Honoring the Life and Work of Judy Heumann

Source: Southeast ADA Center and the Burton Blatt Institute at Syracuse University (BBI)

Judith “Judy” Heumann

Judy HeumanFew individuals in the disability rights and justice movement had the impact of our friend, colleague, and collaborator, Judy Heumann. The Southeast ADA Center, the Burton Blatt Institute, and the Disability Inclusive Employment Policy Rehabilitation Research and Training Center (RIEP RRTC) join with disability rights organizations across the country and around the world in expressing our sorrow at her passing. Our thoughts are with Judy’s husband Jorge and with her family and friends in this difficult time. We have included below a list of memorials and remembrances of Judy, as well as links to our past collaborations with her, including her Section 504 at 50 interview and her guest episodes on our ADA Live! podcast. Continue Reading

New ADA Live podcast! Episode 115: Living Well with Kidney Disease

In recognition of National Kidney Month in March, learn about kidney disease and your health, kidney transplants, and kidney donors. Our guest is Dr. Frita McRae Fisher, M.D., a board-certified physician and nephrologist with Midtown Nephrology, P.C., in Atlanta, Georgia. Dr. Frita is also a member of the Georgia National Kidney Foundation Board of Directors.

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BBI Evaluates an Innovative Approach to Psychiatric Advanced Directives across Seven California Counties

The Orange County, California Health Care Agency has contracted with BBI to conduct a four – year evaluation of an innovative web-based platform supporting the availability and accessibility of Psychiatric Advanced Directives (“PADs”) used by persons with mental health challenges. PADs are a form of self-determination that results in the creation of a legal document specifying a person with mental health challenges’ preferences for treatment and support when they are unable to make their own decisions. Continue Reading

Isabel Torrence Joins the BBI Team as a Research Associate

Isabel TorrencIsabel Torrence, BA, has joined the Burton Blatt Institute (BBI) at Syracuse University a Research Associate. She will help implement BBI’s evaluation of new technology supporting access and use of psychiatric advanced directives (PADs) across seven California counties. Isabel has been a BBI Research Assistant since 2021 and she worked on projects related to Supported Decision Making for people with intellectual and developmental disabilities.

Ms. Torrence has experience in conducting both human rights studies and research on equity and inclusion for people with disabilities that are particularly relevant to the California PADs evaluation.

New ADA Live podcast! Episode 113: Stories of Parenting with a Disability

The American social reformer and clergyman Henry Ward Beecher once said, “We never know the love of a parent till we become parents ourselves.” Families come in many forms and in the United States, nearly 10% of children live with a parent with a disability.

Join us for an engaging conversation on parenting with a disability and a new book on the topic, “A Celebration of Family: Stories of Parents with Disabilities,” with our four guests

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Katherine McDonald – BBI Faculty Fellow, Associate Dean of Research – Falk College of Sport and Human Dynamics Interview “Adults With Intellectual Disabilities Often Excluded From Clinical Trials, Research Finds”

Scientific breakthroughs aren’t possible without the painstaking process of clinical trials. So what happens when many of those trials leave out large portions of the population? Katherine McDonald, a professor of public health and associate dean of research in the Falk College of Sport and Human Dynamics, set out to answer that question in her latest research paper: “Eligibility criteria in NIH-funded clinical trials: Can adults with intellectual disabilities get in?”  published in the Disability and Health Journal. Continue Reading