glosses and articulates the kind of animistic, environmental message that Powers instils in his Pulitzer prize winning novel.

Mathers, A. R. (2008, August). Hidden voices: The participation of people with learning disabilities in the experience of public open space. In R. Imrie & H. Thomas (Eds.), The Environment and Disability: Making the Connections [Special Issue]. Local Environment, 13(6), 515-529. DOI: https://doi.org/10.1080/13549830802259912.

The self-advocacy of people with learning disabilities (PWLD) is an issue of high current importance. In the UK 210,000 people have severe and profound learning disabilities, whilst 25 in every 1000 of the population in England has a mild to moderate learning disability (Department of Health, Valuing people: a new strategy for learning disability for the 21st century, London, Stationery Office, 2001). At the most restricted end of the communication spectrum, PWLD are often forgotten members of their communities, whose label “learning disabled” wrongly causes confusion and fear. The Disability Discrimination Act (DDA) 1995 ensured “reasonable” adjustments must be made to environments and buildings so they are accessible to all. However, DDA legislation remains a predominately physical access issue with great attention focused on the built environment and little attention given to the experience of place or external environments. Researchers argue that it is attitudes and interactions in the person–environment relationship that have allowed our “disablist” society to label and segregate members of its community as “disabled”. The research comprised a longitudinal study working with PWLD participants at two sites in Yorkshire and in the northeast of England. This paper examines the resulting visual communication toolkit, able to unlock the experience of public open spaces by PWLD and, when used in context, to aid greater social participation.

Mihail, A. (2022, March 14). The intersections of disability in the face of disaster and climate activism. The Kingfisher Magazine. 

“Past and present catastrophes, such as Hurricane Katrina and the current COVID-19 pandemic, have shown how disabled people are often forgotten by society. The threat of climate change, flooding, heatwaves, droughts and wildfires will undoubtedly heighten their state of vulnerability. What will it take for society to value disabled lives?

According to the social model of disability, mental or physical impairments are not necessarily disabling by themselves. In most cases, they are turned into disabilities due to a society that fails to account for differences from the normative

We live in a deeply inaccessible society, where many are cut off from jobs, town halls, art galleries, educational institutions, restaurants, cinemas and other physical locations needed for personal development, socialisation and entertainment. This is because their bodies and mind, outside of their control, do not conform to how society thinks a human should function. Therefore, it is of little surprise when climate change threatens them disproportionately.”

Mitchell, D. T., Antebi, S., & Snyder, S. L. (Eds.). The Matter of Disability:  Materiality, Biopolitics, Crip Affect [Corporealities: Discourses of Disability Series]. Ann Arbor, MI: University of Michigan Press. DOI: https://doi.org/10.3998/mpub.9365129.

The Matter of Disability returns disability to its proper place as an ongoing historical process of corporeal, cognitive, and sensory mutation operating in a world of dynamic, even cataclysmic, change. The book’s contributors offer new theorizations of human and nonhuman embodiments and their complex evolutions in our global present, in essays that explore how disability might be imagined as participant in the ‘complex elaboration of difference,’ rather than something gone awry in an otherwise stable process. This alternative approach to materiality sheds new light on the capacities that exist within the depictions of disability that the book examines, including Spider-Man, Of Mice and Men, and Bloodchild.

Nocella, A. J., Bentley, J. K. C., & Duncan, J. M. (Eds.). (2012). Earth, animal, and disability liberation: The rise of the eco-ability movement. New York: Peter Lang.

This provocative and groundbreaking book is the first of its kind to propose the concept of Eco-ability: the intersectionality of the ecological world, persons with disabilities, and nonhuman animals. Rooted in disability studies and rights, environmentalism, and animal advocacy, this book calls for a social justice theory and movement that dismantles constructed «normalcy», ableism, speciesism, and ecological destruction while promoting mutual interdependence, collaboration, respect for difference, and inclusivity of our world. Eco-ability provides a positive, liberating, and empowering philosophy for educators and activists alike.

Nocella, A. J., & George, A. E. (in press). Vegans on speciesism and ableism: Ecoability voices for disability and animal justice [Radical Animal Studies and Total Liberation].  New York: Peter Lang Publishing, Inc. DOI: https://doi.org/10.3726/b18574.

This powerful intersectional social justice book examines animal, disability, and environmental oppression and justice. Located in disability studies, sociology, environmental justice, food justice, and critical animal studies, this book engages the reader in an intersectional ecological manner for an inclusive interdependent global community. This outstanding collection of original articles by scholars from around the world discusses the need to acknowledge the relationships among nonhuman animals, those with disabilities, and the environment. Adaptive sports from mountain biking to rock climbing is saving the lives of those with disabilities from extreme depression and suicide at the same time those with disabilities are becoming some of the most loyal advocates for defending the environment from human destruction. Those with disabilities are being welcomed into the animal rights movement and also introduced to nonhuman animals not as merely service animals, but as friends, allies, and companions.

Nocella, A. J., George, A. E., & Lupinacci, J. (Eds.). (2019). Animals, disability, and the end of capitalism: Voices from the eco-ability movement [Radical Animal Studies and Total Liberation Series]. New York: Peter Lang Publishing, Inc. DOI: https://doi.org/10.3726/b14134.

Animals, Disability, and the End of Capitalism is a collection of essays from the leaders in the field of eco-ability. The book is rooted in critical pedagogy, inclusive education, and environmental education. The efforts of diverse disability activists work to weave together the complex diversity and vastly overlooked interconnections among nature, ability, and animals. Eco-ability challenges social constructions, binaries, domination, and normalcy. Contributors challenge the concepts of disability, animal, and nature in relation to human and man. Eco-ability stresses the interdependent relationship among everything and how the effect of one action such as the extinction of a species in Africa can affect the ecosystem in Northern California. Animals, Disability, and the End of Capitalism is timely and offers important critical insight from within the growing movement and the current academic climate for such scholarship. The book also provides insights and examples of radical experiences, pedagogical projects, and perspectives shaped by critical animal studies, critical environmental studies, and critical disability studies.

Nocella, A. J., George, A. E., & Schatz, J. L. (2017). The intersectionality of critical animal, disability, and environmental studies: Toward eco-ability, justice, and liberation [Critical Animal Studies and Theory]. Lanham, MD: Lexington Books.

The Intersectionality of Critical Animal, Disability, and Environmental Studies: Toward Eco-ability, Justice, and Liberation is an interdisciplinary collection of theoretical writings on the intersectional liberation of nonhuman animals, the environment, and those with disabilities. As animal consumption raises health concerns and global warming causes massive environmental destruction, this book interweaves these issues and more. This important cutting-edge book lends to the rapidly growing movement of eco-ability, a scholarly field and activist movement influenced by environmental studies, disability studies, and critical animal studies, similar to other intersectional fields and movements such as eco-feminism, environmental justice, food justice, and decolonization. Contributors to this book are in the fields of education, philosophy, sociology, criminology, rhetoric, theology, anthropology, and English.

Nygren, A. (2023). Empathy with nature and an autistic spirituality. In A. Dare & V. Fletcher (Eds.), Labors of Love and Loss. Radical Acts of Human, Plant, and Nonhuman Mothering [Special Issue]. Journal of Ecohumanism, 2(1), 93–108. DOI: https://doi.org/10.33182/joe.v2i1.2740.

Anna Stenning does in the anthology Neurodiversity. A New Critical Paradigm (2020) introduce an autistic ethics using the autobiographies of Greta Thunberg (No One Is Too Small to Make a Difference (2019)) and Temple Grandin (Animals in Translation (2005)). Stenning points to how this autistic ethics do expand its acts of care to the more-than-human. Grandin describes her being in the world as more attuned to animals than humans. Thunberg argues that her Asperger’s is the reason why she can care so totally for the climate. This article further investigates the intersection of autism and the more-than-human, or the post humanist. Using the works of openly autistic authors Madeleine Ryan (A Room Called Earth (2020)) and Hannah Emerson (You Are Helping This Great Universe Explode (2020)) as well as Emily Dickinson, posthumously diagnosed with autism. I investigate the autistic theme of nature and the autistic relationship to other species. This relation often seems to be stronger and more genuine than the relation to other humans. I propose that the autistic sense of the more-than-human is at once a response to the oppressive view of the autistic as less-than-human – a way of finding one’s allies outside the realms of human civilization – and a special kind of autistic worldly spiritualness that includes an ethics that do not segregate one life form from another.

Office of the United Nations High Commissioner for Human Rights. (2020, April). Analytical study on the promotion and protection of the rights of persons with disabilities in the context of climate change. New York: United Nations General Assembly.

The present analytical study is submitted pursuant to Human Rights Council resolution 41/21. In the report, the impacts of climate change on persons with disabilities are examined; human rights obligations and the responsibilities of States and other actors
in relation to disability-inclusive approaches identified; and good practices shared. The
report ends with conclusions and recommendations.

Office of the High Commissioner for Human Rights. (n.d.). Issues in focus: The impact of climate change on the rights of persons with disabilities: OHCHR and climate change [Website]. New York: United Nations General Assembly.

Reports OHCHR’s work on disability-inclusive climate action, including activities, events, and reports.

Ortiz, N. (2022, February). Crip ecologies: Complicate the conversation to reclaim power. Poetry Magazine. Chicago: Poetry Foundation.

“Crip ecologies describe the messy, diverse, and profoundly beautiful ecosystems which exist for disabled people. It is impossible to fit ourselves to a mold that nondisabled people adhere to, which allows capitalism (making money and paying money to live) to flourish, borders to be maintained, and uniform solutions to address some of our most pressing and urgent problems like climate change.”

Perry, K. (2023). Climate migration and the rights of persons with disabilities. In T. Walker, J. McGaughey, G. Machnik-Kekesi, & V. Kelly (Eds.), Environmental migration in the face of emerging risks (pp.121–135). Palgrave Macmillan, Cham. DOI: https://doi.org/10.1007/978-3-031-29529-4_7.

This chapter explores the experiences of persons with disabilities when migrating due to climate change and other environmental factors and offers recommendations on how to protect, respect, and fulfill their human rights. The chapter uses the human rights model of disability when analyzing the literature and offering recommendations. Following the introduction to key topics and models, the chapter surveys selected international instruments, including treaties, conventions, outcome documents, etc., to examine how the rights of persons with disabilities are addressed in climate emergencies and in the migration literature. The chapter next highlights best practices from climate disasters and emergencies that can be used in the context of migrations due to climate change and other environmental factors. The chapter concludes by offering recommendations on how to advance the human rights of persons with disabilities in climate-related migration.

Preece, B. (2018). Environments, ecologies and climates of crises: Engaging disAbility arts and cultures as creative wilderness. In B. Hadley & D. McDonald (Eds.), The Routledge Handbook of Disability Arts, Culture and Media Studies (pp. 281-294). New York: Routledge.

This chapter provides the premise that Western orientations towards our perceptions of the ‘environment,’ ‘ecology,’ ‘nature,’ and ‘wilderness’ are synonymous with many of our societal perceptions of disability. Though tension between current discourses of disability cultures and environmental restoration remains, people with disabilities are actively positioned to advocate on behalf of variance, deviance, and mutability. There is a tendency for non-disabled environmental justice advocates to highlight the disabling impacts of resource extraction or contamination in ways that treat the tragedy of disabled bodies as self-evident. The social interpretation of disability advocates through disability studies for an embracing of the disabled person into the social/built environment as a recognised necessary phenomenon on a continuum. The effects of the climate crisis have quite possibly forced the need for an exaggerated form of performance – an acceleration of the improvisatory – unto the more-than-human world: inextricably a co-performative paradigm.

Puar, J. K. (2017). The right to maim: Debility, capacity, disability [ANIMA: Critical Race Studies Otherwise Series]. Durham, NC: Duke University Press. DOI: https://doi.org/10.1215/9780822372530.

In The Right to Maim Jasbir K. Puar brings her pathbreaking work on the liberal state, sexuality, and biopolitics to bear on our understanding of disability. Drawing on a stunning array of theoretical and methodological frameworks, Puar uses the concept of “debility”—bodily injury and social exclusion brought on by economic and political factors—to disrupt the category of disability. She shows how debility, disability, and capacity together constitute an assemblage that states use to control populations. Puar’s analysis culminates in an interrogation of Israel’s policies toward Palestine, in which she outlines how Israel brings Palestinians into biopolitical being by designating them available for injury. Supplementing its right to kill with what Puar calls the right to maim, the Israeli state relies on liberal frameworks of disability to obscure and enable the mass debilitation of Palestinian bodies. Tracing disability’s interaction with debility and capacity, Puar offers a brilliant rethinking of Foucauldian biopolitics while showing how disability functions at the intersection of imperialism and racialized capital.

Purcell, S. (2019). Beckett and disability biopolitics: The case of Cuchulain. In S. Kennedy (Ed.), Samuel Beckett and Biopolitics [Special Issue].  Estudios Irlandeses, 14(2), 52-64. DOI: https://doi.org/10.24162/EI2019-9171.

In his depiction of the hero Cuchulain, Samuel Beckett interrogates how disability and compulsory able-bodiedness are foundational myths for the Irish Free State. Taking the interpolation of disability in biopolitics, this essay examines the normalising impulses in revivalist literature and criticism, exemplified by Lady Gregory, Standish O’Grady, WB Yeats and Daniel Corkery. Against this normalising, nationalising literature, I situate Beckett’s satirical renderings of Cuchulain in ‘Censorship and the Saorstat’ and Murphy, as evidence of a profound discomfort and frustration with the biopolitical mechanisms of governance in the newly-founded Irish State.

Ray, S. J. (2013, Spring). Normalcy, knowledge, and nature in Mark Haddon’s The Curious Incident of the Dog in the Night-Time. Disability Studies Quarterly, 33(3). DOI: http://dx.doi.org/10.18061/dsq.v33i3.3233.

This article analyzes Mark Haddon’s 2003 novel, The Curious Incident of the Dog in the Night-Time, using a combination of both disability studies theory and ecocriticism.  The author argues that the novel’s main character, Christopher Boone, presents a social model of disability by challenging dominant society’s treatment of him as ‘not normal.’ Christopher is ostensibly diagnosed with Asperger’s Syndrome, although the novel never explicitly labels him as disabled in any way. Through Christopher’s views of nature, language, knowledge, and social constructions of disability, we learn that disability is an unstable category, and that dominant society can be disabling.  Importantly, though, Christopher’s critique of society is, as the author argues, fundamentally environmental. That is, Christopher’s views of language, knowledge, and even the more-than-human world itself are central to his destabilization of the category of disability. Christopher’s environmental sensibility and critique of society’s disabling qualities emerge primarily through his discussions of language, which he finds suspect because it distances humans from the world it describes.  Thus, the novel suggests that the disabling features of society that Christopher encounters are the same features that distance humans from nature, particularly through language.

Ray, S. J. (2009, August). Risking bodies in the wild: The “corporeal unconscious” of American adventure culture. In D. Mincyte, M. J. Casper, & C.L. Cole (Eds.), Sports and Environmental Politics II [Special Issue]. Journal of Sport & Social Issues, 33(3), 257-284. DOI: https://doi.org/10.1177%2F0193723509338863.

At the heart of American adventure sports is the appeal of personal challenge that has roots in 19th-century “wilderness cults. Preserving wilderness and testing oneself against it were part of a search for moral, physical, and even national purity. But, as critics have begun to argue, racism, expansion, and exclusion underpin the wilderness movement. Although these exclusions have been identified, there has been less attention to these exclusions in contemporary adventure culture and environmental thought, which borrow values from the early wilderness movement and suggest that an environ-mental ethic arises from risking the body in the wild. By examining adventure culture through disability studies, this article exposes the relationship between environmentalism and ableism. It argues that disability is the category of “otherness” against which both environmentalism and adventure have been shaped and revises environmental thought to include all kinds of bodies.

Ray, S. J., & Sibara, J. (Eds.). (2017). Disability Studies and the environmental humanities: Toward an eco-crip theory.  Lincoln & London: University of Nebraska Press.

Although scholars in the environmental humanities have been exploring the dichotomy between ‘wild’ and ‘built’ environments for several years, few have focused on the field of disability studies, a discipline that enlists the contingency between environments and bodies as a foundation of its scholarship. On the other hand, scholars in disability studies have demonstrated the ways in which the built environment privileges some bodies and minds over others, yet they have rarely examined the ways in which toxic environments engender chronic illness and disability or how environmental illnesses disrupt dominant paradigms for scrutinizing ‘disability.’ Designed as a reader for undergraduate and graduate courses, Disability Studies and the Environmental Humanities employs interdisciplinary perspectives to examine such issues as slow violence, imperialism, race, toxicity, eco-sickness, the body in environmental justice, ableism, and other topics. With a historical scope spanning the seventeenth century to the present, this collection not only presents the foundational documents informing this intersection of fields but also showcases the most current work, making it an indispensable reference.

Salvatore, C.,  & Wolbring, G. (2021). Children and Youth Environmental Action: The Case of Children and Youth with Disabilities. In C. Davey & M. Tataryn (Eds.), Studies and Sustainable Ecology [Special issue]. Sustainability, 13(17), 9950. DOI: https://doi.org/10.3390/su13179950.

Youth environmental activism is on the rise. Children and youth with disabilities are disproportionally impacted by environmental problems and environmental activism. They also face barriers towards participating in activism, many of which might also apply to their participation in environmental activism. Using a scoping review approach, we investigated the engagement with children and youth with disabilities by (a) academic literature covering youth environmental activism and their groups and (b) youth environmental activism group (Fridays For Future) tweets. We downloaded 5536 abstracts from the 70 databases of EBSCO-HOST and Scopus and 340 Fridays For Future tweets and analyzed the data using directed qualitative content analysis. Of the 5536 abstracts, none covered children and youth with disabilities as environmental activists, the impact of environmental activism or environmental problems such as climate change on children and youth with disabilities. Fourteen indicated that environmental factors ‘caused’ the ‘impairments’ in children and youth with disabilities. One suggested that nature could be beneficial to children and youth with disabilities. The tweets did not mention children and youth with disabilities. Our findings suggest the need for more engagement with children and youth with disabilities in relation to youth environmental activism and environmental challenges.

Sánchez Barba, M. G. (2020). “Keeping them down”: Neurotoxic pesticides, race, and disabling biopolitics. In R. Lee (Ed.), Special Section on Chemical Entanglements: Gender and Exposure. Catalyst: Feminism, Theory, Technoscience, 6(1), 1-31. DOI: https://doi.org/10.28968/cftt.v6i1.32253.

Chlorpyrifos, the most widely used insecticide in the US, has gained great notoriety as a contested chemical substance after the U.S. Environmental Protection Agency refused to ban it in 2017. Arguing that scientific studies support their observations and suspicions that agricultural pesticides subtly produce neurological and cognitive harm, concerned groups continue to demand US regulatory agencies to ban this chemical. Their narratives demonstrate how the maintenance of unequal racial and capitalist orders across generational time is tied to small chemical exposures permitted by state regulatory agencies during critical temporalities in the life course. This essay shows the importance of including local perspectives in research that seeks to understand how concerns for the mass neurological and cognitive disabling emerge from lived experiences entangled in histories of racism, exploitation, and neglect. Interweaving feminist science and technology studies, queer theory, and critical disability studies, this analysis contributes to the limited scholarship on cognitive disabling in contexts of environmental injustice through exposure to industrially produced chemicals.

Santinele Martino, A., & Lindsay, S. M. (2020). The Intersections of Critical Disability Studies and Critical Animal Studies [Special Issue]. Canadian Journal of Disability Studies, 9(2). DOI: https://doi.org/10.15353/cjds.v9i2.

“The papers in this special issue build on an exciting, and fast growing, body of scholarship located at the intersection of critical disability studies and critical animal studies, shedding light on disablism and speciesism as interconnecting oppressions, how animality and disability are mutually constitutive, as well as the tensions and coalitions shared by these two related fields” (p. 1).

Articles in this special issue include

  • Normative Tensions in the Popular Representation of Children with Disabilities and Animal-Assisted Therapy
  • Rights and Representation: Media Narratives about Disabled People and Their Service Animals in Canadian Print News
  • At Both Ends of the Leash: Preventing Service-Dog Oppression Through the Practice of Dyadic-Belonging
  • Interspecies Blendings and Resurrections: Material Histories of Disability and Race in Taxidermy Art
  • ‘What on earth was he—man or animal?’: Posthuman Permeability in H.G. Wells’s The Island of Doctor Moreau
  • Tricky Ticks and Vegan Quips: The Lone Star Tick and Logics of Debility

Saxton, M., & Ghenis, A. (2018). Disability Inclusion in Climate Change: Impacts and Intersections. In Climate Change and Intersectionality [Special Issue]. Interdisciplinary Perspectives on Equality and Diversity, 4(1).

The community of people with disabilities is uniquely affected by devastation brought on by climate change. This population is increasingly appearing on lists of “vulnerable” among many other groups in the social justice framework. Public policy in several countries, the Red Cross and United Nation’s documents have begun to include the voices of persons with disabilities among the planning constituencies. Yet the needs of this constituency are poorly understood regarding which measures could realistically enable survival in environmentally compromised circumstance. This very diverse group comprises approximately 10 to 15% of the global population, and within all other sub-populations, this figure will likely increase with climate change impact. Discriminatory attitudes and policies tend to simplify this multiply intersectional population to “people with special needs.” This simplification ignores the diverse, complex needs and circumstances of individuals with disabilities, for those with visual, hearing, and mobility impairments, and so on, as well as their various socio-economic cross-constituencies such as gender, ethnicity, age, etc. In this context, focus on climate change and disability is disturbingly rare. This article by U.S.-based authors explores key intersectional issues emphasizing their research in the U.S. related to disability and climate change impact, and recommending an educational, research and advocacy agenda for both the Climate Change and the Disability Rights movements.

Schaffer, D. (2023, March). Disabilities in disaster situations: How a rescuer handles what they encounter. In K. Takahashi, H. J. Park, & T. Conway (Eds.), 37th Annual Pacific Rim International Conference on Disability & Diversity 2022: Conference Proceedings [Feature Issue]. Review of Disability Studies, 18(3).

Individuals with disabilities are often disproportionately affected by disaster. With little research focused on rescue operations impacting individuals with disabilities during large disasters, three themes are reviewed: re-leveling expectations; misunderstanding of triage and crisis medical protocols; and light switch fallacy by responders and individuals with disabilities before, during, and after rescue operations.

Schleck, G., & Ben-Alon, L. (2024). Eco-ableism and access circularity in natural building. Frontiers of Architectural Research. DOI: https://doi.org/10.1016/j.foar.2023.11.005.

The climate crisis disproportionately impacts disabled people. Yet climate-related advocacy, planning, and policymaking often neglect to thoughtfully include disabled people. Responding to this gap, disabled and neurodivergent environmental activists coined the term eco-ableism to describe discrimination and silencing toward disabled and neurodivergent people (i.e., ableism) arising in environmental spaces (i.e., eco-ableism). Relatedly, building operations and construction practices contribute a significant percentage of global, energy-related CO2 emissions annually, which calls into question the relationships between the impending climate crisis, disability justice, and architecture. Climate-specific, natural building materials and methods present a potential pathway toward a more sustainable built future: low-carbon, locally sourced, minimally processed, and nontoxic materials. Despite a critical overlap, there is little published research on material access in the production phase and human access in the occupation phase of natural buildings. Applying eco-ableism and material circularity in an architectural framework, this research aims to investigate the gaps and possibilities of access, natural material applications, and resulting US natural buildings informed by scholarship in critical disability studies and semi-structured interviews with natural building professionals.

Schmidt, J. (2022). Cripping environmental education: Rethinking disability, nature, and interdependent futures. Australian Journal of Environmental Education First View. DOI: https://doi.org/10.1017/aee.2022.26.

“In this article, I call for a cripping of environmental education as a necessary move in shifting away from the field’s current conceptions of disability as defect and deficiency, and towards disrupting the structures and processes that operate as normalizing technologies within ableism/sanism. Through an examination of the ways that the field of environmental education has/has not engaged critical disability politics, I illuminate how disability is not often included within environmental education literature. When it is, it is often through the use of disability as metaphor or through recommendations for best practices in accommodating disabilities. More often though within environmental education, disability has operated as a hidden curriculum, underpinning much of the field’s curricular, pedagogical, and even philosophical foundations. Through a cripping of the field these compulsory able-bodied/able-minded assumptions are made apparent. I suggest that by centering crip bodies and minds through cripistemologies, we might enable new ways of knowing, being in, connecting to, and understanding the natural world.”

Schweik, S. (2017). Agent orange, monsters, and we humans. In H. Davis Taïeb (Ed.), From the Monstrous to the Human [Special Issue]. ALTER, European Journal of Disability Research, 11, 65-77. DOI: https://doi.org/10.1016/j.alter.2016.12.005.

This paper recounts the work of the American artist collective Yelling Clinic, a group of artists who have direct experience of disability and war, in collaboration with Vietnamese disabled artists and activists in Vietnam in 2011. Focusing on the toxic ecological effects of the herbicide Agent Orange, the essay explores the ethics of Agent Orange representation, focusing on a series of art pieces (and the collaborations that produced them) that work not as documentary evidence of the ravages of dioxin, not as an archive of monstrosity, but as vibrant expressions of and within a complex nexus of disability arts cultures.

Seetharaman, K., Mahmood, A., Rikhtehgaran, F., Akbarnejad, G., Chishtie, F., Prescott, M., Chung, A. Mortenson, W. B. (2024) Influence of the built environment on community mobility of people living with visual disabilities: A scoping review. Urban, Planning and Transport Research, 12(1), Article: 2296891. DOI: https//doi.org/10.1080/21650020.2023.2296891.

Understanding how the outdoor environment shapes the community mobility of people with visual disabilities is key to designing an accessible public realm and facilitating their rights to use outdoor spaces. A scoping review was conducted to explore 1) What aspects of the built environment affect the community mobility of persons with visual disabilities? and 2) How does the built environment affect the community mobility of persons with visual disabilities? Forty-three peer-reviewed publications from 2000 to 2022 were included after conducting database searches, screening of articles, and data charting. Studies focused on micro-environmental features related to sidewalks and crosswalks (e.g. landmarks, curbs, curb ramps, tactile warning/guiding surfaces, and accessible pedestrian signals), and broad environmental factors (e.g. neighbourhood amenities and street layout) and their influence on orientation, wayfinding, and safety. The paper discusses the role of the built environment in 1) posing barriers to outdoor mobility (e.g. potholes, poorly designed curb cuts, obstacles at waist-height or eye-level, poor lighting, inadequate pedestrian signal, complicated street layout), and 2) offering cues (e.g. visual, tactile, auditory, olfactory, kinaesthetic) for spatial perception and navigation. Focusing on how the built environment shapes community mobility is necessary to enhance accessibility through urban planning and design and assistive technology.

Selanon, P., & Chuangchai, W. (2023). Improving accessibility to urban greenspaces for people with disabilities: A modified universal design approach. Journal of Planning Literature. DOI: https://doi.org/10.1177/08854122231212662.

Despite the integration of universal design, access to urban greenspaces, which provide multiple health benefits, has been restricted among people with disabilities, particularly in developing countries. This article argues that the sole use of the seven principles of universal design is inadequate for urban greenspace planning as it consistently fails to prevent serious injuries, accommodate multiculturalism, and disregard subjective feelings when addressing people with disabilities. Additional approaches, including a safety strategy, diverse cultural behavior acceptability, and emotional design through landscape naturalness, are considered to improve accessibility, thereby reducing urban health inequalities and achieving an inclusive city.

Shotwell, A. (2016). Against purity: Living ethically in compromised times. Minneapolis: University of Minnesota Press.

In Against Purity, Alexis Shotwell proposes a powerful new conception of social movements as custodians for the past and incubators for liberated futures. Against Purity undertakes an analysis that draws on theories of race, disability, gender, and animal ethics as a foundation for an innovative approach to the politics and ethics of responding to systemic problems.

Slopek, C. (2021). Aboriginal speculations: Queer rhetoric, disability, and interspecies conviviality in The Interrogation of Ashala Wolf. In B. Burger, D. Kern, & L. Mattila (Eds.), Gender and Sexuality in Australian Speculative [Special Issue]. gender forum Issue 81.

The Anthropocene looms large in the 21st century, and queer and disabled people continue to be exposed to harassment and discrimination. What do these issues have in common, though? In Ambelin Kwaymullina’s speculative fiction novel The Interrogation of Ashala Wolf (2012), queer discourse collaborates with, promotes, and diversifies a non-anthropocentric world order, simultaneously implicating a dis-/ability dialectic. This article brings together queer, disability, interspecies studies and literary analysis to explore how Kwaymullina’s young adult novel creates links between queerness and interspecies relations and how disability comes into play. The rhetoric used against children with so-called special abilities in the novel, who come to occupy the structural position of the queer in Kwaymullina’s narrative at the expense of those living with disabilities, as well as the role interspecies conviviality plays for future community construction are focal points of the article. For the latter part, in particular, this article draws on Aboriginal knowledge systems to explore how The Interrogation of Ashala Wolf weaves these marginalised epistemologies into literature and thus changes the field of speculative fiction.

Smith, A. F. (2021). Surviving sustainability: Degrowth, environmental justice, and support for the chronically ill. The Journal of Philosophy of Disability, 1, 175-199. DOI: https://doi.org/10.5840/jpd20217263.

The quest for ecological sustainability—specifically via prioritizing degrowth—creates significant, often overlooked challenges for the chronically ill. I focus on type-1 diabetes, treatment for which depends on nonrenewables and materials implicated in the global proliferation of toxins that harm biospheric functions. Some commentators suggest obliquely that seeking to develop ecologically sustainable treatments for type-1 shouldn’t be prioritized. Other medical concerns take precedence in a post-carbon world marked by climate change and widespread ecological devastation. I challenge this view on three grounds. Its proponents (i) fail to treat type-1 as the public health issue it is, particularly within the context of what Sunaura Taylor calls disabled ecologies. They (ii) deny persons with type-1 an equal opportunity to pursue survival. And they (iii) presume without warrant that treating type-1 is an all-or-nothing affair. Indeed, research by biohackers points to suboptimal but potentially workable ways to make type-1 survivable in a post-carbon future—so long, I stress, as their findings are cripped in a manner that foregrounds the demands of environmental justice.

Socha, K. A., Bentley, J. K. C., & Schatz, J. L. (Eds.). (2014, May).  Eco-Ability the Intersection of Earth, Animal, and Disability [Special Issue]. Journal for Critical Animal Studies, 12(2). Retrieved from: http://www.criticalanimalstudies.org/volume12-issue-2-2014/.

“This special issue focuses on eco-ability, which ‘explore[s] the intersection of dis-ability studies, environmental awareness, and nonhuman animal liberation'” (p. 1).

This issue includes the following articles and reviews:

  • An Introduction to Eco-Ability: The Struggle for Justice, with Focus on Humans with Disabilities and Nonhuman Animals
  • An Interview with Sunaura Taylor
  • Grace for a Cure: Poisoned Ethics and Disabled-Nonhuman Images
  • Foreignness and Animal Ethics: A Secular Vision of Human and Constructed Social Disability
  • Applying the Argument from Marginal Cases to the Protection of Animal Subjects in Research: A Blueprint for Studying Nonhuman Animals in a Post-vivisection World
  • Intersectionality and the Nonhuman Disabled Body: Challenging the Neocapitalist Techno-scientific Reproduction of Ableism and Speciesism
  • Animal Crips
  • Ability Privilege: A Needed Addition to Privilege Studies
  • As the World Burns: 50 Simple Things You Can Do to Stay in Denial (2007)
  • Avatar (2009) and District 9 (2009) – Animals, Aliens, and (Dis)abled Bodies: A Post-structural, Comparative Analysis

Spielhagen, A.,Hernández, L. H., & Blevins, M. (2021, October 21). “My dude, are you tired? I’m tired:” An intersectional nethodological intervention. Frontiers in Communication, Sec. Science and Environmental Communication, 6(722465). DOI: https://doi.org/10.3389/fcomm.2021.722465.

This manuscript is a methodological intervention that addresses ethical considerations associated with conducting research in outdoor spaces, particularly with communities of color and other marginalized communities. The core issue is that BIPOC individuals, LGBTQIA + individuals, and disabled individuals face discrimination and violence in outdoor/recreational spaces. By investigating these issues, scholars can intensify the problem. We hope that our perspectives can assist ethical decision-making processes in methodology, advocacy, and interaction with outdoor communities of color.

Stavrianos, A., & Pratt-Adams, S. (2022, June). Representations of the benefits of outdoor education for students with learning disabilities: A thematic analysis of newspapers. Open Journal of Social Sciences, 10(6), 256-268. DOI: https://doi.org/10.4236/jss.2022.106020.

Outdoor Education (OE) has been described as an education taking place in a natural environment where the students learn about their natural surroundings (Torkos, 2017). Outdoor education was one of the precursors of Environmental Education (EE). Outdoor education is a non-formal education and is classified as an educational approach which occurs outside the classroom and with a wide range of subjects such as the natural environment, culture, mathematics, music, physical science. This study adopts a qualitative paradigm in order to explore the integration of Outdoor Education in the philosophy of inclusion. Eight newspaper articles representing stances and opinions of stakeholders in education, were thematically analysed into explore popular representations of benefits of outdoor education for students with learning difficulties. The themes which emerged from the data were: an active attitude towards learning, a holistic approach—transferable benefits, Inclusion, Edutainment, and Experiential Learning. The key themes identified, indicate that learners within an outdoor education context seem to be active participants of the learning process. Moreover, outdoor education is expandable to the learners’ environments, while it seems that academically and/or socially less able pupils in particular, can benefit out of outdoor education.

Stein, P. J. S,. & Stein, M. A. (2022, January). Comment: Climate change and the right to health of people with disabilities. The Lancet Global Health, 10(1), e24-e25. DOI: https://doi.org/10.1016/S2214-109X(21)00542-8.

“Climate change exacerbates existing inequalities with indirect disproportionate effects on people with disabilities due to their lack of access to health-care services and increased exposure to social determinants of health such as poverty, and lack of access to education, employment, or adequate housing” (p. e24).

Stein, P.J.S., & Stein, M. A. (2022, February). Disability, human rights, and climate justice. Human Rights Quarterly, 44(1), 81-110. DOI: https://doi.org/10.1353/hrq.2022.0003.

The universally dire threat of climate change disproportionately affects marginalized populations, including the over one billion persons with disabilities worldwide. States that disregard the Paris Agreement, or exclude disabled persons from climate change mitigation and adaptation efforts, are violating agreed-upon human rights obligations. Notably, the rights contained in the UN Convention on the Rights of Persons with Disabilities, are threatened by climate change. To date, however, disability has largely been excluded from international climate change negotiations as well as national-level discharge of climate-related measures. By contrast, a disability human rights approach views disabled persons as disproportionately experiencing environmental threats and unnatural disasters due to their exclusion from state laws, policies, and services available to their non-disabled peers. Additionally, a disability human rights approach mandates the removal of exclusionary barriers and the implementation of positive measures to ensure the equitable treatment of individuals with disabilities. Achieving disability-inclusive climate justice requires “participatory justice”—empowering persons with disabilities to ascertain climate mitigation and adaptation approaches that are efficacious for, successfully implementable by, and accountable to disabled people. Disability-inclusive climate justice solutions are in synergy with universal climate justice goals and benefit entire societies, not “only” those with disabilities.

Stein, P. J. S., Stein, M. A., Groce, N., & Kett, M. 2023). The role of the scientific community in strengthening disability-inclusive climate resilience. Nature Climate Change, 13, 108–109. DOI: https://doi.org/10.1038/s41558-022-01564-6.

Despite the trajectory towards climate catastrophe, governments are failing to take disability-inclusive climate action. We discuss how the scientific community could advance and hasten the development of disability-inclusive climate resilience, and which areas should be prioritized.

Stone, K. (2024). The earth’s prognosis: Doom and transformation in game design. In L. op de Beke, J. Raessens, S. Werning, & G. Farca (Eds.), Ecogames: Playful Perspectives on the Climate Crisis (pp. 447-462). Amsterdam: Amsterdam University Press. DOI:  https://doi.org/10.5117/9789463721196_ch21.

This chapter describes the design of four games created by the author: Ritual of the Moon (2019), Humaning (2017), the earth is a better person than me (2018), and UnearthU (2022). Each of these games portray aspects of physical and emotional transformation, and the way that transformation may come about through varied connections to the environment fostered primarily through gameplay accessing the player’s imagination. The paper puts together disability studies scholarship with ecocriticism to analyze the common affects of the climate crisis, such as despair, anxiety, and doom through the lens of game creation.

Tamopubolon, G. (2023, January). Climate justice for persons with disability: Few harmed much, fewer still harmed too much [WIDER Working Paper 2023/2]. Helsinki: United Nations University World Institute for Development Economics Research (UNU-WIDER). DOI: https://doi.org/10.35188/UNU-WIDER/2023/310-9.

Building on Rawls’ theory of justice and Sen’s theory of capabilities, I present an outline of social justice under climate shocks, illustrating it with the experiences of persons with disability. Social justice holds when inequality is responded to by rules that afford more primary goods, such as rights and incomes, to those who have less—the maximin principle of the Rawlsian social welfare function. Climate injustice consists in putting more climate bads, not primary goods, on those with slender shoulders—a maximin social ill-fare function. Cross-country climate injustice is a larger instance of this. The developed world has achieved much economic progress (including more primary goods) on the back of burning fossil fuels, which has put the planet on a heating curve that puts massive climate bads on lives and livelihoods today and in future. Most of these bads are put on the shoulders of developing countries. This work addresses within-country climate injustice, such as when persons with disability shoulder extra losses in capabilities, especially being without drinking water for 24 hours. The significant capability losses estimated to have been endured by persons with disability in Indonesia in 2018 and 2020 should inform a more enlightened and socially just response to climate injustice so that, along a just transition, few are harmed much, fewer still harmed too much.

Tatano, V., & Revellini, R. (2023). Excluded bodies: The body dimension of disability in the project for environmental accessibility. In P. Franzo & C. Scarpitti (Eds.), Bodies and Care [Special Issue]. OFFICINA: Quarterly Journal of Architecture, Technology and Environment No. 41. DOI: https://doi.org/10.57623/2384-9029.2023.41.52-61.

Barriers in cities and public spaces limit the autonomy of movement and life of people with physical disabilities. In this way, discrimination is more evident and fosters ableism, an ever-expanding approach that tends to favour bodies that can perform and develop as autonomous and self-sufficient entities, while discriminating those that do not correspond to standards arbitrarily set by society.

The paper focuses its attention to the body dimension of disability and its role concerning projects for environmental accessibility, to overcome the dualism between “able” bodies and “dis-abled” bodies and aims at the construction of buildings and spaces for real bodies.

Taylor, S. (2017). Beasts of burden: Animal and disability liberation. New York: The New Press.

How much of what we understand of ourselves as ‘human’ depends on our physical and mental abilities—how we move (or cannot move) in and interact with the world? And how much of our definition of ‘human’ depends on its difference from ‘animal’? Drawing on her own experiences as a disabled person, a disability activist, and an animal advocate, author Sunaura Taylor persuades us to think deeply, and sometimes uncomfortably, about what divides the human from the animal, the disabled from the nondisabled—and what it might mean to break down those divisions, to claim the animal and the vulnerable in ourselves, in a process she calls ‘cripping animal ethics.’ Beasts of Burden suggests that issues of disability and animal justice—which have heretofore primarily been presented in opposition—are in fact deeply entangled. Fusing philosophy, memoir, science, and the radical truths these disciplines can bring—whether about factory farming, disability oppression, or our assumptions of human superiority over animals—Taylor draws attention to new worlds of experience and empathy that can open up important avenues of solidarity across species and ability.

Taylor, S. (2019). Disability and Interdependence. In S. King, R. S. Carey, I. Macquarrie, V. N. Millious & E. M. Power (Eds.), Messy eating: Conversations on animals as food (pp. 143-156). New York: Fordham University Press.

Even as a young child, Sunaura Taylor, now an artist, activist, and disability and animal studies scholar, understood that humans, animals, and the environment are intensely interconnected. Taylor’s ecological orientation is not simply an intellectual focus but rather a set of political beliefs she endeavors to embody in her everyday life, though she admits that doing so is rarely easy. Taylor’s work demands that audiences rethink the worthiness of vulnerability, of dependency, and of interdependency, particularly as these concepts speak to shared experiences among all living organisms in times of environmental turmoil and fragility.

United Nations General Assembly, Human Rights Council. (2020, April). Analytical study on the promotion and protection of the rights of persons with disabilities in the context of climate change: Report of the Office of the United Nations High Commissioner for Human RightsNew York: Author.

“The present analytical study is submitted pursuant to Human Rights Council
resolution 41/21. In the report, the impacts of climate change on persons with disabilities are examined; human rights obligations and the responsibilities of States and other actors in relation to disability-inclusive approaches identified; and good practices shared. The report ends with conclusions and recommendations” (p. 1).

An easy-read version of the report is also available.

Wall-Reinius, S., Kling, K. G., & Ioannides, D. (2022). Access to nature for persons with disabilities: Perspectives and practices of Swedish tourism providers. Tourism Planning & Development Online First. DOI: https://doi.org/10.1080/21568316.2022.2160489.

Despite the growing popularity of outdoor recreation, nature is not equally accessible to everyone. In the case of persons with disabilities, access to nature remains a largely under-researched area, especially in terms of the role of private and public providers of products and facilities for a diverse range of visitors. This study investigates the challenges and opportunities for developing inclusive forms of accessible nature-based tourism in three different natural settings in Sweden. By focusing on the supply side of nature-based tourism, we examine views and practices in providing inclusive activities and environments. Despite growing stakeholder interest in accessible nature-based tourism, our findings reveal several challenges, including limited knowledge about the consumers, lack of financial resources and long-term planning, and the absence of a holistic accessibility perspective. We discuss these challenges and propose that they can be collectively met through increased stakeholder collaboration for creating accessible nature-based tourism.

Walters, S. (2014). Unruly rhetorics: Disability, animality, and new kinship compositions. PMLA, 129(3), 471-477. DOI: https://doi.org/10.1632/pmla.2014.129.3.471.

“As intersections among rhetoric and composition, disability studies, and animal studies evolve, it will be necessary to develop ways of valuing the unruliness of interspecies- kinship compositions and to foster theories and practices for exploring them” (p. 476-477).

White, M. (2022). Greta Thunberg is ‘giving a face’ to climate activism: Confronting anti-feminist, anti-environmentalist, and ableist Memes. Australian Feminist Studies. DOI: https://doi.org/10.1080/08164649.2022.2062667.

Anti-feminists, anti-environmentalists, and ableists use memes of activist Greta Thunberg, especially representations of her face, to angrily depict her as irrational and a monster. Participants in these interlinked groups create straw versions of feminist activists and distinguish men’s purported rational development of civilisation from emotional girls, women, and nature. Individuals perform such contemptuous operations, as I argue throughout this article, by misrepresenting Thunberg’s climate and feminist platform and shifting the debate from her environmental advocacy to her embodiment and emotions. I closely read these texts and employ academic literature on anti-feminisms, straw arguments, and straw feminisms to suggest how anti-feminists render simplified figurations. Given my consideration of how anti-feminist, anti-environmentalist, and ableist positions are enmeshed in dismissing Thunberg’s activism and physiognomy, I also outline environmental scholarship that addresses gender and disability studies literature on Asperger syndrome and enfreakment. These are complicated critical gestures, but they are necessary since the over 3,000 memes that I studied, and the associated politics, function by simultaneously dismissing girls, women, feminism, the environment, and people with disabilities. Such an analysis of online texts is pressing since anti-feminisms are designed to disqualify feminist thinking about oppression and the vitality of feminist dialogues with related political movements.

Wolbring, G. (2019, October 21). A culture of neglect:  Climate discourse and disabled people. In A. Gorman-Murray & G. Gordon Waitt (Eds.), Climate [Feature Issue]. M/C Journal, 12(4). DOI: https://doi.org/10.5204/mcj.173.

“The scientific validity of climate change claims, how to intervene (if at all) in environmental, economic, political and social consequences of climate change, and the adaptation and mitigation needed with any given climate change scenario, are contested areas of public, policy and academic discourses. For marginalised populations, the climate discourses around adaptation, mitigation, vulnerability and resilience are of particular importance. This paper considers the silence around disabled people in these discourses.”

Wolbring, G. (2013). Ecohealth through an ability studies and disability studies lens. In M. K. Giaslason (Ed.), Ecological Health: Society, Ecology and Health [Vol. 15], (pp. 91-107).  Emerald: London, UK. Available: http://hdl.handle.net/1880/49856.

Purpose – The goal of this chapter is to cultivate interest in the societal dynamic of ability expectations and ableism, a dynamic first thematized by the disabled people rights movement but which is also broadly applicable to the study of the relationship between humans, animals, and environments. Another aim of this chapter is to think about disabled people within ecosystem approaches to health through the ableism framework and to show that insights gained from disability studies are applicable to a broader study of health within contexts of environmental degradation. Building from this approach, the reader is invited to consider the utility of the conceptual framework of eco-ability ‘expectations’ and eco-ableism as a way to understand health within coupled social- ecological systems. Methodology/approach – This chapter uses an ability expectation and ableism lens and a disability studies and ability studies approach to analyze the relationship between humans, animals, and environments. Findings – Certain ability expectations and ableism are responsible for (a) the invisibility of disabled people in ecological health discourses; (b) the standoff between anthropocentric and biocentric/ecocentric approaches to health; and (c) the application of scientific and technological advancements to address problems arising out of current relationships between humans, animals, and environments. Originality/value of chapter – The reader is introduced to the concepts of ableism and eco-ableism, which have not yet been used in EcoHealth discourses and flags the need for further engagement with disability issues within the field.”

Wong, A. (2019). The rise and fall of the plastic straw: Sucking in Crip defiance. In K. Fritsch, A. Hamraie, M. Mills, & D. Serlin (Eds.), Special Section on Crip Technoscience. Catalyst: Feminism, Theory, Technoscience, 5(1), 1-12. DOI: https://doi.org/10.28968/cftt.v5i1.30435.

A personal essay on the recent efforts to ban single use plastic straws, and how this ban is problematic for disabled people.

Wong, S., Rush, J., Bailey, F., & Just, A. C. (2023). Accessible Green Spaces? Spatial Disparities in Residential Green Space among People with Disabilities in the United States. Annals of the American Association of Geographers, 113(2), 527-548. DOI: https://doi.org/10.1080/24694452.2022.2106177.

This article presents new quantitative results on the distribution of residential green space for people with disabilities in the United States, building on and bridging scholarly research in two distinct domains: one involving approaches that quantify disparities in green space access among racialized minorities and socioeconomically disadvantaged groups, and the other using qualitative methods that demonstrate that most green spaces remain inaccessible and unwelcoming to disabled visitors. Using generalized additive models (GAMs) that controlled for demographic factors and climatological characteristics, we find that residential areas with more green space generally have a higher proportion of disabled residents. The statistical results run counter to expectations from the literature, thus complicating the prevailing narrative and indicating a need for mixed-methods research to examine multiple dimensions of access and environmental justice. Using cluster analysis to assess spatial trends, we detect residential clusters of high disability and low green space and find that they are located in predominantly non-White, urban, and more socioeconomically disadvantaged neighborhoods compared to clusters of high disability and high green space. Cluster analysis results suggest that there are inequities in green space access at the intersection of disability, race, and class, as well as across the urban–rural continuum.

The World Bank. (2023, October). Climate Change and Disability Inclusion in Uzbekistan. DOI:
https://doi.org/10.1596/40538. Washington, DC: Author.

The impacts of climate change will be unevenly felt within and across countries partly due to social and economic inequalities. Persons with disabilities represent 16 percent of the global population and face widespread forms of social and economic marginalization yet have received little attention in prior studies of climate change and social inequality. The mortality rate of persons with disabilities in natural disasters is “up to four times higher than people without disabilities” (Stein and Stein 2021). How do the fast-moving shocks, flooding, drought, heatwaves and slower-moving social and economic effects of climate change impact persons with disabilities How can climate change adaptation efforts be disability inclusive This study examines these questions through original fieldwork and qualitative interviews conducted in Uzbekistan. In November 2022, the authors interviewed persons with disabilities in three regions of the country. The resulting qualitative data afford key insights into how climate change and disability status interact to generate distinct vulnerabilities. Within the nascent field of climate change and disability studies, this report represents one of the first fieldwork-based accounts of how climate change presents heightened risks to persons with disabilities in a developing country context.

Ziarkowska, J. (2022). Cherishing the Impaired Land: Traditional Knowledge and the Anthropocene in the Poetry of Gwen Westerman. In M. Premoli & D. Carlson (Eds.), Indigeneity and the Anthropocene II [Special Issue]. Transmotion, 8(1). DOI: https://doi.org/10.22024/UniKent/03/tm.1007.

In the article I propose to read the work of Sisseton Wahpeton Oyate poet Gwen Westerman from the perspective of environmental humanities and disability studies. Following the insights of Heather Davis and Zoe Todd, I would like to indigenize the field by emphasizing the importance of traditional Indigenous knowledge in the responses to the effects of the Anthropocene. In Westerman’s poetry, the Anthropocene and the accompanying destruction of the environment begin with settler colonialism, which has more serious consequences than the ecological crisis: the loss of traditional lifestyles, foodways, and languages. If Westerman’s speakers believe in Indigenous survival, it can be found in the preservation of traditions and attention to/care for the land that is polluted, altered, and in pain. The emphasis on the need to return the land to the state of balance stands in sharp contrast with the way the discourse of capitalism describes the polluted environment as overexploited, useless, and “impaired.” As Sunaura Taylor has eloquently argued in her presentation “Disabled Ecologies: Living with Impaired Landscapes”, such a use of the “impaired” modifier demonstrates the extent to which Western preoccupation with and privileging of ableism – able bodies which are productive under capitalism – has penetrated thinking about damaged environments. Again, in Westerman’s work, “impairment” is an invitation to  a relationship with the land and its human, non-human, and inanimate beings. The condition of environmental change and pollution necessitates a new understanding of this relationship rather than its abandonment due to the capitalist logic of profit accumulation.

Zúñiga, D (2020). To think and act ecologically: The environment, human animality, nature.  Critical Review of International Social and Political Philosophy Online Before Print. DOI: https://doi.org/10.1080/13698230.2020.1772605.

Much work in care ethics and disability studies is concerned with the flourishing of human animals as an independent species. As a result, it focuses on how the built environments and the social structures that produce them restrict and exclude us. This paper addresses this problem and provides tentative first steps towards sketching an account of ethics that is structured around the interdependent nature of human and more than human life. I argue that our embodied existence places us in a shared condition of vulnerability with all forms of life on earth. This allows us to conceive of caring as an essential condition of the sustainability and well-being of social and ecological life systems. To this end, I discuss the notion of anthropocentrism – and the attendant notion of Anthropocene – and argue that the conception of human animality that underwrites it posits a disembodied and homogenous ‘anthropos’ that is equally responsible for and equally affected by unsustainable social systems. Further, I examine the debate that opposes realist and constructivist accounts of nature, and I argue that it is inadequate to look at nature through the lenses of the predatory social systems that are responsible for ecological injustices in the first place.

University of Leeds UK Inclusive Public Spaces Project

Project Sponsor: European Research Council

Project Summary

The Inclusive Public Space project is a global interdisciplinary research effort that explores the social justice problems caused by city streets that limit access for some pedestrians and the ways law and governments respond to them. The project focuses specifically on pedestrians with disabilities who may have difficulties using the pedestrian paths because of the way streets are designed, managed, or maintained. Poor maintenance, uneven surfaces, potholes, poor lighting, and other streetscape structures also create barriers.

Goals and Objectives

  • To understand, via interviews, how exclusion affects the lives of people with disabilities;
  • to understand how law influences the inclusiveness of public spaces; and
  • to raise awareness of the impact of exclusionary spaces.

Project Personnel

Key Collaborating Organizations

European Research CouncilUniversity of Leeds

Resources

Peter Blanck’s commentary about GUDC Universal Design Certification of Grand Rapids Michigan YMCA featured in Architectural Record

April 14, 2016

Most architects would agree that universal design is important. But resources and incentives for creating inclusive environments haven’t always been widely available. To remedy that, the GUDC has developed a universal design certification standard. Based on a decade of research, stakeholder consultation, and testing, the certification standard is scheduled to launch later this year. Continue Reading

Peter Blanck and Universal Design Featured in International Numbers Magazine

April 12, 2016

Universal Architectural Design and People with Disabilities

Universal Design (UD) in the built environment benefits everyone–women and men, older adults and children, people with disabilities and those without, people using different languages. The Global Universal Design Commission (GUDC), along with the architecture and design, development, and disability and aging communities, is accelerating adoption of UD concepts. Continue Reading