Genetic Discrimination: Transatlantic Perspectives on the Case for a European Level Legal Response - New Book Release!
December 9, 2014
Edited by Gerard Quinn, Aisling de Paor, Peter Blanck
As genetic technologies advance, genetic testing may well offer the prospect of detecting the onset of future disabilities. Some research also forwards that certain behavioural profiles may have a strong genetic basis, such as the determination to succeed, or the propensity for risk-taking. As this technology becomes more prevalent, there is a danger that genetic information may be misused by third parties and that particular genetic profiles may be discriminated against by employers, by providers of social goods and services, such as insurance companies and even by educational facilities.
This book explores the different forms and potential uses of genetic testing. Drawing together leading experts in disability law, bioethics, health law and a range of related fields, it highlights the ethical and legal challenges arising as a result of emerging and rapidly advancing genetic science. On examining transatlantic perspectives on the matter, chapters in the book ask whether the US Genetic Information Nondiscrimination Act (GINA) is proving to be an effective tool in addressing the issue of genetic discrimination and alleviating fears of discrimination. The book also reviews what insights may be gained from GINA within employment and health insurance contexts, and asks how the UN Convention on the Rights of Persons with Disabilities (CRPD) may impact similar debates within the European Union. The book focuses particularly on the legislative and policy framework in the European Union, with an emphasis on the gaps in protection and the scope for specific legislative action in this area.
This book will be of great interest to scholars and students of discrimination law, bioethics and disability law, and will be of considerable use to legal practitioners, medical practitioners and policy-makers in this area.
Gerard Quinn is Director of the Centre for Disability Law and Policy, National University of Ireland, Galway.
Aisling de Paor is Irish Research Council Scholar at the Centre for Disability Law and Policy, National University of Ireland, Galway.
Peter Blanck is University Professor and Chairman of the Burton Blatt Institute at Syracuse University College of Law, USA.
PUBLICATION CELEBRATIONLaunch by Marian Harkin MEP
Genetic Discrimination Book Launch with authors Gerard Quinn and Aisling de Paor
Genetic Discrimination book launch
Remembering George H.W. Bush as a champion for those with disabilities
BBI international Fellow Paul Harpur awarded Fulbright for BBI residence
BBI Chairman Peter Blanck Appointed to Syracuse University Search Committee for Chief Diversity Officer
BBI Chairman Peter Blanck to Keynote ADA for State and Local Governments Conference in Atlanta
Disability Studies Scholar Ralph Savarese to Give Reading at Syracuse University